Named after the diagnostic criteria for fibromyalgia, the book-length lyric essay explores sexual violence, gendered illness, chronic pain, and patriarchy through the lenses of lived experience and pop culture (Twin Peaks, Teenage Mutant Ninja Turtles, noise music, etc.). Teaching Guide (or Book Club Guide) here: bit.ly/2aqJV2X

    Fusing philosophy, memoir, science, and the radical truths these disciplines can bring—whether about factory farming, disability oppression, or our assumptions of human superiority over animals—Taylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability. Beasts of Burden is a wonderfully engaging and elegantly written work, both philosophical and personal, by a brilliant new voice.

    The first book of the author to examine disability from a queer femme of color lens, Bodymap contains work created and performed with Sins Invalid. Bodymap maps hard and vulnerable terrains of queer desire, survivorhood, transformative love, sick and disabled queer genius and all the homes we claim and deserve."These poems are a gift for your love for self, your love itself and everyone you love. It is rare that a poet priestess offers words that allow us to emerge reborn with dirt, glitter and tenderness... Revere it. Revel in it. Read it again and again!" —Alexis Pauline Gumbs"Bodymap uses the alchemy of the voice on the page to transform words into an ache in the pit of me. I want what these poems demand: to be free to love & die, to be resurrected in time, & to be restored by desire. Piepzna-Samarasinha has located where this body houses the smirk learned from the sidewalk, the reason to do the difficult, and the blessings for the best worst thing."—Meg Day, author of Last Psalm at Sea Level "Sharp, yet remarkably compassionate, Piepzna-Samarasinha knows that the poem is no place for tidy inquiry and easy answers. She offers her own tenacious guts and veins on each and every page. Only someone who understands rage and reconciliation and blood and bone can write like this."—Amber Dawn, author of How Poetry Saved My Life: A Hustler’s Memoir and Sub Rosa

    I don't believe you. How do I know it is really you who wants coffee and not your friend there subliminally transmitting that to you by touching your shoulder?" Imagine a world where you had to prove you knew your own mind even to get a cup of coffee, where it was generally assumed that you could have no thoughts of your own, so if you did express your thoughts, it must be some trick. What would you do? Would you give up, or demand to be heard? Sadly, this world is not imaginary for many of the writers in this book, who have chosen the path of demanding to be heard. Their best (and sometimes only) mode of communication is sometimes called "discredited" because it was "tested" in ways that make no sense. Typed Words, Loud Voices is written by a coalition of writers who type to talk and believe it is neither logical nor fair that some people should be expected to prove themselves every time they have something to say. Read our arguments and hear us. Help us change the world. "Getting your attention that I want to "voice" something is my first challenge. ... However, if you calm your leap to judge, you may find that since we know we take more effort to "listen" to, we make sure you "hear" something memorable..." - Devva Kasnitz, PhD. CUNY-Disability Studies "This groundbreaking book is a must read for anyone who truly cares about equality and it gives you a new perspective about what it means to have a 'voice'." - Matthew Wangeman, MCP. NAU - Disability Studies "Ibby, Amy, and the other authors here speak from the heart, because they live it, all day, every day. I've learned from them in ways that can't be measured over the past couple of years - their words and thinking have literally changed my life. They'll change yours, too. Read this, now." - Phil Smith, Professor, Eastern Michigan University

    She connects conversations about corporeality in theology, political theory, and continental philosophy to show the relationship between the ways ancient Christian thinkers and modern Western philosophers conceive of the "body" and "flesh.” Her readings of the biblical writings of John and Paul as well as the work of Tertullian illustrate how Christian ideas of flesh influenced the works of Maurice Merleau-Ponty and Michel Foucault, and inform her readings of Judith Butler, Frantz Fanon, and others. Rivera also furthers developments in new materialism by exploring the intersections among bodies, material elements, social arrangements, and discourses through body and flesh. By painting a complex picture of bodies, and by developing an account of how the social materializes in flesh, Rivera provides a new way to understand gender and race.

