My Stroke of Insight: A Brain Scientist's Personal Journey


Jill Bolte Taylor - 2006
    Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.

Blackout: Remembering the Things I Drank to Forget


Sarah Hepola - 2015
    She spent her evenings at cocktail parties and dark bars where she proudly stayed till last call. Drinking felt like freedom, part of her birthright as a strong, enlightened twenty-first-century woman. But there was a price. She often blacked out, waking up with a blank space where four hours should have been. Mornings became detective work on her own life. What did I say last night? How did I meet that guy? She apologized for things she couldn't remember doing, as though she were cleaning up after an evil twin. Publicly, she covered her shame with self-deprecating jokes, and her career flourished, but as the blackouts accumulated, she could no longer avoid a sinking truth. The fuel she thought she needed was draining her spirit instead.A memoir of unblinking honesty and poignant, laugh-out-loud humor, Blackout is the story of a woman stumbling into a new kind of adventure—the sober life she never wanted. Shining a light into her blackouts, she discovers the person she buried, as well as the confidence, intimacy, and creativity she once believed came only from a bottle. Her tale will resonate with anyone who has been forced to reinvent or struggled in the face of necessary change. It's about giving up the thing you cherish most—but getting yourself back in return.

Skin Game


Caroline Kettlewell - 1999
    Skin Game employs clear language and candid reflection to grant general readers as well as students an uncensored profile of a complex and unsettling disorder. "[This] mesmeric memoir examines the obsession with cutting that is believed to afflict somewhere around two million Americans, nearly all of them female," Francine Prose noted in Elle. "[Kettlewell's] language soars and its intensity deepens whenever she is recalling the lost joys and the thrilling sensation of sharp steel against her tender skin."

The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery


Barbara K. Lipska - 2018
    As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery

I Hardly Ever Wash My Hands: The Other Side of OCD


J.J. Keeler - 2012
    J.J. Keeler proves that. From her fears of the bomb in her teddy bear, to her fear of having run over innocent pedestrians, to her fear that she has killed her waiter, she tells her story in a way that allows us to see inside her disease and to see that she has not lost her sense of humor. This light-hearted yet serious and comforting look at OCD lets some light into the closet of sufferers. This book is for those with OCD, those who love someone with OCD, and for those who would like to know what it's like to live with the daily challenges of OCD.

Twelve Patients: Life and Death at Bellevue Hospital


Eric Manheimer - 2012
    Dr. Manheimer describes the plights of twelve very different patients--from dignitaries at the nearby UN, to supermax prisoners at Riker's Island, to illegal immigrants, and Wall Street tycoons.Manheimer was not only the medical director of the country's oldest public hospital for over 13 years, but he was also a patient. As the book unfolds, the narrator is diagnosed with cancer, and he is forced to wrestle with the end of his own life even as he struggles to save the lives of others.

Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body


Martin Pistorius - 2011
    But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

Just Checking: Scenes From the Life of an Obsessive-Compulsive


Emily Colas - 1999
    We all have moments of unfounded dread (Is someone behind that door?), or little phobias (roaches) or superstitions (step on a crack) that we indulge. Just Checking is an autobiographical account of what it is like to live with a full-blown case of obsessive-compulsive disorder (OCD), which, at its height, finds author Emily Colas nervous that she will contract a disease from blood that she sees on television. In the course of the book, what at first appear to her husband and friends to be Colas's idiosyncratic notions accumulate until she is frozen by the astounding psychological binds of OCD. Using precise (of course), connect-the-dots scenes, Colas draws a life that is at first highly monitored and ultimately unraveled by her disorder. One imagines that from afar, Colas's behavior at the height of her illness would look incomprehensible and just plain weird: She has to check the dishwasher multiple times before using it to make sure the cat is safe; the packaging of every new toothbrush has to meet rigorous sanitary standards; the landlord can't attempt to find new tenants for her apartment — she won't let them in the house. But readers are not at a distance here. Instead, we become privy to Colas's somewhat apologetic but firm explanations of what her logic was, and what it felt like to be afraid. She is so honest and witty that one can't help liking her, rooting for her, and wishing help would come. In a typical vignette, when the family tries to go to the Macy's Thanksgiving Day Parade ("definitely a mistake"), Colas is terrified that shewillstep on blood: When I was a kid in New York, all we had to eat on the street were pretzels and hot dogs. Food that was readily identifiable. Now, vendors sell the fanciest things with cherries, berries, jelly, and other crap that's way too close to the color of blood. We finally made it to where we had to go, but not before I had inspected the bottom of my shoes. There was a mushy red object there. Maybe a cherry, possibly a finger. The kids watched the parade on TV and I had a nice new worry. My kids don't even remember that lovely November day, but, lucky for me, I do. This event is sad and resonant, but it also manages to be viscerally entertaining. The result is that instead of inspiring schadenfreude, this book reminds us that psychological disorders are often exaggerations of the ordinary and familiar. We all, on a continuum, wish to survive, to avoid disease, to impose order on our lives. We sympathize with Colas's desperate attempts to find safety and with her seemingly loving husband's gradual loss of tolerance. Even the not-so-funny poems that are occasionally interspersed among the perfectly crafted chapterettes find their place. Strange as it may be to find charm in a memoir of illness, Colas is utterly winning. Hilary Liftin is a writer living in New York City. Her first book, coauthored with Kate Montgomery, is scheduled for publication by Vintage next year. She is the editorial development manager at BookWire (www.bookwire.com).

