Changing the Way We Die: Compassionate End of Life Care and The Hospice Movement


Fran Smith - 2013
    More than 1.5 million Americans a year die in hospice care—nearly 44 percent of all deaths—and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.Changing the Way We Die is a vital resource for anyone who wants to be prepared to face life’s most challenging and universal event. You will learn:— Hospice use is soaring, yet most people come too late to get the full benefits.— With the age tsunami, it becomes even more critical for families and patients to choose end-of-life care wisely.— Hospice at its best is much more than a way to relieve the suffering of dying. It is a way to live.

The Conversation: A Revolutionary Plan for End-of-Life Care


Angelo E. Volandes - 2015
    Two thirds of Americans die in healthcare institutions tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones.Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care.It might be the most important conversation you ever have.

How We Age: A Doctor's Journey Into the Heart of Growing Old


Marc Agronin - 2011
    His beat is a nursing home in Miami that some would dismiss as “God’s waiting room.” Nothing in the young doctor’s medical training had quite prepared him for what he was to discover there. As Agronin first learned from ninety-eight-year-old Esther and, later, from countless others, the true scales of aging aren’t one-sided—you can’t list the problems without also tallying the hopes and promises. Drawing on moving personal experiences and in-depth interviews with pioneers in the field, Agronin conjures a spellbinding look at what aging means today—how our bodies and brains age, and the very way we understand aging.

That Good Night: Life and Medicine in the Eleventh Hour


Sunita Puri - 2019
    Sunita Puri knew from a young age that the gulf between her parents' experiences and her own was impossible to bridge, save for two elements: medicine and spirituality. Between days spent waiting for her mother, an anesthesiologist, to exit the OR, and evenings spent in conversation with her parents about their faith, Puri witnessed the tension between medicine's impulse to preserve life at all costs and a spiritual embrace of life's temporality. And it was that tension that eventually drew Puri, a passionate but unsatisfied medical student, to palliative medicine--a new specialty attempting to translate the border between medical intervention and quality-of-life care.Interweaving evocative stories of Puri's family and the patients she cares for, That Good Night is a stunning meditation on impermanence and the role of medicine in helping us to live and die well, arming readers with information that will transform how we communicate with our doctors about what matters most to us.

Hard Choices for Loving People : CPR, Artificial Feeding, Comfort Care and the Patient with a Life-Threatening Illness


Hank Dunn - 1999
    Book by Dunn, Hank

Finding Meaning: The Sixth Stage of Grief


David Kessler - 2019
    Decades later, she and David Kessler wrote the classic On Grief and Grieving, introducing the stages of grief with the same transformative pragmatism and compassion. Now, based on hard-earned personal experiences, as well as knowledge and wisdom earned through decades of work with the grieving, Kessler introduces a critical sixth stage. Many people look for “closure” after a loss. Kessler argues that it’s finding meaning beyond the stages of grief most of us are familiar with—denial, anger, bargaining, depression, and acceptance—that can transform grief into a more peaceful and hopeful experience. In this book, Kessler gives readers a roadmap to remembering those who have died with more love than pain; he shows us how to move forward in a way that honors our loved ones. Kessler’s insight is both professional and intensely personal. His journey with grief began when, as a child, he witnessed a mass shooting at the same time his mother was dying. For most of his life, Kessler taught physicians, nurses, counselors, police, and first responders about end of life, trauma, and grief, as well as leading talks and retreats for those experiencing grief. Despite his knowledge, his life was upended by the sudden death of his twenty-one-year-old son. How does the grief expert handle such a tragic loss? He knew he had to find a way through this unexpected, devastating loss, a way that would honor his son. That, ultimately, was the sixth state of grief—meaning. In Finding Meaning, Kessler shares the insights, collective wisdom, and powerful tools that will help those experiencing loss. Finding Meaning is a necessary addition to grief literature and a vital guide to healing from tremendous loss. This is an inspiring, deeply intelligent must-read for anyone looking to journey away from suffering, through loss, and towards meaning.

The Grace in Dying: A Message of Hope, Comfort and Spiritual Transformation


Kathleen Dowling Singh - 1998
    A moving illumination of the final transition of our lives.

End of Life Guideline Series: A Compilation of Barbara Karnes Booklets


Barbara Karnes - 2012
    We enter a phase of life that we have no preparation for. No one tell us how to live with a life threatening illness or what to expect when cure is no longer possible and we are dealing with the ending of life.The End of Life Guideline Series is a compilation of Barbara Karnes’ four booklets on end of life. Beginning with the guidance A Time To Life offers to a person who has been diagnosed with a life threatening illness. The End of Life Guideline Series progresses to Gone From My Sight , The Hospice Blue Book, which explains the signs of approaching death that begin months before death from disease and leads a family to the moment of death.The Eleventh Hour offers information, ideas and support for a caregiver/family member who are often alone as their loved one is dying, on how to care for a person in the hours to minutes before death and just after.The final section of this complication is an exploration of the normal grieving process. What are the emotions and feelings that will surface as we grieve the loss of someone we care about and how will those emotions show themselves? The aim of this series is to neutralize some of the fear that an unpredictable future may bring. Knowledge of the dying process and it’s natural and normal unfolding can help create a meaningful and comforting experience as a loved one journeys from life. It is written in a simple, direct yet gentle manner. It is a short and valuable read.Following a death we often have questions about the disease progression and concerned memories. The End of Life Guideline Series gives knowledge of the natural, normal process of dying and grief. You can find comfort in it’s knowledge even if someone you care about has died years before.

