Book picks similar to
Emily: My True Story of Chronic Illness and Missing Out On Life by Emily Smucker
non-fiction
chronic-illness
nonfiction
health
Lighter than My Shadow
Katie Green - 2013
She'd sit at the table in silent protest, hide uneaten toast in her bedroom, listen to parental threats that she'd have to eat it for breakfast.But in any life a set of circumstance can collide, and normal behavior might soon shade into something sinister, something deadly.Lighter Than My Shadow is a hand-drawn story of struggle and recovery, a trip into the black heart of a taboo illness, an exposure of those who are so weak as to prey on the vulnerable, and an inspiration to anybody who believes in the human power to endure towards happiness.
The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism
Naoki Higashida - 2005
Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.
Look Me in the Eye: My Life with Asperger's
John Elder Robison - 2007
It was no wonder he gravitated to machines, which could, at least, be counted on.After fleeing his parents and dropping out of high school, his savant-like ability to visualize electronic circuits landed him a gig with KISS, for whom he created their legendary fire-breathing guitars. Later, he drifted into a “real” job, as an engineer for a major toy company. But the higher Robison rose in the company, the more he had to pretend to be “normal” and do what he simply couldn’t: communicate. It wasn’t worth the paycheck.It was not until he was forty that an insightful therapist told him he had the form of autism called Asperger’s syndrome. That understanding transformed the way Robison saw himself—and the world.Look Me in the Eye is the moving, darkly funny story of growing up with Asperger’s at a time when the diagnosis simply didn’t exist. A born storyteller, Robison takes you inside the head of a boy whom teachers and other adults regarded as “defective,” who could not avail himself of KISS’s endless supply of groupies, and who still has a peculiar aversion to using people’s given names (he calls his wife “Unit Two”). He also provides a fascinating reverse angle on the younger brother he left at the mercy of their nutty parents—the boy who would later change his name to Augusten Burroughs and write the bestselling memoir Running with Scissors.Ultimately, this is the story of Robison’s journey from his world into ours, and his new life as a husband, father, and successful small business owner—repairing his beloved high-end automobiles. It’s a strange, sly, indelible account—sometimes alien, yet always deeply human.
Positive: A Memoir
Paige Rawl - 2014
It never prevented her from entering beauty pageants or playing soccer or making the honor role.On an unremarkable day in middle school, while attempting to console a friend, Paige disclosed her HIV-positive status—and within hours the bullying began. She was called "PAIDS," first in whispers, then out in the open. Her soccer coach joked that she was an asset because opposing team members would be too afraid to touch her. Her guidance counselor told her to stop all the “drama,” and her principal said she couldn’t protect her. One night, desperate for escape, Paige swallowed fifteen sleeping pills—one for each year of her life to date. That could have been the end of her story. Instead, it was only the beginning. The gripping first-person account of Paige’s life will pull in even the most reluctant readers of nonfiction, and her call to action to choose compassion over cruelty will stay with them long after they turn the last page.
One More Theory About Happiness: A Memoir
Paul Guest - 2010
He'd break them up and set fire to the rupture, creating showers of sparks. The day after he graduated from grade school, he borrowed a bicycle, lost control, and flipped it. Lying on the ground, unable to feel his body below his neck, what he thought was blood running from his nose was, in fact, spinal fluid.Guest would never again have the use of his arms or legs. Even so, he says he was lucky: "If I couldn't lift my arms I could breathe. I could feel... I no longer had to be, or even could be, who I once was. What I once was. I was broken. And new.One More Theory About Happiness is among the rarest of books: humbling, heartbreaking, and suffused with joy. Guest must learn to navigate the rest of his life in a wheelchair. An immobilizing halo is screwed into his skull. There are diapers and suctions; basic bodily functions are no longer private; the simplest daily tasks require help. Yet every agony is met with hope, each humiliation with dignity, moments of despair banished by an extraordinary capacity for gratitude. If you've never laughed and cried at the same time, Guest's book will change that. His language is pure poetry, and his simple, amazing grace redefines that world-weary word, "hero"."In these lyrical, searing pages, Guest manages to break our hearts and put them back together again." --Ann Hood, author of The Red Thread
The Best Little Girl in the World
Steven Levenkron - 1978
But the Francesca who was me is disappearing. The Dietrichs' good little girl is dropping away with every bit of fat. Kessa doesn't have to eat--eating is messy, not clean. I'll just move the food around on my plate, and they'll think I've eaten some. Then I'll go to my room and dance. I'll be thin and beautiful...and a ballerina!
