Powerful and passionate, Care Work is a crucial and necessary call to arms.

    Bridging black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations. She reads (dis)ability in neo-slave narratives by Octavia Butler (Kindred) and Phyllis Alesia Perry (Stigmata) not only as representing the literal injuries suffered under slavery, but also as a metaphor for the legacy of racial violence. The fantasy worlds in works by N. K. Jemisin, Shawntelle Madison, and Nalo Hopkinson—where werewolves have obsessive-compulsive-disorder and blind demons can see magic—destabilize social categories and definitions of the human, calling into question the very nature of identity. In these texts, as well as in Butler’s Parable series, able-mindedness and able-bodiedness are socially constructed and upheld through racial and gendered norms. Outlining (dis)ability's centrality to speculative fiction, Schalk shows how these works open new social possibilities while changing conceptualizations of identity and oppression through nonrealist contexts.

    Marion Sims. Selected by Tyehimba Jess as a National Poetry Series winner.In this provocative collection by award-winning poet and artist Dominique Christina, the historical life of Anarcha is personally reenvisioned. Anarcha was an enslaved Black woman who endured experimentation and torture at the hands of Dr. Marion Sims, more commonly known as the father of modern gynecology. Christina enables Anarcha to tell her story without being relegated to the margins of history, as a footnote to Dr. Sims's life. These poems are a reckoning, a resurrection, and a proper way to remember Anarcha . . . and grieve her.

    This is crip wisdom for the people. Edited by Alice Wong, founder of the Disability Visibility Project, Resistance and Hope will transform the way you think about activism, leadership and social justice. How do we fight back in an era of uncertainty, institutionalized cruelty, and widespread tolerance for ableism and hate? Written in 2017, the authors explore resistance, hope, self care, disability rights and justice, and the politics of Trump in a series of provocative, challenging essays. They bring the power of intersectional cross-platform organizing and the strength found through mutual accountability to words that will help you define the resistance you want to fight for, not just the harm you want to react against. Dare to dream bigger and create space for all with this visionary essay anthology from multiply marginalized disabled people redefining an inclusive climate of resistance. The time is NOW! "Get this book right now! Resistance and Hope is the disability justice Bible you've been waiting for. If you want to read a book chock full of disabled Black, brown, queer, trans genius, real talk and vision, this book will give you comrades reassurances that we are brilliant revolutionaries and a plethora of tools and visions for how we make the road by limping, crutching, rolling, signing and stimming. I am so grateful for Alice Wong for doing the cultural work of putting this together and for every single writer in this book." — Leah Piepzna-Samarasinha, performer, community organizer, and author of Care Work: Dreaming Disability Justice (Arsenal Pulp Press, October 1, 2018) “Until our movements are fully intersectional, we will not make the progress necessary to build the equitable society we all deserve. Resistance and Hope is a necessary manual for all of us as we learn how to build movements that are as inclusive as the world we hope to see.” — Brittany Packnett, activist, educator, writer, Co-Founder of Campaign Zero and Co-Host of Pod Save the People “Resistance and Hope: Essays by Disabled People is a timely and must-read collection of essays by some of the most cutting edge leaders in the Disability Rights Movement. If you are interested in learning more about disability rights and justice, activism, and current times we are living in today take the time to read and may these pieces evoke discussions in your communities as we fight for justice and equity.” — Judy Heumann, Disability Activist “It is so necessary for people who have been historically marginalized to tell their own stories. I am proud to know Alice Wong, who is someone dedicated to telling these stories with authenticity and integrity.” — Blair Imani, Author of Modern HERstory and Founder of Equality for HER ANTHOLOGY CONTRIBUTORS Lydia X. Z. Brown Anita Cameron Cyree Jarelle Johnson DJ Kuttin Kandi Mari Kurisato Talila A. Lewis Noemi Martinez Stacey Milbern Mia Mingus Lev Mirov Leroy Moore Shain M. Neumeier Naomi Ortiz Victoria Rodríguez-Roldán Vilissa K. Thompson Aleksei Valentín Maysoon Zayid Editorial Assistant: Robin M.

