Best of
Illness

2002

Surviving "Terminal" Cancer: Clinical Trials, Drug Cocktails, and Other Treatments Your Oncologist Won't Tell You About


Ben A. Williams - 2002
    An account of dealing with glioblastoma brain cancer, along with the information needed to survive it

Love and Fatigue in America


Roger King - 2002
    Instead, on arrival, he is stricken with a persistent inability to stand up or think straight, and things quickly go wrong. Diagnosed with ME disease—chronic fatigue syndrome—he moves restlessly from state to state, woman to woman, and eccentric doctor to eccentric doctor, in a search for a love and a life suited to his new condition. The journey is simultaneously brave, absurd, and instructive.    Finding himself prostrate on beds and couches from Los Alamos to Albany, he hears the intimate stories offered by those he encounters—their histories, hurts, and hopes—and from these fragments an unsentimental map emerges of the inner life of a nation. Disability has shifted his interest in America from measuring its opportunities to taking the measure of its humanity. Forced to consider for himself the meaning of a healthy life and how best to nurture it, he incidentally delivers a report on the health of a country.    By turns insightful, comic, affecting, and profound, Roger King’s Love and Fatigue in America briskly compresses an illness, a nation, and an era through masterly blending of literary forms. In a work that defies categorization, and never loses its pace or poise, the debilitated narrator is, ironically, the most lively and fully awake figure in the book.“Remarkable. . . . [S]mart and funny. . . .[A]musing observations about everything American. . . . [T]his is not a traditional novel. . . . [T]his, as it turns out, is a brilliant perspective from which to view and write about life. . . . [G]reat reckonings unfurl in mere paragraphs.”—Jackson Newspapers.com“As the disease drives the narrator city to city, woman to woman, and doctor to doctor, it brings into relief many of America’s follies and excesses, most notably our health-care system, which King portrayed as antiquated, bureaucratic, and inhumane. After more than fifteen years, America brings the narrator ‘not aspiration realized, nor a largeness of life fitting to its open spaces, but the nascent ability to be satisfied with less.’”—The New Yorker

An American Summer


Frank Deford - 2002
    A bittersweet post-summer story about innocence and summers that are so special that they can't last.--San Francisco Chronicle.

Bathsheba's Breast: Women, Cancer, and History


James Stuart Olson - 2002
    The women who have endured it share a unique sisterhood. Queen Atossa and Dr. Jerri Nielsen—separated by era and geography, by culture, religion, politics, economics, and world view—could hardly have been more different. Born 2,500 years apart, they stand as opposite bookends on the shelf of human history. One was the most powerful woman in the ancient world, the daughter of an emperor, the mother of a god; the other is a twenty-first-century physician with a streak of adventure coursing through her veins. From the imperial throne in ancient Babylon, Atossa could not have imagined the modern world, and only in the driest pages of classical literature could Antarctica-based Jerri Nielsen even have begun to fathom the Near East five centuries before the birth of Christ. For all their differences, however, they shared a common fear that transcends time and space."—from Bathsheba's BreastIn 1967, an Italian surgeon touring Amsterdam's Rijks museum stopped in front of Rembrandt's Bathsheba at Her Bath, on loan from the Louvre, and noticed an asymmetry to Bathsheba's left breast; it seemed distended, swollen near the armpit, discolored, and marked with a distinctive pitting. With a little research, the physician learned that Rembrandt's model, his mistress Hendrickje Stoffels, later died after a long illness, and he conjectured in a celebrated article for an Italian medical journal that the cause of her death was almost certainly breast cancer.A horror known to every culture in every age, breast cancer has been responsible for the deaths of 25 million women throughout history. An Egyptian physician writing 3,500 years ago concluded that there was no treatment for the disease. Later surgeons recommended excising the tumor or, in extreme cases, the entire breast. This was the treatment advocated by the court physician to sixth-century Byzantine empress Theodora, the wife of Justinian, though she chose to die in pain rather than lose her breast. Only in the past few decades has treatment advanced beyond disfiguring surgery.In Bathsheba's Breast, historian James S. Olson—who lost his left hand and forearm to cancer while writing this book—provides an absorbing and often frightening narrative history of breast cancer told through the heroic stories of women who have confronted the disease, from Theodora to Anne of Austria, Louis XIV's mother, who confronted "nun's disease" by perfecting the art of dying well, to Dr. Jerri Nielson, who was dramatically evacuated from the South Pole in 1999 after performing a biopsy on her own breast and self-administering chemotherapy. Olson explores every facet of the disease: medicine's evolving understanding of its pathology and treatment options; its cultural significance; the political and economic logic that has dictated the terms of a war on a "woman's disease"; and the rise of patient activism. Olson concludes that, although it has not yet been conquered, breast cancer is no longer the story of individual women struggling alone against a mysterious and deadly foe.

Surviving Terminal Cancer: Clinical Trials, Drug Cocktails, and Other Treatments Your Oncologist Won't Tell You About


Ben A. Williams - 2002
    

Becky the Brave: A Story of about Epilepsy


Laurie Lears - 2002
    The next day, her shy, younger sister walks to her classroom all alone and wants to tell the other students about Becky's epilepsy. Now she must find the strength to be brave for Becky. Full-color illustrations.