    Scholars examine the achievement/opportunity gaps from both historical and contemporary perspectives, as well as the overrepresentation of minority students in special education and the school-to-prison pipeline. Chapters also address school reform and the impact on students based on race, class, and dis/ability and the capacity of law and policy to include (and exclude). Readers will discover how some students are included (and excluded) within schools and society, why some citizens are afforded expanded (or limited) opportunities in life, and who moves up in the world and who is trapped at the “bottom of the well.”Contributors: D.L. Adams, Susan Baglieri, Stephen J. Ball, Alicia Broderick, Kathleen M. Collins, Nirmala Erevelles, Edward Fergus, Zanita E. Fenton, David Gillborn, Kris Guitiérrez, Kathleen A. King Thorius, Elizabeth Kozleski, Zeus Leonardo, Claustina Mahon-Reynolds, Elizabeth Mendoza, Christina Paguyo, Laurence Parker, Nicola Rollock, Paolo Tan, Sally Tomlinson, and Carol Vincent“With a stunning set of authors, this book provokes outrage and possibility at the rich intersection of critical race, class, and disability studies, refracting back on educational policy and practices, inequities and exclusions but marking also spaces for solidarities. This volume is a must-read for preservice, and long-term educators, as the fault lines of race, (dis)ability, and class meet in the belly of educational reform movements and educational justice struggles.” —Michelle Fine, distinguished professor of Critical Psychology and Urban Education, The Graduate Center, CUNY“Offers those who sincerely seek to better understand the complexity of the intersection of race/ethnicity, dis/ability, social class, and gender a stimulating read that sheds new light on the root of some of our long-standing societal and educational inequities.” —Wanda J. Blanchett, distinguished professor and dean, Rutgers University, Graduate School of Education

    But the journey to this point has been an extraordinary one. When Judy Sharp took her three-year-old son Tim to a paediatric specialist, he was diagnosed with autism so severe that she was told he would never be able to talk or learn to live in a normal household, and that he was incapable of love, even towards his own mother. The advice at the time was that he would be better off in an institution.Just over twenty years later, Tim's joyful artworks and drawings involving his superhero, Laser Beak Man, have been exhibited around the world. From the Powerhouse in Brisbane to the Museum of Contemporary Art in Sydney to the Museum of Modern Art in New York, some of the world's greatest galleries have showcased Tim and his amazing career. Laser Beak Man's appeal is so widespread it's gone on to inspire, among other things, an eight-part animated children's TV series and a Broadway play in New York.A Double Shot of Happiness (from the title of one of Tim's favourite artworks) is Judy's beautiful and heartfelt account of Tim's odyssey from that terrible diagnosis to his emergence as an acclaimed artist and a fulfilled, loving and loved young man. It's a story that has involved many hurdles, moments of despair and incredible hard work from Tim, Judy, his brother Sam and all those who have helped them, but that is ultimately moving, inspiring and triumphant.

    From the 504 Sit-in and the founding of the Center for Independent Living in Berkeley, to the Disability Forum at the International Woman's Conference in Beijing; through dancing, sports, queer disability organizing and being a disabled parent, OToole explores her own and the disability community's power and privilege with humor, insight and honest observations. "Corbett Joan OToole's Fading Scars: My Queer Disabled History is like a song-an anthem, a lullaby, a ballad, a love lyric and a chant all at once. This book of essays chronicles one person's life, but also the 40 years that disability rights and disability justice shaped American history. Its first-person accounts of historical events, fierce focus on disabled identities, and consistently accessible language and structure make it unusual-perhaps even unique-among disability memoirs. Bursting with ideas, stories, and arguments, Fading Scars is a book in which experience accrues into knowledge and emerges through the written word as wisdom. Fading Scars combines razor-sharp organization with passages of lyrical beauty. It establishes a new standard, perhaps even the beginning of a new aesthetic, for disability writing." - Margaret Price, author ofMad at School: Rhetorics of Mental Disability and Academic Life. "Illuminating disability history with clear and funny stories, this book builds a home where those of us who have lived on the sidelines can seek shelter." - Naomi Ortiz, Writer, Artist and Disability Justice Activist "Fading Scars is a must read for those interested in disability community, activism, and scholarship." - Kim Nielsen, author of A Disability History of the United States (ReVisioning American History)"

    But what about access to the private realm of desire and sexuality? How can one also facilitate access to that, in ways that respect the integrity of disabled adults, and also of those people who work with and care for them?Loneliness and Its Opposite documents how two countries generally imagined to be progressive engage with these questions in very different ways. Denmark and Sweden are both liberal welfare states, but they diverge dramatically when it comes to sexuality and disability. In Denmark, the erotic lives of people with disabilities are acknowledged and facilitated. In Sweden, they are denied and blocked. Why do these differences exist, and how do both facilitation and hindrance play out in practice?Loneliness and Its Opposite charts complex boundaries between private and public, love and sex, work and intimacy, and affection and abuse. It shows how providing disabled adults with access to sexual lives is not just crucial for a life with dignity. It is an issue of fundamental social justice with far reaching consequences for everyone.

