Book picks similar to
Brielle and Me: Our Journey with Cytomegalovirus and Cerebral Palsy by Kerith Stull
developmental-disorders
memoirs-biographies
parenting
special-needs
Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic
Martha N. Beck - 1999
This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune
The Shape of the Eye: A Memoir
George Estreich - 2011
Estreich writes with a poet's eye and gift of language, weaving this personal journey into the larger history of his family, exploring the deep and often hidden connections between the past and the present. Engaging and unsentimental, The Shape of the Eye taught me a great deal. It is a story I found myself thinking about long after I'd finished the final pages." --Kim Edwards, author of The Memory Keeper's Daughter "The Shape of the Eye personalizes Down syndrome, bringing a condition abstracted in the medical literature into the full dimensionality of one family's life. It's brave of George Estreich to make what has befallen his family so public, trusting of him to let an unknown audience second-guess the family's choices. Because he's opened his home and heart in this memoir, we are privileged to witness in chaotic, heart-wrenching, joyous detail what it means to have and to love a child with Down syndrome." --Marcia Childress, Associate Professor of Medical Education (Medical Humanities), University of Virginia School of Medicine, from her Afterword for the book When Laura Estreich is born, her appearance presents a puzzle: does the shape of her eyes indicate Down syndrome, or the fact that she has a Japanese grandmother? In this powerful memoir, George Estreich, a poet and stay-at-home dad, tells his daughter's story, reflecting on her inheritance --- from the literal legacy of her genes, to the family history that precedes her, to the Victorian physician John Langdon Down's diagnostic error of "Mongolian idiocy." Against this backdrop, Laura takes her place in the Estreich family as a unique child, quirky and real, loved for everything ordinary and extraordinary about her.
A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny
Amy Julia Becker - 2011
Amy Julia opens eyes and softens hearts as she brings readers into her own story of disappointment turned to blessing. This is a journey of discovering strength through weakness, and the author learns to embrace the face that we are all dependent on God and one another. This books will inspire readers who appreciate beautiful writing coupled with deep insights about life and faith.
Different Parts of Everywhere: Cycling the World, Part Three: Mori to Paris
Chris Pountney - 2021
Stepmother
Marianne Lile - 2016
It was a role she initially embraced--but she quickly discovered she was alone in a difficult situation, with no handbook and no mentor. Here, Lile describes the complexities of the stepmom position, in a family and in the community, and shares her experience wearing a tag that is often misunderstood and weighed down by the numerous myths in society. Candid and poignant, Stepmother is a story of love and like, resentments and exasperation, resignation and hope--and a story, ultimately, of family.
Somebody Else's Kids
Torey L. Hayden - 1981
. . "A small seven-year-old boy who couldn't speak except to repeat weather forecasts and other people's words . . . A beautiful little girl of seven who had been brain damaged by terrible parental beatings and was so ashamed because she couldn't learn to read . . . A violently angry ten-year-old who had seen his stepmother murder his father and had been sent from one foster home to another . . . A shy twelve-year-old from a Catholic school which put her out when she became pregnant . . ."What do we matter?""Why do you care?"They were four problem children-put in Torey Hayden's class because no one else knew what to do with them. Together, with the help of a remarkable teacher who cared too much to ever give up, they became almost a family, able to give each other the love and understanding they had found nowhere else.
Children With Starving Brains: A Medical Treatment Guide for Autism Spectrum Disorder
Jaquelyn McCandless - 2002
Genetic susceptibility activated by "triggers" such as pesticides and heavy metals in vaccines can lead to immune system impairment, gut dysfunction, and pathogen invasion such as yeast and viruses in many children. This is the first book written by an experienced clinician that gives a step-by-step treatment guide for parents and doctors based on the understanding that ASD is a complex biomedical illness resulting in significant brain malnutrition. Dr. McCandless, whose grandchild with autism has inspired her "broad spectrum approach," describes important diagnostic tools needed to select appropriate treatment programs. Her book explains major therapies newly available and identifies safe and effective options for parents and physicians working together to improve the health of these special children.Author Biography: Jacquelyn McCandless received her M.D. from the University of Illinois College of Medicine and is certified as a Diplomate of the American Board of Psychiatry and Neurology. Since the early 1990s, her interest in women's issues and sexuality has led to an alternative medicine practice with a focus on anti-aging, brain nutrition, and natural hormone therapy. In 1996, after her granddaughter was diagnosed with autism, she returned even more to basic medicine and began working with biomedical aspects of developmentally delayed children. She now utilizes the knowledge she gained searching for treatments for her grandchild to help other ASD children.
