The Pretty One: On Life, Pop Culture, Disability, and Other Reasons to Fall in Love With Me


Keah Brown - 2019
    Keah Brown loves herself, but that hadn’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective.In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called “the pretty one” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute.By “smashing stigmas, empowering her community, and celebrating herself” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.

Planet of the Blind


Stephen Kuusisto - 1997
    Yet he grew up pretending he could see. Planet of the Blind tells his story - the years of a lonely childhood spent behind bottle-lens glasses, the consuming fear of ridicule and derision, the struggle through college that brings him from obesity to anorexia. With his nose pressed into the spine of a book in furious attempts to read, riding a bicycle at insane speeds, never truly knowing the face of his first lover, he stumbles through half a lifetime enraged and mortified.This is the record of a handicapped life; but it is also an extraordinary literary achievement. Kuusisto has managed to translate his opaque, kaleidoscopic world of shape and colour into poetic and luminous prose. Planet of the Blind conveys life as it is lived by one whose visual impressions are 'at once beautiful and largely useless', and for whom normality is continuously transformed by his blindness into an intense aesthetic experience.

To the River: Losing My Brother


Don Gillmor - 2018
    Which leads him to another powerful question: Why are boomers killing themselves at a far greater rate than the Silent Generation before them or the generations that have followed? In the spring of 2006, Don Gillmor travelled to Whitehorse to reconstruct the last days of his brother, David, whose truck and cowboy hat were found at the edge of the Yukon River just outside of town the previous December. David's family, his second wife, and his friends had different theories about his disappearance. Some thought David had run away; some thought he'd met with foul play; but most believed that David, a talented musician who at the age of 48 was about to give up the night life for a day job, had intentionally walked into the water. Just as Don was about to paddle the river looking for traces, David's body was found, six months after he'd gone into the river. And Don's canoe trip turned into an act of remembrance and mourning. At least David could now be laid to rest. But there was no rest for his survivors. As his brother writes, "When people die of suicide, one of the things they leave behind is suicide itself. It becomes a country. At first I was a visitor, but eventually I became a citizen." In this tender, probing, surprising work, Don Gillmor brings back news from that country for all of us who wonder why people kill themselves. And why, for the first time, it's not the teenaged or the elderly who have the highest suicide rate, but the middle aged. Especially men.

The Politics of Women's Bodies: Sexuality, Appearance, and Behavior


Rose Weitz - 1998
    The Politics of Women's Bodies: Sexuality, Appearance, and Behavior, 2/e, brings together recent critical writings in this important field, covering such diverse topics as the sources of eating disorders, the nature of lesbianism, and the consequences of violence against women. With the exception of two classic articles, all pieces were published in the last decade, and one-quarter of the selections are new to the second edition. The Politics of Women's Bodies: Sexuality, Appearance, and Behavior, 2/e, begins by looking at how ideas about women's bodies become culturally accepted. As the writings in the first section demonstrate, this is a political process that can reflect, reinforce, or challenge the distribution of power between men and women. Subsequent sections look at how, once ideas about women's bodies become accepted, they can serve as powerful--and political--tools for controlling women's appearance, sexuality, and behavior. Articles new to this edition include Daring to Desire: Culture and the Bodies of Adolescent Girls, by Deborah L. Tolman; Casing My Joints: A Private and Public Story of Arthritis, by Mary Lowenthal Felstiner; and Holding Back: Negotiating a Glass Ceiling on Women's Muscular Strength, by Shari L. Dworkin. This unique interdisciplinary anthology is ideal for undergraduate courses that cover the body and sexuality. It is also appropriate for introductory courses in women's studies and courses in the psychology, anthropology, or sociology of women; women and health; and feminist theory.

