Criptiques


Caitlin Wood - 2014
    Exploring themes of gender, sexuality, disability/crip culture, identity, ableism and much more, this important anthology provides much needed space for thought-provoking discourse from a highly diverse group of writers. Criptiques takes a cue from the disability rights slogan "Nothing About Us Without Us," illuminating disability experiences from those with firsthand knowledge. Criptiques is for people invested in crip culture, the ones just discovering it, and those completely unfamiliar with the term.Authors who contributed to this collection include: Elsa S. Henry, Ibby Grace, Leroy Moore, Anna Hamilton, Rachel Cohen-Rottenberg, Eva Sweeney, Emily Ladau, Cheryl Green, Mia Mingus, Stefanie Snider, Cara Liebowitz, Nitika Raj, Nina G Comedian, Ben G., Kay Ulanday Barrett, Cat Moran, William Alton, Lydia Brown, Robin Tovey, Alyssa Hillary, Bethany Stevens, Jen Rinaldi, Samantha Walsh, Danine Spencer, Riva Lehrer.

Beauty is a Verb: The New Poetry of Disability


Jennifer Bartlett - 2011
    Crip Poetry. Disability Poetry. Poems with Disabilities. This is where poetry and disability intersect, overlap, collide and make peace."[BEAUTY IS A VERB] is going to be one of the defining collections of the 21st century...the discourse between ability, identity & poetry will never be the same." —Ron Silliman, author of In The American Tree"This powerful anthology succeeds at intimately showing...disability through the lenses of poetry. What emerges from the book as a whole is a stunningly diverse array of conceptions of self and other.”—Publishers Weekly, starred reviewFrom "Beauty and Variations" by Kenny Fries:How else can I quench this thirst? My lipstravel down your spine, drink the smoothnessof your skin. I am searching for the core:What is beautiful? Who decides? Can the lawsof nature be defied? Your body tells me: comeclose. But beauty distances even as it drawsme near. What does my body want from yours?My twisted legs around your neck. You bendme back. Even though you can't give the bonesat birth I wasn't given, I let you deep inside.You give me—what? Peeling back my skin, youexpose my missing bones. And my heart, longbefore you came, just as broken. I don't know whoto blame. So each night, naked on the bed, my bodydoesn't want repair, but longs for innocence. Ifinnocent, despite the flaws I wear, I am beautiful.Sheila Black is a poet and children's book writer. In 2012, Poet Laureate Philip Levine chose her as a recipient of the Witter Bynner Fellowship.Disability activist Jennifer Bartlett is a poet and critic with roots in the Language school.Michael Northen is a poet and the editor of Wordgathering: A Journal of Poetics and Disability.

Growing Up Disabled in Australia


Carly FindlayEmma Di Bernardo - 2020
    A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.

Amen, Amen, Amen: Memoir of a Girl Who Couldn't Stop Praying (Among Other Things)


Abby Sher - 2009
    But when her father and favorite aunt pass away, Abby fills the void of her loss with rituals: kissing her father's picture over and over each night, washing her hands, counting her steps, and collecting sharp objects that she thinks could harm innocent pedestrians. Then she begins to pray. At first she repeats the few phrases she remembers from synagogue, but by the time she is in high school, Abby is spending hours locked in her closet, urgently reciting a series of incantations and pleas. If she doesn't, she is sure someone else will die, too. The patterns from which she cannot deviate become her shelter and her obsession. In college Abby is diagnosed with obsessive-compulsive disorder, and while she accepts this as an explanation for the counting and kissing and collecting, she resists labeling her fiercest obsession, certain that her prayers and her relationship with G-d are not an illness but the cure. She also discovers a new passion: performing comedy. She is never happier than when she dons a wig and makes people laugh. Offstage, however, she remains unable to confront the fears that drive her. She descends into darker compulsions, starving and cutting herself, measuring every calorie and incision. It is only when her earliest, deepest fear is realized that Abby is forced to examine and redefine the terms of her faith and her future. Amen, Amen, Amen is an elegy honoring a mother, father, and beloved aunt who filled a child with music and their own blend of neuroticism. It is an adventure, full of fast cars, unsolved crimes, and close calls. It is part detective story, part love story, about Abby's hunt for answers and someone to guide her to them. It is a young woman's radiant and heartbreaking account of struggling to recognize the bounds and boundlessness of obsession and devotion.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

