Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

    But when she found herself on the floor of her apartment wailing into the phone, 'but I don’t want to be sick,' her entire world came crashing down.A doctor had just revealed that she had Multiple Sclerosis, a potentially debilitating disease, her good friend was getting married that weekend and the only people she wanted to call were her parents. In a time when she was supposed to be coming into her own as an adult, all she could think was who's going to want to marry me now?As she embarked on a medical quest, subjecting herself to countless MRIs and a painful spinal tap that landed her in the ER, Cory simultaneously threw herself head first into dating. She was determined to find love before the disease took over her body. But no matter how many doctors she saw or men she met there would never be a cure for MS. And if you think it's hard to get the guy you’re dating to give you a ride to the airport, try getting him to drive you to the hospital. Add to that an unfortunate incident with a blue thong and a cute young doctor, and Cory quickly realized that learning to deal with MS would take a whole lot more strength than a ring on her finger could ever provide.Love Sick is a smart and witty account of dating while navigating a life of uncertain health. Writing from a place of strength and vulnerability, Cory Martin faces her fears head on with humor and grace. Her tales are real life. There is no magical ending and no grand epiphany. Instead it is her desire to be loved and feel normal that makes her journey so poignant.

    In this classic study of the very nature of that fascination, the renowned literary and cultural critic Fiedler offers an in-depth examination of man's views of the freak from classical times to present. 150 photos and line drawings.

    For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.

    However, she had difficulty reading facial features or distinguishing people in group conversations. Relying on her own problem-solving skills, Girma overcame roadblocks while simultaneously obtaining her undergraduate and then law degree. In the process, she developed new methods of communication and found her calling in advocating for the deaf and blind communities in more accessible communication, education, and employment opportunities. As a lawyer and advocate, Girma shares a collection of vignettes illustrating the defining points in her life. She peppers her writing with a witty sense of humor and showcases her strength in facing obstacles, along with challenging antiquated societal beliefs about people with disabilities, whether describing her experience climbing Alaska's Mendenhall Glacier or helping a drunk friend get to his dorm by using her seeing-eye dog that he adores as a lure

    What is fueling this twenty-first century pandemic?  In this eye-opening tour de force, Steven Phillips, MD, and his former patient, singer-songwriter Dana Parish, take on the medical establishment. Backed by a trove of published data, Chronic reveals striking evidence that a broad range of microbes, including the Lyme bacteria, cause a variety of recurrent conditions and autoimmune diseases. Chronic delves into the history and science behind common infections that are difficult to diagnose and treat, debunks widely held beliefs by doctors and patients alike, shows how medicine got the facts patently wrong, and provides solutions that empower readers to get their lives back. Dr. Phillips was already an internationally renowned physician specializing in complex chronic diseases when he became a patient himself. After nearly dying from his own mystery illness, he experienced firsthand the medical community’s ignorance about the pathogens that underlie a deep spectrum of chronic conditions—from fibromyalgia, lupus, multiple sclerosis, chronic fatigue syndrome, and rheumatoid arthritis to depression, anxiety, and neurodegenerative disorders. Parish, too, watched her health spiral after twelve top doctors missed an underlying infection that caused heart failure and other sudden debilitating physical and psychiatric symptoms. Now, they’ve come together with a mission: to change the current model of simply treating symptoms, often with dangerous, lifelong drugs, and shift the focus to finding and curing root causes of chronic diseases that affect millions around the world.

    'This book made me feel proud to be different' - Rosie Jones. Break the Mould with Sinéad Burke - teacher, activist, author and little person. Sometimes we can feel like we are not good enough. That we don't belong. Or that we want to be more like our friends. In this empowering guide, Sinéad Burke draws on her own experiences and encourages young readers to believe in themselves, have pride in who they are and use their voice to make the world a fairer, more inclusive place.From the power of being different, to celebrating the things you love about yourself and helping others do the same, this is a brilliantly inspirational handbook for breaking the mould and finding your place in the world. 'A very important book encouraging us all to celebrate the uniqueness and gift of our own and others' differences, while recognising all of that which we share in common.' - Michael D. Higgins, President of Ireland

    A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.

