Galileo's Middle Finger: Heretics, Activists, and the Search for Justice in Science


Alice Domurat Dreger - 2015
    For two decades, historian Alice Dreger has led a life of extraordinary engagement, combining activist service to victims of unethical medical research with defense of scientists whose work has outraged identity politics activists. With spirit and wit, Dreger offers in Galileo’s Middle Finger an unforgettable vision of the importance of rigorous truth seeking in today’s America, where both the free press and free scholarly inquiry struggle under dire economic and political threats.This illuminating chronicle begins with Dreger’s own research into the treatment of people born intersex (once called hermaphrodites). Realization of the shocking surgical and ethical abuses conducted in the name of “normalizing” intersex children’s gender identities moved Dreger to become an internationally recognized patient rights’ activist. But even as the intersex rights movement succeeded, Dreger began to realize how some fellow progressive activists were employing lies and personal attacks to silence scientists whose data revealed uncomfortable truths about humans. In researching one such case, Dreger suddenly became the target of just these kinds of attacks.Troubled, she decided to try to understand more—to travel the country to ferret out the truth behind various controversies, to obtain a global view of the nature and costs of these battles. Galileo’s Middle Finger describes Dreger’s long and harrowing journeys between the two camps for which she felt equal empathy: social justice activists determined to win and researchers determined to put hard truths before comfort. Ultimately what emerges is a lesson about the intertwining of justice and of truth—and a lesson of the importance of responsible scholars and journalists to our fragile democracy.

AIDS and Accusation: Haiti and the Geography of Blame


Paul Farmer - 1992
    Does the scientific "theory" that HIV came to North America from Haiti stem from underlying attitudes of racism and ethnocentrism in the United States rather than from hard evidence? Anthropologist-physician Paul Farmer answers in the affirmative with this, the first full-length ethnographic study of AIDS in a poor society.

The Social Life of DNA: Race, Reparations, and Reconciliation After the Genome


Alondra Nelson - 2016
    Genealogy is the second most popular hobby in the United States, and the outpouring of interest in it from the African American community has been remarkable. After personally and professionally delving into the phenomenon for more than a decade, Alondra Nelson realized that genetic testing is being used to grapple with the unfinished business of slavery. It is being used for reconciliation, to establish ties with African ancestral homelands, to rethink citizenship, and to make unprecedented legal claims for slavery reparations based on genetic ancestry. Arguing that DNA offers a new tool for enduring issues, Nelson shows that the social life of DNA is affecting and transforming twenty-first-century racial politics.

Medieval Bodies: Life and Death in the Middle Ages


Jack Hartnell - 2018
    But while this medieval medicine now seems archaic, it also made a critical contribution to modern science.Medieval Bodies guides us on a head-to-heel journey through this era’s revolutionary advancements and disturbing convictions. We learn about the surgeons who dissected a living man’s stomach, then sewed him up again; about the geographers who delineated racial groups by skin color; and about the practice of fasting to gain spiritual renown. Encompassing medicine and mysticism, politics and art—and complete with vivid, full-color illustrations—Medieval Bodies shows us how it felt to live and die a thousand years ago.

Superior: The Return of Race Science


Angela Saini - 2019
    After the horrors of the Nazi regime in WWII, the mainstream scientific world turned its back on eugenics and the study of racial difference. But a worldwide network of eugenicists founded journals and funded research, providing the kind of shoddy studies that were ultimately cited in Richard Hernstein's and Charles Murray's 1994 title, The Bell Curve, which purported to show differences in intelligence among races.Whether you think of racist science as bad science, evil science, alt-right science, or pseudoscience, why would any contemporary scientist imagine that gross inequality is a fact of nature, rather than of political history? Angela Saini's Superior connects the dots, laying bare the history, continuity, and connections of modern racist science, some more subtle than you might think.

Even the Rat Was White: A Historical View of Psychology (Allyn & Bacon Classics Edition)


Robert V. Guthrie - 1976
    Histories and other background materials are presented in detail concerning early African-American psychologists and their scientific contributions, as well as their problems, views, and concerns of the field of social psychology. Archival documents that are not often found in mainstream resources are uncovered through the use of journals and magazines, such as the Journal of Black Psychology, the Journal of Negro Education, and Crisis.

