Book picks similar to
Sanatorium by Abi Palmer


poetry
non-fiction
memoir
disability

Blind Man's Bluff: A Memoir


James Tate Hill - 2021
    When high-school friends stopped calling and a disability counselor advised him to aim for C’s in his classes, he tried to escape the stigma by pretending he could still see.In this unfailingly candid yet humorous memoir, Hill discloses the tricks he employed to pass for sighted, from displaying shelves of paperbacks he read on tape to arriving early on first dates so women would have to find him. He risked his life every time he crossed a street, doing his best to listen for approaching cars. A good memory and pop culture obsessions like Tom Cruise, Prince, and all things 1980s allowed him to steer conversations toward common experiences.For fifteen years, Hill hid his blindness from friends, colleagues, and lovers, even convincing himself that if he stared long enough, his blurry peripheral vision would bring the world into focus. At thirty, faced with a stalled writing career, a crumbling marriage, and a growing fear of leaving his apartment, he began to wonder if there was a better way.

A Thousand Days in Venice


Marlena de Blasi - 2002
    When he sees her again in a Venice café a year later, he knows it is fate. He knows little English; and she, a divorced American chef, speaks only food-based Italian. Marlena thinks she is incapable of intimacy, that her heart has lost its capacity for romantic love. But within months of their first meeting, she has packed up her house in St. Louis to marry Fernando — “the stranger” as she calls him — and live in that achingly lovely city in which they met. Vibrant but vaguely baffled by this bold move, Marlena is overwhelmed by the sheer foreignness of her new home, its rituals and customs. But there are delicious moments when Venice opens up its arms to Marlena. She cooks an American feast of Mississippi caviar, cornbread, and fried onions for the locals... and takes the tango she learned in the Poughkeepsie middle school gym to a candlelit trattoría near the Rialto Bridge. All the while, she and Fernando, two disparate souls, build an extraordinary life of passion and possibility.Featuring Marlena’s own incredible recipes, A Thousand Days in Venice is the enchanting true story of a woman who opens her heart — and falls in love with both a man and a city.

Your Own Kind of Girl


Clare Bowditch - 2019
    Through her music and performing, this beloved Australian artist has touched hundreds of thousands of lives. But what of the stories she used to tell herself? That 'real life' only begins once you're thin or beautiful, that good things only happen to other people.YOUR OWN KIND OF GIRL reveals a childhood punctuated by grief, anxiety and compulsion, and tells how these forces shaped Clare's life for better and for worse. This is a heartbreaking, wise and at times playful memoir. Clare's own story told raw and as it happened. A reminder that even on the darkest of nights, victory is closer than it seems.With startling candour, Clare lays bare her truth in the hope that doing so will inspire anyone who's ever done battle with their inner critic. This is the work of a woman who has found her true power - and wants to pass it on. Happiness, we discover, is only possible when we take charge of the stories we tell ourselves.

Wide Awake and Dreaming: A Memoir


Julie Flygare - 2012
    She faced terrifying hallucinations, paralysis and excruciating sleepiness aspects of dream sleep taking place while wide awake.Yet, narcolepsy was a wake-up call for Julie. Her illness propelled her onto a journey she never imagined from lying paralyzed on her apartment floor to dancing euphorically at a nightclub; from the classrooms of Harvard Medical School to the start line of the Boston Marathon.Wide Awake and Dreaming is a revealing first-hand account of dreams gone wrong with narcolepsy. It s the brave story of one woman trampling over barriers and finding light in the darkest of circumstances.

A Face for Picasso: Coming of Age with Crouzon Syndrome


Ariel Henley - 2021
    There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

First Person Plural: My Life as a Multiple


Cameron West - 1999
    Cameron West... First of all, for those of you who have read First Person Plural, thank you. Rikki, Kyle, and I have been very moved by the kind words many of you have sent, and for the stories some of you have shared about overcoming your own challenges.I'd like to share something with you that Leonardo da Vinci wrote, which I think of as "Leonardo's Rule." He said, "Every object yields to effort." I remind myself of that every day, and when I'm having a difficult time, Rikki reminds me that this rule applies not only to the obstacles "out there," but to the more important ones-the ones we face in our own minds. Rikki lives by Leonardo's Rule; it comes to her naturally. Even though they are Leonardo's words, it is Rikki's actions that guide me and inspire me to work toward becoming a healthier and better person.

Now I See You: A Memoir


Nicole C. Kear - 2014
    Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.

Being Seen: One Deafblind Woman's Fight to End Ableism


Elsa Sjunneson - 2021
    While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they’re whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she’s also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Blindsided: Lifting a Life Above Illness: A Reluctant Memoir


Richard Merrill Cohen - 2004
    Cohen was twenty-five years old. He was a young television news producer with expectations of a limitless future, and his foreboding that his health was not quite right turned into the harsh reality that something was very wrong when he was diagnosed with multiple sclerosis. For thirty years Cohen has done battle with MS, only to be ambushed by two bouts of colon cancer at the end of the millennium. And yet, he has writ-ten a hopeful book about celebrating life and coping with chronic illness."Welcome to my world," writes Cohen, "where I carry around dreams, a few diseases, and the determination to live life my way. This book is my daily conversation with myself, a chronicle of the struggles in that exotic place just north of the neck. At the moment, my attitude checks out well. I do believe I'm winning."Autobiographical at its roots, reportorial, and expansive, Blindsided explores the effects of illness on raising three children and on his relationship with his wife, Meredith Vieira (host of ABC's The View and the syndicated Who Wants To Be A Millionaire). Cohen tackles the nature of denial and resilience, the ins and outs of the struggle for emotional health, and the redemptive effects of a loving family. And while he may not have chosen to live with illness, illness did choose him. Written with grace, humor, and lyrical prose, Blindsided presents a life brimming over with accomplishment and joy in adversity.

