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Go Toward the Light by Chris Oyler


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Sitting Pretty: The View from My Ordinary Resilient Disabled Body


Rebekah Taussig - 2020
    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Brain on Fire: My Month of Madness


Susannah Cahalan - 2012
    Days earlier, she had been on the threshold of a new, adult life: at the beginning of her first serious relationship and a promising career at a major New York newspaper. Now she was labeled violent, psychotic, a flight risk. What happened?In a swift and breathtaking narrative, Cahalan tells the astonishing true story of her descent into madness, her family’s inspiring faith in her, and the lifesaving diagnosis that nearly didn’t happen.

Lost & Found: A Memoir


Kathryn Schulz - 2022
    In Lost & Found, she weaves the story of those relationships into a brilliant exploration of the role that loss and discovery play in all of our lives. The resulting book is part memoir, part guidebook to living in a world that is simultaneously full of wonder and joy and wretchedness and suffering--a world that always demands both our gratitude and our grief. A staff writer at The New Yorker and winner of the Pulitzer Prize, Schulz writes with curiosity, tenderness, erudition, and wit about our finite yet infinitely complicated lives. Lost & Found is an enduring account of love in all its many forms from one of the great writers of our time.

The Still Point of the Turning World


Emily Rapp - 2013
    But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months.  Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting.  They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.  Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth.  Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child.  In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.

Patrimony


Philip Roth - 1991
    Roth watches as his eighty-six-year-old father—famous for his vigor, charm, and his repertoire of Newark recollections—battles with the brain tumor that will kill him. The son, full of love, anxiety, and dread, accompanies his father through each fearful stage of his final ordeal, and, as he does so, discloses the survivalist tenacity that has distinguished his father's long, stubborn engagement with life.

The Undying


Anne Boyer - 2019
    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

Complications: A Surgeon's Notes on an Imperfect Science


Atul Gawande - 2002
    Complications lays bare a science not in its idealized form but as it actually is--uncertain, perplexing, and profoundly human.Complications is a 2002 National Book Award Finalist for Nonfiction.

All the Lives We Ever Lived: Seeking Solace in Virginia Woolf


Katharine Smyth - 2019
    After his death -- a calamity that claimed her favorite person--she returned to that beloved novel as a way of wrestling with his memory and understanding her own grief.Smyth's story moves between the New England of her childhood and Woolf's Cornish shores and Bloomsbury squares, exploring universal questions about family, loss, and homecoming. Through her inventive, highly personal reading of To the Lighthouse, and her artful adaptation of its groundbreaking structure, Smyth guides us toward a new vision of Woolf's most demanding and rewarding novel--and crafts an elegant reminder of literature's ability to clarify and console.Braiding memoir, literary criticism, and biography, All the Lives We Ever Lived is a wholly original debut: a love letter from a daughter to her father, and from a reader to her most cherished author.

No Cure for Being Human: And Other Truths I Need to Hear


Kate Bowler - 2021
    A beach body by summer. A trip to Disneyland around the corner. A promotion on the horizon. Everyone wants to believe that they are headed toward good, better, best. But what happens when the life you hoped for is put on hold indefinitely?Kate Bowler believed that life was a series of unlimited choices, until she discovered, at age 35, that her body was wracked with cancer. In No Cure for Being Human, she searches for a way forward as she mines the wisdom (and absurdity) of today's "best life now" advice industry, which insists on exhausting positivity and on trying to convince us that we can out-eat, out-learn, and out-perform our humanness. We are, she finds, as fragile as the day we were born.With dry wit and unflinching honesty, Kate Bowler grapples with her diagnosis, her ambition, and her faith as she tries to come to terms with her limitations in a culture that says anything is possible. She finds that we need one another if we're going to tell the truth: Life is beautiful and terrible, full of hope and despair and everything in between--and there's no cure for being human.

Intern


Sandeep Jauhar - 2007
    Residency--and especially the first year, called internship--is legendary for its brutality. Working eighty hours or more per week, most new doctors spend their first year asking themselves why they wanted to be doctors in the first place.Jauhar's internship was even more harrowing than most: he switched from physics to medicine in order to follow a more humane calling--only to find that medicine put patients' concerns last. He struggled to find a place among squadrons of cocky residents and doctors. He challenged the practices of the internship in The New York Times, attracting the suspicions of the medical bureaucracy. Then, suddenly stricken, he became a patient himself--and came to see that today's high-tech, high-pressure medicine can be a humane science after all.Now a thriving cardiologist, Jauhar has all the qualities you'd want in your own doctor: expertise, insight, a feel for the human factor, a sense of humor, and a keen awareness of the worries that we all have in common. His beautifully written memoir explains the inner workings of modern medicine with rare candor and insight. "In Jauhar's wise memoir of his two-year ordeal of doubt and sleep deprivation at a New York hospital, he takes readers to the heart of every young physician's hardest test: to become a doctor yet remain a human being." ― Time