Saints, Scholars, and Schizophrenics: Mental Illness in Rural Ireland


Nancy Scheper-Hughes - 1979
    In this richly detailed and sympathetic book, Nancy Scheper-Hughes explores the symptoms of the community's decline: emigration, malaise, unwanted celibacy, damaging patterns of childrearing, fear of intimacy, suicide, and schizophrenia. Following a recent return to "Ballybran," Scheper-Hughes reflects in a new preface and epilogue on the well-being of the community and on her attempts to reconcile her responsibility to honest ethnography with respect for the people who shared their homes and their secrets with her.

A War of Nerves: Soldiers and Psychiatrists in the Twentieth Century


Ben Shephard - 2000
    It reaches back to the moment when the technologies of modern warfare and the disciplines of psychological medicine first confronted each other on the Western Front, and traces their uneasy relationship through the eras of shell-shock, combat fatigue, and post-traumatic stress disorder.At once absorbing historical narrative and intellectual detective story, A War of Nerves weaves together the literary, medical, and military lore to give us a fascinating history of war neuroses and their treatment, from the World Wars through Vietnam and up to the Gulf War. Ben Shephard answers recurring questions about the effects of war. Why do some men crack and others not? Are the limits of resistance determined by character, heredity, upbringing, ideology, or simple biochemistry?Military psychiatry has long been shrouded in misconception, and haunted by the competing demands of battle and of recovery. Now, for the first time, we have a definitive history of this vital art and science, which illuminates the bumpy efforts to understand the ravages of war on the human mind, and points towards the true lessons to be learned from treating the aftermath of war.

The Body in Pain: The Making and Unmaking of the World


Elaine Scarry - 1985
    The book is an analysis of physical suffering and its relation to the numerous vocabularies and cultural forces--literary, political, philosophical, medical, religious--that confront it. Elaine Scarry bases her study on a wide range of sources: literature and art, medical case histories, documents on torture compiled by Amnesty International, legal transcripts of personal injury trials, and military and strategic writings by such figures as Clausewitz, Churchill, Liddell Hart, and Kissinger, She weaves these into her discussion with an eloquence, humanity, and insight that recall the writings of Hannah Arendt and Jean-Paul Sartre. Scarry begins with the fact of pain's inexpressibility. Not only is physical pain enormously difficult to describe in words--confronted with it, Virginia Woolf once noted, "language runs dry"--it also actively destroys language, reducing sufferers in the most extreme instances to an inarticulate state of cries and moans. Scarry analyzes the political ramifications of deliberately inflicted pain, specifically in the cases of torture and warfare, and shows how to be fictive. From these actions of "unmaking" Scarry turns finally to the actions of "making"--the examples of artistic and cultural creation that work against pain and the debased uses that are made of it. Challenging and inventive, The Body in Pain is landmark work that promises to spark widespread debate.

Impure Science: AIDS, Activism, and the Politics of Knowledge


Steven Epstein - 1996
    Steven Epstein's astute and readable investigation focuses on the critical question of "how certainty is constructed or deconstructed," leading us through the views of medical researchers, activists, policy makers, and others to discover how knowledge about AIDS emerges out of what he calls "credibility struggles."Epstein shows the extent to which AIDS research has been a social and political phenomenon and how the AIDS movement has transformed biomedical research practices through its capacity to garner credibility by novel strategies. Epstein finds that nonscientist AIDS activists have gained enough of a voice in the scientific world to shape NIH–sponsored research to a remarkable extent. Because of the blurring of roles and responsibilities, the production of biomedical knowledge about AIDS does not, he says, follow the pathways common to science; indeed, AIDS research can only be understood as a field that is unusually broad, public, and contested. He concludes by analyzing recent moves to democratize biomedicine, arguing that although AIDS activists have set the stage for new challenges to scientific authority, all social movements that seek to democratize expertise face unusual difficulties.Avoiding polemics and accusations, Epstein provides a benchmark account of the AIDS epidemic to date, one that will be as useful to activists, policy makers, and general readers as to sociologists, physicians, and scientists.

