Far from the Tree: Parents, Children, and the Search for Identity


Andrew Solomon - 2012
    He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.

In the Little World: A True Story of Dwarfs, Love, and Trouble


John H. Richardson - 2001
    Kopits takes me into an examining room and leans against the stainless steel bench and asks me what I'm writing about this time. When I tell him what I saw in Australia, he immediately starts to nod. "This is a great subject," he says. Then he stops, as if caught by the subject himself.I wait.After a moment, he continues. "What you are looking into is the abyss. This takes you to the very heart of a human being, to the deepest aspect of the soul.He gives me one of his solemn looks. "Because the thing is, you have to confront yourself."(from In the Little World) In 1997, almost by accident, John H. Richardson found himself sharing a hotel with more than a thousand dwarfs. Over the course of a single week, he witnessed love and anger, fear and bravery, arrogance and humility, even a bizarre romantic deception -- the entire spectrum of human emotion in one concentrated dose. But at the end of the week, he discovered that leaving the "Little World" wasn't as simple as checking out of a hotel. In fact, his journey would last a full two years.At a time when bigger often seems synonymous with better, and physical beauty serves as currency, the world of dwarfs usually passes beneath our notice. Now, in this groundbreaking work, awardwinning author John H. Richardson brings the Little World into focus.He introduces us to characters like a saintly but obsessed doctor and a mother who sacrifices her family to save her dwarf daughter. He follows two dwarf lovers from first meeting through the struggle to overcome their fear and shame and find the confidence to love each other. He becomes personally involved in a tangled and often confrontational friendship with a female dwarf. Through these stories and musings ranging from classic theories of beauty to the history of the disability movement to postmodern theories of difference, Richardson presents a world that is a skewed reflection of our own -- and offers us a glimpse into the essential human condition.

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity


Steve Silberman - 2015
      Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

Beauty is a Verb: The New Poetry of Disability


Jennifer Bartlett - 2011
    Crip Poetry. Disability Poetry. Poems with Disabilities. This is where poetry and disability intersect, overlap, collide and make peace."[BEAUTY IS A VERB] is going to be one of the defining collections of the 21st century...the discourse between ability, identity & poetry will never be the same." —Ron Silliman, author of In The American Tree"This powerful anthology succeeds at intimately showing...disability through the lenses of poetry. What emerges from the book as a whole is a stunningly diverse array of conceptions of self and other.”—Publishers Weekly, starred reviewFrom "Beauty and Variations" by Kenny Fries:How else can I quench this thirst? My lipstravel down your spine, drink the smoothnessof your skin. I am searching for the core:What is beautiful? Who decides? Can the lawsof nature be defied? Your body tells me: comeclose. But beauty distances even as it drawsme near. What does my body want from yours?My twisted legs around your neck. You bendme back. Even though you can't give the bonesat birth I wasn't given, I let you deep inside.You give me—what? Peeling back my skin, youexpose my missing bones. And my heart, longbefore you came, just as broken. I don't know whoto blame. So each night, naked on the bed, my bodydoesn't want repair, but longs for innocence. Ifinnocent, despite the flaws I wear, I am beautiful.Sheila Black is a poet and children's book writer. In 2012, Poet Laureate Philip Levine chose her as a recipient of the Witter Bynner Fellowship.Disability activist Jennifer Bartlett is a poet and critic with roots in the Language school.Michael Northen is a poet and the editor of Wordgathering: A Journal of Poetics and Disability.

Deviant Behavior


Alex Thio - 1978
    Deviant Behavior covers a wide spectrum of theories of deviance, and analyzes numerous specific deviant behaviors. The author uses an abundance of research data, including many that debunk our common assumptions about deviant behavior. Students are exposed to the full range of theories and data about deviance, and are challenged to think about and evaluate their own biases and preconceptions.

Disability and the Gospel: How God Uses Our Brokenness to Display His Grace


Michael S. Beates - 2012
    Now, as more families like Michael's are affected by a growing number of disorders and difficulties ranging from autism to food allergies, the need for programs and paradigm shifts is greater than ever. Beates thus seeks to motivate churches to pursue ministry to children and adults with developmental disabilities. He works through key Bible passages on brokenness and disability to develop helpful principles for believers and churches, teaching them first to embrace their own brokenness and then to embrace those who are more physically and visibly broken.

Camouflage: The Hidden Lives of Autistic Women


Sarah Bargiela - 2019
    This graphic novel offers an engaging and accessible insight into the lives and minds of autistic women, using real-life case studies.The charming illustrations lead readers on a visual journey of how women on the spectrum experience everyday life, from metaphors and masking in social situations, to friendships and relationships and the role of special interests.Fun, sensitive and informative, this is a fantastic resource for anyone who wishes to understand how gender affects autism, and how to create safer supportive and more accessible environments for women on the spectrum.

