An emotionally wrenching work of fiction about a health-care worker who tenders compassion and love to victims of AIDS, by an author who "strips her language of convention to lay bare the ferocious rituals of love and need."--New York Times Book Review

    By today's standards such displays would be considered cruel and exploitative—the pornography of disability. Yet for one hundred years the freak show was widely accepted as one of America's most popular forms of entertainment. Robert Bogdan's fascinating social history brings to life the world of the freak show and explores the culture that nurtured and, later, abandoned it. In uncovering this neglected chapter of show business, he describes in detail the flimflam artistry behind the shows, the promoters and the audiences, and the gradual evolution of public opinion from awe to embarrassment. Freaks were not born, Bogdan reveals; they were manufactured by the amusement world, usually with the active participation of the freaks themselves. Many of the "human curiosities" found fame and fortune, becoming the celebrities of their time, until the ascent of professional medicine transformed them from marvels into pathological specimans.

    Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of “debility”—bodily injury and social exclusion brought on by economic and political factors—to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

    "I was one of them, dreaming of a perfect and healthy old age....Now, at fifty-eight, I realize the foolishness of my dreams as I watch my brain self-destruct from Alzheimer's." Losing My Mind is DeBaggio's extraordinary account of his early onset Alzheimer's, a disease that "silently hollows the brain" and slowly "gobbles memory and destroys life." But with DeBaggio's curse came an unexpected blessing: the ability to chart the mechanics and musings of his failing mind.Whether describing the happy days of his youth or lamenting over the burden his disease has placed upon his loved ones, DeBaggio manages to inspire the reader with his ability to function, to think, and ultimately to survive. By turns an autobiography, a medical history, and a book of meditations, Losing My Mind is a testament to the splendor of memory and a triumphant celebration of the human spirit.

    As explained by disabled cartoonist A. Andrews, this easy-to-read guide covers the basics of disability sexuality, common myths about disabled bodies, communication tips, and practical suggestions for having the best sexual experience possible. Whether you yourself are disabled, you love someone who is, or you just want to know more, consider this your handy starter kit to understanding disability sexuality, and your path to achieving accessible (and fulfilling) sex. Part of the bestselling and critically acclaimed A Quick & Easy Guide series from Limerence Press, an imprint of Oni Press.

    Temple Grandin's voice of experience is back to give parents and teachers specific, practical advice on helping young people on the autism spectrum. This collection of articles, written from 2000-present as an exclusive column in the national award-winning magazine, Autism Aspergers Digest, offers Temples invaluable personal and professional insights, from inside the world of autism, about autism. Temple voices her views on a wide variety of topics ranging from the nonverbal child to social functioning, early intervention to adult issues. The articles have been updated and Temple has added fresh commentary on the topics.

    Not everyone agrees about how to reform our relationship to food, but one suggestion rises above the din: home-cooked meals. Amid concerns about obesity and diabetes, unpronounceable ingredients, and the environmental footprint of industrial agriculture, food reformers implore parents to slow down, cook from scratch, and gather around the dinner table. Voting with your fork, they argue, will lead to happier and healthier families. But is it really that simple?Informed by extensive interviews and observations with families, Pressure Cooker takes seriously the difficulties and dilemmas of feeding a family that food reformers and writers often ignore. From picky eaters and ill-equipped kitchens to hectic schedules and stretched budgets, Sarah Bowen, Joslyn Brenton, and Sinikka Elliott consider the deep-seated differences that pass through the kitchen and profoundly shape what and how we eat. This book looks closely at the lives of nine diverse families to examine the class inequality, racism, sexism, and xenophobia that shape the work done in kitchens across America. Parents from all backgrounds have heard the relentless advice to take the time to put fresh food, preferably locally-sourced organic fruits and vegetables, on the dinner table each night, but only the most advantaged families can manage it.Romantic images of family meals are inviting, but they create a fiction that does little to fix the problems in the food system. Even worse, such notions put pressure on families--especially mothers--to strive for an ideal that has never been simple to achieve. Pressure Cooker demonstrates that if we want a food system that is fair, equitable, and nourishing, we must look outside the kitchen for answers.

    Fiona Wright is a highly regarded poet and critic, and her account of her illness is informed by a keen sense of its contradictions and deceptions, and by an awareness of the empowering effects of hunger, which is unsparing in its consideration of the author’s own actions and motivations. The essays offer perspectives on the eating disorder at different stages in Wright’s life, at university, where she finds herself in a radically different social world to the one she grew up in, in Sri Lanka as a fledgling journalist, in Germany as a young writer, in her hospital treatments back in Sydney. They combine research, travel writing, memoir, and literary discussions of how writers like Christina Stead, Carmel Bird, Tim Winton, John Berryman and Louise Glück deal with anorexia and addiction; together with accounts of family life, and detailed and humorous views of hunger-induced situations of the kind that are so compelling in Wright’s poetry.