    Through a gorgeous and gorge-filled landscape, these poems struggle with dislocation, past sexual trauma, grief, the chronic looming of psychiatric wards, and a constant attempt to redirect patterns of suicidal ideation."Advance Praise for Humanly: “In Humanly, Stevie Edwards wakes us into our own bodies with her fierce honesty:The first time I tried to slip my outsides/I failed. This is a courageous book of startling images and original voice that surges beyond the difficult questions: If I string the night between two fence posts, /one side heaven and one side hell… Or: I was/watching myself in the hotel mirror to make sure/my body was still happening… Edwards blows the doors off the outer body, delivering us to the beating heart and the inner doors of human mercy. Humanly burns need and desire into the sound of survival: a prayer/in praise of the groaning in the backroom:/Let each body be loved until its end.”—Jan Beatty"With an unpredictability that alternately jolts and mesmerizes, Stevie Edwards has crafted an intricate exploration of life as we'd rather not know it. There is much in these stanzas to jolt and unsettle--stark crafting and a relentless respect for the possibilities of word create a tension only felt in the presence of revelation." —Patricia Smith "If I had never before heard anyone say 'Art Saves Lives,' I swear on the bullseye of my own wrist, I would have run through the streets screaming it the moment I finished this book. I want everyone who has never believed in the possibility of being given back Time, to read these poems. Not a moment of grief denied, and still, each turn of the page, a vaulted ceiling in my heavy heart. What a generous and intensely vulnerable offering to our survival this book is.—Andrea Gibson

    Thus, the book pushes beyond questions of impairment to explore how disability subjectivities create new forms of embodied knowledge and collective consciousness. The focus is on the emergence of new crip/queer subjectivities at work in disability arts, disability studies pedagogy, independent and mainstream disability cinema (e.g., Midnight Cowboy), internet-based medical user groups, anti-normative novels of embodiment (e.g., Richard Powers’s The Echo-Maker) and, finally, the labor of living in “non-productive” bodies within late capitalism.

    Months after the accident, outfitted with sleek new prosthetic legs, he jogged alongside President Bush for a photo op at the White House. The photograph served many functions, one of them being to revive faith in an American martial ideal—that war could be fought without permanent casualties, and that innovative technology could easily repair war’s damage. When Bagge was awarded his Purple Heart, however, military officials asked him to wear pants to the ceremony, saying that photos of the event should be “soft on the eyes.” Defiant, Bagge wore shorts. America has grappled with the questions posed by injured veterans since its founding, and with particular force since the early twentieth century: What are the nation’s obligations to those who fight in its name? And when does war’s legacy of disability outweigh the nation’s interests at home and abroad? In Paying with Their Bodies, John M. Kinder traces the complicated, intertwined histories of war and disability in modern America. Focusing in particular on the decades surrounding World War I, he argues that disabled veterans have long been at the center of two competing visions of American war: one that highlights the relative safety of US military intervention overseas; the other indelibly associating American war with injury, mutilation, and suffering. Kinder brings disabled veterans to the center of the American war story and shows that when we do so, the history of American war over the last century begins to look very different. War can no longer be seen as a discrete experience, easily left behind; rather, its human legacies are felt for decades. The first book to examine the history of American warfare through the lens of its troubled legacy of injury and disability, Paying with Their Bodies will force us to think anew about war and its painful costs.

    These moving narratives share personal, political, and even contradictory stories about what it is like to face disease. Proceeds from the ebook will go to printing and mailing the book to healthcare, art therapy, and medical education centers in the U.S. With this initiative, we hope to start conversations about gender and sexuality with patients and providers. To learn more about Uprooted visit us at www.uprootedanthology.com.

    The volume engages some of the most pressing debates of our time, such as prenatal testing, euthanasia, accessibility in public transportation and the workplace, post-traumatic stress, and questions about the beginning and end of life. Each of the 60 essays in Keywords for Disability Studies focuses on a distinct critical concept, including ethics, medicalization, performance, reproduction, identity, and stigma, among others. Although the essays recognize that disability is often used as an umbrella term, the contributors to the volume avoid treating individual disabilities as keywords, and instead interrogate concepts that encompass different components of the social and bodily experience of disability. The essays approach disability as an embodied condition, a mutable historical phenomenon, and a social, political, and cultural identity. An invaluable resource for students and scholars alike, Keywords for Disability Studies brings the debates that have often remained internal to disability studies into a wider field of critical discourse, providing opportunities for fresh theoretical considerations of the field s core presuppositions through a variety of disciplinary perspectives.