    In the age of austerity, it's disabled people who are hardest hit, affecting over 3.7 million people. This is in addition to a situation in which half of those in poverty are either disabled or living with a disabled person.In Crippled, leading commentator Frances Ryan tells the story of those most affected by this devastating regime, people who have been too often been silenced. This includes the tetraplegic living in a first floor flat forced to crawl down flights of stairs because the council doesn't provide accessible housing; the young girl forced to sleep in her wheelchair and admitted to hospital with malnutrition because cuts mean she no longer had a carer to help her get to bed or cook; or the Londoner with schizophrenia found 'fit for work', and with nothing to live on was found dead at home three months later.Through these personal stories the book shows the scale of the crisis, while also showing how the disabled community is fighting back. It is a passionate demand for the recognition of disability rights and a call for an end to austerity policies that disproportionately affect those most in need.

    Crip Poetry. Disability Poetry. Poems with Disabilities. This is where poetry and disability intersect, overlap, collide and make peace."[BEAUTY IS A VERB] is going to be one of the defining collections of the 21st century...the discourse between ability, identity & poetry will never be the same." —Ron Silliman, author of In The American Tree"This powerful anthology succeeds at intimately showing...disability through the lenses of poetry. What emerges from the book as a whole is a stunningly diverse array of conceptions of self and other.”—Publishers Weekly, starred reviewFrom "Beauty and Variations" by Kenny Fries:How else can I quench this thirst? My lipstravel down your spine, drink the smoothnessof your skin. I am searching for the core:What is beautiful? Who decides? Can the lawsof nature be defied? Your body tells me: comeclose. But beauty distances even as it drawsme near. What does my body want from yours?My twisted legs around your neck. You bendme back. Even though you can't give the bonesat birth I wasn't given, I let you deep inside.You give me—what? Peeling back my skin, youexpose my missing bones. And my heart, longbefore you came, just as broken. I don't know whoto blame. So each night, naked on the bed, my bodydoesn't want repair, but longs for innocence. Ifinnocent, despite the flaws I wear, I am beautiful.Sheila Black is a poet and children's book writer. In 2012, Poet Laureate Philip Levine chose her as a recipient of the Witter Bynner Fellowship.Disability activist Jennifer Bartlett is a poet and critic with roots in the Language school.Michael Northen is a poet and the editor of Wordgathering: A Journal of Poetics and Disability.

    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

    Seeming to criminalize disability and thus offering a visceral example of discrimination, these "ugly laws" have become a sort of shorthand for oppression in disability studies, law, and the arts.In this watershed study of the ugly laws, Susan M. Schweik uncovers the murky history behind the laws, situating the varied legislation in its historical context and exploring in detail what the laws meant. Illustrating how the laws join the history of the disabled and the poor, Schweik not only gives the reader a deeper understanding of the ugly laws and the cities where they were generated, she locates the laws at a crucial intersection of evolving and unstable concepts of race, nation, sex, class, and gender. Moreover, she explores the history of resistance to the ordinances, using the often harrowing life stories of those most affected by their passage. Moving to the laws' more recent history, Schweik analyzes the shifting cultural memory of the ugly laws, examining how they have been used--and misused--by academics, activists, artists, lawyers, and legislators.

    What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author’s specific condition but an exploration that transcends pain’s airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.

    The major texts in sexuality studies, including queer theory, rarely mention disability, and foundational texts in disability studies do not discuss sex in much detail. What if "sex" and "disability" were understood as intimately related concepts? And what if disabled people were seen as both subjects and objects of a range of erotic desires and practices? These are among the questions that this collection's contributors engage. From multiple perspectives—including literary analysis, ethnography, and autobiography—they consider how sex and disability come together and how disabled people negotiate sex and sexual identities in ableist and heteronormative culture. Queering disability studies, while also expanding the purview of queer and sexuality studies, these essays shake up notions about who and what is sexy and sexualizable, what counts as sex, and what desire is. At the same time, they challenge conceptions of disability in the dominant culture, queer studies, and disability studies.Contributors. Chris Bell, Michael Davidson, Lennard J. Davis, Michel Desjardins, Lezlie Frye, Rachael Groner, Kristen Harmon, Michelle Jarman, Alison Kafer, Riva Lehrer, Nicole Markotić, Robert McRuer, Anna Mollow, Rachel O’Connell, Russell Shuttleworth, David Serlin, Tobin Siebers, Abby L. Wilkerson

    No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children. Ever since that first real-life performance, Galloway has used theater, whether onstage or off, to defy and transcend her reality. With disarming candor, she writes about her mental breakdowns, her queer identity, and living in a silent, quirky world populated by unforgettable characters. What could have been a bitter litany of complaint is instead an unexpectedly hilarious and affecting take on life.From the Trade Paperback edition.