Being Seen: One Deafblind Woman's Fight to End Ableism


Elsa Sjunneson - 2021
    While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they’re whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she’s also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World


Sharon Heller - 2002
    But millions of people suffer from Sensory Defensive Disorder (SD), a common affliction in which people react to harmless stimuli not just as a distracting hindrance, but a potentially dangerous threat. Sharon Heller, Ph.D. is not only a trained psychologist, she is sensory defensive herself. Bringing both personal and professional perspectives, Dr. Heller is the ideal person to tell the world about this problem that will only increase as technology and processed environments take over our lives. In addition to heightening public awareness of this prevalent issue, Dr. Heller provides tools and therapies for alleviating and, in some cases, even eliminating defensiveness altogether.Until now, the treatment for sensory defensiveness has been successfully implemented in Learning Disabled children in whom defensiveness tends to be extreme. However, the disorder has generally been unidentified in adults who think they are either overstimulated, stressed, weird, or crazy. These sensory defensive sufferers live out their lives stressed and unhappy, never knowing why or what they can do about it. Now, with Too Loud, Too Bright, Too Fast, Too Tight, they have a compassionate spokesperson and a solution–oriented book of advice.

Count Us In: Growing Up with Down Syndrome


Jason Kingsley - 1994
    Their frank discussion of what mattered most in their lives—careers, friendships, school, sex, marriage, finances, politics, and independence—earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society. More important, their wit, intelligence, candor, and charm made a powerful and inspirational statement about the full potential of people with developmental disabilities, challenging prevailing stereotypes. Now, thirteen years later, the authors discuss their lives since then—milestones and challenges, developments expected and unexpected—in a new afterword.

Disfigured: On Fairy Tales, Disability, and Making Space


Amanda Leduc - 2020
    After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she'll have a happy ending?By examining the ways that fairy tales have shaped our expectations of disability, Disfigured will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world. Through the book, Leduc ruminates on the connections we make between fairy tale archetypes—the beautiful princess, the glass slipper, the maiden with long hair lost in the tower—and tries to make sense of them through a twenty-first-century disablist lens. From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today's media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other—helping us to see and celebrate the magic inherent in different bodies.

Enforcing Normalcy: Disability, Deafness, and the Body


Lennard J. Davis - 1995
    Davis argues forcefully against 'ableist' discourse and for a complete recasting of the category of disability itself. Enforcing Normalcy surveys the emergence of a cluster of concepts around the term 'normal' as these matured in Western Europe and the United States over the past 250 years. Linking such notions to the concurrent emergence of discourses about the nation, Davis shows how the modern nation-state contracted its identity on the backs not only of colonized subjects, but of its physically disabled minority. In a fascinating chapter on contemporary cultural theory, Davis explores the pitfalls of privileging the figure of sight in conceptualizing the nature of textuality. And in the treatment of nudes and fragmented bodies in Western art, he shows how the ideal of physical wholeness is both demanded and denied in the classical aesthetics of representation. Enforcing Normalcy redraws the boundaries of political and cultural discourse. By insisting that disability be added to the familiar triad of race, class, and gender, the book challenges progressives to expand the limits of their thinking about human oppression.

Engaging Autism: Helping Children Relate, Communicate and Think with the DIR Floortime Approach (A Merloyd Lawrence Book)


Stanley I. Greenspan - 2006
    Stanley Greenspan's unique approach to autism and ASD (autistic spectrum disorders) is known to grateful parents and to professionals throughout the world. Now at last his highly effective and influential program is presented in one clear and accessible volume. A number of innovative, exciting features distinguish Greenspan's approach to autism:First, his program has demonstrated that children with signs of autism or autistic spectrum disorders do not have a fixed, limited potential, but in many cases can join their peers and lead full, healthy lives, emotionally and intellectually. Secondly, his approach can be applied at a very early stage, when signs of autism first appear. Thus, the hope of preventing the full onset of autism becomes a real possibility. Third, the approach empowers the entire family to promote their child's development throughout each day. Also, the DIR Floortime approach guides the efforts of speech pathologists, occupational therapists, and educators to work with the family and builds on the latest research on the development of the mind and brain. As cases of autism continue to rise worldwide, Dr. Greenspan's extremely successful Floortime approach is producing very promising results that could one day stem the tide against this dread disorder. No one involved in the care of children with autism, parent or professional, can afford to be without this landmark work.

Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age


Sarah Hendrickx - 2015
    This book endorses my clinical experiences in working with females in the autism spectrum and validates the importance of diagnosis at any time in a person's life. Therefore I would highly recommend this book for all professionals involved in diagnosis and supporting girls and women in the autism spectrum. --from the foreword by Dr Judith Gould, Consultant Clinical Psychologist and Director of The Lorna Wing Centre for Autism.

My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome


Amy Silverman - 2016
    And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.

Care Work: Dreaming Disability Justice


Leah Lakshmi Piepzna-Samarasinha - 2018
    Powerful and passionate, Care Work is a crucial and necessary call to arms.