Divergent Mind: Thriving in a World That Wasn't Designed for You


Jenara Nerenberg - 2020
    Being a journalist, she dove into the research and uncovered neurodiversity—a framework that moves away from pathologizing “abnormal” versus “normal” brains and instead recognizes the vast diversity of our mental makeups. When it comes to women, sensory processing differences are often overlooked, masked, or mistaken for something else entirely. Between a flawed system that focuses on diagnosing younger, male populations, and the fact that girls are conditioned from a young age to blend in and conform to gender expectations, women often don’t learn about their neurological differences until they are adults, if at all. As a result, potentially millions live with undiagnosed or misdiagnosed neurodivergences, and the misidentification leads to depression, anxiety, low self-esteem, and shame. Meanwhile, we all miss out on the gifts their neurodivergent minds have to offer.Divergent Mind is a long-overdue, much-needed answer for women who have a deep sense that they are “different.” Sharing real stories from women with high sensitivity, ADHD, autism, misophonia, dyslexia, SPD and more, Nerenberg explores how these brain variances present differently in women and dispels widely-held misconceptions (for example, it’s not that autistic people lack sensitivity and empathy, they have an overwhelming excess of it).Nerenberg also offers us a path forward, describing practical changes in how we communicate, how we design our surroundings, and how we can better support divergent minds. When we allow our wide variety of brain makeups to flourish, we create a better tomorrow for us all.

Life As We Know It: A Father, a Family, and an Exceptional Child


Michael Bérubé - 1996
    When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.

Fundamentals of Clinical Supervision


Janine M. Bernard - 1992
    Due to the overlap of the mental health disciplines and of supervision modalities, the authors have integrated psychology, counseling, marriage and family therapy, and social work contributions into the central themes that dominate the study and practice of clinical supervision. The authors offer a comprehensive look at the supervision relationship that must develop if supervision is to be successful. In doing so, the book serves as a valuable resource for the practitioner as well as the scholar. The authors also address the professional issues of ethical and legal concerns, evaluation, and establishing a productive context for supervision; the practice issues of supervisor training and development; and the research issues affecting both the study and practice of supervision. Appendices offer additional resources. These include materials to assist the readers in training supervisors. They also include selected instruments that might be used by supervision researchers and practitioners. Clinical supervisors.

The Boy Who Loved Too Much: A True Story of Pathological Friendliness


Jennifer Latson - 2017
    It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely—and vastly more successfully. Journalist Jennifer Latson follows Eli over three critical years of his life as his mother, Gayle, must decide whether to shield Eli entirely from the world and its dangers or give him the freedom to find his own way and become his own person. By intertwining Eli and Gayle’s story with the science and history of Williams syndrome, the book explores the genetic basis of behavior and the quirks of human nature. More than a case study of a rare disorder, however, The Boy Who Loved Too Much is a universal tale about the joys and struggles of raising a child, of growing up, and of being different.

Uniquely Human: A Different Way of Seeing Autism


Barry M. Prizant - 2015
    This perspective leads to therapies focused on ridding individuals of autistic symptoms. In Uniquely Human, Dr. Barry M. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate autistic behaviors may actually interfere with important developmental processes.Including inspiring stories and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice, Uniquely Human offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

The Virginia State Colony for Epileptics and Feebleminded: Poems


Molly McCully Brown - 2017
    Haunted by the voices of those committed to the notorious Virginia State Colony, epicenter of the American eugenics movement in the first half of the twentieth century, this evocative debut marks the emergence of a poet of exceptional poise and compassion, who grew up in the shadow of the Colony itself.

Trapped in America's Safety Net: One Family's Struggle


Andrea Louise Campbell - 2014
    She survived—and, miraculously, the baby was born healthy. But that’s where the good news ends. Marcella was left paralyzed from the chest down. This accident was much more than just a physical and emotional tragedy. Like so many Americans—50 million, or one-sixth of the country’s population—neither Marcella nor her husband, Dave, who works for a small business, had health insurance. On the day of the accident, she was on her way to class for the nursing program through which she hoped to secure one of the few remaining jobs in the area with the promise of employer-provided insurance. Instead, the accident plunged the young family into the tangled web of means-tested social assistance. As a social policy scholar, Campbell thought she knew a lot about means-tested assistance programs. What she quickly learned was that missing from most government manuals and scholarly analyses was an understanding of how these programs actually affect the lives of the people who depend on them. Using Marcella and Dave’s situation as a case in point, she reveals their many shortcomings in Trapped in America’s Safety Net. Because American safety net programs are designed for the poor, Marcella and Dave first had to spend down their assets and drop their income to near-poverty level before qualifying for help. What’s more, to remain eligible, they will have to stay under these strictures for the rest of their lives, meaning they are barred from doing many of the things middle-class families are encouraged to do: Save for retirement. Develop an emergency fund. Take advantage of tax-free college savings. And, while Marcella and Dave’s story is tragic, the financial precariousness they endured even before the accident is all too common in America, where the prevalence of low-income work and unequal access to education have generated vast—and growing—economic inequality. The implementation of Obamacare has cut the number of uninsured and underinsured and reduced some of the disparities in coverage, but it continues to leave too many people open to tremendous risk.Behind the statistics and beyond the ideological battles are human beings whose lives are stunted by policies that purport to help them. In showing how and why this happens, Trapped in America’s Safety Net offers a way to change it.

My Dyslexia


Philip Schultz - 2011
    Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.In his moving memoir, Schultz traces his difficult childhood and his new understanding of his early years. In doing so, he shows how a boy who did not learn to read until he was eleven went on to become a prize-winning poet by sheer force of determination. His balancing act—life as a member of a family with not one but two dyslexics, countered by his intellectual and creative successes as a writer—reveals an inspiring story of the strengths of the human mind.