Book picks similar to
My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities by Yantra Bertelli
parenting
non-fiction
nonfiction
disability
You Are Your Best Thing: Vulnerability, Shame Resilience, and the Black Experience
Tarana Burke - 2021
Brené Brown bring together a dynamic group of Black writers, organizers, artists, academics, and cultural figures to discuss the topics the two have dedicated their lives to understanding and teaching: vulnerability and shame resilience.Contributions by Kiese Laymon, Imani Perry, Laverne Cox, Jason Reynolds, Austin Channing Brown, and moreIt started as a text between two friends.Tarana Burke, founder of the 'me too.' Movement, texted researcher and writer Brené Brown to see if she was free to jump on a call. Brené assumed that Tarana wanted to talk about wallpaper. They had been trading home decorating inspiration boards in their last text conversation so Brené started scrolling to find her latest Pinterest pictures when the phone rang.But it was immediately clear to Brené that the conversation wasn't going to be about wallpaper. Tarana's hello was serious and she hesitated for a bit before saying, "Brené, you know your work affected me so deeply, but as a Black woman, I've sometimes had to feel like I have to contort myself to fit into some of your words. The core of it rings so true for me, but the application has been harder."Brené replied, "I'm so glad we're talking about this. It makes sense to me. Especially in terms of vulnerability. How do you take the armor off in a country where you're not physically or emotionally safe?"Long pause."That's why I'm calling," said Tarana. "What do you think about working together on a book about the Black experience with vulnerability and shame resilience?"There was no hesitation.Burke and Brown are the perfect pair to usher in this stark, potent collection of essays on Black shame and healing. Along with the anthology contributors, they create a space to recognize and process the trauma of white supremacy, a space to be vulnerable and affirm the fullness of Black love and Black life.
Disability Visibility: First-Person Stories from the Twenty-first Century
Alice WongChristie Thompson - 2020
Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Following Ezra: What One Father Learned About Gumby, Otters, Autism, and Love From His Extraordinary Son
Tom Fields-Meyer - 2011
Full of tender moments and unexpected humor, Following Ezra is the story of a father and son on a ten-year journey from Ezra's diagnosis to the dawn of his adolescence. It celebrates his growth from a remote toddler to an extraordinary young man, connected in his own remarkable ways to the world around him.
Ophelia Speaks: Adolescent Girls Write About Their Search for Self
Sara Shandler - 1999
"Horror stories of eating disorders, self-mutilation, abusive relationships floated across the page," Shandler writes of Pipher's book on adolescent girls. "Pipher equated our contemporary adolescent experiences to Shakespeare's ill-fated Ophelia." Shandler identified with the emotional experiences described in the book. "However," she explains, "I did not feel simply spoken to, I felt spoken for."With courage and unselfconscious audacity, Shandler decided to speak for herself. She had her friends write reflections on subjects such as eating disorders, sex, drugs, and child abuse, and scored a book deal. With the help of her publisher, HarperPerennial, Shandler sent queries for firsthand adolescent accounts to high school principals across the country, asking them to enlist the help of English teachers, parents associations, school psychologists, etc. (This letter appears as Appendix A in the book.) Not too shabby for a kid who only recently started getting serious about studying, and drinking lots of coffee.Ophelia Speaks: Adolescent Girls Write About Their Search for Self is the result of Sara Shandler's crusade. Her goal was to bring real voice to Reviving Ophelia. She succeeds. The voices are raw and young and jarring -- sometimes adult-like, sometimes childlike, and more often both, like Shandler's voice.Shandler introduces each chapter -- "Intoxication," "Rape and Sexual Abuse," "Questions of Faith," "Diverse Sexualities," "Mothers, Feminist Pride," etc.-- with personal anecdotes of her own. Through these introductions, it becomes clear that Shandler is like any modern American teenager: She has experimented lightly with drugs, had sex at an early age (one month shy of 15), is mildly infatuated with her weight, and was at one point pretty depressed (as in, the thought of suicide once crossed her mind). Pretty run-of-the-mill teen stuff. Somehow it is surprising that nothing "worse" ever happened to Shandler. It seems too simple that her only motivation to complete this project was to help other teens feel less alone. Then again, maybe it is too simple to think that all books of this kind must be written by damaged teens or once-damaged teens.By definition, Shandler's carefully selected contributions are young words for young ears. But they are also an intense reminder for older ears: When all you have lived is 16 years, thinking once of suicide feels like the biggest thing ever. This is not to belittle Shandler's impressive compilation or her honesty. She is very, very honest. In a chapter entitled "Broken-Hearted Independence," she explains how she got through the tragedy of breaking up with her first love. "[W]ith our separation I forced myself to face the dependence that left me alone and broken with our breakup. That confrontation was frightening. I was not brave in the usual sense. I cried often and hard. But instead of lonely isolation, I read and wrote and thought and thought. I buried myself in Virginia Woolf and Alice Walker, Margaret Atwood and Maya Angelou, Sylvia Plath and Toni Morrison, and I wondered why women I had never met knew me so well. With these women I was not so alone anymore."Each entry in this book is this bare, this open. Which is why Ophelia Speaks works as a book for teens by teens, but also as a tool for parents who want to know -- or remind themselves -- of what lies just around the corner. (Alexandra Zissu)