You Don't Look Like Anyone I Know: A True Story of Family, Face Blindness, and Forgiveness
Heather Sellers - 2010
Heather Sellers is face-blind-that is, she has prosopagnosia, a rare neurological condition that prevents her from reliably recognizing people's faces. Growing up, unaware of the reason for her perpetual confusion and anxiety, she took what cues she could from speech, hairstyle, and gait. But she sometimes kissed a stranger, thinking he was her boyfriend, or failed to recognize even her own father and mother. She feared she must be crazy. Yet it was her mother who nailed windows shut and covered them with blankets, made her daughter walk on her knees to spare the carpeting, had her practice secret words to use in the likely event of abduction. Her father went on weeklong "fishing trips" (aka benders), took in drifters, wore panty hose and bras under his regular clothes. Heather clung to a barely coherent story of a "normal" childhood in order to survive the one she had. That fairy tale unraveled two decades later when Heather took the man she would marry home to meet her parents and began to discover the truth about her family and about herself. As she came at last to trust her own perceptions, she learned the gift of perspective: that embracing the past as it is allows us to let it go. And she illuminated a deeper truth-that even in the most flawed circumstances, love may be seen and felt. Watch a Video
Dancing at the Pity Party: A Dead Mom Graphic Memoir
Tyler Feder - 2020
She shares the important post-death firsts, such as celebrating holidays without her mom, the utter despair of cleaning out her mom's closet, ending old traditions and starting new ones, and the sting of having the "I've got to tell Mom about this" instinct and not being able to act on it. This memoir, bracingly candid and sweetly humorous, is for anyone struggling with loss who just wants someone to get it.
This Star Won't Go Out: The Life and Words of Esther Grace Earl
Esther Earl - 2014
Photographs and essays by family and friends will help to tell Esther’s story along with an introduction by award-winning author John Green who dedicated his #1 bestselling novel The Fault in Our Stars to her.
Until I Say Goodbye: A Book about Living
Susan Spencer-Wendel - 2012
She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."
The Sound of a Wild Snail Eating
Elisabeth Tova Bailey - 2010
While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal. Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.
Elena Vanishing
Elena Dunkle - 2015
Every day means renewed determination, so every day means fewer calories. This is the story of a girl whose armor against anxiety becomes artillery against herself as she battles on both sides of a lose-lose war in a struggle with anorexia. Told entirely from Elena's perspective over a five-year period and co-written with her mother, award-winning author Clare B. Dunkle, Elena's memoir is a fascinating and intimate look at a deadly disease, and a must read for anyone who knows someone suffering from an eating disorder.
My Lovely Wife in the Psych Ward
Mark Lukach - 2017
They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that her loved ones were not safe.Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. Pushed to the edge of the abyss, everything the couple had once taken for granted was upended.A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife in the Psych Ward is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach’s is an intensely personal odyssey through the harrowing years of his wife’s mental illness, anchored by an abiding devotion to family that will affirm readers’ faith in the power of love.