    Hotez's nineteen-month-old daughter, Rachel, was diagnosed with autism. Dr. Hotez, a pediatrician-scientist who develops vaccines for neglected tropical diseases affecting the world's poorest people, became troubled by the decades-long rise of the influential anti-vaccine community and their inescapable narrative around childhood vaccines and autism. The alleged link between the two was first espoused in a fraudulent scientific paper, long since retracted, but the story shows no signs of letting up. As a result, we've seen deadly and disabling outbreaks of vaccine-preventable diseases around the country, and Texas, where Hotez lives, is at particular risk.In Vaccines Did Not Cause Rachel's Autism, Hotez draws on his experiences as a pediatrician, vaccine scientist, and father of an autistic child. Outlining the arguments on both sides of the debate, he examines the science that refutes the concerns of the anti-vaccine movement, debunks current conspiracy theories alleging a cover-up by the CDC, and critiques the scientific community's failure to effectively communicate the facts about vaccines and autism to the general public, all while sharing his very personal story of raising a now-adult daughter with autism.A uniquely authoritative account, this important book persuasively provides evidence for the genetic basis of autism and illustrates how the neurodevelopmental pathways of autism are under way before birth. Dr. Hotez reminds readers of the many victories of vaccines over disease while warning about the growing dangers of the anti-vaccine movement, especially in the United States and Europe. A former US Science Envoy for the Department of State, he also explains what's at stake if the movement continues to gain ground. Opening with a foreword by leading medical ethicist Arthur L. Caplan, this book is a must-read for parent groups, child advocates, teachers, health-care providers, government policymakers, health and science policy experts, and anyone caring for a family member or friend with autism."When Peter Hotez--an erudite, highly trained scientist who is a true hero for his work in saving the world's poor and downtrodden--shares his knowledge and clinical insights along with his parental experience, when his beliefs in the value of what he does are put to the test of a life guiding his own child's challenges, then you must pay attention. You should. This book brings to an end the link between autism and vaccination."--from the foreword by Arthur L. Caplan, NYU School of Medicine

    He was left untreated and unattended to for thirty-four hours in the Emercency Room, where he ultimately died from an easily treatable infection. McCallum and Perry show that Sinclair’s tragically avoidable death reflects a particular structure of indifference born of and maintained by colonialism.

    Leading scholars articulate new ideas and challenge entrenched views of what justice means when considered from the perspectives of diverse communities. Their chapters, written boldly and pressing directly into the difficult and even strained questions of justice, reflect on the contingencies and incongruences at work when considering what justice wants and requires. At its heart, Toward What Justice? is a book about justice projects, and the incommensurable investments that social justice projects can make. It is a must-have volume for scholars and students working at the intersection of education and Indigenous studies, critical disability studies, climate change research, queer studies, and more.

    From body transformations to societal setbacks, to love affairs and family trauma, Firsts collects the most thought-provoking and exciting stories of our time by people with disabilities. Contributors include Nigel David Kelly, Kimberly Gerry-Tucker, Caitlin Hernandez, Andrew Gurza, and David-Elijah Nahmod.Firsts is a 2019 Readers' Favorite Gold Medal Winner in the Non-Fiction - Anthology genre.

    In a culture where bodies of people who are brown, black, female, transgender, disabled, fat, or queer are often shamed, sexualized, ignored, and oppressed, what does it mean to live in a marginalized body? Through theory, personal narrative, and artistic expression, this anthology explores how power, privilege, oppression, and attempted disembodiment play out on the bodies of disparaged individuals and what happens when the body’s expression is stereotyped and stunted. Bringing together a range of voices, this book offers strategies and practices for embodiment and activism and considers what it means to be an embodied ally to anyone experiencing bodily oppression.

    Until recently, we have suffered in silence, our voices snuffed out by the stigmas and assumptions of a culture programmed to believe only what they can see. I am young and I have fibromyalgia. Millions live with chronic pain, but not everyone suffers through their younger years with it. We work, go to school, raise our kids, run our businesses and attempt to maintain some semblance of a social life, while enduring relentless, hopeless, unforgiving pain and fatigue that we try our best to minimize because we have to. We have to push through it, often without any help, understanding or support. We are the voices of chronic pain and this book is our butterfly effect, our story, without holding back. This is an honest and candid window into our world. The stories shared here are all real, collected from pain warriors who are tired of living a secret life. These are the truths we are ashamed to speak of because they are ugly, they are raw, and sharing isn’t easy when you’ve been conditioned to believe you shouldn’t. If you are lucky enough to live without relentless pain, I hope this book helps you to be more understanding, compassionate and empathetic to those in your life who do suffer. For my fellow butterflies, I hope you find comfort and realize your struggles and pain are both real and shared.