BITCHfest: Ten Years of Cultural Criticism from the Pages of Bitch Magazine
Lisa Jervis - 2006
Magazine, Bitch was launched in the mid-nineties as a Xerox-and-staple zine covering the landscape of popular culture from a feminist perspective. Both unabashed in its love for the guilty pleasures of consumer culture and deeply thoughtful about the way the pop landscape reflects and impacts women's lives, Bitch grew to be a popular, full-scale magazine with a readership that stretched worldwide. Today it stands as a touchstone of hip, young feminist thought, looking with both wit and irreverence at the way pop culture informs feminism--and vice versa--and encouraging readers to think critically about the messages lurking behind our favorite television shows, movies, music, books, blogs, and the like. BITCHFest offers an assortment of the most provocative essays, reporting, rants, and raves from the magazine's first ten years, along with new pieces written especially for the collection. Smart, nuanced, cranky, outrageous, and clear-eyed, the anthology covers everything from a 1996 celebration of pre-scandal Martha Stewart to a more recent critical look at the "gayby boom"; from a time line of black women on sitcoms to an analysis of fat suits as the new blackface; from an attempt to fashion a feminist vulgarity to a reclamation of female virginity. It's a recent history of feminist pop-culture critique and an arrow toward feminism's future.
Love Works Like This: Moving from One Kind of Life to Another
Lauren Slater - 2002
Slater, career-oriented and willfully autonomous, charts her own personal journey and decision-making process, starting with a list of the pros and cons, about having a child. The cons are many, the pros only one: “learning a new kind of love.” But what will that love look like? How does one reconcile the needs of the self with the demands of others? How do couples go from the dyad that is a marriage to the triad that is a family? And how can Slater adjust to losing precious control of her own carefully developed life?Slater’s complex biological and psychological history also lies at the core of this unique and yet strikingly universal story. One of the first people ever to take Prozac, she chronicles the impossibly conflicting advice regarding pregnancy and antidepressants, and explains the rationale behind her eventual decision to stop taking the medication during her first trimester. This is Slater’s first encounter with self-sacrifice, and for her a crossroad at which modern medicine and basic human love meet. Love Works Like This is a richly written book by “an enormously poetic and ebullient writer” (Elle magazine), an author who writes with “beauty and bravery” (Los Angeles Times Book Review) about falling in love, about growing into the ability to put someone else’s life ahead of your own, and about the rich rewards we can draw from the courage to exchange one kind of happy life for another.
All the Weight of Our Dreams: On Living Racialized Autism
Lydia X.Z. Brown - 2017
The work here represents the lives, politics, and artistic expressions of Black, Brown, Latinx, Indigenous, Mixed-Race, and other racialized and people of color from many autistic communities, often speaking out sharply on issues of marginality, intersectionality, and liberation.
The Elephant in the Playroom: Ordinary Parents Write Intimately and Honestly about the Extraordinary Highs and Heartbreaking Lows of Raising Kids with Special Needs
Denise Brodey - 2007
As she struggled to make sense of her new, often chaotic, often lonely world, what she found comforted her "most" was talking with other harried, hopeful, and insightful parents of kids with special needs, learning how they coped with the feelings they encountered throughout the day.In "The Elephant in the Playroom," moms and dads write intimately and honestly about the joyful highs and disordered lows of raising children who are ?not quite normal.? Laying bare the emotional, medical, and social challenges they face, their stories address issues ranging from if and when to medicate a child, to how to get a child who is overly sensitive to the texture of food to eat lunch. Eloquent and honest, the voices in this collection will provide solace and support for the millions of parents whose kids struggle with #ADHD, #sensory disorders, childhood #depression, Asperger's syndrome, and autism?as well as the many kids who fall between diagnoses.Offering readers comfort, community, and much-needed perspective, "The Elephant in the Playroom" has become essential reading for parents of special needs kids.