Tiny Titan - One Small Gift
Ann Yurcek - 2006
Becca surprised everyone with a rare genetic disorder called Noonan's syndrome. As Becca struggled to survive her family plunged into poverty. Their remarkable journey out of poverty is a story of it's own, but within the pages lie secrets much more important we all should know.Tiny Titan by Ann Yurcek launches a new kind of Mother’s Day story for all the countless mothers in America who dedicate their lives to exceptional children with special medical and mental health care needs. The story and the children are real. BOOK ONE - BECCA'S STORYIn 1989, the Yurceks sixth child, Becca was born with a rare genetic disorder, and while she struggled to survive, her family tumbled into poverty. This is the true and inspirational story of their journey out of poverty and the many miracles they received along the way. BOOK 2 - GIVING BACK In the spirit of giving back, they adopted and reunited five siblings separated in foster care. And for their new children they fought for resources in mental health and child welfare with the same tenacity they had fought for Becca in the medical world. Others' said their journey was impossible, but they proved them wrong.Winner Gold Mom's Choice - Best Adult Non-Fiction5 Star Dove AwardBooks & Authors - Best InspirationalTINY TITAN SAMPLE CHAPTERBy Ann Yurcek -9- Christmas I sunk into despair. The holiday was fast approaching and Christmas was the last thing on our minds with Becca critically ill in the PICU and everyone else sick too. There was no money for gifts, and there was no time to buy or make anything. I was sick, tired and depressed over the circumstances we found ourselves in. If the phone rang, I was afraid to answer it because it might carry the news that Becca was worsening or no longer here. The phone was a constant reminder of trouble. It rang with bill collectors waiting for money. It rang when medical personnel had more dreaded news or another crisis for Becca. My emotions rose and fell like tidal waves, up, up, up and down, down, down. I tried not to think; not thinking was how I coped. It was like the stairs I ran at the hospital, up and down, and then I’d stop and sit, empty and mindless. I could not think about my children going without gifts at Christmas, but our lives were impossibly out of control. We had fallen into a dark hole due to no fault of my innocent children. At any moment they were going to lose their new baby sister. They were caught in the tidal wave of catastrophic illness when they needed a Santa most to give them hope. How would I explain to my children that Santa forgot them?I was used to planning ahead and beginning in July bought two presents each month to cover birthdays and Christmas. Over the years my frugal plan had worked flawlessly. I squirreled away the hottest toys for Christmas gifts with early season purchases. While other families were school shopping I was making wishes come true. It was a challenge to make my kids birthdays and Christmas memorable. I love the holidays and I began to bargain shop for Marissa’s September birthday gift. I budgeted a little each month until Christmas, finding sale and clearance treasures, completing my shopping race under budget. In November we celebrated Jim, Nathan and Ian’s birthdays followed in December by Matt’s birthday, and then Kristy’s birthday in early January. The gifts I bought with Jim’s carpet points guaranteed the boys November birthday gifts. Matt at age three was easy; all I needed was something big. Big for my little kids were exciting and ten dollars went a long way. Other than that I had nothing.
Thin
Grace Bowman - 2006
Until one day, aged 18, she went on a diet. That didn’t stop. Then couldn’t stop. That trapped her in ‘a secret world of eating-related happiness and unhappiness’. And saw her weight swiftly drop to below six stone. A grippingly honest account of life with anorexia nervosa, Thin is Grace’s heartbreaking, shocking and, finally, inspirational story. A memoir that is in part insider’s exposé and in part survivor’s testimony, it explains the struggle for self-discovery, and chronicles the devastating battles waged for control over mind and body. Breaking secrets, Grace shatters the myths surrounding this widely misunderstood illness, helping those bound within the rules of anorexia to find a way out, and those on the outside to understand more.Thin also has resonance beyond the world of eating disorders. For in daring to tell the truth, Grace reveals her extraordinary story to be a common one, reflected in the shape of many of our lives. She draws on the universal themes of female self-image and self-determination, which have inspired such classics as The Bell Jar and A Room of One’s Own, to shatter the myths surrounding anorexia. And the powerful insights she brings to overcoming addiction make this an invaluable narrative for all those looking to find hope and renewal in the acceptance of change and growth.Thin is the most eloquent account of anorexia yet.