The Undying


Anne Boyer - 2019
    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

White Coat, Black Hat: Adventures on the Dark Side of Medicine


Carl Elliott - 2010
    A writer for The New Yorker and The Atlantic Monthly, Carl Elliott ventures into the uncharted dark side of medicine, shining a light on the series of social and legislative changes that have sacrificed old-style doctoring to the values of consumer capitalism. Along the way, he introduces us to the often shifty characters who work the production line in Big Pharma: from the professional guinea pigs who test-pilot new drugs and the ghostwriters who pen “scientific” articles for drug manufacturers to the PR specialists who manufacture “news” bulletins. We meet the drug reps who will do practically anything to make quota in an ever-expanding arms race of pharmaceutical gift-giving; the “thought leaders” who travel the world to enlighten the medical community about the wonders of the latest release; even, finally, the ethicists who oversee all that commercialized medicine has to offer from their pharma-funded perches.   Taking the pulse of the medical community today, Elliott discovers the culture of deception that has become so institutionalized many people do not even see it as a problem. Head-turning stories and a rogue’s gallery of colorful characters become his springboard for exploring larger ethical issues surrounding money. Are there certain things that should not be bought and sold? In what ways do the ethics of business clash with the ethics of medical care? And what is wrong with medical consumerism anyway? Elliott asks all these questions and more as he examines the underbelly of medicine.

A Civil Action


Jonathan Harr - 1995
    After finding that her child is diagnosed with leukemia, Anne Anderson notices a high prevalence of leukemia, a relatively rare disease, in her city. Eventually she gathers other families and seeks a lawyer, Jan Schlichtmann, to consider their options.Schlichtmann originally decides not to take the case due to both the lack of evidence and a clear defendant. Later picking up the case, Schlichtmann finds evidence suggesting trichloroethylene (TCE) contamination of the town's water supply by Riley Tannery, a subsidiary of Beatrice Foods; a chemical company, W. R. Grace; and another company named Unifirst.In the course of the lawsuit Schlichtmann gets other attorneys to assist him. He spends lavishly as he had in his prior lawsuits, but the length of the discovery process and trial stretch all of their assets to their limit.

Dancing Skeletons: Life and Death in West Africa


Katherine A. Dettwyler - 1993
    With nutritional anthropology at its core, Dancing Skeletons presents informal, engaging, and oftentimes dramatic stories that relate the author's experiences conducting research on infant feeding and health in Mali.Through fascinating vignettes and honest, vivid descriptions, Dettwyler explores such diverse topics as ethnocentrism, culture shock, population control, breastfeeding, child care, the meaning of disability and child death in different cultures, female circumcision, women's roles in patrilineal societies, the dangers of fieldwork, and facing emotionally draining realities. Readers will laugh and cry as they meet the author's friends and informants, follow her through a series of encounters with both peri-urban and rural Bambara culture, and struggle with her as she attempts to reconcile her very different roles as objective ethnographer, subjective friend, and mother in the field.

The Skeleton Cupboard: Stories From a Clinical Psychologist


Tanya Byron - 2014
    Through the eyes of her naive and inexperienced younger self, Byron shares remarkable stories inspired by the people she had the privilege to treat. Gripping, poignant, and full of daring black humor, this book reveals the frightening and challenging induction all mental health staff face and highlights their incredible commitment to their patients. It shares the tales of ordinary people with an amazing resilience to life's challenges.

Twenty Chickens for a Saddle


Robyn Scott - 2008
    At first she thinks her parents don't have the best ideas, but soon she begins to realize the importance of her father's work. Botswana has the highest rate of HIV infection in the world, but still no one wants to talk about it and, for once, Scott is proud that her parents are willing to be unconventional.

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

Elena Vanishing


Elena Dunkle - 2015
    Every day means renewed determination, so every day means fewer calories. This is the story of a girl whose armor against anxiety becomes artillery against herself as she battles on both sides of a lose-lose war in a struggle with anorexia. Told entirely from Elena's perspective over a five-year period and co-written with her mother, award-winning author Clare B. Dunkle, Elena's memoir is a fascinating and intimate look at a deadly disease, and a must read for anyone who knows someone suffering from an eating disorder.