The Nazi War on Cancer


Robert N. Proctor - 1999
     Several hours before the Germans launched the deadliest campaign in military history in 1941, Adolf Hitler and Joseph Goebbels, the minister of popular enlightenment and propaganda, were discussing the timing of their imminent invasion of the Soviet Union. According to Goebbels' journals, the two worked on Hitler's speech, and marveled at the ways in which they were planning to defeat communism and change the map of Europe. But that night, Hitler and Goebbels also discussed the recent advances in cancer research made by Nazi doctors in their pursuit of a "sanitary utopia." As science historian Robert N. Proctor exposes in his provocative new book The Nazi War on Cancer, the Nazi medical establishment was years ahead of the rest of the world in public health reform and research. Proctor is far from being a revisionist historian, and recognizes the extreme sensitivity of his subject matter. In fact, he is a cautious and elegant writer who frequently reminds readers of his earlier book, Racial Hygiene: Medicine Under the Nazis, in which he documents the horrors of Nazi medical experiments. In this book, however, he finds that some Nazi scientific research was actually path-breaking and may have developed some of the era's most successful cancer prevention programs. As Proctor is careful to distinguish, The Nazi War on Cancer is not a book that champions Nazi medical practices; rather, it is "abookabout fascism, and a book about science," as the author seeks to understand how "fascism suppressed certain kinds of science&[and] how fascist ideals fostered research directions and lifestyle fashions that look strikingly like those we today might embrace." Until now, historians' focus on Nazi medical research has traditionally concentrated on political and racial ideology, because "little might appear to be gained by pointing to Nazi success in fighting food dyes, tobacco, or occupational dust." But the extraordinary work conducted during the Wilhelmine and Weimar eras was undeniable — German medicine and public health was the envy of the world at that time. In what is perhaps one of Proctor's most astounding revelations, evidence of the link between cigarette smoking and lung cancer was published as early as 1929 by Nazi physician Fritz Lickint, though cigarette incriminating studies didn't appear in England and the United States until 1950. Hitler was a virulent anti-smoker, and his regime launched one of the most aggressive anti-tobacco campaigns of the twentieth century. By 1938, smoking was banned in many offices, hospitals and rest homes, and "no-smoking" cars were established on all German trains by the following year. According to one propaganda poster, Hitler attributed his "performance at work" to his ability to resist both nicotine and alcohol. Diet was also important to the Nazis, and public health officials strongly promoted the consumption whole-grain breads, vegetables, and fruits, and other foods that were low in fat, high in fiber, and free of artificial colorings and preservatives. Germans were also encouraged to consult their physicians regularly for early cancer detection, and women were taught how to perform breast self-examinations as early as 1936. As one poster caption read: "Every automobile gets a regular checkup; that is obvious. Shouldn't the much more complicated machine of the human body also get regular checkups?" Why were Nazis so concerned with cancer prevention? Proctor notes that cancer "expressed larger cultural idioms" and became "a metaphor for all that was seen as wrong with society." Because of this, the German body "belonged" to the Führer, and good health was considered a citizen's duty. Because Nazi public health workers attributed improper diet as a major contributor to cancer, the effort to become the master race could only be achieved through healthy living. As one Hitler Youth manual asserted, "Nutrition is not a private matter!" It is far from Proctor's intention to express the simplistic and irresponsible sentiment that "good can come from evil" by bringing readers' attention to the progress made by Nazi scientists. Instead, this brave and sophisticated account brilliantly evokes the nuances of ethical paradoxes, as Proctor successfully points out our "need to better understand how the routine practice of science can so easily coexist with the routine exercise of cruelty." —Kera Bolonik

The Theory of Hummingbirds


Michelle Kadarusman - 2017
    They have wings." That's what Alba's mother always says. Of course, Alba doesn't have wings or two good feet: she has Cleo. Cleo is the name Alba has given to her left foot, which was born twisted in the wrong direction. When she points this out, though, her mother just smiles like the world has some surprise in store she doesn't know about yet.Well, Alba has her own surprise planned. After many surgeries and one final cast, Cleo is almost ready to meet the world straight on--just in time to run in the school cross-country race. Unfortunately, Alba's best friend Levi thinks there's no way she can pull it off. And she thinks there's no way he's right about the school librarian hiding a wormhole in her office. Tempers flare. Sharp words fly faster than hummingbirds. And soon it looks like both friends will be stuck proving their theories on their own.The Theory of Hummingbirds is now available in a paperback edition with French flaps and a brand-new cover!

