Book picks similar to
Mapping Fate: A Memoir of Family, Risk, and Genetic Research by Alice Wexler
non-fiction
science
nonfiction
genetics
Heartsounds: The Story of a Love and Loss
Martha Weinman Lear - 1980
Her husband having died of heart disease, Martha Weinman Lear articulates her feelings toward the medical treatment, her personal strengths and weaknesses, and how she survived her own fears.
The Tale of the Dueling Neurosurgeons: The History of the Human Brain as Revealed by True Stories of Trauma, Madness, and Recovery
Sam Kean - 2014
Early studies of the functions of the human brain used a simple method: wait for misfortune to strike-strokes, seizures, infectious diseases, lobotomies, horrendous accidents-and see how the victim coped. In many cases survival was miraculous, and observers could only marvel at the transformations that took place afterward, altering victims' personalities. An injury to one section can leave a person unable to recognize loved ones; some brain trauma can even make you a pathological gambler, pedophile, or liar. But a few scientists realized that these injuries were an opportunity for studying brain function at its extremes. With lucid explanations and incisive wit, Sam Kean explains the brain's secret passageways while recounting forgotten stories of common people whose struggles, resiliency, and deep humanity made modern neuroscience possible.
Down Among the Dead Men: A Year in the Life of a Mortuary Technician
Michelle Williams - 2010
. . and an unusual occupation. When she impulsively applies to be a mortuary technician and is offered the position, she has no idea that her decision to accept will be one of the most momentous of her life. “What I didn’t realize then,” she writes, “was that I was about to start one of the most amazing jobs you can do.”To Williams, life in the mortuary is neither grim nor frightening. She introduces readers to a host of unique characters: pathologists (many eccentric, some utterly crazy), undertakers, and the man from the coroner’s office who sings to her every morning. No two days are alike, and while Williams’s sensitivity to the dead never wavers, her tales from the crypt range from mischievous to downright shocking. Readers won’t forget the fitness fanatic run over while doing nighttime push-ups on the road, the man so large he had to be carted in via refrigerated truck, or the guide dog who led his owner onto railway tracks—and left him there. The indomitable Williams never bats an eye, even as she is confronted—daily—with situations that would leave the rest of us speechless.
Danger to Self: On the Front Line with an ER Psychiatrist
Paul R. Linde - 2009
In this lively first-person narrative, Paul R. Linde takes readers behind the scenes at an urban psychiatric emergency room, with all its chaos and pathos, where we witness mental health professionals doing their best to alleviate suffering and repair shattered lives. As he and his colleagues encounter patients who are hallucinating, drunk, catatonic, aggressive, suicidal, high on drugs, paranoid, and physically sick, Linde examines the many ethical, legal, moral, and medical issues that confront today's psychiatric providers. He describes a profession under siege from the outside--health insurance companies, the pharmaceutical industry, government regulators, and even "patients' rights" advocates--and from the inside--biomedical and academic psychiatrists who have forgotten to care for the patient and have instead become checklist-marking pill-peddlers. While lifting the veil on a crucial area of psychiatry that is as real as it gets, "Danger to Self" also injects a healthy dose of compassion into the practice of medicine and psychiatry.
The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease
Daisy Hernández - 2021
No one in her family, in either the United States or Colombia, spoke of infectious diseases, and even into her thirties, she only knew that her aunt had died of a rare illness called Chagas. But as Hernández dug deeper, she discovered that Chagas—or the kissing bug disease—is more prevalent in the United States than the Zika virus. Today, more than three hundred thousand Americans have Chagas.Why do some infectious diseases make headlines and others fall by the wayside? After her aunt’s death, Hernández begins searching for answers about who our nation chooses to take care of and who we ignore. Crisscrossing the country, she interviews patients, epidemiologists, and even veterinarians with the Department of Defense. She learns that outside of Latin America, the United States is the only country with the native insects—the “kissing bugs”—that carry the Chagas parasite. She spends a night in southwest Texas hunting the dreaded bug with university researchers. She also gets to know patients, like a mother whose premature baby was born infected with the parasite, his heart already damaged. And she meets one cardiologist battling the disease in Los Angeles County with local volunteers. The Kissing Bug tells the story of how poverty, racism, and public policies have conspired to keep this disease hidden—and how the disease intersects with Hernández’s own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the harms caused by Chagas, and the dangers it poses. A riveting and nuanced investigation into racial politics and for-profit healthcare in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all.