Reproductive Injustice: Racism, Pregnancy, and Premature Birth


Dána-Ain Davis - 2019
    This cannot be simply explained by economic factors, with poorer women lacking resources or access to care. Even professional, middle-class black women are at a much higher risk of premature birth than low-income white women in the United States. D�na-Ain Davis looks into this phenomenon, placing racial differences in birth outcomes into a historical context, revealing that ideas about reproduction and race today have been influenced by the legacy of ideas which developed during the era of slavery.While poor and low-income black women are often the "mascots" of premature birth outcomes, this book focuses on professional black women, who are just as likely to give birth prematurely. Drawing on an impressive array of interviews with nearly fifty mothers, fathers, neonatologists, nurses, midwives, and reproductive justice advocates, D�na-Ain Davis argues that events leading up to an infant's arrival in a neonatal intensive care unit (NICU), and the parents' experiences while they are in the NICU, reveal subtle but pernicious forms of racism that confound the perceived class dynamics that are frequently understood to be a central factor of premature birth.The book argues not only that medical racism persists and must be considered when examining adverse outcomes--as well as upsetting experiences for parents--but also that NICUs and life-saving technologies should not be the only strategies for improving the outcomes for black pregnant women and their babies. Davis makes the case for other avenues, such as community-based birthing projects, doulas, and midwives, that support women during pregnancy and labor are just as important and effective in avoiding premature births and mortality.

A Long Bright Future


Laura L. Carstensen - 2009
    Supersized life spans are going to radically alter society, and present an unprecedented opportunity to change our approach not only to old age but to all of life’s stages. The ramifications are just beginning to dawn on us.... yet in the meantime, we keep thinking about, and planning for, life as it used to be lived. In A Long Bright Future, longevity and aging expert Laura Carstensen guides us into the new possibilities offered by a longer life. She debunks the myths and misconceptions about aging that stop us from adequately preparing for the future both as individuals and as a society: that growing older is associated with loneliness and unhappiness, and that only the genetically blessed live well and long. She then focuses on other important components of a long life, including finances, health, social relationships, Medicare and Social Security, challenging our preconceived notions of “old age” every step of the way.

Illness as Metaphor and AIDS and its Metaphors


Susan Sontag - 1989
    By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is--just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed.Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.

Carnal Knowledge and Imperial Power: Race and the Intimate in Colonial Rule


Ann Laura Stoler - 2002
    It was, after all, in the intimate sphere of home and servants that European children learned what they were required to learn of place and race. Gender-specific sexual sanctions, too, were squarely at the heart of imperial rule, and European supremacy was asserted in terms of national and racial virility.Stoler looks discerningly at the way cultural competencies and sensibilities entered into the construction of race in the colonial context and proposes that "cultural racism" in fact predates its postmodern discovery. Her acute analysis of colonial Indonesian society in the late nineteenth and early twentieth centuries yields insights that translate to a global, comparative perspective.

The Slave Ship: A Human History


Marcus Rediker - 2007
    Much is known of the slave trade and the American plantation system, but little of the ships that made it all possible.In The Slave Ship, award-winning historian Marcus Rediker draws on thirty years of research in maritime archives to create an unprecedented history of these vessels and the human drama acted out on their rolling decks. He reconstructs in chilling detail the lives, deaths, and terrors of captains, sailors, and the enslaved aboard a “floating dungeon” trailed by sharks.From the young African kidnapped from his village and sold into slavery by a neighboring tribe to the would-be priest who takes a job as a sailor on a slave ship only to be horrified at the evil he sees to the captain who relishes having “a hell of my own,” Rediker illuminates the lives of people who were thought to have left no trace.This is a tale of tragedy and terror, but also an epic of resilience, survival, and the creation of something entirely new. Marcus Rediker restores the slave ship to its rightful place alongside the plantation as a formative institution of slavery, a place where a profound and still haunting history of race, class, and modern economy was made.