None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

    The heartbreaking story of this mysterious sonata—Schubert’s last, and his most elusive and haunting—is the soundtrack of Andrea's story.Sonata is a breathtaking exploration of a “Janus-head miracle”—Andrea's extraordinary talent and even more extraordinary illness. With no cure for her R.A. possible, Andrea must learn to live with this disease while not letting it define her, even though it leaves its mark on everything around her—family, relationships, even the clothes she wears. And in this riveting account, she never loses her wit, humor, or the raw artistry of a true performer.As the goshawk becomes a source of both devotion and frustration for Helen Macdonald in H is for Hawk, so the piano comes to represent both struggle and salvation for Andrea in her extraordinary debut.

    Book by Stewart Nordensson, Lydia Kelley

    He won two stages at the Tour de France and an Olympic medal. But after years of feeling off, he was diagnosed with early-onset Parkinson’s. The body that had been his ally was now something else: a prison. The Happiness of Pursuit is the story of how Davis sought to overcome his Parkinson’s by reaching back to what had made him so successful on the bike and adjusting his perspective on what counted as a win. The news of his diagnosis began a dark period for this vibrant athlete, but there was also light. His son Taylor’s own bike-racing career was taking off. Determined to beat the Body Snatcher, Davis underwent a procedure called deep brain stimulation. Although not cured, his symptoms abated enough for him to see Taylor compete in the Beijing Olympics. Davis Phinney had won another stage. But the joy, he discovered, was in the pursuit. With humor and grace, Phinney weaves the narrative of his battle with Parkinson’s with tales from his cycling career and from his son’s emerging career. The Happiness of Pursuit is a remarkable story of fathers and sons and bikes, of victories large and small.

    After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she'll have a happy ending?By examining the ways that fairy tales have shaped our expectations of disability, Disfigured will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world. Through the book, Leduc ruminates on the connections we make between fairy tale archetypes—the beautiful princess, the glass slipper, the maiden with long hair lost in the tower—and tries to make sense of them through a twenty-first-century disablist lens. From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today's media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other—helping us to see and celebrate the magic inherent in different bodies.

     Ben and Annie Flurry have the perfect family, until an accident takes Annie's life and leaves their daughter severely injured. Now Ben struggles to come to terms with his own grief and guilt. As the past he tried to leave behind threatens all he holds dear, Ben makes the difficult decision to move back to his childhood home to seek the help of his mother — and the father he remembers as abusive and an alcoholic. His mother claims his father is a changed man, but Ben isn't so sure. Can he find the strength to be the dad and man his father never was? Or will the wounds of the past ruin Ben's chance to love again?

    But when her husband, David, survives a plane crash and is left with severe brain damage, she faces a choice: will she dedicate her life to caring for a man she no longer loves, or walk away?Their marriage had been rocky at the time of the accident, and though she wants to do the right thing, Rachel doesn’t know how she is supposed to care for two kids in addition to a now irrational, incontinent, and seizure-prone grown man. And how will she manage to see her lover? But then again, what kind of selfish monster would refuse to care for her disabled husband, no matter how unhappy her marriage had been? Rachel wants to believe that she can dedicate her life to David’s needs, but knows in her heart it is impossible.Crash tackles a pervasive dilemma in our culture: the moral conflicts individuals face when caregiving for a disabled or cognitively impaired family member.

    Nussbaum crafts a multifaceted portrait of a way of life hidden from most of us. In this isolated place on Chicago's South Side, friendships are forged, trust is built, and love affairs begin. It's in these alliances that the residents of this neglected community ultimately find the strength to bond together, resist their mistreatment, and finally fight back. And in the process, each is transformed.

    But many of us–disabled and non-disabled alike–don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on important disability issues you need to know about, including: • How to appreciate disability history and identity • How to recognize and avoid ableism (discrimination toward disabled people) • How to be mindful of good disability etiquette • How to appropriately think, talk, and ask about disability • How to ensure accessibility becomes your standard practice, from everyday communication to planning special events • How to identify and speak up about disability stereotypes in mediaAuthored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience.

    He kept his cerebral palsy a secret from the record- keepers and medical authorities for 20 years. He had a distinguished and highly decorated career despite the pain he endured to appear normal.He served on board destroyers, a battleship, two aircraft carriers and functioned as an administrator for a Seal unit. The outside world also impacted on him further aggravating his CP when he was challenged by alcoholism and excessive grief caused by the suicide of a brother. With help, John Quinn triumphed over both, as he did the painful cerebral palsy.

    This approach ignores the reality that inequity itself causes trauma, and that schools often heighten inequities when implementing trauma-informed practices that are not based in educational equity.In this fresh look at trauma-informed practice, Alex Shevrin Venet urges educators to shift equity to the center as they consider policies and professional development. Using a framework of six principles for equity-centered trauma-informed education, Venet offers practical action steps that teachers and school leaders can take from any starting point, using the resources and influence at their disposal to make shifts in practice, pedagogy, and policy. Overthrowing inequitable systems is a process, not an overnight change. But transformation is possible when educators work together, and teachers can do more than they realize from within their own classrooms.

    She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

    Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.

    They’re humorous, odd, and full of all the unreasonable truth of love. This book is the real thing.” —Publishers Weekly Weise’s collection “examines the daily life and consciousness of a speaker with a disability willing to confront all taboos associated with sex, intimacy, identity, gender, and love.” - Coldfront MagazineThe Los Angeles Times described Jillian Weise's debut poetry collection as "a fearless dissection of the taboo and the hidden." In this second collection she forwards her bold, sexy poetics by chronicling an affair with a man she names "Big Logos." These poems throw into question sex, the law, identity, sentiment, and power, shifting between lyric and narrative, hyper-realism and magical realism, fact and fiction.I've Been Waiting All NightI reckon you were asleep with your girlbefore the phone rang. Make something up.I've been waiting all night to tell youabout the couple in post-War France,the woman fresh in her graveand the man who didn't like his mistress dead,no sir, and so exhumed her, to the dismayof his wife, who had him arrestedfor the stink he made.She was reburied, returned to the dead.After jail, he dug her up to fuck again.Attached suction cups and crafteda wig from a broom. You can go now.I'm more in the mood than you're used to.Jillian Weise—an above-the-knee amputee with a computerized prosthetic—identifies as a cyborg and has discussed the identity in essays for the New York Times and Drunken Boat. Her books include The Amputee's Guide to Sex (Soft Skull Press, 2007) and The Colony (Counterpoint/Soft Skull Press, 2010). She is an assistant professor at Clemson University, a contributing editor at the South Carolina Review, and co-director of the Annual Clemson Literary Festival.