A Different Sort of Normal


Abigail Balfe - 2021
    . . and that's an actual scientific FACT.Hi! My name is Abigail, and I'm autistic. But I didn't know I was autistic until I was an adult-sort-of-person*.This is my true story of growing up in the confusing 'normal' world, all the while missing some Very Important Information about myself.There'll be scary moments involving toilets and crowded trains, heart-warming tales of cats and pianos, and funny memories including my dad and a mysterious tub of ice cream. Along the way you'll also find some Very Crucial Information about autism.If you've ever felt different, out of place, like you don't fit in . . . this book is for you.*I've never really felt like an actual-adult-person, as you'll soon discover in this book...Told through the author's remarkable words, and just as remarkable illustrations, this is the book for those who've never felt quite right in the 'normal' world.Very important, very funny and very informative. This is the book the world needs right now.

A Friend Like Henry: The Touching True Story of an Autistic Boy and His Dog


Nuala Gardner - 2007
    Dale was still a baby when his parents realised that something wasn't right. Worried, his mother Nuala took him to see several doctors, before finally hearing the word 'autism' for the first time in a specialist's office. Scared but determined that Dale should live a fulfilling life, Nuala describes her despairat her son's condition, her struggle to prevent Dale being excluded from a 'normal' education and her sense of hopeless isolation. Dale's autism was severe and violent and family life was a daily battleground. But the Gardner's lives were transformed when they welcomed a gorgeous Golden Retriever into the family. The special bond between Dale and his dog Henry helped them to produce the breakthrough in Dale they had long sought. From taking a bath to saying 'I love you', Henry helped introduce Dale to all the normal activities most parents take for granted, and set him on the road to being the charming and well-adjusted young man he is today. This is a heartrending and fascinating account of how one devoted and talented dog helped a little boy conquer his autism.

Women from Another Planet? Our Lives in the Universe of Autism


Jean Kearns Miller - 2003
    It’s the dreaded A word. People’s attention turns to late night TV public service ads declaring that autistic children are “imprisoned” by autism and need curing at all cost. Recent autobiographies have helped dispel this dire description by suggesting that autism is not a prison and that the door is unlocked and you’re free to come in. Women from Another Planet? moves beyond these autistic life stories in important ways. It’s a collection of stories and conversations, all of them by women on the autism spectrum who speak candidly, insightfully, and often engagingly about both their gender in terms of their autism and their autism in terms of their gender. It is written not just for parents and professionals, like the other works, but also to those women still searching for ways to understand the unnamed difference they live with, as well as the wider audience of discerning readers. If you enter the unlocked door of these Women from Another Planet? you may end up with a question mark or two about your planet. Is normalcy really all it’s cracked up to be?

The Spectrum Girl’s Survival Guide


Siena Castellon - 2020
    From the answers to everyday questions such as 'Am I using appropriate body language?' and 'Did I say the wrong thing?', through to discussing the importance of understanding your emotions, looking after your physical and mental health and coping with anxiety and sensory overloads, award-winning neurodiversity campaigner Siena Castellon uses her own experiences to provide you with the skills to overcome any challenge.With practical tips on friendships, dating, body image, consent and appearance, as well as how to survive school and bullying, The Spectrum Girl's Survival Guide gives you the power to embrace who you are, reminding you that even during the toughest of teen moments, you are never alone.

Cockeyed: A Memoir of Blindness


Ryan Knighton - 2006
    In this penetrating, nervy memoir, which ricochets between meditation and black comedy, Knighton tells the story of his fifteen-year descent into blindness while incidentally revealing the world of the sighted in all its phenomenal peculiarity. Knighton learns to drive while unseeing; has his first significant relationship—with a deaf woman; navigates the punk rock scene and men's washrooms; learns to use a cane; and tries to pass for seeing while teaching English to children in Korea. Stumbling literally and emotionally into darkness, into love, into couch-shopping at Ikea, into adulthood, and into truce if not acceptance of his identity as a blind man, his writerly self uses his disability to provide a window onto the human condition. His experience of blindness offers unexpected insights into sight and the other senses, culture, identity, language, our fears and fantasies. Cockeyed is not a conventional confessional. Knighton is powerful and irreverent in words and thought and impatient with the preciousness we've come to expect from books on disability. Readers will find it hard to put down this wild ride around their everyday world with a wicked, smart, blind guide at the wheel.

Listening Is an Act of Love: A Celebration of American Life from the StoryCorps Project


Dave Isay - 2007
    StoryCorps began with the idea that everyone has an important story to tell. And since 2003, this remarkable project has been collecting the stories of everyday Americans and preserving them for future generations. In New York City and in mobile recording booths traveling the country-from small towns to big cities, at Native American reservations and an Army post-StoryCorps is collecting the memories of Americans from all ages, backgrounds, and walks of life. The project represents a wondrous nationwide celebration of our shared humanity, capturing for posterity the stories that define us and bind us together. In Listening Is an Act of Love, StoryCorps founder and legendary radio producer Dave Isay selects some of the most remarkable stories from the already vast collection and arranges them thematically into a moving portrait of American life. The voices here connect us to real people and their lives-to their experiences of profound joy, sadness, courage and despair, to good times and hard times, to good deeds and misdeeds. To read this book is to be reminded of how rich and varied the American storybook truly is, how resistant to easy categorization or caricature. Above all, this book honors the gift each StoryCorps participant has made, from the raw material of his or her life, to the Americans who will come after. We are our history, individually and collectively, and Listening Is an Act of Love touchingly reminds us of this powerful truth.