Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying


Maggie Callanan - 1992
    In this moving and compassionate book, hospice nurses Maggie Callanan and Patricia Kelley share their intimate experiences with patients at the end of life, drawn from more than twenty years experience tending the terminally ill. Through their stories we come to appreciate the near-miraculous ways in which the dying communicate their needs, reveal their feelings, and even choreograph their own final moments; we also discover the gifts—of wisdom, faith, and love—that the dying leave for the living to share.Filled with practical advice on responding to the requests of the dying and helping them prepare emotionally and spiritually for death, Final Gifts shows how we can help the dying person live fully to the very end.

On Living


Kerry Egan - 2016
    Instead, she discovered she’d been granted an invaluable chance to witness firsthand what she calls the “spiritual work of dying”—the work of finding or making meaning of one’s life, the experiences it’s contained and the people who have touched it, the betrayals, wounds, unfinished business, and unrealized dreams. Instead of talking, she mainly listened: to stories of hope and regret, shame and pride, mystery and revelation and secrets held too long. Most of all, though, she listened as her patients talked about love—love for their children and partners and friends; love they didn’t know how to offer; love they gave unconditionally; love they, sometimes belatedly, learned to grant themselves. This isn’t a book about dying—it’s a book about living. And Egan isn’t just passively bearing witness to these stories. An emergency procedure during the birth of her first child left her physically whole but emotionally and spiritually adrift. Her work as a hospice chaplain healed her, from a brokenness she came to see we all share. Each of her patients taught her something—how to find courage in the face of fear or the strength to make amends; how to be profoundly compassionate and fiercely empathetic; how to see the world in grays instead of black and white. In this poignant, moving, and beautiful book, she passes along all their precious and necessary gifts.

A Bittersweet Season: Caring for Our Aging Parents--and Ourselves


Jane Gross - 2011
    As painful as the role reversal between parent and child may be for you, assume it is worse for your mother or father, so take care not to demean or humiliate them.Avoid hospitals and emergency rooms, as well as multiple relocations from home to assisted living facility to nursing home, since all can cause dramatic declines in physical and cognitive well-being among the aged.Do not accept the canard that no decent child sends a parent to a nursing home. Good nursing home care, which supports the entire family, can be vastly superior to the pretty trappings but thin staffing of assisted living or the solitude of being at home, even with round-the-clock help.Important Facts:Every state has its own laws, eligibility standards, and licensing requirements for financial, legal, residential, and other matters that affect the elderly, including qualification for Medicare. Assume anything you understand in the state where your parents once lived no longer applies if they move.Many doctors will not accept new Medicare patients, nor are they legally required to do so, especially significant if a parent is moving a long distance to be near family in old age.An adult child with power of attorney can use a parent’s money for legitimate expenses and thus hasten the spend-down to Medicaid eligibility. In other words, you are doing your parent no favor—assuming he or she is likely to exhaust personal financial resources—by paying rent, stocking the refrigerator, buying clothes, or taking him or her to the hairdresser or barber.

Happiness Is a Choice You Make: Lessons from a Year Among the Oldest Old


John Leland - 2018
    But the elders he met took him in an entirely different direction. Despite disparate backgrounds and circumstances, they each lived with a surprising lightness and contentment. The reality Leland encountered upended contemporary notions of aging, revealing the late stages of life as unexpectedly rich and the elderly as incomparably wise.Happiness Is a Choice You Make is an enduring collection of lessons that emphasizes, above all, the extraordinary influence we wield over the quality of our lives. With humility, heart, and wit, Leland has crafted a sophisticated and necessary reflection on how to "live better"--informed by those who have mastered the art.

Being Mortal: Medicine and What Matters in the End


Atul Gawande - 2014
    But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering.Gawande, a practicing surgeon, addresses his profession's ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person's last weeks or months may be rich and dignified.

