Lucky Man
Michael J. Fox - 2002
Fox stunned the world by announcing he had been diagnosed with Parkinson's disease -- a degenerative neurological condition. In fact, he had been secretly fighting it for seven years. The worldwide response was staggering. Fortunately, he had accepted the diagnosis, and by the time the public started grieving for him, he had stopped grieving for himself. Now, with the same passion, humor, and energy, that Fox has invested in his dozens of performances over the last 18 years, he tells the story of his life, his career, and his campaign, to find a cure for Parkinson's.Combining his trademark ironic sensibility, and keen sense of the absurd, he recounts his life -- from his childhood in a small town in western Canada, to his meteoric rise in film and television which made him a worldwide celebrity. Most importantly however, he writes of the last 10 years, during which -- with the unswerving support of his wife, family, and friends -- he has dealt with his illness. He talks about what Parkinson's has given him: the chance to appreciate a wonderful life and career, and the opportunity to help search for a cure, and spread public awareness of the disease. He is a very lucky man, indeed.
Keeper: One House, Three Generations, and a Journey into Alzheimer's
Andrea Gillies - 2009
She and her newly extended family relocated to a big Victorian house on a remote, windswept peninsula in the far north of Scotland, leaving behind their friends and all that was familiar; hoping to find a new life, and new inspiration for work. Her mother-in-law Nancy was in the middle stages of Alzheimer's Disease, and Keeper charts her journey into dementia, its impact on her personality and her family, and the author's researches into what dementia is. As the grip of her disease tightens, Nancy's grasp on everything we think of as ordinary unravels before our eyes. Diary entries and accounts of conversations with Nancy track the slow unravelling. The journey is marked by frustration, isolation, exhaustion, and unexpected black comedy. For the author, who knew little about dementia at the outset, the learning curve was steeper than she could have imagined. The most pernicious quality of Alzheimer's, Gillies suggests, is that the loss of memory is, in effect, the loss of one's self, and Alzheimer's, because it robs us of our intrinsic self-knowledge, our ability to connect with others, and our capacity for self-expression, is perhaps the most terrible and most dehumanizing illness. Moreover, as Gillies reminds us, the effects of Alzheimer's are far-reaching, impacting the lives of caregivers and their loved ones in every way imaginable. Keeper is a fiercely honest "glimpse into the dementia abyss" - an endlessly engrossing meditation on memory and the mind, on family, and on a society that is largely indifferent to the far-reaching ravages of this baffling disease. Keeper won the U.K.'s Orwell Prize for political writing and the Wellcome Trust Book Prize for medical writing.
My Own Medicine: A Doctor's Life as a Patient
Geoffrey Kurland - 2002
Geoffrey Kurland was a busy man. His work as a Pediatric Pulmonologist, caring for children with lung diseases such as cystic fibrosis and asthma, led to long hours on the wards at the University of California, Davis Medical Center. At the same time, he was in the midst of training for the Western States Endurance Run, a grueling 100-mile long footrace across the wilderness of the Sierra Nevada Mountains. His long training runs, the responsibilities of patient care and teaching, and relationships attempting to replace his departed girlfriend occupied most of his life. Dr. Kurland’s ordered world is suddenly turned upside-down when he is diagnosed with Hairy Cell Leukemia, a rare blood cancer with a low survival rate. His work, his running, and his friendships are altered by his struggle to survive. He finds he must undergo many of the procedures he performed on his patients, must endure surgery and chemotherapy, and must relinquish control of his life to his physicians, surgeons, and his disease. He learns first-hand what cannot be taught in medical school about the consuming power of a chronic illness and its treatment.Confronting his own mortality, Dr. Kurland is now the patient while remaining a physician and runner. With the support of his physicians at the Mayo Clinic, the University of California, and the University of Pittsburgh, he resolves to continue to live his life despite his potentially fatal disease. He discovers his personal inner strengths as well as weaknesses as he struggles to confront his illness and regain some of the control he lost to it. Along his nearly two and a half year journey, we follow Dr. Kurland as he endures surgical procedures, chemotherapy, and life-threatening complications of his illness. He emerges into remission with new inner strength and understanding of what it means to be a doctor. He also finds that he is still a runner, with the same goal, to run the 100 miles across the Sierra Mountains.REVIEWS: “Taut, dramatic, and intensely real…Very well written.” --Oliver Sacks, the best selling author of SEEING VOICES and HALLUCINATIONS"[MY OWN MEDICINE] should be required reading for every medical professional. Kurland never asks for sympathy or pity. [...] What comes through powerfully is his humanity, which his own bout with illnesses has clearly enhanced, and from which both his patients and his readers will benefit." --THE NEW YORK TIMES"While training as a pediatric pulmonologist, Kurland told a patient, 'I know how you feel'; years later, when he was diagnosed with a rare form of leukemia, he discovered just how untrue this was. [...] The way in which serious illness alters one's sense of self and of life is compellingly expressed in this energetic, nervy narrative, as Kurland's illness and eventual recovery collide with a host of profound shifts—a big career move, the death of a colleague, an unravelling relationship with his girlfriend, and a deepening one with his parents." --THE NEW YORKER"MY OWN MEDICINE is rich in detail, enhanced by the author's skillful handling of the narrative...The book depicts a man who, faced with the painful reality of his own mortality, acknowledges his condition and gears himself to face the challenge." --PITTSBURGH POST-GAZETTE
“The story of Kurland’s battle with a disease that almost took his life is compelling and poignant. Unlike other chroniclers of illness, however, Kurland is a physician caring for critically ill children. Perhaps it is inevitable that his observations on life, death, and suffering should be so informed by his work. The result is a narrative that is both unique and deeply insightful.