Survival Lessons


Alice Hoffman - 2013
    Most significant, aside from the grueling physical ordeal she underwent, was the way it changed how she felt inside and what she thought she ought to be doing with her days. Now she has written the book that she needed to read then. In this honest, wise, and upbeat guide, Alice Hoffman provides a road map for the making of one's life into the very best it can be. As she says, "In many ways I wrote this book to remind myself of the beauty of life, something that's all too easy to overlook during the crisis of illness or loss. There were many times when I forgot about roses and starry nights. I forgot that our lives are made up of equal parts sorrow and joy, and that it's impossible to have one without the other. . . . I wrote to remind myself that in the darkest hour the roses still bloom, the stars still come out at night. And to remind myself that, despite everything that was happening to me, there were still some choices I could make.

Full Body Burden: Growing Up in the Nuclear Shadow of Rocky Flats


Kristen Iversen - 2012
    Her father's hidden liquor bottles, the strange cancers in children in the neighborhood, the truth about what was made at Rocky Flats (cleaning supplies, her mother guessed)—best not to inquire too deeply into any of it.But as Iversen grew older, she began to ask questions. She learned about the infamous 1969 Mother's Day fire, in which a few scraps of plutonium spontaneously ignited and—despite the desperate efforts of firefighters—came perilously close to a "criticality," the deadly blue flash that signals a nuclear chain reaction. Intense heat and radiation almost melted the roof, which nearly resulted in an explosion that would have had devastating consequences for the entire Denver metro area. Yet the only mention of the fire was on page 28 of the Rocky Mountain News, underneath a photo of the Pet of the Week. In her early thirties, Iversen even worked at Rocky Flats for a time, typing up memos in which accidents were always called "incidents."And as this memoir unfolds, it reveals itself as a brilliant work of investigative journalism—a detailed and shocking account of the government's sustained attempt to conceal the effects of the toxic and radioactive waste released by Rocky Flats, and of local residents' vain attempts to seek justice in court. Here, too, are vivid portraits of former Rocky Flats workers—from the healthy, who regard their work at the plant with pride and patriotism, to the ill or dying, who battle for compensation for cancers they got on the job.Based on extensive interviews, FBI and EPA documents, and class-action testimony, this taut, beautifully written book promises to have a very long half-life.

[Don't] Call Me Crazy


Kelly JensenStephanie Kuehn - 2018
    Because there’s no single definition of crazy, there’s no single experience that embodies it, and the word itself means different things—wild? extreme? disturbed? passionate?—to different people. (Don’t) Call Me Crazy is a conversation starter and guide to better understanding how our mental health affects us every day. Thirty-three writers, athletes, and artists offer essays, lists, comics, and illustrations that explore their personal experiences with mental illness, how we do and do not talk about mental health, help for better understanding how every person’s brain is wired differently, and what, exactly, might make someone crazy. If you’ve ever struggled with your mental health, or know someone who has, come on in, turn the pages, and let’s get talking.

A Mind Unraveled


Kurt Eichenwald - 2018
    In the aftermath of that critical moment, his once-carefree life would be consumed by confrontations with medical incompetence, discrimination that almost cost him his education and employment, physical abuse, and dark moments when he contemplated suicide.This is the story of one man's battle to pursue his dreams despite an often incapacitating brain disorder. From his early experiences of fear and denial to his exasperating search for treatment, Eichenwald provides a deeply candid account of his years facing this misunderstood and often stigmatized condition. He details his encounters with the doctors whose negligence could have killed him, but for the heroic actions of a brilliant neurologist and the family and friends who fought for him.Many of Eichenwald's recollections are drawn from his diaries, vivid and painstakingly kept records that helped sharpen his skills as a journalist. He raises important questions about the nature of memory, the revelations of brain science, and the profound mysteries of human perception.Ultimately, A Mind Unraveled is an inspirational story, one that chronicles how Eichenwald, faced often with his own mortality, transformed trauma into a guide for reaching the future he desired. Defying relentless threats to his emotional and physical well-being, he affirmed his decision to never give up, and in the process learned how to rise from the depths of despair to the heights of unimagined success.

Let's Start A Riot: How A Young Drunk Punk became A Hollywood Dad


Bruce McCulloch - 2014
    From scowling teenager to father of two, this biting, funny collection of personal stories, peppered with moments of surprising poignancy, proves that although this infamous Kid may be all grown up, his singular brand of humor and signature wit remain firmly intact.

The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son


Tracie White - 2021
    Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. Finally, even the sound of a footstep in his room became unbearable. The Puzzle Solver follows several years in which he desperately sought answers from specialist after specialist, where at one point his 6'3" frame dropped to 115 lbs. For years, he underwent endless medical tests, but doctors told him there was nothing wrong. Then, finally, a diagnosis: Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis.In the 80s, when an outbreak of people immobilized by an indescribable fatigue were reported near Lake Tahoe, Nevada, doctors were at a loss to explain the symptoms. The condition would alternatively be nicknamed Raggedy Ann Syndrome or the Yuppie Disease, and there was no cure or answers about treatment. They were to remain sick.But there was one answer: Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.In The Puzzle Solver, journalist Tracie White, who first wrote a viral and award-winning piece on Davis and his family in Stanford Medicine, tells his story. In gripping prose, she masterfully takes readers along on this journey with Davis to solve one of the greatest mysteries in medicine. In a piercing investigative narrative, closed doors are opened, and masked truths are exposed as Davis uncovers new proof confirming that Chronic Fatigue Syndrome is a biological disease.At the heart of this book is a moving story that goes far beyond medicine, this is a story about how the power of love -- and science -- can shine light in even the darkest, most hidden, corners of the world.