Far from the Tree: Parents, Children, and the Search for Identity
Andrew Solomon - 2012
He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.
What We Don't Talk About When We Talk About Fat
Aubrey Gordon - 2020
In What We Don't Talk About When We Talk About Fat, Aubrey Gordon unearths the cultural attitudes and social systems that have led to people being denied basic needs because they are fat and calls for social justice movements to be inclusive of plus-sized people's experiences. Unlike the recent wave of memoirs and quasi self-help books that encourage readers to love and accept themselves, Gordon pushes the discussion further towards authentic fat activism, which includes ending legal weight discrimination, giving equal access to health care for large people, increased access to public spaces, and ending anti-fat violence. As she argues, I did not come to body positivity for self-esteem. I came to it for social justice.By sharing her experiences as well as those of others--from smaller fat to very fat people--she concludes that to be fat in our society is to be seen as an undeniable failure, unlovable, unforgivable, and morally condemnable. Fatness is an open invitation for others to express disgust, fear, and insidious concern. To be fat is to be denied humanity and empathy. Studies show that fat survivors of sexual assault are less likely to be believed and less likely than their thin counterparts to report various crimes; 27% of very fat women and 13% of very fat men attempt suicide; over 50% of doctors describe their fat patients as awkward, unattractive, ugly and noncompliant; and in 48 states, it's legal--even routine--to deny employment because of an applicant's size.Advancing fat justice and changing prejudicial structures and attitudes will require work from all people. What We Don't Talk About When We Talk About Fat is a crucial tool to create a tectonic shift in the way we see, talk about, and treat our bodies, fat and thin alike.
Fall Down 7 Times Get Up 8: A Young Man's Voice from the Silence of Autism
Naoki Higashida - 2017
In short, powerful chapters, Higashida explores school memories, family relationships, the exhilaration of travel, and the difficulties of speech. He also allows readers to experience profound moments we take for granted, like the thought-steps necessary for him to register that it's raining outside. Acutely aware of how strange his behavior can appear to others, he aims throughout to foster a better understanding of autism and to encourage society to see people with disabilities as people, not as problems.With an introduction by bestselling novelist David Mitchell, Fall Down 7 Times Get Up 8 also includes a dreamlike short story Higashida wrote especially for this edition. Both moving and of practical use, this book opens a window into the mind of an inspiring young man who meets every challenge with tenacity and good humor. However often he falls down, he always gets back up.
The Spark: A Mother's Story of Nurturing Genius
Kristine Barnett - 2013
At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.
Care Work: Dreaming Disability Justice
Leah Lakshmi Piepzna-Samarasinha - 2018
Powerful and passionate, Care Work is a crucial and necessary call to arms.
Hello Cruel World: 101 Alternatives to Suicide for Teens, Freaks, and Other Outlaws
Kate Bornstein - 2006
A one-of-a-kind guide to staying alive outside the box, Hello, Cruel World is a much-needed unconventional approach to life for those who want to stay on the edge, but alive.Hello, Cruel World features a catalog of 101 alternatives to suicide that range from the playful (moisturize!), to the irreverent (shatter some family values), to the highly controversial. Designed to encourage readers to give themselves permission to unleash their hearts' harmless desires, the book has only one directive: "Don't be mean." It is this guiding principle that brings its reader on a self-validating journey, which forges wholly new paths toward a resounding decision to choose life.Tenderly intimate and unapologetically edgy, Kate Bornstein is the radical role model, the affectionate best friend, and the guiding mentor all in one.
Not That Bad: Dispatches from Rape Culture
Roxane GayLisa Mecham - 2018
Cultural critic and bestselling author Roxane Gay has edited a collection of essays that explore what it means to live in a world where women are frequently belittled and harassed due to their gender, and offers a call to arms insisting that "not that bad" must no longer be good enough.