    Faced with disbelief, intolerable side effects, and unexpected changes in her mental health as a result of treatment, Montgomery turned to American history and her own personal history—including her turbulent childhood and the violence she faced as a young woman—to make sense of the experience. Blending memoir with literary journalism, Montgomery’s Quite Mad: An American Pharma Memoir examines America’s history of mental illness treatment—lobotomies to sterilization, the rest cure to Prozac—to challenge contemporary narratives about mental health. Questioning what it means to be a woman with highly stigmatized disorders, Montgomery also asks why mental illness continues to escalate in the United States despite so many “cures.” Investigating the construction of mental illness as a “female” malady, Montgomery exposes the ways current attitudes towards women and their bodies influence madness as well as the ways madness has transformed to a chronic Illness in our cultural imagination. Montgomery’s Quite Mad is one woman’s story, but it offers a beacon of hope and truth for the millions of individuals living with mental illness and issues a warning about the danger of diagnosis and the complex definition of sanity.

    Madeline Burghardt draws from narratives of institutional survivors, their siblings, and their parents to examine the far-reaching consequences of institutionalization due to intellectual difference. Beginning with a thorough history of the rise of institutions as a system to manage difference, Broken provides an overview of the development of institutions in Ontario and examines the socio-political conditions leading to families' decisions to institutionalize their children. Through this exploration, other themes emerge, including the historical and arbitrary construction of intellectual disability and the resulting segregation of those considered a threat to the well-being of the family and society; the overlap between institutionalization and the workings of capitalism; and contemporaneous practices of segregation in Canadian history, such as Indian residential schools. Drawing from people's direct, lived experiences, the second half of the book gathers poignant accounts of institutionalization's cascading effects on family relationships and understandings of disability, ranging from stories of personal loss and confusion to family breakage. Adding to a growing body of work addressing Canada's treatment of historically marginalized peoples, Broken exposes the consequences of policy based on socio-political constructions of disability and difference, and of the fundamentally unjust premise of institutionalization.

    In Aberration of Mind, Diane Miller Sommerville offers the first book-length treatment of suicide in the South during the Civil War era, giving us insight into both white and black communities, Confederate soldiers and their families, as well as the enslaved and newly freed. With a thorough examination of the dynamics of both racial and gendered dimensions of psychological distress, Sommerville reveals how the suffering experienced by Southerners living in a war zone generated trauma that, in extreme cases, led some Southerners to contemplate or act on suicidal thoughts.Sommerville recovers previously hidden stories of individuals exhibiting suicidal activity or aberrant psychological behavior she links to the war and its aftermath. This work adds crucial nuance to our understanding of how personal suffering shaped the way southerners viewed themselves in the Civil War era and underscores the full human costs of war.

    That was true in the early twentieth century when anti-immigrant rhetoric led to draconian crackdowns on the movement of bodies, and it is true today as new measures seek to construct migrants as dangerous and undesirable. This premise forms the crux of Jay Timothy Dolmage’s new book Disabled Upon Arrival: Eugenics, Immigration, and the Construction of Race and Disability, a compelling examination of the spaces, technologies, and discourses of immigration restriction during the peak period of North American immigration in the early twentieth century.     Through careful archival research and consideration of the larger ideologies of racialization and xenophobia, Disabled Upon Arrival links anti-immigration rhetoric to eugenics—the flawed “science” of controlling human population based on racist and ableist ideas about bodily values. Dolmage casts an enlightening perspective on immigration restriction, showing how eugenic ideas about the value of bodies have never really gone away and revealing how such ideas and attitudes continue to cast groups and individuals as disabled upon arrival.

    Broadly attentive to the political and economic shifts of the last several decades, Robert McRuer asks how disability activists, artists and social movements generate change and resist the dominant forms of globalization in an age of austerity, or "crip times."Throughout Crip Times, McRuer considers how transnational queer disability theory and culture--activism, blogs, art, photography, literature, and performance--provide important and generative sites for both contesting austerity politics and imagining alternatives. The book engages various cultural flashpoints, including the spectacle surrounding the London 2012 Olympic and Paralympic Games; the murder trial of South African Paralympian Oscar Pistorius; the photography of Brazilian artist Livia Radwanski which documents the gentrification of Colonia Roma in Mexico City; the defiance of Chilean students demanding a free and accessible education for all; the sculpture and performance of UK artist Liz Crow; and the problematic rhetoric of "aspiration" dependent upon both able-bodied and disabled figurations that emerged in Thatcher's England.Crip Times asserts that disabled people themselves are demanding that disability be central to our understanding of political economy and uneven development and suggests that, in some locations, their demand for disability justice is starting to register. Ultimately, McRuer argues that a politics of austerity will always generate the compulsion to fortify borders and to separate a narrowly defined "us" in need of protection from "them."