    This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and "fitting in".1000Guide on what to expect and how to help girls on the spectrum as they grow up0600The authors unflinchingly address the most challenging issues of girls and puberty with grace and matter-of-fact discussions of pelvic exams, periods, eating disorders, healthy sexuality, and self-perception. The discussions range from choosing undergarments to the difference in boys' and girls' aggression in adolescence. Full of hints from other parents, research results, and suggestions from professionals, this book is an essential guide to adolescence for parents of girls on the spectrum (and it's also great for parents of boys!).the Spectrum, The Newsletter of The Autism Society of North Carolina, US0600This book provides a valuable insight into the concerns commonly faced by girls with Autism Spectrum Disorders (ASDs), and their parents. It offers advice and coping strategies on a host of areas, including approaching adolescence, navigating puberty, self-perception and self-confidence, understanding friendships, looking at healthy sexuality, promoting personal safety and many more...The book has a warm and engaging reading style, and the may case studies of experiences from families, daughters and educators provide brave testimonies and excellent recommendations for support; a useful reference list is also provided. This book is a must have read for those interested in helping females on the autistic spectrum.Youth in Mind0600It gives me great pleasure to introduce ASQ readers to this terrific book!...Girls Growing Up on the Autism Spectrum is an A+ read!Liane Holliday Willey, EdD, Autism Spectrum Quarterly0600This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book - it is a must-have for families, teachers and therapists alike.Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome0600The authors tackle an important and sensitive issue for young people with ASC. The information presented is based in research and presented clearly in a most usable format. I would not hesitate to recommend this book to young people (it might even help a few boys!) with ASC and their parents.E. Veronica Bliss, psychologist and Director of Missing Link Support Services, Ltd0600Shana Nichols, Gina Marie Moravcik, and Samara Pulver Tetenbaum provide solid, specific advice on teen issues - social life, changing bodies, friendships, diet and nutrition, self-reliance, anxiety, and more. This is an excellent beginning, with resources listed (books, articles, Web sites, blogs) in every chapter and short case studies that break up the text throughout. The authors tackle the bigger issues of socialization and friendships, plus the nitty-gritty of raising an adolescent girl - periods, ob-gyn exams, weight, privacy, and hygiene.ForeWord0600There's really only one way to say this: If you have a daughter anywhere on the autism spectrum, or even with unexplainable quirky behaviour, this book is a must. While there are hundreds of good books about autism, girls have their own unique issues when it comes to this puzzling disorder. Dr. Nichols' book is a standout. Addressing girls on their own, and in such an insightful, scholarly and reader-friendly way, what 'Girls...' has done is invaluable. You'll be shocked at how easy it is to have a girl on the spectrum misdiagnosed or not therapeutically treated correctly, but you're not left on your own. Nichols provides great counsel. 'Girls...' offers not only important information about the child, but it also provides necessary strategies for parents (and medical professionals) to help improve the child's life, and not a single subject goes untouched. The teen years are tough enough for any girl, but for one who has spectrum challenges, it can be devastating. Nichols, the clinical director of the Fay J. Lindner Center for Autism and Developmental Disorders, provides expert advice that is practical and necessary, on topics ranging from cognitive concerns and everyday behaviours to sexuality and just fitting in, which for a teenaged girl can be the most important issue of all--on the spectrum or not. Nichols draws from many wells here - vast research, conversations and interviews with parents, teachers and medical experts, and most importantly, these young girls. This is one of those hallelujah books for which parents search high and low.Long Island Press0600Rather than constructing a "how-to" book, in which pre-planned lessons have been created focusing on puberty or sexuality issues, the authors provide a broad conceptual treatment of the relevant sociological and cultural issues. That is, not only do they address the social, communication, and behavioural vulnerabilities that these girls may display, but they place these vulnerabilities in the context of a girl's social world. From this vantage point, the authors describe concrete steps and processes which may be useful for working with girls on the spectrum to help them cope with the issues they confront as they mature...This volume continually reminds the reader to think about the challenges typically developing girls and young women face throughout the pre-teen and teenage years as the context for their understanding of a girl with an ASD.Journal of Autism and Developmental Disorders0200This book covers the concerns faced by girls with ASDs and their parents, from periods and puberty to friendships and "fitting in". Looking at these issues within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help the whole family through the teenage years.0400Foreword. Acknowledgements. Author’s Notes. 1. What Do We Currently Know About Girls and Women with Autism Spectrum Disorders? 2. Approaching Adolescence: Anticipation, Anxiety, Adaptation and Acceptance? 3. Puberty or ‘Do My Parents Know You’re Here?’ 4. The Red Spot: Periods, Pads and Pelvic Exams. 5. Feeling Good Inside and Out: Self-perception and Self-confidence. 6. The Social Landscape of Adolescence: Friendships and Social Status. 7. Healthy Sexuality for Girls with ASDs. 8. Keeping Girls Safe: Promoting Personal Safety in the Real World. 9. Our Journey: A Mother and her Daughter with Asperger's Syndrome. Conclusion: Embracing Change. References. Index.01000301http://www.biblioimages.com/jkp/getim...