Barbara Bush: A Memoir
Barbara Bush - 1994
She has won worldwide acclaim for her wit, compassion, and candor as both a presidential wife and mother. In this #1 New York Times bestselling memoir, Mrs. Bush offers a heartfelt portrait of her life in and out of the White House, from her small-town schoolgirl days in Rye, New York, to her fateful union with George H.W. Bush, to her role as First Lady of the United States. Here, she writes candidly about: • her early years with George Bush in West Texas • the tragic death of her young daughter • the world of Washington politics and the famous figures she's met • her role as the nation's leading literacy champion • her feelings about the Iran-Contra scandal, the Persian Gulf conflict, and the Cold War • the disappointment of the 1992 presidential campaign -- and the mixed blessing of regaining her private life ...and much more. Filled with entertaining anecdotes, dozens of personal photographs, and a healthy dose of humor, this memoir is as compelling and honest as the former First Lady herself.
p53: The Gene that Cracked the Cancer Code
Sue Armstrong - 2014
Its job is to protect us from cancer. This gene--known simply as p53--constantly scans our cells to ensure that when they grow and divide as part of the routine maintenance of our bodies, they do so without mishap. If a cell makes a mistake in copying its DNA during the process of division, p53 stops it in its tracks, sending in the repair team before allowing the cell to carry on dividing. If the mistake is irreparable and the rogue cell threatens to grow out of control (as happens in cancer), p53 commands the cell to commit suicide. Cancer cannot develop unless p53 itself is damaged or handicapped by some other fault in the system. Not surprisingly, p53 is the most studied single gene in history.
p53: The Gene that Cracked the Cancer Code
tells the story of the discovery of the gene and of medical science's mission to unravel its mysteries and get to the heart of what happens in our cells when they turn cancerous. Through the personal accounts of key researchers, the book reveals the excitement of the hunt for new cures--the hype, the enthusiasm, the lost opportunities, the blind alleys and the thrilling breakthroughs. As the long-anticipated revolution in cancer treatment tailored to each individual patient's symptoms starts to take off at last, p53 is at the cutting edge. This is a timely tale of scientific discovery and advances in our understanding of a disease that still affects more than one in three of us at some point in our lives.
A Mother's Reckoning: Living in the Aftermath of Tragedy
Sue Klebold - 2016
Over the course of minutes, they would kill twelve students and a teacher and wound twenty-four others before taking their own lives. For the last sixteen years, Sue Klebold, Dylan’s mother, has lived with the indescribable grief and shame of that day. How could her child, the promising young man she had loved and raised, be responsible for such horror? And how, as his mother, had she not known something was wrong? Were there subtle signs she had missed? What, if anything, could she have done differently? These are questions that Klebold has grappled with every day since the Columbine tragedy. In A Mother’s Reckoning, she chronicles with unflinching honesty her journey as a mother trying to come to terms with the incomprehensible. In the hope that the insights and understanding she has gained may help other families recognize when a child is in distress, she tells her story in full, drawing upon her personal journals, the videos and writings that Dylan left behind, and on countless interviews with mental health experts. Filled with hard-won wisdom and compassion, A Mother’s Reckoning is a powerful and haunting book that sheds light on one of the most pressing issues of our time. And with fresh wounds from the recent Newtown and Charleston shootings, never has the need for understanding been more urgent. All author profits from the book will be donated to research and to charitable organizations focusing on mental health issues.
Me and the Ugly C
Becky Dennington - 2011
Breast cancer. In an instant, her life changed all because of a single word she couldn’t even bring herself to say out loud. The ugly C word.Share in the journey of one young woman’s fight against breast cancer, the sacrifices a family makes, the heartbreak cancer leaves in its path, and the joy found along the way.