Making Rounds with Oscar: The Extraordinary Gift of an Ordinary Cat


David Dosa - 2009
    A special gift. A life-changing journey. They thought he was just a cat. When Oscar arrived at the Steere House Nursing and Rehabilitation Center in Rhode Island he was a cute little guy with attitude. He loved to stretch out in a puddle of sunlight and chase his tail until he was dizzy. Occasionally he consented to a scratch behind the ears, but only when it suited him. In other words, he was a typical cat. Or so it seemed. It wasn't long before Oscar had created something of a stir. Apparently, this ordinary cat possesses an extraordinary gift: he knows instinctively when the end of life is near. Oscar is a welcome distraction for the residents of Steere House, many of whom are living with Alzheimer's. But he never spends much time with them -- until they are in their last hours. Then, as if this were his job, Oscar strides purposely into a patient's room, curls up on the bed, and begins his vigil. Oscar provides comfort and companionship when people need him most. And his presence lets caregivers and loved ones know that it's time to say good-bye. Oscar's gift is a tender mercy. He teaches by example: embracing moments of life that so many of us shy away from. Making Rounds with Oscar is the story of an unusual cat, the patients he serves, their caregivers, and of one doctor who learned how to listen. Heartfelt, inspiring, and full of humor and pathos, this book allows readers to take a walk into a world rarely seen from the outside, a world we often misunderstand.

Find the Good: Unexpected Life Lessons from a Small-Town Obituary Writer


Heather Lende - 2015
    Now she’s distilled what she’s learned about how to live a more exhilarating and meaningful life into three words: find the good. It’s that simple--and that hard. Quirky and profound, individual and universal, Find the Good offers up short chapters that help us unlearn the habit--and it is a habit--of seeing only the negatives. Lende reminds us that we can choose to see any event--starting a new job or being laid off from an old one, getting married or getting divorced--as an opportunity to find the good. As she says, “We are all writing our own obituary every day by how we live. The best news is that there’s still time for additions and revisions before it goes to press.” Ever since Algonquin published her first book, the New York Times bestseller If You Lived Here, I’d Know Your Name, Heather Lende has been praised for her storytelling talent and her plainspoken wisdom. The Los Angeles Times called her “part Annie Dillard, part Anne Lamott,” and that comparison has never been more apt as she gives us a fresh, positive perspective from which to view our relationships, our obligations, our priorities, our community, and our world. An antidote to the cynicism and self-centeredness that we are bombarded with every day in the news, in our politics, and even at times in ourselves, Find the Good helps us rediscover what’s right with the world. “Heather Lende’s small town is populated with big hearts--she finds them  on the beach, walking her granddaughters, in the stories of ordinary peoples’ lives, and knits them into unforgettable tales. Find the Good is a treasure.” —Jo-Ann Mapson, author of Owen’s Daughter “Find the Good is excellent company in unsteady times . . . Heather Lende is the kind of person you want to sit across the kitchen table from on a rainy afternoon with a bottomless cup of tea. When things go wrong, when things go right, her quiet, commonsense wisdom, self-examining frankness, and good-natured humor offer a chance to reset, renew, rebalance.”  —Pam Houston, author of Contents May Have Shifted “With gentle humor and empathy [Lende] introduces a number of people who provide examples of how to live well . . . [Find the Good] is simple yet profound.”  —Booklist “In this cynical world, Find the Good is a tonic, a literary wellspring, which will continue to run, and nurture, even in times of drought. What a brave and beautiful thing Heather Lende has made with this book.” —John Straley, Shamus Award winner and former writer laureate of Alaska “Heather Lende is a terrific writer and terrific company: intimate, authentic, and as quirky as any of her subjects.” —Marilyn Johnson, author of The Dead Beat

My Mother, Your Mother: Embracing "Slow Medicine," the Compassionate Approach to Caring for Your Aging Loved Ones


