My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities


Yantra Bertelli - 2009
    Featuring works by so-called alternative parents who have attempted to move away from mainstream thought, this anthology carefully considers the implications of raising children with disabilities. From professional writers to novice storytellers, including original essays by Robert Rummel-Hudson, Ayun Halliday, and Kerry Cohen, this assortment of authentic, shared experiences from parents in the know is a partial antidote to the stories that misrepresent, ridicule, and objectify disabled children and their parents.

Thinking Person's Guide to Autism: Everything You Need to Know from Autistics, Parents, and Professionals


Jennifer Byde Myers - 2011
    Thinking Person's Guide to Autism (TPGA) is the resource we wish we'd had when autism first became part of our lives: a one-stop source for carefully curated, evidence-based information from autistics, autism parents, and autism professionals.

Louder Than Words: A Mother's Journey in Healing Autism


Jenny McCarthy - 2007
    She ran into her two-year-old son Evan's room and found him having a seizure. Doctor after doctor misdiagnosed Evan until after many harrowing, life-threatening episodes one good doctor discovered that Evan is autistic.With a foreword from Dr. David Feinberg, medical director of the Resnick Neuro-psychiatric Hospital at UCLA, and an introduction by Jerry J. Kartzinel, a top pediatric autism specialist, Louder Than Words follows Jenny as she discovered an intense combination of behavioral therapy, diet, and supplements that became the key to saving Evan from autism. Her story sheds much-needed light on autism through her own heartbreak, struggle, and ultimately hopeful example of how a parent can shape a child's life and happiness.

Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues


Lindsey Biel - 2009
    Sensory integration dysfunction, also known as sensory processing disorder, affects all kinds of children-from those with developmental delays, attention problems, or autism spectrum disorders, to those without any other issues. Coauthored by a pediatric occupational therapist and a parent of a child with sensory issues, this updated and expanded edition of Raising a Sensory Smart Child is comprehensive and more helpful than ever. Learn: *How the senses actually work and integrate with each other *How and where to get the very best professional help *"Sensory diet" activities that meet your child's needs--including new tips and ideas for kids, teens, adults, and families *Practical solutions for daily challenges-from brushing teeth to getting dressed to picky eating to family gatherings *Using "sensory smarts" to help children with developmental delays, learning, and attention problems *The special challenges of helping children with autism and sensory issues * Ways to advocate for your child at school and make schools "sensory smart" *How to empower your child and teen in the world *Complementary therapies, resources, and helpful web sites In all, the most comprehensive guide to sensory processing challenges is now more detailed and useful than ever. Loved and celebrated by parents, teachers, therapists, doctors and others, the new edition of Raising a Sensory Smart Child is a must-have volume for anyone who cares about a child with sensory issues. ***WINNER of the NAPPA GOLD AWARD and iPARENTING MEDIA AWARD***

Bad Animals: A Father's Accidental Education In Autism


Joel Yanofsky - 2011
    ""It's not just going to be about autism,"" he told his wife, Cynthia. ""It's going to be about parenthood and marriage, about hope and despair, and storytelling, too."" ""Marriage?"" Cynthia said. ""What about marriage?""A veteran book reviewer, Yanofsky has spent a lifetime immersed in literature (not to mention old movies and old jokes), which he calls shtick. This account of a year in the life of a family describes a father's struggle to enter his son's world, the world of autism, using the materials he knows best: self-help books, feel-good memoirs, literary classics from the Bible to Dr. Seuss, old movies, and, yes, shtick. Funny, wrenching, and unfailingly candid, Bad Animals is both an exploration of a baffling condition and a quirky love story told by a gifted writer.

Children with Emerald Eyes: Histories of Extraordinary Boys and Girls


Mira Rothenberg - 1960
    Winner of a Woman of the Year award from the New York City Chamber of Commerce and the National Organization for Mentally Ill Children, she eloquently recounts a lifetime of taking on seemingly hopeless cases and bringing these children, through painstaking therapy and love, back into the world. Unflinchingly honest, whether dealing with the raw pain of her patients' lives or with Rothenberg's own complex feelings for them, Children with Emerald Eyes explores the landscape of mental illness while never losing sight of the humanity within each patient.