    Analyzing legal discourses, sex education materials, and news stories going back to the 1970s, he shows, for example, that the intense focus on “stranger danger” in sex education for intellectually disabled individuals disregards their ability to independently choose activities and sexual partners—including nonheterosexual ones, who are frequently treated with heightened suspicion. He also examines ethical issues surrounding masturbation training that aims to regulate individuals’ sexual lives, challenges the perception that those whose sexuality is controlled (or rejected) should not reproduce, and proposes recognition of the right to become parents for adults with intellectual disabilities.A powerfully argued call for sexual and reproductive justice for people with intellectual disabilities, Already Doing It urges a shift away from the compulsion to manage “deviance” (better known today as harm reduction) because the right to pleasure and intellectual disability are not mutually exclusive. In so doing, it represents a vital new contribution to the ongoing debate over who, in the United States, should be allowed to have sex, reproduce, marry, and raise children.

    African American Studies. Music. Disability Studies. BLACK KRIPPLE DELIVERS POETRY & LYRICS is straight up an activist/love book of original poems and song lyrics that have been written and collected for almost two decades. Many poems in this book were first published in 1999 in a chapbook by Poor Magazine's Poor Press. Most of the poems and lyrics touch on issues that Black disabled people deal with but only get a little media attention. In this book you will find true stories of discrimination, cases of police brutality, love songs for the Black disabled community and for the author's family. "In the tradition of History's word warriors, Leroy Moore pens full frontal confrontations that blast away the last nasty vestiges of Faith-based America's biases against the poor, the disarranged, and the different." Wanda Coleman"

    Drawing on more than fifty years of combined experience as health care providers, teachers, and researchers, they explain in clear language how health care workers in all disciplines can use this knowledge to meet their patients' needs better and to improve their health.

    Petro brings ecumenical Protestants, Roman Catholics, biomedical officials, and ACT UP protestors into view alongside their evangelical compatriots and in doing so creates a richly polychromatic picture of American religion, sexuality, and moral debate in the wake of the AIDS epidemic." --Leigh Eric Schmidt, Edward C. Mallinckrodt Distinguished University Professor, Washington University in St. Louis "The AIDS crisis was not an epoch that we survived. It is a battle that we are still fighting. In this remarkable work of historical intervention Anthony Petro explores the extraordinary religious ferment that accompanied the emergence of AIDS in the United States. Petro shows that when Americans talk about AIDS they are rarely just talking about a scientific problem or a pharmaceutical solution. They are instead offering a sociology of suffering and a plan for spiritual warfare. After the Wrath of God is required reading for anyone interested in the way this powerful religious past will shape our political future."--Kathryn Lofton, Professor of Religious Studies, American Studies, History and Divinity; Chair, Women's, Gender and Sexuality Studies, Yale University "Anthony Petro's novel account of the role of American Christianity in the AIDS crisis moves beyond expected narratives of the rise of the right to encompass a diversity of religious responses across the 'long 1980s.' Illuminating and important." --Margot Canaday, Associate Professor of History, Princeton University

    Their pretend friends are very different and people react differently to them. Little Bea has lots of fun adventures with her pretend friend Nye Nye. Big Jay's pretend friends don't make him happy, in fact they can make life quite hard for Big Jay. This full colour story book helps to explain in a child-friendly way what life is like for those who hear voices or have other hallucinations or delusions as a result of mental illness. Appropriate for children aged 4 and above, it describes why these auditory and visual hallucinations are very different to the enjoyable imaginary friends many children create, and explains some of the things that may help people like Big Jay.

