We Know How This Ends: Living while Dying


Bruce H. Kramer - 2015
    Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease where the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure; ALS is a death sentence.When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired Kramer to share and teach the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief.At the same time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially the slow descent of her father into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book.Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.

Seeing Beyond Depression


Jean Vanier - 1999
    We need help to recover from it, and a friend to walk with us through the difficult times. Jean Vanier, one of the great spiritual writers of our time, has written this simple and clear book about depression. The writing is inspirational and sympathetic as he explores how we can move beyond depression--out of the darkness into the light. In twelve simple but profound chapters, Vanier goes right to the heart of our hurt, clarifying our feelings and offering us hope. On the left-hand page is a succinct thought that is developed in detail on the right-hand page. Seeing Beyond Depression will appeal to: --anyone who has known depression --families and friends of depressed persons --spiritual seekers --fans of Jean Vanier

Insane: America's Criminal Treatment of Mental Illness


Alisa Roth - 2018
    Jails in New York, Los Angeles, and Chicago each house more people with mental illnesses than any hospital. As many as half of all people in America's jails and prisons have a psychiatric disorder. One in four fatal police shootings involves a person with such disorders.In this revelatory book, journalist Alisa Roth goes deep inside the criminal justice system to show how and why it has become a warehouse where inmates are denied proper treatment, abused, and punished in ways that make them sicker.Through intimate stories of people in the system and those trying to fix it, Roth reveals the hidden forces behind this crisis and suggests how a fairer and more humane approach might look. Insane is a galvanizing wake-up call for criminal justice reformers and anyone concerned about the plight of our most vulnerable.

Chasing Daylight: How My Forthcoming Death Transformed by Life


Eugene O'Kelly - 2005
    He enjoyed a successful career and drew happiness from his wife, children, family and close friends. Then in May 2005, Gene was diagnosed with late-stage brain cancer. This is his account of his final journey.

The Body in Pain: The Making and Unmaking of the World


Elaine Scarry - 1985
    The book is an analysis of physical suffering and its relation to the numerous vocabularies and cultural forces--literary, political, philosophical, medical, religious--that confront it. Elaine Scarry bases her study on a wide range of sources: literature and art, medical case histories, documents on torture compiled by Amnesty International, legal transcripts of personal injury trials, and military and strategic writings by such figures as Clausewitz, Churchill, Liddell Hart, and Kissinger, She weaves these into her discussion with an eloquence, humanity, and insight that recall the writings of Hannah Arendt and Jean-Paul Sartre. Scarry begins with the fact of pain's inexpressibility. Not only is physical pain enormously difficult to describe in words--confronted with it, Virginia Woolf once noted, "language runs dry"--it also actively destroys language, reducing sufferers in the most extreme instances to an inarticulate state of cries and moans. Scarry analyzes the political ramifications of deliberately inflicted pain, specifically in the cases of torture and warfare, and shows how to be fictive. From these actions of "unmaking" Scarry turns finally to the actions of "making"--the examples of artistic and cultural creation that work against pain and the debased uses that are made of it. Challenging and inventive, The Body in Pain is landmark work that promises to spark widespread debate.

Mindstorms: The Complete Guide for Families Living with Traumatic Brain Injury


John W. Cassidy - 2009
    It may feel as if your world has shifted on its axis, and you'll never get your bearings. Navigating your way through the morass of doctors, medical terms, and the healthcare system can be daunting, especially when you want only what's best for the person you love. Dr. John Cassidy has devoted the past twenty-five years to helping families cope with traumatic brain injury; Mindstorms is his compassionate, comprehensive manual to demystifying this often frightening and life-changing condition. More than 6.3 million Americans live with a severe disability caused by a traumatic brain injury. In fact, because it's so commonplace, but little talked of, TBI is often referred to as the "silent epidemic." In these pages, Dr. Cassidy walks you through the different types of brain injury; explodes the common myths surrounding it; demonstrates the ways in which TBI may affect memory, behavior, and social interaction; explores the newest options in treatment and rehabilitation; and shows you how to hold on to your own sense of self as you journey through. Along with the practical information you'll need, Mindstorms offers a constellation of instructive, moving stories from families and patients who are slowly, but surely, finding their way back. Their experiences are sure to inspire you and yours.