Cash
Johnny Cash - 1997
He was an icon of rugged individualism who had been to hell and back, telling the tale as never before. In his unforgettable autobiography, Johnny Cash tells the truth about the highs and lows, the struggles and hard-won triumphs, and the people who shaped him.In his own words, Cash set the record straight -- and dispelled a few myths -- as he looked unsparingly at his remarkable life: from the joys of his boyhood in Dyess, Arkansas to superstardom in Nashville, Tennessee, the road of Cash's life has been anything but smooth. Cash writes of the thrill of playing with Elvis, the comfort of praying with Billy Graham; of his battles with addiction and of the devotion of his wife, June; of his gratitude for life, and of his thoughts on what the afterlife may bring. Here, too, are the friends of a lifetime, including Willie Nelson, Roy Orbison, Bob Dylan, and Kris Kristofferson. As powerful and memorable as one of his classic songs, Cash is filled with the candor, wit, and wisdom of a man who truly "walked the line."
The Deep Places: A Memoir of Illness and Discovery
Ross Douthat - 2021
It left him sleepless, crippled, wracked with pain--a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which according to CDC definitions does not actually exist: the chronic form of Lyme disease, a hotly contested condition that devastates the lives of tens of thousands of people but has no official recognition--and no medically approved cure.From a rural dream house that now felt like a prison, Douthat's search for help takes him off the map of official medicine, into territory where cranks and conspiracies abound and patients are forced to take control of their own treatment and experiment on themselves. Slowly, against his instincts and assumptions, he realizes that many of the cranks and weirdos are right, that many supposed hypochondriacs are victims of an indifferent medical establishment, and that all kinds of unexpected experiences and revelations lurk beneath the surface of normal existence, in the places underneath.The Deep Places is a story about what happens when you are terribly sick and realize that even the doctors who are willing to treat you can only do so much. Along the way, Douthat describes his struggle back toward health with wit and candor, portraying sickness as the most terrible of gifts. It teaches you to appreciate the grace of ordinary life by taking that life away from you. It reveals the deep strangeness of the world, the possibility that the reasonable people might be wrong, and the necessity of figuring out things for yourself. And it proves, day by dreadful day, that you are stronger than you ever imagined, and that even in the depths there is always hope.
Just Here Trying to Save a Few Lives: Tales of Life and Death from the ER
Pamela Grim - 2000
Pamela Grim has delivered babies, treated heart attacks, saved car accident victims, comforted the dying, and consoled the living who were left behind. She has worked all over the world, caring for victims of gang life in America's inner cities, victims of the war in Bosnia, poverty-stricken patients in Nigeria, and bank presidents in the United States. Relating these rich and varied experiences with compelling prose, Dr. Grim takes readers into the E.R. and lets them experience first-hand what it takes to make split-second, life-and-death decisions in the course of an average day. And with unflinching honesty, she conveys what it's like to be a caring physician with one of the most demanding, exhilarating, frustrating, and rewarding jobs in the world.
Marbles: Mania, Depression, Michelangelo, and Me
Ellen Forney - 2012
Flagrantly manic and terrified that medications would cause her to lose creativity, she began a years-long struggle to find mental stability while retaining her passions and creativity.Searching to make sense of the popular concept of the crazy artist, she finds inspiration from the lives and work of other artists and writers who suffered from mood disorders, including Vincent van Gogh, Georgia O’Keeffe, William Styron, and Sylvia Plath. She also researches the clinical aspects of bipolar disorder, including the strengths and limitations of various treatments and medications, and what studies tell us about the conundrum of attempting to “cure” an otherwise brilliant mind.Darkly funny and intensely personal, Forney’s memoir provides a visceral glimpse into the effects of a mood disorder on an artist’s work, as she shares her own story through bold black-and-white images and evocative prose.
Sickened: The Memoir of a Munchausen by Proxy Childhood
Julie Gregory - 2003
Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.
A Fighting Chance
Elizabeth Warren - 2014
Early marriage and motherhood seemed to put even that dream out of reach, but fifteen years later she was a distinguished law professor with a deep understanding of why people go bankrupt. Then came the phone call that changed her life: could she come to Washington DC to help advise Congress on rewriting the bankruptcy laws?Thus began an impolite education into the bare-knuckled, often dysfunctional ways of Washington. She fought for better bankruptcy laws for ten years and lost. She tried to hold the federal government accountable during the financial crisis but became a target of the big banks. She came up with the idea for a new agency designed to protect consumers from predatory bankers and was denied the opportunity to run it. Finally, at age 62, she decided to run for elective office and won the most competitive—and watched—Senate race in the country. In this passionate, funny, rabble-rousing book, Warren shows why she has chosen to fight tooth and nail for the middle class—and why she has become a hero to all those who believe that America's government can and must do better for working families.