Mad, Bad, and Sad: Women and the Mind Doctors


Lisa Appignanesi - 2007
    From Mary Lamb, sister of Charles, who in the throes of a nervous breakdown turned on her mother with a kitchen knife, to Freud, Jung, and Lacan, who developed the new women-centered therapies, Lisa Appignanesi’s research traces how more and more of the inner lives and emotions of women have become a matter for medics and therapists. Here too is the story of how over the years symptoms and diagnoses have developed together to create fashions in illness and how treatments have succeeded or sometimes failed. Mad, Bad, and Sad takes us on a fascinating journey through the fragile, extraordinary human mind.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

Everything Is Fine


Vince Granata - 2021
    Perfect for fans of An Unquiet Mind and The Bright Hour. Vince Granata remembers standing in front of his suburban home in Connecticut the day his mother and father returned from the hospital with his three new siblings in tow. He had just finished scrawling their names in red chalk on the driveway: Christopher, Timothy, and Elizabeth. Twenty-three years later, Vince was a thousand miles away when he received the news that would change his life—Tim, propelled by unchecked schizophrenia, had killed their mother in their childhood home. Devastated by the grief of losing his mother, Vince is also consumed by an act so incomprehensible that it overshadows every happy memory of life growing up in his seemingly idyllic middle-class family. “In candid, smoothly unspooling prose, Granata reconstructs life and memory from grief, writing a moving testament to the therapy of art, the power of record, and his immutable love for his family” (Booklist).

Nobody Nowhere: The Extraordinary Autobiography of an Autistic Girl


Donna Williams - 1992
    Although labeled, at times, deaf, retarded, or disturbed, Donna Williams is autistic--afflicted by a baffling condition of heightened sensory perception that imprisons the sufferer in a private, almost hallucinatory universe of patterns and colors. Nobody Nowhere is Donna's story in her own words--a haunting, courageous memoir of the titanic struggles she has endured in her quest to merge "my world" with "the world."

Sybil Exposed: The Extraordinary Story Behind the Famous Multiple Personality Case


Debbie Nathan - 2011
    Sybil became both a pop phenomenon and a revolutionary force in the psychotherapy industry. The book rocketed multiple personality disorder (MPD) into public consciousness and played a major role in having the diagnosis added to the psychiatric bible, Diagnostic and Statistical Manual of Mental Disorders. But what do we really know about how Sybil came to be? In her news-breaking book Sybil Exposed, journalist Debbie Nathan gives proof that the allegedly true story was largely fabricated. The actual identity of Sybil (Shirley Mason) has been available for some years, as has the idea that the book might have been exaggerated. But in Sybil Exposed, Nathan reveals what really powered the legend: a trio of women—the willing patient, her ambitious shrink, and the imaginative journalist who spun their story into bestseller gold. From horrendously irresponsible therapeutic practices—Sybil’s psychiatrist often brought an electroshock machine to Sybil’s apartment and climbed into bed with her while administering the treatment— to calculated business decisions (under an entity they named Sybil, Inc., the women signed a contract designating a three-way split of profits from the book and its spin-offs, including board games, tee shirts, and dolls), the story Nathan unfurls is full of over-the-top behavior. Sybil’s psychiatrist, driven by undisciplined idealism and galloping professional ambition, subjected the young woman to years of antipsychotics, psychedelics, uppers, and downers, including an untold number of injections with Pentothal, once known as “truth serum” but now widely recognized to provoke fantasies. It was during these “treatments” that Sybil produced rambling, garbled, and probably “false-memory”–based narratives of the hideous child abuse that her psychiatrist said caused her MPD. Sybil Exposed uses investigative journalism to tell a fascinating tale that reads like fiction but is fact. Nathan has followed an enormous trail of papers, records, photos, and tapes to unearth the lives and passions of these three women. The Sybil archive became available to the public only recently, and Nathan examined all of it and provides proof that the story was an elaborate fraud—albeit one that the perpetrators may have half-believed. Before Sybil was published, there had been fewer than 200 known cases of MPD; within just a few years after, more than 40,000 people would be diagnosed with it. Set across the twentieth century and rooted in a time when few professional roles were available to women, this is a story of corrosive sexism, unchecked ambition, and shaky theories of psychoanalysis exuberantly and drastically practiced. It is the story of how one modest young woman’s life turned psychiatry on its head and radically changed the course of therapy, and our culture, as well.

Fragile Lives: A Heart Surgeon’s Stories of Life and Death on the Operating Table


Stephen Westaby - 2017
    A slip of the hand and life ebbs away.The balance between life and death is so delicate, and the heart surgeon walks that rope between the two. In the operating room there is no time for doubt. It is flesh, blood, rib-retractors and pumping the vital organ with your bare hand to squeeze the life back into it. An off-day can have dire consequences – this job has a steep learning curve, and the cost is measured in human life. Cardiac surgery is not for the faint of heart.Professor Stephen Westaby took chances and pushed the boundaries of heart surgery. He saved hundreds of lives over the course of a thirty-five year career and now, in his astounding memoir, Westaby details some of his most remarkable and poignant cases – such as the baby who had suffered multiple heart attacks by six months old, a woman who lived the nightmare of locked-in syndrome, and a man whose life was powered by a battery for eight years.A powerful, important and incredibly moving book, Fragile Lives offers an exceptional insight into the exhilarating and sometimes tragic world of heart surgery, and how it feels to hold someone’s life in your hands.

What My Bones Know: A Memoir of Healing from Complex Trauma


Stephanie Foo - 2022
    . . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.