Drop Dead Healthy: One Man's Humble Quest for Bodily Perfection
A.J. Jacobs - 2012
Jacobs tackles his most challenging experiment yet: a yearlong mission to radically improve every element of his body and mind—from his brain to his fingertips to his abs.From the bestselling author of The Year of Living Biblically and The Know-It-All comes the true and truly hilarious story of one person’s quest to become the healthiest man in the world. Hospitalized with a freak case of tropical pneumonia, goaded by his wife telling him, “I don’t want to be a widow at forty-five,” and ashamed of a middle-aged body best described as “a python that swallowed a goat,” A.J. Jacobs felt compelled to change his ways and get healthy. And he didn’t want only to lose weight, or finish a triathlon, or lower his cholesterol. His ambitions were far greater: maximal health from head to toe. The task was epic. He consulted an army of experts— sleep consultants and sex clinicians, nutritionists and dermatologists. He subjected himself to dozens of different workouts—from Strollercize classes to Finger Fitness sessions, from bouldering with cavemen to a treadmill desk. And he took in a cartload of diets: raw foods, veganism, high protein, calorie restriction, extreme chewing, and dozens more. He bought gadgets and helmets, earphones and juicers. He poked and he pinched. He counted and he measured. The story of his transformation is not only brilliantly entertaining, but it just may be the healthiest book ever written. It will make you laugh until your sides split and endorphins flood your bloodstream. It will alter the contours of your brain, imprinting you with better habits of hygiene and diet. It will move you emotionally and get you moving physically in surprising ways. And it will give you occasion to reflect on the body’s many mysteries and the ultimate pursuit of health: a well-lived life.
Elegy for Iris
John Bayley - 1998
Elegy for Iris is a story about the ephemeral beauty of youth and the sobering reality of what it means to grow old, but its ultimate power is that Bayley discovers great hope and joy in his celebration of Iris's life and their love. In its grasp of life's frailty and its portrayal of one of the great literary romances of this century, Elegy for Iris is a mesmerizing work of art that will be read for generations.
My Stroke of Insight: A Brain Scientist's Personal Journey
Jill Bolte Taylor - 2006
Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.
In the Sanctuary of Outcasts
Neil W. White III - 2009
The emotional, incredible true story of Neil White, a man who discovers the secret to happiness, leading a fulfilling life, and the importance of fatherhood in the most unlikely of places—the last leper colony in the continental United States.
Slow Dancing with a Stranger: Lost and Found in the Age of Alzheimer's
Meryl Comer - 2014
With harrowing honesty, she brings readers face to face with this devastating condition and its effects on its victims and those who care for them. Detailing the daily realities and overwhelming responsibilities of caregiving, Comer sheds intensive light on this national health crisis, using her personal experiences—the mistakes and the breakthroughs—to put a face to a misunderstood disease, while revealing the facts everyone needs to know.Pragmatic and relentless, Meryl has dedicated herself to fighting Alzheimer’s and raising public awareness. “Nothing I do is really about me; it’s all about making sure no one ends up like me,” she writes. Deeply personal and illuminating, Slow Dancing With a Stranger offers insight and guidance for navigating Alzheimer’s challenges. It is also an urgent call to action for intensive research and a warning that we must prepare for the future, instead of being controlled by a disease and a healthcare system unable to fight it.