Joy of Pain: Schadenfreude and the Dark Side of Human Nature


Richard H. Smith - 2013
    But who doesn't enjoy it when an arrogant but untalented contestant is humiliated on American Idol, or when the embarrassing vice of a self-righteous politician is exposed, or even when an envied friend suffers asmall setback? The truth is that joy in someone else's pain-known by the German word schadenfreude--permeates our society.In The Joy of Pain, psychologist Richard Smith, one of the world's foremost authorities on envy and shame, sheds much light on a feeling we dare not admit. Smith argues that schadenfreude is a natural human emotion, one worth taking a closer look at, as it reveals much about who we are as humanbeings. We have a passion for justice. Sometimes, schadenfreude can feel like getting one's revenge, when the suffering person has previously harmed us. But most of us are also motivated to feel good about ourselves, Smith notes, and look for ways to maintain a positive sense of self. One commonway to do this is to compare ourselves to others and find areas where we are better. Similarly, the downfall of others--especially when they have seemed superior to us--can lead to a boost in our self-esteem, a lessening of feelings of inferiority. This is often at the root of schadenfreude. As theauthor points out, most instances of schadenfreude are harmless, on par with the pleasures of light gossip. Yet we must also be mindful that envy can motivate, without full awareness, the engineering of the misfortune we delight in. And envy-induced aggression can take us into dark territoryindeed, as Smith shows as he examines the role of envy and schadenfreude in the Nazi persecution of the Jews.Filled with engaging examples of schadenfreude, from popular reality shows to the Duke-Kentucky basketball rivalry, The Joy of Pain provides an intriguing glimpse into a hidden corner of the human psyche.

Patient Zero and the Making of the AIDS Epidemic


Richard A. McKay - 2017
    Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

A Body, Undone: Living on After Great Pain


Christina Crosby - 2016
    She was a respected senior professor of English who had celebrated her fiftieth birthday a month before. As she crested a hill, she caught a branch in the spokes of her bicycle, which instantly pitched her to the pavement. Her chin took the full force of the blow, and her head snapped back. In that instant, she was paralyzed.In A Body, Undone, Crosby puts into words a broken body that seems beyond the reach of language and understanding. She writes about a body shot through with neurological pain, disoriented in time and space, incapacitated by paralysis and deadened sensation. To address this foreign body, she calls upon the readerly pleasures of narrative, critical feminist and queer thinking, and the concentrated language of lyric poetry. Working with these resources, she recalls her 1950s tomboy ways in small-town, rural Pennsylvania, and records growing into the 1970s through radical feminism and the affirmations of gay liberation.Deeply unsentimental, Crosby communicates in unflinching prose the experience of "diving into the wreck" of her body to acknowledge grief, and loss, but also to recognize the beauty, fragility, and dependencies of all human bodies. A memoir that is a meditation on disability, metaphor, gender, sex, and love, A Body, Undone is a compelling account of living on, as Crosby rebuilds her body and fashions a life through writing, memory, and desire.

The Cigarette: A Political History


Sarah Milov - 2019
    From Jamestown to the Marlboro Man, the plant occupied the heart of the nation’s economy and expressed its enduring myths. But today smoking rates have declined and smokers are exiled from many public spaces. The story of tobacco’s fortunes may seem straightforward: science triumphed over our addictive habits and the cynical machinations of tobacco executives. Yet the reality is more complicated. Both the cigarette’s popularity and its eventual decline reflect a parallel course of shifting political priorities. The tobacco industry flourished with the help of the state, but it was the concerted efforts of citizen nonsmokers who organized to fight for their right to clean air that led to its undoing.After the Great Depression, public officials and organized tobacco farmers worked together to ensure that the government’s regulatory muscle was more often deployed to promote tobacco than to protect the public from its harms. Even as evidence of the cigarette’s connection to cancer grew, medical experts could not convince officials to change their stance. What turned the tide, Sarah Milov argues, was a new kind of politics: a movement for nonsmokers’ rights. Activists and public-interest lawyers took to the courts, the streets, city councils, and boardrooms to argue for smoke-free workplaces and allied with scientists to lobby elected officials.The Cigarette restores politics to its rightful place in the tale of tobacco’s rise and fall, illustrating America’s continuing battles over corporate influence, individual responsibility, collective choice, and the scope of governmental power.