Our House Is on Fire: Scenes of a Family and a Planet in Crisis


Malena Ernman - 2018
    They share their story of courage not because they want our accolades, but because they demand our company. Greta Thunberg has already inspired a global moment--this book is part of how we will win." --Naomi Klein, author of This Changes EverythingWhen climate activist Greta Thunberg was eleven, her parents Malena and Svante, and her little sister Beata, were facing a crisis in their own home. Greta had stopped eating and speaking, and her mother and father had reconfigured their lives to care for her. Desperate and searching for answers, her parents discovered what was at the heart of Greta’s distress: her imperiled future on a rapidly heating planet.   Steered by Greta’s determination to understand the truth and generate change, they began to see the deep connections between their own suffering and the planet’s. Written by a remarkable family and told through the voice of an iconoclastic mother, Our House Is on Fire is the story of how they fought their problems at home by taking global action. And it is the story of how Greta decided to go on strike from school, igniting a worldwide rebellion.

Raising Henry: A Memoir of Motherhood, Disability, and Discovery


Rachel Adams - 2013
    She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

All the Weight of Our Dreams: On Living Racialized Autism


Lydia X.Z. Brown - 2017
    The work here represents the lives, politics, and artistic expressions of Black, Brown, Latinx, Indigenous, Mixed-Race, and other racialized and people of color from many autistic communities, often speaking out sharply on issues of marginality, intersectionality, and liberation.

Spectrum Women: Walking to the Beat of Autism


Barb CookJeanette Purkis - 2018
    Michelle Garnett's comments validate and expand the experiences described from a clinician's perspective, and provide extensive recommendations.Autistic advocates including Liane Holliday Willey, Anita Lesko, Jeanette Purkis, Artemisia and Samantha Craft offer their personal guidance on significant issues that particularly affect women, as well as those that are more general to autism. Contributors cover issues including growing up, identity, diversity, parenting, independence and self-care amongst many others. With great contributions from exceptional women, this is a truly well-rounded collection of knowledge and sage advice for any woman with autism.

What My Mother and I Don't Talk About: Fifteen Writers Break the Silence


Michele Filgate - 2019
    It took her more than a decade to realize what she was actually trying to write: how this affected her relationship with her mother. When it was finally published, the essay went viral, shared on social media by Anne Lamott, Rebecca Solnit, and many others. The outpouring of responses gave Filgate an idea, and the resulting anthology offers a candid look at our relationships with our mothers. While some of the writers in this book are estranged from their mothers, others are extremely close. Leslie Jamison writes about trying to discover who her seemingly perfect mother was before ever becoming a mom. In Cathi Hanauer’s hilarious piece, she finally gets a chance to have a conversation with her mother that isn’t interrupted by her domineering (but lovable) father. André Aciman writes about what it was like to have a deaf mother. Melissa Febos uses mythology as a lens to look at her close-knit relationship with her psychotherapist mother. And Julianna Baggott talks about having a mom who tells her everything. As Filgate writes, “Our mothers are our first homes, and that’s why we’re always trying to return to them.” There’s relief in breaking the silence. Acknowledging what we couldn’t say for so long is one way to heal our relationships with others and, perhaps most important, with ourselves. Contributors include Cathi Hanauer, Melissa Febos, Alexander Chee, Dylan Landis, Bernice L. McFadden, Julianna Baggott, Lynn Steger Strong, Kiese Laymon, Carmen Maria Machado, André Aciman, Sari Botton, Nayomi Munaweera, Brandon Taylor, and Leslie Jamison.