Dennis Mccullough - 2008
    And though we are rewarded with more time with the people we love, we are also faced with new sets of complications—more diseases, more disability, more need for support and careful judgments. Yet while our health care system may help people live to an older age, it doesn't perform so well when decline eventually sets in. We want to do the best thing but are overwhelmed with the staggering choices we face.Geriatrician Dennis McCullough has spent his life helping families to cope with their parents' aging and eventual final passage, experiences he faced with his own mother. In this comforting and much-needed book, he recommends a new approach, which he terms "Slow Medicine."Shaped by common sense and kindness, grounded in traditional medicine yet receptive to alternative therapies, Slow Medicine advocates for careful anticipatory "attending" to an elder's changing needs rather than waiting for crises that force acute medical interventions—an approach that improves the quality of elders' extended late lives without bankrupting their families financially or emotionally. As Dr. McCullough argues, we need to learn that time and kindness are sometimes more important and humane at these late stages than state-of-the-art medical interventions.My Mother, Your Mother will help you learn how to:—form an early and strong partnership with your parents and siblings;—strategize on connecting with doctors and other care providers;—navigate medical crises;—create a committed Advocacy Team;—reach out with greater empathy and awareness; and—face the end-of-life time with confidence and skill.Although taking care of those who have always cared for us is not an easily navigated time of life, My Mother, Your Mother will help you and your family to prepare for this complex journey. This is not a plan for getting ready to die; it is a plan for understanding, for caring, and for helping those you love live well during their final years. And the time to start is now.

Knocking on Heaven's Door: The Path to a Better Way of Death


Katy Butler - 2013
    It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.Like so many of us, award-winning writer Katy Butler always assumed her aging parents would experience healthy, active retire­ments before dying peacefully at home. Then her father suffered a stroke that left him incapable of easily finishing a sentence or showering without assistance. Her mother was thrust into full-time caregiving, and Katy became one of the 24 mil­lion Americans who help care for aging parents. In an effort to correct a minor and non–life threatening heart arrhythmia, doctors outfitted her father with a pacemaker. The device kept his heart beating but did nothing to prevent his slide into dementia, incontinence, near-muteness, and misery. After several years, he asked his wife for help, telling her, "I am living too long." Mother and daughter faced a series of wrench­ing moral questions: When does death cease being a curse and become a blessing? Where is the line between saving life and prolonging a dying? When is the right time to say to a doctor, "Let my loved one go"? When doctors refused to disable the pace­maker, sentencing her father to a protracted and agonizing death, Katy set out to understand why. Her quest had barely begun when her mother faced her own illness, rebelled against her doctors, refused open-heart surgery, and instead met death head-on. Knocking on Heaven's Door, a revolution­ary blend of memoir and investigative reporting, is the fruit of the Butler family's journey. With a reporter's skill, a poet's eye, and a daughter's love, Butler explores what happens when our terror of death collides with the tech­nological imperatives of modern medicine. Her provocative thesis is that advanced medicine, in its single-minded pursuit of maximum longevity, often creates more suffering than it prevents. Butler lays bare the tangled web of technology, medicine, and commerce that modern dying has become and chronicles the rise of Slow Medicine - a growing movement that promotes care over cure. Knocking on Heaven's Door is a visionary map through the labyrinth of a broken and morally adrift medical system. It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.

Tell Me More: Stories about the 12 Hardest Things I'm Learning to Say


Kelly Corrigan - 2018
    But that’s just what Kelly Corrigan has set out to do here. In her New York Times bestselling memoirs, Corrigan distilled our core relationships to their essences, showcasing a warm, easy storytelling style. Now, in Tell Me More, she’s back with a deeply personal, unfailingly honest, and often hilarious examination of the essential phrases that turn the wheel of life.In “I Don’t Know,” Corrigan wrestles to make peace with uncertainty, whether it’s over invitations that never came or a friend’s agonizing infertility. In “No,” she admires her mother’s ability to set boundaries and her liberating willingness to be unpopular. In “Tell Me More,” a facialist named Tish teaches her something important about listening. And in “I Was Wrong,” she comes clean about her disastrous role in a family fight—and explains why saying sorry may not be enough. With refreshing candor, a deep well of empathy, and her signature desire to understand “the thing behind the thing,” Corrigan swings between meditations on life with a preoccupied husband and two mercurial teenage daughters to profound observations on love and loss.With the streetwise, ever-relatable voice that defines Corrigan’s work, Tell Me More is a moving and meaningful take on the power of the right words at the right moment to change everything.