The Two Kinds of Decay
Sarah Manguso - 2008
In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.
The Council of Dads: My Daughters, My Illness, and the Men Who Could Be Me
Bruce Feiler - 2010
He instantly worried what his daughters' lives would be like without him. "Would they wonder who I was? Would they wonder what I thought? Would they yearn for my approval, my love, my voice?" Three days later he came up with a stirring idea of how he might give them that voice. He would reach out to six men from all the passages in his life, and ask them to be present in the passages in his daughters' lives. And he would call this group "The Council of Dads." "I believe my daughters will have plenty of opportunities in their lives," he wrote to these men. "They'll have loving families. They'll have each other. But they may not have me. They may not have their dad. Will you help be their dad?" The Council of Dads is the inspiring story of what happened next. Feiler introduces the men in his Council and captures the life lesson he wants each to convey to his daughters--how to see, how to travel, how to question, how to dream. He mixes these with an intimate, highly personal chronicle of his experience battling cancer while raising young children, along with vivid portraits of his father, his two grandfathers, and various father figures in his life that explore the changing role of fathers in America. This is the work of a master storyteller confronting the most difficult experience of his life and emerging with wisdom and hope. The Council of Dads is a touching, funny, and ultimately deeply moving book on how to live life, how the human spirit can respond to adversity, and how to deepen and cherish the friendships that enrich our lives.
Until I Say Goodbye: A Book about Living
Susan Spencer-Wendel - 2012
She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."
The Beauty of Living Twice
Sharon Stone - 2021
In The Beauty of Living Twice, Stone chronicles her efforts to rebuild her life and writes about her slow road back to wholeness and health. In a business that doesn’t accept failure, in a world where too many voices are silenced, Stone found the power to return, the courage to speak up, and the will to make a difference in the lives of men, women, and children around the globe.Over the course of these intimate pages, as candid as a personal conversation, Stone talks about her pivotal roles, her life-changing friendships, her worst disappointments, and her greatest accomplishments. She reveals how she went from a childhood of trauma and violence to a career in an industry that in many ways echoed those same assaults, under cover of money and glamour. She describes the strength and meaning she found in her children, and in her humanitarian efforts. And ultimately, she shares how she fought her way back to find not only her truth, but her family’s reconciliation and love.Stone made headlines not just for her beauty and her talent, but for her candor and her refusal to “play nice,” and it’s those same qualities that make this memoir so powerful. The Beauty of Living Twice is a book for the wounded and a book for the survivors; it’s a celebration of women’s strength and resilience, a reckoning, and a call to activism. It is proof that it’s never too late to raise your voice and speak out.
You Can Stop Humming Now: A Doctor's Stories of Life, Death, and in Between
Daniela Lamas - 2018
To the public eye, medical stories often begin with sirens and flashing lights and culminate in survival or death. But these are only the most visible narratives. As a critical care doctor treating people at their sickest, Daniela Lamas is fascinated by a different story: what comes after for those whose lives are extended by days, months, or years as a result of our treatments and technologies?In You Can Stop Humming Now, Lamas explores the complex answers to this question through intimate accounts of patients and their families. A grandfather whose failing heart has been replaced by a battery-operated pump; a salesman who found himself a kidney donor on social media; a college student who survived a near-fatal overdose and returned home, alive but not the same; and a young woman navigating an adulthood she never thought she'd live to see -- these moving narratives paint a detailed picture of the fragile border between sickness and health.
Breath: A Lifetime in the Rhythm of an Iron Lung
Martha Mason - 2003
The subject of a documentary film, an NPR feature, an ABC News piece, and a widely syndicated New York Times obituary, Martha enjoyed life, and people. From within her iron lung, she graduated first in her class in high school and at Wake Forest University, and was elected to Phi Beta Kappa. She was determined to be a writer and, with her devoted mother taking dictation, she became a journalist--but had to give up her career when her father became ill. Still, Martha created for herself a vast and radiant world--holding dinner parties with the table pushed right up to her iron lung, voraciously reading, running her own household, and caring for her mother when she became ill with Alzheimer's and increasingly abusive to Martha. When voice-activated computers became available, Martha wrote Breath, in part as a tribute to her mother. "This book is her story," writes Anne Rivers Siddons in her preface, "told in the rich words of a born writer. That she told it is a gift to everyone who will read it. That she told it is also as near to a miracle as most are likely to encounter."
The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live
Heather B. Armstrong - 2019
Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.