    Wrapped within Danquah's engaging account of this universal affliction is rare and insightful testimony about what it means to be black, female, and battling depression in a society that often idealizes black women as strong, nurturing caregivers. A startlingly honest, elegantly rendered depiction of depression, Willow Weep for Me calls out to all women who suffer in silence with a life-affirming message of recovery. Meri Danquah rises from the pages, a true survivor, departing a world of darkness and reclaiming her life.

    Taking on topics as eclectic as vomit, Kathy Acker's wardrobe, and Occupy Oakland, Bellamy here examines illness, health, and the body -- both the social body and the individual body -- in essays that glitter with wit even at their darkest moments.In a safe house in Marin County, strangers allergic to the poisons of the world gather for an evening's solace. In Oakland, protesters dance an ecstatic bacchanal over the cancerous body of the city-state they love and hate. In the elegiac memoir, "Phone Home," Bellamy meditates on her dying mother's last days via the improbable cipher of Steven Spielberg's E.T. the Extra-Terrestrial. Finally, Bellamy offers a piercing critique of the displacement and blight that have accompanied Twitter's move into her warehouse-district neighborhood, and the pitiless imperialism of tech consciousness.A participant in the New Narrative movement and a powerful influence on younger writers, Bellamy views heteronormativity and capitalism as plagues, and celebrates the micro-revolts of those on the outskirts. In its deft blending of forms, When the Sick Rule the World resiliently and defiantly proclaims the "undeath of the author." In the realm of sickness, Bellamy asserts, subjectivity is not stable. "When the sick rule the world, mortality will be sexy," Bellamy prophesies. Those defined by society as sick may, in fact, be its saviors.

    While she was putting in her contacts, the left lens disturbed a constellation of nerves behind her eye. The pain was more piercing than that of any other headache she had ever experienced. More than a decade later, she still has a headache-the exact same headache. From surgery to a battery of Botox injections to a dousing of Lithuanian holy water, from a mountain of pharmaceutical products to aromatherapy and even a vibrating hat, All in My Head chronicles the sometimes frightening, usually absurd, and always ineffective remedies Kamen-like so many others-tried in order to relieve the pain. Beleaguered and frustrated by doctors who, frustrated themselves, periodically declared her pain psychosomatic, she came to understand the plight of the millions who suffer chronic pain in its many forms. Full of self-deprecating humor and razorsharp reporting, All in My Head is the remarkable story of patience, acceptance, and perseverance in the face of terrifying pain.

    The work here represents the lives, politics, and artistic expressions of Black, Brown, Latinx, Indigenous, Mixed-Race, and other racialized and people of color from many autistic communities, often speaking out sharply on issues of marginality, intersectionality, and liberation.

    The king of one night stands. That’s all they see me as. And to be fair, I’m not exactly a saint, but no one sees through the reputation to the real me.No one until Cecilia.Suddenly the only one I want is her, and she has me in knots. One problem: She has no idea who I am, and I’m afraid that telling her will ruin everything.CeciliaMy vision impairment has defined my entire life. I’ve been mistreated and underestimated, and I cope by surrounding myself with music. Studying to become a producer, I was content with my life until Maverick comes crashing into it. Literally.Maverick sees me for me, treats me like an equal, and shows me the one thing my life was missing—romance. I’m terrified he’ll leave like everyone else because I’m starting to fall for him for real.**See Me is a sweet and steamy 40K romance, filled with 18+ content, great music, and first experiences on their way to a HEA. This is the first book in the Fly By Boys series, the series will be in chronological order but can be read as a stand alone novels.

    In many circles this disease, still known as Yuppi Flu, is dismissed as a psychological aberration. For the nearly two million people who have endured its traumatic and very real debilitating physical effects, however, Chronic Fatigue Syndrome is no joke.