A Heartbreaking Work of Staggering Genius


Dave Eggers - 2000
    He had decided that after our parents died he just didn't want any more fighting between what was left of us. He was twenty-four, Beth was twenty-three, I was twenty-one, Toph was eight, and all of us were so tried already, from that winter. So when something would come up, any little thing, some bill to pay or decision to make, he would just sigh, his eyes tired, his mouth in a sorry kind of smile. But Beth and I...Jesus, we were fighting with everyone, anyone, each other, with strangers at bars, anywhere -- we were angry people wanting to exact revenge. We came to California and we wanted everything, would take what was ours, anything within reach. And I decided that little Toph and I, he with his backward hat and long hair, living together in our little house in Berkeley, would be world-destroyers. We inherited each other and, we felt, a responsibility to reinvent everything, to scoff and re-create and drive fast while singing loudly and pounding the windows. It was a hopeless sort of exhilaration, a kind of arrogance born of fatalism, I guess, of the feeling that if you could lose a couple of parents in a month, then basically anything could happen, at any time -- all bullets bear your name, all cars are there to crush you, any balcony could give way; more disaster seemed only logical. And then, as in Dorothy's dream, all these people I grew up with were there, too, some of them orphans also, most but not all of us believing that what we had been given was extraordinary, that it was time to tear or break down, ruin, remake, take and devour. This was San Francisco, you know, and everyone had some dumb idea -- I mean, wicca? -- and no one there would tell you yours was doomed. Thus the public nudity, and this ridiculous magazine, and the Real World tryout, all this need, most of it disguised by sneering, but all driven by a hyper-awareness of this window, I guess, a few years when your muscles are taut, coiled up and vibrating. But what to do with the energy? I mean, when we drive, Toph and I, and we drive past people, standing on top of all these hills, part of me wants to stop the car and turn up the radio and have us all dance in formation, and part of me wants to run them all over."

The Iceberg


Marion Coutts - 2014
    The tumour was located in the area of the brain that controls speech and language, and would eventually rob him of the ability to speak. Tom was 53 when he died, leaving Marion and their son Eugene, just two years old, alone. In short bursts of beautiful, textured prose, Coutts describes the eighteen months leading up to Tom's death. The Iceberg is an unflinching, honest exploration of staring death in the face, finding solace in strange places, finding beauty and even joy in the experience of dying. Written with extraordinary narrative force and power, it is almost shocking in its rawness. Nothing is kept from the reader: the fury, the occasional spells of selfishness, the indignity of being trapped in a hopeless situation. It is a story of pain and sadness, but also an uplifting and life-affirming tale of great fortitude, courage, determination – and above all, love.

Animal: The Autobiography of a Female Body


Sara Pascoe - 2016
    Animal combines autobiography and evolutionary history to create a funny, fascinating insight into the forces that mould and affect modern women.Animal is entertaining and informative, personal and universal – silly about lots of things and serious about some. It's a laugh-out-loud investigation to help us understand and forgive our animal urges and insecurities.

Joe's Fruit Shop & Milk Bar


Zoe Boccabella - 2015
    'Nonno Anni gives me a nudge. "You know, when I first came to Australia, I knew that my life would change forever."'Leaving the small village of Fossa in Italy in 1939 to meet a father he barely remembered in a place that was far from everything he knew, fifteen-year-old Annibale Boccabella arrived in Australia determined to make a go of it. It was a time when everything was changing and anything seemed possible. Life was tough but you could still chase your dreams. More than 70 years later, in 2011, Zoe Boccabella and her family hurriedly try to save the treasured belongings of Annibale and his wife Francesca-Zoe's grandparents-from the rising waters of the Brisbane River. When Zoe sees the sign from their old fruit shop and milk bar about to disappear beneath the floodwater, this triggers in her a realisation that while she has long looked to Italy to discover her migrant heritage, much of it happened here in Australia. In Joe's Fruit Shop and Milk Bar, Zoe artfully weaves her own experiences with those of her grandparents, taking us on a journey from Abruzzo and Calabria in Italy to Australian sugar cane fields, internment camps, Greek cafes, and the fruit shop and milk bar that was the focus of a family's hopes and dreams for the future. With memorable, beautifully portrayed characters, evocative writing and a sweeping tale that reflects the experience of so many Australians, this is a story that will touch your heart and remind you of the important things in life. Praise for Zoe Boccabella's Mezza Italiana'A charming and thoughtful writer' Frances Mayes'There is much to love about this book. The wonderful characters, her fabulous Italian grandfather who takes his love for all Italian traditions to Brisbane ... her boyfriend who becomes the poster boy for all things Italian, and the people of Fossa, a village tucked away in the mountains of Abruzzo... I can highly recommend Mezza Italiana on a cold day when you are dreaming of Italy... ' Carla Coulson'This is one of those books that come along every so often that resonates with so many. Whether you have a migrant background or just love reading about Italy, this is a book with heart and soul, humour and sincerity. A wonderful read.' Cate, ABC Shops website

Greenlights


Matthew McConaughey - 2020
    Notes about successes and failures, joys and sorrows, things that made me marvel, and things that made me laugh out loud. How to be fair. How to have less stress. How to have fun. How to hurt people less. How to get hurt less. How to be a good man. How to have meaning in life. How to be more me. Recently, I worked up the courage to sit down with those diaries. I found stories I experienced, lessons I learned and forgot, poems, prayers, prescriptions, beliefs about what matters, some great photographs, and a whole bunch of bumper stickers. I found a reliable theme, an approach to living that gave me more satisfaction, at the time, and still: If you know how, and when, to deal with life’s challenges - how to get relative with the inevitable - you can enjoy a state of success I call “catching greenlights.” So I took a one-way ticket to the desert and wrote this book: an album, a record, a story of my life so far. This is fifty years of my sights and seens, felts and figured-outs, cools and shamefuls. Graces, truths, and beauties of brutality. Getting away withs, getting caughts, and getting wets while trying to dance between the raindrops. Hopefully, it’s medicine that tastes good, a couple of aspirin instead of the infirmary, a spaceship to Mars without needing your pilot’s license, going to church without having to be born again, and laughing through the tears. It’s a love letter. To life. It’s also a guide to catching more greenlights - and to realizing that the yellows and reds eventually turn green too. Good luck.