Living at the End of Life: A Hospice Nurse Addresses the Most Common Questions


Karen Whitley Bell - 2010
    I’m afraid…As death approaches, both patient and family must cope with grief, pain, and seemingly unanswerable questions. It’s a time of challenge, of concerns. But, as hospice nurse Karen Whitley Bell reminds us, it also offers an opportunity to explore and rediscover the fuller, richer meaning of life.Drawing on her years of experience, Bell has created a comprehensive, insightful guide to every aspect of hospice care and the final stages of life. She discusses the physical, emotional, and spiritual journey a dying person goes through; care-giving during this difficult period; closure, and loss and the lessons it teaches us. In addition to her warm, yet knowledgeable voice, readers get firsthand accounts of experiences in hospice care, making Living at the End of Life accessible, reassuring, and indispensable.

The Tibetan Book of Living and Dying


Sogyal Rinpoche - 1992
    In its power to touch the heart, to awaken consciousness, [The Tibetan Book of Living and Dying] is an inestimable gift.”—San Francisco Chronicle A newly revised and updated edition of the internationally bestselling spiritual classic, The Tibetan Book of Living and Dying, written by Sogyal Rinpoche, is the ultimate introduction to Tibetan Buddhist wisdom. An enlightening, inspiring, and comforting manual for life and death that the New York Times calls, “The Tibetan equivalent of [Dante’s] The Divine Comedy,” this is the essential work that moved Huston Smith, author of The World’s Religions, to proclaim, “I have encountered no book on the interplay of life and death that is more comprehensive, practical, and wise.”

At Peace: Choosing a Good Death After a Long Life


Samuel Harrington - 2018
    Most people say they would like to die quietly at home. But overly aggressive medical advice, coupled with an unrealistic sense of invincibility or overconfidence in our health-care system, results in the majority of elderly patients misguidedly dying in institutions. Many undergo painful procedures instead of having the better and more peaceful death they deserve.At Peace outlines specific active and passive steps that older patients and their health-care proxies can take to ensure loved ones live their last days comfortably at home and/or in hospice when further aggressive care is inappropriate. Through Dr. Samuel Harrington's own experience with the aging and deaths of his parents and of working with patients, he describes the terminal patterns of the six most common chronic diseases; how to recognize a terminal diagnosis even when the doctor is not clear about it; how to have the hard conversation about end-of-life wishes; how to minimize painful treatments; when to seek hospice care; and how to deal with dementia and other special issues. Informed by more than thirty years of clinical practice, Dr. Harrington came to understand that the American health-care system wasn't designed to treat the aging population with care and compassion. His work as a hospice trustee and later as a hospital trustee drove his passion for helping patients make appropriate end-of-life decisions.

Die Wise: A Manifesto for Sanity and Soul


Stephen Jenkinson - 2015
    It does not suggest ways to make dying easier. It pours no honey to make the medicine go down. Instead, with lyrical prose, deep wisdom, and stories from his two decades of working with dying people and their families, Stephen Jenkinson places death at the center of the page and asks us to behold it in all its painful beauty. Die Wise teaches the skills of dying, skills that have to be learned in the course of living deeply and well. Die Wise is for those who will fail to live forever. Dying well, Jenkinson writes, is a right and responsibility of everyone. It is not a lifestyle option. It is a moral, political, and spiritual obligation each person owes their ancestors and their heirs. Die Wise dreams such a dream, and plots such an uprising. How we die, how we care for dying people, and how we carry our dead: this work makes our capacity for a village-mindedness, or breaks it.

Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death


Joan Halifax - 1997
    Inspired by traditional Buddhist teachings, her work is a source of wisdom for all those who are charged with a dying person's care, who are facing their own death, or who are wishing to explore and contemplate the transformative power of the dying process. Halifax offers lessons from dying people and caregivers, as well as guided meditations to help readers contemplate death without fear, develop a commitment to helping others, and transform suffering and resistance into courage. She says, "Why wait until we are actually dying to explore what it may mean to die with awareness?" A world-renowned pioneer in care of the dying, Joan Halifax founded the Project on Being with Dying, which helps dying people to face death with courage and trains professional and family caregivers in compassionate and ethical end-of-life care.

The Bright Hour: A Memoir of Living and Dying


Nina Riggs - 2017
    They are promises. They are the only way to walk from one night to the other."Nina Riggs was just thirty-seven years old when initially diagnosed with breast cancer--one small spot. Within a year, the mother of two sons, ages seven and nine, and married sixteen years to her best friend, received the devastating news that her cancer was terminal.How does one live each day, "unattached to outcome"? How does one approach the moments, big and small, with both love and honesty?Exploring motherhood, marriage, friendship, and memory, even as she wrestles with the legacy of her great-great-great grandfather, Ralph Waldo Emerson, Nina Riggs's breathtaking memoir continues the urgent conversation that Paul Kalanithi began in his gorgeous When Breath Becomes Air. She asks, what makes a meaningful life when one has limited time?Brilliantly written, disarmingly funny, and deeply moving, The Bright Hour is about how to love all the days, even the bad ones, and it's about the way literature, especially Emerson, and Nina's other muse, Montaigne, can be a balm and a form of prayer. It's a book about looking death squarely in the face and saying "this is what will be."Especially poignant in these uncertain times, The Bright Hour urges us to live well and not lose sight of what makes us human: love, art, music, words.

A Healing Touch: True Stories of Life, Death, and Hospice


Richard Russo - 2008
    These writers recount intensely personal and profoundly moving end-of-life accounts that cover a wide spectrum of human experience. All six authors are donating their royalties to a Maine hospice; Down East will also donate 10 percent of proceeds to the same cause.