The Cancer Chronicles: Unlocking Medicine's Deepest Mystery


George Johnson - 2013
    What he discovered is a revolution under way—an explosion of new ideas about what cancer really is and where it comes from. In a provocative and intellectually vibrant exploration, he takes us on an adventure through the history and recent advances of cancer research that will challenge everything you thought you knew about the disease. Deftly excavating and illuminating decades of investigation and analysis, he reveals what we know and don’t know about cancer, showing why a cure remains such a slippery concept. We follow him as he combs through the realms of epidemiology, clinical trials, laboratory experiments, and scientific hypotheses—rooted in every discipline from evolutionary biology to game theory and physics. Cogently extracting fact from a towering canon of myth and hype, he describes tumors that evolve like alien creatures inside the body, paleo-oncologists who uncover petrified tumors clinging to the skeletons of dinosaurs and ancient human ancestors, and the surprising reversals in science’s comprehension of the causes of cancer, with the foods we eat and environmental toxins playing a lesser role. Perhaps most fascinating of all is how cancer borrows natural processes involved in the healing of a wound or the unfolding of a human embryo and turns them, jujitsu-like, against the body. Throughout his pursuit, Johnson clarifies the human experience of cancer with elegiac grace, bearing witness to the punishing gauntlet of consultations, surgeries, targeted therapies, and other treatments. He finds compassion, solace, and community among a vast network of patients and professionals committed to the fight and wrestles to comprehend the cruel randomness cancer metes out in his own family. For anyone whose life has been affected by cancer and has found themselves asking why?, this book provides a new understanding. In good company with the works of Atul Gawande, Siddhartha Mukherjee, and Abraham Verghese, The Cancer Chronicles is endlessly surprising and as radiant in its prose as it is authoritative in its eye-opening science.

The Education of a British-Protected Child: Essays


Chinua Achebe - 2009
    The celebrated author of Things Fall Apart delivers his first book in more than 20 years--a new collection of autobiographical essays that offers a vivid portrait of growing up in colonial Nigeria and inhabiting its middle ground.

The Making of a Tropical Disease: A Short History of Malaria


Randall M. Packard - 2007
    Despite massive efforts to eradicate the disease, it remains a major public health problem in poorer tropical regions. But malaria has not always been concentrated in tropical areas. How did other regions control malaria and why does the disease still flourish in some parts of the globe?From Russia to Bengal to Palm Beach, Randall Packard’s far-ranging narrative traces the natural and social forces that help malaria spread and make it deadly. He finds that war, land development, crumbling health systems, and globalization—coupled with climate change and changes in the distribution and flow of water—create conditions in which malaria's carrier mosquitoes thrive. The combination of these forces, Packard contends, makes the tropical regions today a perfect home for the disease.Authoritative, fascinating, and eye-opening, this short history of malaria concludes with policy recommendations for improving control strategies and saving lives.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

The Translator: A Tribesman's Memoir of Darfur


Daoud Hari - 2008
    It is my intention now to take you there in this book, if you have the courage to come with me.The young life of Daoud Hari–his friends call him David–has been one of bravery and mesmerizing adventure. He is a living witness to the brutal genocide under way in Darfur.The Translator is a suspenseful, harrowing, and deeply moving memoir of how one person has made a difference in the world–an on-the-ground account of one of the biggest stories of our time. Using his high school knowledge of languages as his weapon–while others around him were taking up arms–Daoud Hari has helped inform the world about Darfur.Hari, a Zaghawa tribesman, grew up in a village in the Darfur region of Sudan. As a child he saw colorful weddings, raced his camels across the desert, and played games in the moonlight after his work was done. In 2003, this traditional life was shattered when helicopter gunships appeared over Darfur’s villages, followed by Sudanese-government-backed militia groups attacking on horseback, raping and murdering citizens and burning villages. Ancient hatreds and greed for natural resources had collided, and the conflagration spread.Though Hari’s village was attacked and destroyedhis family decimated and dispersed, he himself escaped. Roaming the battlefield deserts on camels, he and a group of his friends helped survivors find food, water, and the way to safety. When international aid groups and reporters arrived, Hari offered his services as a translator and guide. In doing so, he risked his life again and again, for the government of Sudan had outlawed journalists in the region, and death was the punishment for those who aided the “foreign spies.” And then, inevitably, his luck ran out and he was captured. . . . The Translator tells the remarkable story of a man who came face-to-face with genocide– time and again risking his own life to fight injustice and save his people.From the Hardcover edition.

Blood River: A Journey to Africa's Broken Heart


Tim Butcher - 2007
    However, its troubles only served to increase the interest of Daily Telegraph correspondent Tim Butcher, who was sent to cover Africa in 2000. Before long he became obsessed with the idea of recreating Stanley’s original expedition — but travelling alone.Despite warnings Butcher spent years poring over colonial-era maps and wooing rebel leaders before making his will and venturing to the Congo’s eastern border. He passed through once thriving cities of this country and saw the marks left behind by years of abuse and misrule. Almost, 2,500 harrowing miles later, he reached the Atlantic Ocean, a thinner and a wiser man.Butcher’s journey was a remarkable feat. But the story of the Congo, vividly told in Blood River, is more remarkable still.From the Hardcover edition.

The Survivors Club: The Secrets and Science That Could Save Your Life


Ben Sherwood - 2009
    The Survivors Club: The Secrets and Science that Could Save Your Life