How We Die: Reflections of Life's Final Chapter


Sherwin B. Nuland - 1994
    This new edition includes an all-embracing and incisive afterword that examines the current state of health care and our relationship with life as it approaches its terminus. It also discusses how we can take control of our own final days and those of our loved ones.Shewin Nuland's masterful How We Die is even more relevant than when it was first published.

How We Age: A Doctor's Journey Into the Heart of Growing Old


Marc Agronin - 2011
    His beat is a nursing home in Miami that some would dismiss as “God’s waiting room.” Nothing in the young doctor’s medical training had quite prepared him for what he was to discover there. As Agronin first learned from ninety-eight-year-old Esther and, later, from countless others, the true scales of aging aren’t one-sided—you can’t list the problems without also tallying the hopes and promises. Drawing on moving personal experiences and in-depth interviews with pioneers in the field, Agronin conjures a spellbinding look at what aging means today—how our bodies and brains age, and the very way we understand aging.

Advice for Future Corpses (And Those Who Love Them): A Practical Perspective on Death and Dying


Sallie Tisdale - 2018
    Informed by her many years working as a nurse, with more than a decade in palliative care, Tisdale provides a frank and compassionate meditation on the inevitable.From the sublime (the faint sound of Mozart as you take your last breath) to the ridiculous (lessons on how to close the sagging jaw of a corpse), Tisdale leads readers through the peaks and troughs of death with a wise and humorous hand. This is more than a how-to manual or a spiritual bible: it is a graceful compilation of honest and intimate anecdotes based on the deaths Tisdale has witnessed in her work and life, as well as stories from cultures, traditions, and literature around the world.

The Four Things That Matter Most: A Book About Living


Ira Byock - 2004
    In many ways, they contain the most powerful words in our language. These four phrases provide us with a clear path to emotional wellness; they guide us through the thickets of interpersonal difficulties to a conscious way of living that is full of integrity and grace.In The Four Things That Matter Most, Dr. Ira Byock, an international leader in palliative care, teaches us how to practice these life-affirming words in our day-to-day lives. Too often we assume that the people we love really know we love them. Dr. Byock reveals the value of stating the obvious and provides insights into how we burden ourselves by hanging on to old grudges unconsciously and unnecessarily. He shows us how to avoid living with those awkward silences and uncomfortable issues that distance us from the people we love and erode our sense of well-being and joy. His insights and stories help us to forgive, appreciate, love, and celebrate one another more fully. The inspiring stories in The Four Things That Matter Most demonstrate the usefulness of the Four Things in a wide range of life situations. They also show that a degree of emotional healing is always possible and that we can experience a sense of wholeness even in the wake of family strife, personal tragedy, divorce, or in the face of death. With practical wisdom and spiritual punch, The Four Things That Matter Most gives us the language and guidance to honor and experience what really matters most in our lives every day.

It's OK That You're Not OK: Meeting Grief and Loss in a Culture That Doesn't Understand


Megan Devine - 2017
    Having experienced grief from both sides—as both a therapist and as a woman who witnessed the accidental drowning of her beloved partner—Megan writes with deep insight about the unspoken truths of loss, love, and healing. She debunks the culturally prescribed goal of returning to a normal, "happy" life, replacing it with a far healthier middle path, one that invites us to build a life alongside grief rather than seeking to overcome it. On this unabridged audio recording read by the author, Megan offers stories, research, life tips, and creative and mindfulness-based practices to guide us through an experience we all must face. With Megan’s gentle but direct guidance, you’ll learn: • Why well-meaning advice, therapy, and spiritual wisdom so often end up making it harder for people in grief • How challenging the myths of grief—doing away with stages, timetables, and unrealistic ideals about how grief should unfold—allows us to accept it as a mystery to be honored instead of a problem to solve • Practical guidance for managing stress, improving sleep, and decreasing anxiety without trying to "fix" your pain Many people who have suffered a loss feel judged, dismissed, and misunderstood by a culture that wants to "solve" grief. Megan writes, "Grief no more needs a solution than love needs a solution." It’s OK That You’re Not OK is a book for grieving people, those who love them, and all those seeking to love themselves—and each other—better.