    

    Although blind and other disabled people have becomemarginally more visible in recent years, the vast majority of blind Americans remain undereducated and unemployed. In More Than Meets the Eye, Georgina Kleege shows how the scrutiny of one cultural issue-access to arts institutions-in relation to one subset of the disabled population- blindpeople-can lead us to larger and more general implications.Kleege begins by examining representations of blindness, arguing that traditional theories of blindness often fail to take into account the presence of other senses, or the ability of blind people to draw analogies from non-visual experience to develop concepts about visual phenomena. Followingthis, the book shifts its focus from the tactile to the verbal, describing Denis Diderot's remarkable range of techniques to describe art works for readers who were not able to view them. Diderot's writing not only provided a model for describing art, Kleege says, but proof that the experience ofart is inextricably tied to language and thus not entirely dependent on sight.By intertwining her personal experience with scientific study and historical literary analysis, Kleege challenges traditional conceptions of blindness and overturns the assumption that the ideal art viewer must have perfect vision. More Than Meets the Eye seeks to establish a dialogue between blindpeople and the philosophers, scientists, and educators that study blindness, in order to create new aesthetic possibilities and a more genuinely inclusive society.

    Williams traces the experiences of African American women as they travel to Jamaica, where they address the perils and disappointments of American racism by looking for intimacy, happiness, and a connection to their racial identities. Through their encounters with Jamaican online communities and their participation in trips organized by Girlfriend Tours International, the women construct notions of racial, sexual, and emotional belonging by forming relationships with Jamaican men and other "girlfriends." These relationships allow the women to exercise agency and find happiness in ways that resist the damaging intersections of racism and patriarchy in the United States. However, while the women require a spiritual and virtual connection to Jamaica in order to live happily in the United States, their notion of happiness relies on travel, which requires leveraging their national privilege as American citizens. Williams's theorization of "emotional transnationalism" and the construction of affect across diasporic distance attends to the connections between race, gender, and affect while highlighting how affective relationships mark nationalized and gendered power differentials within the African diaspora.

    This division leads to stunted theoretical understanding, limited collaboration, and segregated practices, all of which contribute to a lack of capacity to see people with disabilities as whole human beings and full members of a diverse human family. Contesting the assumptions that separate disability and spirituality, William Gaventa argues for the integration of these two worlds. As Gaventa shows, the quest to understand disability inevitably leads from historical and scientific models into the world of spirituality—to the ways that values, attitudes, and beliefs shape our understanding of the meaning of disability. The reverse is also true. The path to understanding spirituality is a journey that leads to disability—to experiences of limitation and vulnerability, where the core questions of what it means to be human are often starkly and profoundly clear. In Disability and Spirituality Gaventa constructs this whole and human path before turning to examine spirituality in the lives of those individuals with disabilities, their families and those providing care, their friends and extended relationships, and finally the communities to which we all belong. At each point Gaventa shows that disability and spirituality are part of one another from the very beginning of creation. Recovering wholeness encompasses their reunion—a cohesion that changes our vision and enables us to everyone as fully human.

    Dagmar Herzog documents how reproductive rights and disability rights, both latecomers to the postwar human rights canon, came to be seen as competing—with unexpected consequences.Bringing together the latest findings in Holocaust studies, the history of religion, and the history of sexuality in postwar—and now also postcommunist—Europe, Unlearning Eugenics shows how central the controversies over sexuality, reproduction, and disability have been to broader processes of secularization and religious renewal. Herzog also restores to the historical record a revelatory array of activists: from Catholic and Protestant theologians who defended abortion rights in the 1960s–70s to historians in the 1980s–90s who uncovered the long-suppressed connections between the mass murder of the disabled and the Holocaust of European Jewry; from feminists involved in the militant "cripple movement" of the 1980s to lawyers working for right-wing NGOs in the 2000s; and from a handful of pioneers in the 1940s–60s committed to living in intentional community with individuals with cognitive disability to present-day disability self-advocates.