Waiting for an Echo: The Madness of American Incarceration


Christine Montross - 2020
    Christine Montross has spent her career treating the most severely ill psychiatric patients. Several years ago, she set out to investigate why so many of her patients got caught up in the legal system when discharged from her care--and what happened to them therein.Waiting for an Echo is a riveting, rarely seen glimpse into American incarceration. It is also a damning account of policies that have criminalized mental illness, shifting large numbers of people who belong in therapeutic settings into punitive ones.The stark world of American prisons is shocking for all who enter. But Dr. Montross' expertise--the mind in crisis-- allowed her to reckon with the human stories behind the bars. A father attempting to weigh the impossible calculus of a plea bargain. A bright young woman whose life is derailed by addiction. Boys in a juvenile detention facility who, desperate for human connection, invent a way to communicate with one another from cell to cell. Overextended doctors and correctional officers who strive to provide care and security in environments riddled with danger. In these encounters, Montross finds that while our system of correction routinely makes people with mental illness worse, just as routinely, it renders mentally stable people psychiatrically unwell. The system is quite literally maddening.Our methods of incarceration take away not only freedom, but also selfhood and soundness of mind. In a nation where ninety-five percent of all inmates are released from prison and return to our communities, this is a practice that punishes us all.

Neurodiversity: Discovering the Extraordinary Gifts of Autism, ADHD, Dyslexia, and Other Brain Differences


Thomas Armstrong - 2010
    ADHD. Dyslexia. Autism. The number of categories of illnesses listed by the American Psychiatric Association has tripled in the past fifty years. With so many people affected by our growing “culture of disabilities,” it no longer makes sense to hold on to the deficit-ridden idea of neuropsychological illness.With the sensibility of Oliver Sacks and Kay Redfield Jamison, psychologist Thomas Armstrong offers a revolutionary perspective that reframes many neuropsychological disorders as part of the natural diversity of the human brain rather than as definitive illnesses. Neurodiversity emphasizes their positive dimensions, showing how people with ADHD, bipolar disorder, and other conditions have inherent evolutionary advantages that, matched with the appropriate environment or ecological niche, can help them achieve dignity and wholeness in their lives.

Everyone Here Spoke Sign Language: Hereditary Deafness on Martha's Vineyard


Nora Ellen Groce - 1984
    In stark contrast to the experience of most Deaf people in our own society, the Vineyarders who were born Deaf were so thoroughly integrated into the daily life of the community that they were not seen--and did not see themselves--as handicapped or as a group apart. Deaf people were included in all aspects of life, such as town politics, jobs, church affairs, and social life. How was this possible?On the Vineyard, hearing and Deaf islanders alike grew up speaking sign language. This unique sociolinguistic adaptation meant that the usual barriers to communication between the hearing and the Deaf, which so isolate many Deaf people today, did not exist.

The Way I See It: A Personal Look at Autism & Asperger's


Temple Grandin - 2008
    Temple Grandin's voice of experience is back to give parents and teachers specific, practical advice on helping young people on the autism spectrum. This collection of articles, written from 2000-present as an exclusive column in the national award-winning magazine, Autism Aspergers Digest, offers Temples invaluable personal and professional insights, from inside the world of autism, about autism. Temple voices her views on a wide variety of topics ranging from the nonverbal child to social functioning, early intervention to adult issues. The articles have been updated and Temple has added fresh commentary on the topics.

Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-Teen and Teenage Years


Shana Nichols - 2008
    This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and "fitting in".1000Guide on what to expect and how to help girls on the spectrum as they grow up0600The authors unflinchingly address the most challenging issues of girls and puberty with grace and matter-of-fact discussions of pelvic exams, periods, eating disorders, healthy sexuality, and self-perception. The discussions range from choosing undergarments to the difference in boys' and girls' aggression in adolescence. Full of hints from other parents, research results, and suggestions from professionals, this book is an essential guide to adolescence for parents of girls on the spectrum (and it's also great for parents of boys!).the Spectrum, The Newsletter of The Autism Society of North Carolina, US0600This book provides a valuable insight into the concerns commonly faced by girls with Autism Spectrum Disorders (ASDs), and their parents. It offers advice and coping strategies on a host of areas, including approaching adolescence, navigating puberty, self-perception and self-confidence, understanding friendships, looking at healthy sexuality, promoting personal safety and many more...The book has a warm and engaging reading style, and the may case studies of experiences from families, daughters and educators provide brave testimonies and excellent recommendations for support; a useful reference list is also provided. This book is a must have read for those interested in helping females on the autistic spectrum.Youth in Mind0600It gives me great pleasure to introduce ASQ readers to this terrific book!...Girls Growing Up on the Autism Spectrum is an A+ read!Liane Holliday Willey, EdD, Autism Spectrum Quarterly0600This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book - it is a must-have for families, teachers and therapists alike.Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome0600The authors tackle an important and sensitive issue for young people with ASC. The information presented is based in research and presented clearly in a most usable format. I would not hesitate to recommend this book to young people (it might even help a few boys!) with ASC and their parents.E. Veronica Bliss, psychologist and Director of Missing Link Support Services, Ltd0600Shana Nichols, Gina Marie Moravcik, and Samara Pulver Tetenbaum provide solid, specific advice on teen issues - social life, changing bodies, friendships, diet and nutrition, self-reliance, anxiety, and more. This is an excellent beginning, with resources listed (books, articles, Web sites, blogs) in every chapter and short case studies that break up the text throughout. The authors tackle the bigger issues of socialization and friendships, plus the nitty-gritty of raising an adolescent girl - periods, ob-gyn exams, weight, privacy, and hygiene.ForeWord0600There's really only one way to say this: If you have a daughter anywhere on the autism spectrum, or even with unexplainable quirky behaviour, this book is a must. While there are hundreds of good books about autism, girls have their own unique issues when it comes to this puzzling disorder. Dr. Nichols' book is a standout. Addressing girls on their own, and in such an insightful, scholarly and reader-friendly way, what 'Girls...' has done is invaluable. You'll be shocked at how easy it is to have a girl on the spectrum misdiagnosed or not therapeutically treated correctly, but you're not left on your own. Nichols provides great counsel. 'Girls...' offers not only important information about the child, but it also provides necessary strategies for parents (and medical professionals) to help improve the child's life, and not a single subject goes untouched. The teen years are tough enough for any girl, but for one who has spectrum challenges, it can be devastating. Nichols, the clinical director of the Fay J. Lindner Center for Autism and Developmental Disorders, provides expert advice that is practical and necessary, on topics ranging from cognitive concerns and everyday behaviours to sexuality and just fitting in, which for a teenaged girl can be the most important issue of all--on the spectrum or not. Nichols draws from many wells here - vast research, conversations and interviews with parents, teachers and medical experts, and most importantly, these young girls. This is one of those hallelujah books for which parents search high and low.Long Island Press0600Rather than constructing a "how-to" book, in which pre-planned lessons have been created focusing on puberty or sexuality issues, the authors provide a broad conceptual treatment of the relevant sociological and cultural issues. That is, not only do they address the social, communication, and behavioural vulnerabilities that these girls may display, but they place these vulnerabilities in the context of a girl's social world. From this vantage point, the authors describe concrete steps and processes which may be useful for working with girls on the spectrum to help them cope with the issues they confront as they mature...This volume continually reminds the reader to think about the challenges typically developing girls and young women face throughout the pre-teen and teenage years as the context for their understanding of a girl with an ASD.Journal of Autism and Developmental Disorders0200This book covers the concerns faced by girls with ASDs and their parents, from periods and puberty to friendships and "fitting in". Looking at these issues within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help the whole family through the teenage years.0400Foreword. Acknowledgements. Author’s Notes. 1. What Do We Currently Know About Girls and Women with Autism Spectrum Disorders? 2. Approaching Adolescence: Anticipation, Anxiety, Adaptation and Acceptance? 3. Puberty or ‘Do My Parents Know You’re Here?’ 4. The Red Spot: Periods, Pads and Pelvic Exams. 5. Feeling Good Inside and Out: Self-perception and Self-confidence. 6. The Social Landscape of Adolescence: Friendships and Social Status. 7. Healthy Sexuality for Girls with ASDs. 8. Keeping Girls Safe: Promoting Personal Safety in the Real World. 9. Our Journey: A Mother and her Daughter with Asperger's Syndrome. Conclusion: Embracing Change. References. Index.01000301http://www.biblioimages.com/jkp/getim...