    In Britain, a whole army of over 21,000 soldiers had participated in secret experiments between 1939 and 1989. Some remembered their stay as harmless, but there were many for whom the experience had been all but pleasant, sometimes harmful, and in isolated cases deadly. Secret Science traces, for the first time, the history of chemical and biological weapons research by the former Allied powers, particularly in Britain, the United States, and Canada. It charts the ethical trajectory and culture of military science, from its initial development in response to Germany's first use of chemical weapons in the First World War to the ongoing attempts by the international community to ban these types of weapons once and for all. It asks whether Allied and especially British warfare trials were ethical, safe, and justified within the prevailing conditions and values of the time. By doing so, it helps to explain the complex dynamics in top-secret Allied research establishments: the desire and ability of the chemical and biological warfare corps, largely comprised of military officials, scientists, and expert civil servants, to construct and identify a never-ending stream of national security threats which served as flexible justification strategies for the allocation of enormous resources to conducting experimental research with some of the most deadly agents known to man. Secret Science offers a nuanced, non-judgemental analysis of the contributions made by servicemen, scientists, and civil servants to military research in Britain and elsewhere, not as passive, helpless victims 'without voices', or as laboratory and desk perpetrators 'without a conscience', but as history's actors and agents of their own destiny. As such it also makes an important contribution to the burgeoning literature on the history and culture of memory.

    Hundreds of millions watched these weekend-long variety shows that raised billions of dollars for disability-related charities. Drawing on over two decades of in-depth research, Telethons trenchantly explores the complexity underneath the campy spectacles. At its center are the disabled children, who, thanks to a particular kind of historical-cultural marginalization, turned out to be ideal tools for promoting corporate interests, privatized healthcare, and class status. Offering a public message about helping these unfortunate victims, telethons perpetuated a misleading image of people with disabilities as helpless, passive, apolitical members of American society. Paul K. Longmore's revelatory chronicle shows how these images in fact helped major corporations increase their bottom lines, while filling gaps in the strange public-private hybrid U.S. health insurance system. Only once disabled people pushed back in public protests did the broader implications for all Americans become clear. Mining insights from great thinkers such as Adam Smith, Edmund Burke, and Alexis de Tocqueville, along with contemporary cultural figures like Jerry Lewis, Ralph Nader, and several disability rights activists, Telethons offers a provocative meditation on big business, American government, popular culture, Cold War values, and "activism" both narrowly and broadly defined. As highly popular entertainment, telethons schooled Americans about how to feel about their bodies, fitness, health, and appropriate ways to interact with people whose bodies did not fit norms determined by advertisers. The programs also taught them about when to weep and how to cure guilt through "conspicuous contribution." Longmore's astute observations about psychology, economics, and society reveal how writing off telethons as kitsch and irrelevant has enabled many individual attitudes, corporate practices, and government policies to go unquestioned. Ultimately, Telethons reveals the passion, humanity, resistance, and triumph that were not center-stage on these popular telecasts by offering insights into the U.S. disability movement past and present.

    Only in the last few decades have scholars from a wide variety of disciplines attempted to document the lives of historical animals in ways that recognize their agency as sentient beings with complex intelligence. This collection advances the field further, inviting us to examine our recorded history through an animal-centric lens to discover how animals have altered the course of our collective past. The seventeen scholars gathered here present case studies from the Pacific Ocean, Africa, Europe, and the Americas, involving species ranging from gorillas and horses to salamanders and orcas. Together they seek out new methodologies, questions, and stories that challenge accepted historical assumptions and structures. Drawing upon environmental, social, and political history, the contributors employ research from such wide-ranging fields as philosophy and veterinary medicine, embracing a radical interdisciplinarity that is crucial to understanding our nonhuman past. Grounded in the knowledge that there has never been a purely human time in world history, this collection asks and answers an incredibly urgent question for historians and others interested in the nonhuman past: in an age of mass extinctions, mass animal captivity, and climate change, when we know much of what animals have done in the past, which of our activities will we want to change in the future?

    It looks at the relative agency of the disabled character, the behavior of the other characters, the environment in which the character must live, the assumptions that seem to be underlying certain scenes, and the extent to which the book challenges or perpetuates an unsatisfactory status quo. Class discussions about disability-themed literature, however well intentioned, have the potential to reinforce harmful myths or stereotypes about disability. In contrast, discussions informed by a critical disability studies perspective can help readers develop more sophisticated views of disability and contribute to a more just and inclusive society. The book examines discussion questions, lesson plans, study guides, and other supplemental materials aimed at students studying these texts, and it suggests more critical questions to pose about these texts and the positive and/or negative work they do, perhaps subliminally, in our culture. This book is a much-needed addition to college classes in YA literature, literary analysis, methods of teaching literature, disability studies, cultural studies, contemporary criticism, special education, and adolescent literacy. (as seen on Amazon)