Growing Up Disabled in Australia


Carly FindlayEmma Di Bernardo - 2020
    A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.

An Unquiet Mind: A Memoir of Moods and Madness


Kay Redfield Jamison - 1995
    The personal memoir of a manic depressive and an authority on the subject describes the onset of the illness during her teenage years and her determined journey through the realm of available treatments.

Cook County ICU: 30 Years of Unforgettable Patients and Odd Cases


Cory Franklin - 2015
    Cory Franklin. Filled with stories of strange medical cases and unforgettable patients culled from a thirty-year career in medicine, Cook County ICU offers readers a peek into the inner workings of a hospital. Author Dr. Cory Franklin, who headed the hospital’s intensive care unit from the 1970s through the 1990s, shares his most unique and bizarre experiences, including the deadly Chicago heat wave of 1995, treating some of the first AIDS patients in the country before the disease was diagnosed, the nurse with rare Munchausen syndrome, the first surviving ricin victim, and the famous professor whose Parkinson’s disease hid the effects of the wrong medication. Surprising, darkly humorous, heartwarming, and sometimes tragic, these stories provide a big-picture look at how the practice of medicine has changed over the years, making it an enjoyable read for patients, doctors, and anyone with an interest in medicine.

The Best of Us


Joyce Maynard - 2017
    Jim wore a rakish hat over a good head of hair; he asked real questions and gave real answers; he loved to see Joyce shine, both in and out of the spotlight; and he didn't mind the mess she made in the kitchen. He was not the husband Joyce imagined, but he quickly became the partner she had always dreamed of.Before they met, both had believed they were done with marriage, and even after they married, Joyce resolved that no one could alter her course of determined independence. Then, just after their one-year wedding anniversary, her new husband was diagnosed with pancreatic cancer. During the nineteen months that followed, as they battled his illness together, she discovered for the first time what it really meant to be a couple--to be a true partner and to have one.This is their story. Charting the course through their whirlwind romance, a marriage cut short by tragedy, and Joyce's return to singleness on new terms, The Best of Us is a heart-wrenching, ultimately life-affirming reflection on coming to understand true love through the experience of great loss.

Resistance: A Songwriter's Story of Hope, Change, and Courage


Tori Amos - 2020
    From her unnerving depiction of sexual assault in "Me and a Gun" to her post-9/11 album Scarlet's Walk to her latest album Native Invader, her work has never shied away from intermingling the personal with the political.Amos began playing piano as a teenager for the politically powerful at hotel bars in Washington, D.C., during the formative years of the post-Goldwater and then Koch-led Libertarian and Reaganite movements. The story continues to her time as a hungry artist in L.A. to the subsequent three decades of her formidable music career. Amos explains how she managed to create meaningful, politically resonant work against patriarchal power structures-and how her proud declarations of feminism and her fight for the marginalized always proved to be her guiding light. She teaches readers to engage with intention in this tumultuous global climate and speaks directly to supporters of #MeToo and #TimesUp, as well as young people fighting for their rights and visibility in the world.Filled with compassionate guidance and actionable advice-and using some of the most powerful, political songs in Amos's canon-this book is for readers determined to steer the world back in the right direction.

Crazy: A Father's Search Through America's Mental Health Madness


Pete Earley - 2006
    But it was only when his own son-in the throes of a manic episode-broke into a neighbor's house that he learned what happens to mentally ill people who break a law. This is the Earley family's compelling story, a troubling look at bureaucratic apathy and the countless thousands who suffer confinement instead of care, brutal conditions instead of treatment, in the "revolving doors" between hospital and jail. With mass deinstitutionalization, large numbers of state mental patients are homeless or in jail-an experience little better than the horrors of a century ago. Earley takes us directly into that experience-and into that of a father and award-winning journalist trying to fight for a better way.

Horror Stories: A Memoir


Liz Phair - 2019
    "Girly Sound" was the name of the cassettes she used to pass around in those days, and in 1993 those songs became the landmark album Exile in Guyville, which turned Phair, at twenty-five, into a foul-mouthed feminist icon.Now, like a Gen X Patti Smith, Liz Phair tells the story of her life and career in a memoir about the moments that have haunted her most. Horror is in the eye of the beholder. For Phair, horror is what stays with you—the often unrecognized, universal experiences of daily pain, shame, and fear that make up our common humanity. In Phair's case it means the dangers of falling for "the perfect guy," and the disaster that awaits her; the memory of a stranger passed out on a bathroom floor amid a crowd of girls, forcing her to consider our responsibilities to one another, and the gnawing regret of being a bystander; and the profound sense of emptiness she experienced on the set of her first celebrity photoshoot.Horror Stories reads like the confessions of a friend, a book that gathers up all of our isolated shames, bringing us together in our shared imperfection, our uncertainty and our cowardice, smashing the stigma of not being in control. But most importantly, Horror Stories is a memoir that asks questions of how we feel about the things that have happened to us, how we cope with regret and culpability, and how we break the spell of those things, leeching them of their power over us. This memoir is an immersive experience, taking readers inside the most intimate moments of Phair's life. Her fearless prose, wit, and uncompromising honesty transform those deeply personal moments into tales about each and every one of us—that will appeal to both the serious fan and the serious reader.