Ten Thousand Joys & Ten Thousand Sorrows: A Couple's Journey Through Alzheimer's


Olivia Ames Hoblitzelle - 2010
    Beyond inspiring."-Daniel Goleman, author of Emotional Intelligence"This beautiful book is unlike any other personal account of living with Alzheimer's disease that I have ever read . . . it offers patients and families practical insights into how they can live their lives more fully amidst the heartbreak of a mind-robbing illness."- Paul Raia, Director of Patient Care and Family Support, Alzheimer's Association, Massachusetts Chapter"A story of courage, love, and growing wisdom in the face of Alzheimer's."-Joseph Goldstein, author of One Dharma, Founder / Director of Insight Meditation SocietyIn this profound and courageous memoir, Olivia Ames Hoblitzelle describes how her husband's Alzheimer's diagnosis at the age of seventy-two challenged them to live the spiritual teachings they had embraced during the course of their life together. Following a midlife career shift, Harrison Hobliztelle, or Hob as he was called, a former professor of comparative literature at Barnard, Columbia, and Brandeis University, became a family therapist and was ordained a Dharmacharya (senior teacher) by Thich Nhat Hanh. Hob comes to life in these pages as an incredibly funny and brilliant man who never stopped enjoying a good philosophical conversation-even as his mind, quite literally, slipped away from him. And yet when they first heard the diagnosis, Olivia and Hob's initial reaction was to cling desperately to the life they had had. But everything had changed, and they knew that the only answer was to greet this last phase of Hob's life consciously and lovingly.Ten Thousand Joys & Ten Thousand Sorrows provides a wise and compassionate vision for maintaining hope and grace in the face of life's greatest challenges.(This memoir was originally self-published as The Majesty of Your Loving.)

Quit Like a Woman: The Radical Choice to Not Drink in a Culture Obsessed with Alcohol


Holly Whitaker - 2019
    Either way, it will save your life.”—Melissa Hartwig Urban, Whole30 co-founder and CEOWe live in a world obsessed with drinking. We drink at baby showers and work events, brunch and book club, graduations and funerals. Yet no one ever questions alcohol’s ubiquity—in fact, the only thing ever questioned is why someone doesn’t drink. It is a qualifier for belonging and if you don’t imbibe, you are considered an anomaly. As a society, we are obsessed with health and wellness, yet we uphold alcohol as some kind of magic elixir, though it is anything but.When Holly Whitaker decided to seek help after one too many benders, she embarked on a journey that led not only to her own sobriety, but revealed the insidious role alcohol plays in our society and in the lives of women in particular. What’s more, she could not ignore the ways that alcohol companies were targeting women, just as the tobacco industry had successfully done generations before. Fueled by her own emerging feminism, she also realized that the predominant systems of recovery are archaic, patriarchal, and ineffective for the unique needs of women and other historically oppressed people—who don’t need to lose their egos and surrender to a male concept of God, as the tenets of Alcoholics Anonymous state, but who need to cultivate a deeper understanding of their own identities and take control of their lives. When Holly found an alternate way out of her own addiction, she felt a calling to create a sober community with resources for anyone questioning their relationship with drinking, so that they might find their way as well. Her resultant feminine-centric recovery program focuses on getting at the root causes that lead people to overindulge and provides the tools necessary to break the cycle of addiction, showing us what is possible when we remove alcohol and destroy our belief system around it.Written in a relatable voice that is honest and witty, Quit Like a Woman is at once a groundbreaking look at drinking culture and a road map to cutting out alcohol in order to live our best lives without the crutch of intoxication. You will never look at drinking the same way again.

What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Our Bodies, Ourselves for the New Century


Boston Women's Health Book Collective - 1970
    A guide to women's health, including information on breast cancer, AIDS, pregnancy and childbirth, and medical practices and procedures.