Vietnam Perkasie: A Combat Marine Memoir


W.D. Ehrhart - 1983
    Ehrhart: "As a poet and editor, Bill Ehrhart is clearly one of the major figures in Vietnam War literature." This autobiographical account of the war, the author's first extended prose work, demonstrates Ehrhart's abilities as a writer of prose as well. Vietnam-Perkasie is grim, comical, disturbing, and accurate. The presentation is novelistic—truly, a "page-turner"—but the events are all real, the atmosphere intensely evocative.

Sex and Disability


Robert McRuer - 2011
    The major texts in sexuality studies, including queer theory, rarely mention disability, and foundational texts in disability studies do not discuss sex in much detail. What if "sex" and "disability" were understood as intimately related concepts? And what if disabled people were seen as both subjects and objects of a range of erotic desires and practices? These are among the questions that this collection's contributors engage. From multiple perspectives—including literary analysis, ethnography, and autobiography—they consider how sex and disability come together and how disabled people negotiate sex and sexual identities in ableist and heteronormative culture. Queering disability studies, while also expanding the purview of queer and sexuality studies, these essays shake up notions about who and what is sexy and sexualizable, what counts as sex, and what desire is. At the same time, they challenge conceptions of disability in the dominant culture, queer studies, and disability studies.Contributors. Chris Bell, Michael Davidson, Lennard J. Davis, Michel Desjardins, Lezlie Frye, Rachael Groner, Kristen Harmon, Michelle Jarman, Alison Kafer, Riva Lehrer, Nicole Markotić, Robert McRuer, Anna Mollow, Rachel O’Connell, Russell Shuttleworth, David Serlin, Tobin Siebers, Abby L. Wilkerson

Women's Lives: Multicultural Perspectives


Gwyn Kirk - 1997
    Each chapter contains 'Questions to frame your reading'.

FDR's Splendid Deception: The Moving Story of Roosevelt's Massive Disability - and the Intense Efforts to Conceal It from the Public


Hugh Gregory Gallagher - 1985
    It is an intensely personal view of FDR. It traces his developments from the early years, his battle with polio, his fight for rehabilitation, his paralysis and his need to hide it, both in public and in private as well as the impact the paralysis and its cover-up had on his political career, his personality, and his relations with others. Now complete with a detailed account of the FDR Memorial and the struggle by disability advocates to have FDR depicted as he was in his wheelchair. Must reading for everyone interested in presidential history, disability history, and modern American history. A book not to be missed.

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity


Steve Silberman - 2015
      Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

The Ugly Laws: Disability in Public


Susan Schweik - 2009
    Seeming to criminalize disability and thus offering a visceral example of discrimination, these "ugly laws" have become a sort of shorthand for oppression in disability studies, law, and the arts.In this watershed study of the ugly laws, Susan M. Schweik uncovers the murky history behind the laws, situating the varied legislation in its historical context and exploring in detail what the laws meant. Illustrating how the laws join the history of the disabled and the poor, Schweik not only gives the reader a deeper understanding of the ugly laws and the cities where they were generated, she locates the laws at a crucial intersection of evolving and unstable concepts of race, nation, sex, class, and gender. Moreover, she explores the history of resistance to the ordinances, using the often harrowing life stories of those most affected by their passage. Moving to the laws' more recent history, Schweik analyzes the shifting cultural memory of the ugly laws, examining how they have been used--and misused--by academics, activists, artists, lawyers, and legislators.

Aspergirls: Empowering Females with Asperger Syndrome


Rudy Simone - 2010
    The image of coping well presented by AS females can often mask difficulties, deficits, challenges, & loneliness.

Pain Woman Takes Your Keys, and Other Essays from a Nervous System


Sonya Huber - 2017
    What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author’s specific condition but an exploration that transcends pain’s airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.

The Crackwalker


Judith Thompson - 2002
    "Judith Thompson hears the poetry of the inarticulate and the semi-literate, embodying the colloquialisms, the brand names, the fractured but expressive syntax, with the urgency of their speakers. These characters do terrible things, and they have terrible things done to them."—Urjo Kareda