If You Feel Too Much: Thoughts on Things Found and Lost and Hoped For


Jamie Tworkowski - 2015
    The piece was so hauntingly beautiful that it quickly went viral, giving birth to a non-profit organization of the same name. Now, To Write Love on Her Arms (TWLOHA) is an internationally recognized leader in suicide prevention and a source of hope, encouragement, and support for people worldwide.If You Feel Too Much is a celebration of hope, wonder, and what it means to be human. From personal stories of struggling on days most people celebrate to words of strength and encouragement in moments of loss, the essays in this book invite readers to believe that it’s okay to admit to pain and okay to ask for help. If You Feel Too Much is an important book from one of this generation’s most important voices.

Hi, Anxiety: Life With a Bad Case of Nerves


Kat Kinsman - 2016
    Taking us back to her adolescence, when she was diagnosed with depression at fourteen, Kat speaks eloquently with pathos and humor about her skin picking, hand flapping, “nervousness” that made her the recipient of many a harsh taunt. With her mother also gripped by depression and health issues throughout her life, Kat came to live in a constant state of unease—that she would fail, that she would never find love . . . that she would end up just like her mother.Now, as a successful media personality, Kat still battles anxiety every day. That anxiety manifests in strange, and deeply personal ways. But as she found when she started to write about her struggles, Kat is not alone in feeling like the simple act of leaving the house, or getting a haircut can be crippling. And though periodic medication, counseling, a successful career and a happy marriage have brought her relief, the illness, because that is what anxiety is, remains.Exploring how millions are affected anxiety, Hi, Anxiety is a clarion call for everyone—but especially women—struggling with this condition. Though she is a strong advocate for seeking medical intervention, Kinsman implores those suffering to come out of the shadows—to talk about their battle openly and honestly. With humor, bravery, and writing that brings bestsellers like Laurie Notaro and Jenny Lawson to mind, Hi, Anxiety tackles a difficult subject with amazing grace.

So Sad Today: Personal Essays


Melissa Broder - 2016
    In the fall of 2012, she went through a harrowing cycle of panic attacks and dread that wouldn't abate for months. So she began @sosadtoday, an anonymous Twitter feed that allowed her to express her darkest feelings, and which quickly gained a dedicated following. In So Sad Today, Broder delves deeper into the existential themes she explores on Twitter, grappling with sex, death, love, low self-esteem, addiction, and the drama of waiting for the universe to text you back. With insights as sharp as her humor, Broder explores—in prose that is both gutsy and beautiful, aggressively colloquial and achingly poetic—questions most of us are afraid to even acknowledge, let alone answer, in order to discover what it really means to be a person in this modern world.

Everything That Remains: A Memoir by the Minimalists


Joshua Fields Millburn - 2013
    Until he didn't anymore. Blindsided by the loss of his mother and his marriage in the same month, Millburn started questioning every aspect of the life he had built for himself. Then, he accidentally discovered a lifestyle known as minimalism...and everything started to change. That was four years ago. Since, Millburn, now 32, has embraced simplicity. In the pursuit of looking for something more substantial than compulsory consumption and the broken American Dream, he jettisoned most of his material possessions, paid off loads of crippling debt, and walked away from his six-figure career. So, when everything was gone, what was left? Not a how-to book but a why-to book, Everything That Remains is the touching, surprising story of what happened when one young man decided to let go of everything and begin living more deliberately. Heartrending, uplifting, and deeply personal, this engrossing memoir is peppered with insightful (and often hilarious) interruptions by Ryan Nicodemus, Millburn's best friend of twenty years.

Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes


Emily Urquhart - 2015
    Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, the janitor asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime avoiding the sun. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in witchcraft, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.

Gross Anatomy: Dispatches from the Front (and Back)


Mara Altman - 2018
    Mara Altman's volatile and apprehensive relationship with her body has led her to wonder about a lot of stuff over the years. Like, who decided that women shouldn't have body hair? And how sweaty is too sweaty? Also, why is breast cleavage sexy but camel toe revolting? Isn't it all just cleavage? These questions and others like them have led to the comforting and sometimes smelly revelations that constitute Gross Anatomy, an essay collection about what it's like to operate the bags of meat we call our bodies.Divided into two sections, "The Top Half" and "The Bottom Half," with cartoons scattered throughout, Altman's book takes the reader on a wild and relatable journey from head to toe—as she attempts to strike up a peace accord with our grody bits.With a combination of personal anecdotes and fascinating research, Gross Anatomy holds up a magnifying glass to our beliefs, practices, biases, and body parts and shows us the naked truth: that there is greatness in our grossness.

God's Hotel: A Doctor, a Hospital, and a Pilgrimage to the Heart of Medicine


Victoria Sweet - 2012
    Ballet dancers and rock musicians, professors and thieves-"anyone who had fallen, or, often, leapt, onto hard times" and needed extended medical care-ended up here. So did Victoria Sweet, who came for two months and stayed for twenty years. Laguna Honda, lower tech but human paced, gave Sweet the opportunity to practice a kind of attentive medicine that has almost vanished. Gradually, the place transformed the way she understood her work. Alongside the modern view of the body as a machine to be fixed, her extraordinary patients evoked an older idea, of the body as a garden to be tended. God's Hotel tells their story and the story of the hospital itself, which, as efficiency experts, politicians, and architects descended, determined to turn it into a modern "health care facility," revealed its own surprising truths about the essence, cost, and value of caring for body and soul.

Confessions of a Knife


Richard Selzer - 1979
    This collection, first published in 1979, utilizes the physical body as a means to explore the human mind and soul. Never hesitant to admit his own frailties, Selzer draws on his experiences as a surgeon with integrity and wit, allowing readers a first-hand glimpse into the medical world.