Second Wind: Navigating the Passage to a Slower, Deeper, and More Connected Life


Bill Thomas - 2014
    It's like the moment when your favorite tennis shoes start to give you blisters. The way you've been living your adult life doesn't fulfill you anymore.Dr. Bill Thomas, one of the most innovative thinkers in medicine, explains that a new life phase is beginning to emerge within our society. When the Baby Boom generation came of age in the 1960s and 1970s, they jump-started a cultural revolution that shaped today's society. Now, many feel they are living a life of frenzied disharmony. This out-of-balance feeling is a signal that you are ready for your second coming of age, your life beyond adulthood. Second Wind illuminates how to recognize and navigate the most challenging and fulfilling developmental stage of life.Life can and should be reimagined. New ways of living and working are waiting to be discovered on the far side of adulthood. Dr. Thomas treats the Baby Boom generation as he would one of his patients, sympathetically exploring its history before recommending a path toward a life rich with developmental opportunities. Predicting that Boomers will choose the path of the Denialist, the Realist, or the Enthusiast, he discusses the behaviors and attitudes that will provide new and more nourishing fuel for the rest of life’s journey: hope and a renewed sense of all that is possible.

Zen in the Art of Archery


Eugen Herrigel - 1948
    It is an honest account of one man’s journey to complete abandonment of ‘the self’ and the Western principles that we use to define ourselves. Professor Herrigel imparts knowledge from his experiences and guides the reader through physical and spiritual lessons in a clear and insightful way.Mastering archery is not the key to achieving Zen, and this is not a practical guide to archery. It is more a guide to Zen principles and learning and perfect for practitioners and non-practitioners alike.

Spook: Science Tackles the Afterlife


Mary Roach - 2005
    "What happens when we die? Does the light just go out and that's that—the million-year nap? Or will some part of my personality, my me-ness persist? What will that feel like? What will I do all day? Is there a place to plug in my lap-top?" In an attempt to find out, Mary Roach brings her tireless curiosity to bear on an array of contemporary and historical soul-searchers: scientists, schemers, engineers, mediums, all trying to prove (or disprove) that life goes on after we die.

The Lupus Book: A Guide for Patients and Their Families


Daniel J. Wallace - 1995
    It can take years to properly diagnose, often leaving its victims suffering not only from the disease, but from the uncertainty about whether they have the disease andfrom the not-insignificant problem of finding a physician to treat them. The disease is lupus, which, simply put, is what happens to the body when it becomes allergic to itself. It is quite widespread and it is highly deadly, claiming the lives of thousands of patients yearly. Now patients and their families can turn to The Lupus Book, a clear, reassuring guide that explains virtually every aspect of the disease. Written by Daniel J. Wallace, M.D., one of the world's leading experts on the subject, The Lupus Book is packed with useful, easy-to-understand information andpractical guidance for the sufferer. Here the reader will discover clear descriptions of the symptoms that most commonly afflict victims of lupus, a helpful survey of all aspects of diagnosis--from why the disease is so difficult to recognize to the latest, most innovative tests--and backgroundinformation on the cause of the disease, which researchers now believe is genetic in origin. Wallace shows how lupus may affect different organ systems in the body, including the brain, heart, and lungs; he offers well-informed advice on how patients can work with their doctors to take an activerole in fighting the disease through exercise, diet, and medication; and perhaps most important, he answers the questions he is most often asked by his patients, including queries on prevention, cure, sun exposure, pregnancy, and many other concerns. Throughout the book, Wallace reveals a talent forcommunicating difficult concepts to the general reader as he illustrates his discussion with numerous anecdotes culled from his years of clinical experience (he has treated over one thousand lupus patients). Nearly one million people suffer from lupus in the United States alone. More common than leukemia, multiple sclerosis, cystic fibrosis, and muscular dystrophy combined, lupus is a pervasive and little- understood condition. With The Lupus Book in hand, lupus sufferers as well as their families, friends, and physicians have a reliable guide that will answer their questions and help them to better manage their day-to-day fight against this debilitating disease

Medicine and Culture


Lynn Payer - 1996
    A classic comparative study of medicine and national culture, Medicine and Culture shows us that while doctors regard themselves as servants of science, they are often prisoners of custom.