Schuyler's Monster: A Father's Journey with His Wordless Daughter
Robert Rummel-Hudson - 2008
Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
Autism Every Day: Over 150 Strategies Lived and Learned by a Professional Autism Consultant with 3 Sons on the Spectrum
Alyson Beytien - 2011
Autism consultant Alyson Beytien outlines over 150 tried-and-true techniques for home, school, and community. Alyson’s three boys cover the whole spectrum of autism—Asperger’s syndrome, high-functioning autism, and classic autism. She understands the wide range of needs these children have and has discovered what helps and what hinders. Covering a full gamut of issues—from picky-eating and echolalia to IEPs and “The Woes of Walmart”—Alyson’s ideas and interventions will inspire and inform all those who are connected to a person with autism. Alyson believes that each day brings more opportunities to learn, problem-solve, and celebrate the joys that children with autism bring to our world—after all, today’s crisis is tomorrow’s humor. Her family’s motto will soon become your everyday mantra: “Improvise and Overcome!”
Like Sound Through Water: A Mother's Journey Through Auditory Processing Disorder
Karen J. Foli - 2002
If the problem is physical, she takes the child to a doctor. But if the problem is a misunderstanding of her child's mind, where does she turn for help? This is Ben's story. He was a happy, healthy boy -- a mother's dream come true. Yet by the age of three, Ben's development was significantly delayed: He couldn't make sense of the simplest phrases, and he still hadn't started talking. When Karen Foli finally took her son, Ben, to a speech and hearing clinic, she was told that he was "probably retarded and perhaps autistic." But Karen knew that Ben was highly perceptive, even frustrated by his inability to communicate. Trusting her "mother's intuition," Karen set out on a journey to learn the truth about her son's condition....and what she found was APD. A person with auditory processing disorder receives jumbled and distorted sounds. But the ability to hear is usually normal. Even though it affects millions of Americans, APD can be difficult to diagnose and challenging to treat. Through years of research, and personal interviews, Karen Foli learned everything she needed to know about APD in order to help her son achieve the greatest gift of all: communication. Like Sound Through Water is her story -- winning, inspiring, and true.
Shut Up About...Your Perfect Kid!
Gina Gallagher - 2007
Narrated by two "imperfect" sisters with "special" children, the book features a collection of entertaining and heartwarming stories from parents of children with a wide range of disabilities. It will have any parent laughing out loud and viewing the positive side of raising an "imperfect" child with humorous chapters like:
Us vs. Them battle: "It's hard to hear about how good their kid is on the baseball field, when yours would rather catch real flies."
Medication: "We've met parents who feel guilty for putting their kids on meds for not putting their kids on meds even for taking their kids' meds. ("That Ritalin really helped; you should have seen me organize those closets.")
Food: "Yes, my daughter would like a Happy Meal. Just hold the meal and she'll be happy."
Marriage: "You can remember the name of Beaver Cleaver's first grade teacher, but you can't remember the name of your child's disability?"
Sports: "Do we have to follow the ball Mom? It's more fun following a bee!"
Everyday life: "Sorry I missed the bus Mom; I was practicing funny faces in the mirror."
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome
Amy Silverman - 2016
And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.
The Anti-Romantic Child: A Story of Unexpected Joy
Priscilla Gilman - 2011
This haunting and lyrical memoir will be an invaluable and heartening guide to all who find themselves in similar situations and indeed anyone confronting an unforeseen challenge.”—Marie Brenner, writer for Vanity Fair and author of Apples and Oranges With an emotionally resonant combination of memoir and literature, Wordsworth scholar Priscilla Gilman recounts the challenges of raising a son with hyperlexia, a developmental disorder neurologically counterpoint to dyslexia. Gilman explores the complexities of our hopes and expectations for our children and ourselves. With luminous prose and a searing, personal story evocative of A Year of Magical Thinking and A Year of Reading Proust, Gilman’s The Anti-Romantic Child is an unforgettable exploration of what happens when we lean to embrace the unexpected.
The Upside of Down
Rebecca Talley - 2011
"Excuse me?""You're pregnant."Her heartbeat thundered in her ears. "I'm what?"Natalie Drake certainly has her hands full raising a large family, dealing with her difficult mother, and maintaining a relationship with her rebellious teenager. Just when things seem to be going smoothly, she finds out another unexpected surprise--she's going to have a baby. Faced with so many challenges, Natalie must learn to trust in a plan that isn't what she imagined and discover that every situation has an upside.Beloved author Rebecca Talley carefully creates this touching and heartfelt story that is sure to inspire you. With true-to-life characters and situations, The Upside of Down will reignite your faith and remind you of the importance of family.
Just Take a Bite: Easy, Effective Answers to Food Aversions and Eating Challenges!
Lori Ernsperger - 2004
Learn the possible causes, when you need professional help, and how to deal with the behavior at home. Learn why Don't play with your food! and Clean your plate! - along with many other old saws - are just plain wrong. And who said you have to eat dessert last? Get ready to have some stereotypes shattered! Helpful chapters include: Who Are Resistant eaters? Oral-Motor Development Environmental and Behavioral Factors Contributing to Problems with Eating Sensory-Based and Motor-Based Problems Affecting the Resistant Eater Motor-Based Eating Problems vs. Sensory-Based Eating Problems Designing and Implementing a Comprehensive Treatment Plan Environmental Controls Gastrointestinal, Physical and Oral-Motor Development Stages of Sensory Development for Eating A Recipe for Success