M in the Middle: Secret Crushes, Mega-Colossal Anxiety and the People’s Republic of Autism


Limpsfield Grange School - 2016
    A future with lots of sparkly cards celebrating all these big life events. I was on course and now I'm not. Life after diagnosis isn't easy for M. Back in her wobbly world, there are lots of changes and ups and downs to get used to, not just for M, but for her friends and family too. Faced with an exciting crush, a pushy friend and an unhelpful Headteacher, how long until the beast of anxiety pounces again?Written by Vicky Martin and the students of Limpsfield Grange, a school for girls with Autism Spectrum Disorder and communication and interaction difficulties, M's story draws on the real life experiences of teens with autism.

Six Years With Al Qaeda


Stephen McGown - 2020
    Life as he knew it changed in that instant. With nothing to bargain with and everything to lose, for the next six years Steve became reluctantly engaged in what he refers to as, “the greatest chess game of my life”.Thousands of kilometres away in Johannesburg, the shock of his kidnapping hit his wife Cath and the rest of the McGown family. Working every option they could find – from established diplomatic protocols to the murky back channels of the kidnap game – they set to work on trying to free Steve.To this day he holds the unenviable record of Al Qaeda’s longest held prisoner.Six Years With Al Qaeda is not just an incredible story of mental strength, physical endurance and the resilience of the human spirit, but also a unique, nuanced perspective on one of the world’s most feared terrorist organisations. Not only did Steve survive his ordeal, but in many respects he came out of the desert both a changed man and a stronger, more positive human.

It Sucked and Then I Cried: How I Had a Baby, a Breakdown, and a Much Needed Margarita


Heather B. Armstrong - 2009
    The eighteen months that followed were filled with anxiety, constipation, nacho cheese Doritos, and an unconditional love that threatened to make her heart explode. Still, as baby Leta grew and her husband, Jon, returned to work, Heather faced lonely days, sleepless nights, and endless screaming that sometimes made her wish she'd never become a mother. Just as she was poised to throw another gallon of milk at her husband's head, she committed herself for a short stay in a mental hospital -- the best decision she ever made for her family.To the dedicated millions who can't get enough of Heather's unforgettably unique style and hilarious stories on her hugely popular blog, there's little she won't share about her daily life as a recovering Mormon, liberal daughter of Republicans, wife of a charming geek, lover of television that exceeds at being really awful, and stay-at-home mom to five-year-old Leta and two willful dogs.In It Sucked and Then I Cried, Heather tells, with trademark wit, the heartfelt, unrelentingly honest story of her battle with postpartum depression and all the other minor details of pregnancy and motherhood that no one cares to mention. Like how boring it can be to care for someone whose primary means of communication is through her bowels. And how long it can possibly take to reconvene the procedure that got you into this whole parenthood mess in the first place. And how you sometimes think you can't possibly go five more minutes without breathing in that utterly irresistible and totally redeemable fresh baby smell.It Sucked and Then I Cried is a brave cautionary tale about crossing over that invisible line to the other side (the parenting side), where everything changes and it only gets worse. But most of all, it's a celebration of a love so big it can break your heart into a million pieces.

The Man Who Couldn't Stop


David Adam - 2014
    In this captivating fusion of science, history and personal memoir, writer David Adam explores the weird thoughts that exist within every mind, and how they drive millions of us towards obsessions and compulsions.David has suffered from OCD for twenty years, and The Man Who Couldn’t Stop is his unflinchingly honest attempt to understand the condition and his experiences. What might lead an Ethiopian schoolgirl to eat a wall of her house, piece by piece; or a pair of brothers to die beneath an avalanche of household junk that they had compulsively hoarded? At what point does a harmless idea, a snowflake in a clear summer sky, become a blinding blizzard of unwanted thoughts? Drawing on the latest research on the brain, as well as historical accounts of patients and their treatments, this is a book that will challenge the way you think about what is normal, and what is mental illness.Told with fierce clarity, humour and urgent lyricism, this extraordinary book is both the haunting story of a personal nightmare, and a fascinating doorway into the darkest corners of our minds.