Seeing Ezra: A Mother's Story of Autism, Unconditional Love, and the Meaning of Normal


Kerry Cohen - 2011
    As he becomes a toddler and they navigate the often rigid and prescriptive world of therapy, Cohen is unsettled by the evaluations they undergo: At home, Ezra is playfully expressive, sharing profound, touching moments of connection and intimacy with his mother and other family members, but in therapy he is pathologized, prodded to behave in ways that undermine his unique expression of autism.It soon becomes clear that more is at stake than just Ezra’s well-being; Cohen and her marriage are suffering as well. Ezra’s differentness, and the strain of pursuing varied therapies, takes a toll on the family—Cohen’s husband grows depressed and she pursues an affair—all as she tries to help others recognize and embrace Ezra’s uniqueness rather than force him to behave outside his comfort level. It isn’t until they abandon the expected, prescriptive notions about love, marriage, and individuality that they are able to come back together as two parents who fiercely love their little boy.Powerful and eye-opening, Seeing Ezra is an inspirational chronicle of a mother’s struggle to protect her son from a system that seeks to compartmentalize and “fix” him, and of her journey toward accepting and valuing him for who he is—just as he is.

The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband


David Finch - 2012
    Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.

The Lie: A Memoir of Two Marriages, Catfishing & Coming Out


William Dameron - 2019
    On social networks and dating sites, his image and identity—a forty-year-old straight white male—had been used to hook countless women into believing in lies of love and romance. Was it all an ironic cosmic joke? Almost a decade prior, William himself had been living a lie that had lasted for more than twenty years. His secret? He was a gay man, a fact he hid from his wife and two daughters for almost as long as he had hidden it from himself.In this emotional and unflinchingly honest memoir of coming out of the closet late in life, owning up to the past, and facing the future, William Dameron confronts steroid addiction, the shame and homophobia of his childhood, the sledgehammer of secrets that slowly tore his marriage apart, and his love for a gay father of three that would once again challenge the boundaries of trust. At the true heart of The Lie is a universal story about turning self-doubt into self-acceptance and about pain, anger, and the long journey of both seeking and giving forgiveness.

Bloom: Finding Beauty in the Unexpected--A Memoir


Kelle Hampton - 2012
    The author of the popular blog Enjoying the Small Things—named The Bump’s Best Special Needs Blog and The Blog You’ve Learned the Most From in the 2010 BlogLuxe Awards—Kelle Hampton interweaves lyrical prose and stunning four-color photography as she recounts the unforgettable story of the first year in the life of her daughter Nella, who has Down syndrome. Poignant, eye-opening, and heart-soaring, Hampton’s Bloom is ultimately about embracing life and really living it.

Louder Than Words: A Mother's Journey in Healing Autism


Jenny McCarthy - 2007
    She ran into her two-year-old son Evan's room and found him having a seizure. Doctor after doctor misdiagnosed Evan until after many harrowing, life-threatening episodes one good doctor discovered that Evan is autistic.With a foreword from Dr. David Feinberg, medical director of the Resnick Neuro-psychiatric Hospital at UCLA, and an introduction by Jerry J. Kartzinel, a top pediatric autism specialist, Louder Than Words follows Jenny as she discovered an intense combination of behavioral therapy, diet, and supplements that became the key to saving Evan from autism. Her story sheds much-needed light on autism through her own heartbreak, struggle, and ultimately hopeful example of how a parent can shape a child's life and happiness.

Hello I Want to Die Please Fix Me: Depression in the First Person


Anna Mehler Paperny - 2019
    Illuminating, completely engaging—it's essential reading for all since we all know someone whose life, family or friends are touched by the disease that directly afflicts a fifth of Canadians. In her early twenties, while outwardly thriving in her dream job and enjoying warm familial support and a strong social network, award-winning journalist Anna Mehler Paperny found herself trapped by feelings of failure and despair. Her first suicide attempt—ingesting a deadly mix of sleeping pills and antifreeze—landed her in the ICU, followed by weeks of enforced detention that ran the gamut of horrifying, boring, hilarious, and absurd. This was Anna's entry into the labyrinthine psychiatric care system responsible for providing care to millions of Canadians.As she struggled to survive the psych ward and as an outpatient—enduring the "survivor's" shame of facing concerned family, friends, and co-workers; finding (or not) the right therapist, the right meds; staying healthy, insured, and employed—Anna could not help but turn her demanding journalist's eye on her condition and on the system in which she found herself. She set off on a quest to "know her enemy," interviewing leading practitioners in the field across Canada and the US—from psychiatrists to neurological experts, brain-mapping pioneers to heroic family practitioners, and others dabbling in novel hypotheses. She reveals in courageously frank detail her own experiences with the pharmacological pitfalls and side effects of long-term treatment, and offers moving case studies of conversations with others, opening wide a window into how we treat (and fail to treat) the disease that accounts for more years swallowed up by disability than any other in the world.

Twirling Naked in the Streets and No One Noticed: Growing Up With Undiagnosed Autism


Jeannie Davide-Rivera - 2013
    Twirling Naked in the Streets will take you on a journey into the mind of a child on the autism spectrum; a child who grows into an adolescent, an adult, and becomes a wife, mother, student, and writer with autism. This is a gripping memoir of a quirky, weird, but gifted child who grows up never quite finding her niche. It took 38 years to discover that all the issues, problems, and weirdness she experienced were because she had Asperger's Syndrome (AS), a form of high-functioning autism.The tale begins at age three and takes us all the way through her diagnosis. Along the way she explains autism in a way that will have fellow "Aspies" crying tears of joy at being understood, and "neuro-typical" people really starting to grasp the challenges that autistic people face every moment of every day.

The Horse Boy: A Father's Quest to Heal His Son


Rupert Isaacson - 2009
    But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected? THE HORSE BOY is the dramatic and heartwarming story of that impossible adventure. In Mongolia, the family found undreamed of landscapes and people, unbearable setbacks, and advances beyond their wildest dreams. This is a deeply moving, truly one-of-a-kind story--of a family willing to go to the ends of the earth to help their son, and of a boy learning to connect with the world for the first time.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

At Home in the World: Reflections on Belonging While Wandering the Globe


Tsh Oxenreider - 2017
    Americans Tsh and Kyle met and married in Kosovo. They lived as expats for most of a decade. They’ve been back in the States—now with three kids under ten—for four years, and while home is nice, they are filled with wanderlust and long to answer the call, so a trip—a nine-months-long trip—is planned.At Home in the World follows their journey from China to New Zealand, Ethiopia to England, and more. And all the while Tsh grapples with the concept of home, as she learns what it means to be lost—yet at home—in the world.

Nobody Nowhere: The Extraordinary Autobiography of an Autistic Girl


Donna Williams - 1992
    Although labeled, at times, deaf, retarded, or disturbed, Donna Williams is autistic--afflicted by a baffling condition of heightened sensory perception that imprisons the sufferer in a private, almost hallucinatory universe of patterns and colors. Nobody Nowhere is Donna's story in her own words--a haunting, courageous memoir of the titanic struggles she has endured in her quest to merge "my world" with "the world."

Love That Boy: What Two Presidents, Eight Road Trips, and My Son Taught Me About a Parent's Expectations


Ron Fournier - 2016
    He’s practicing his handshake and hello: “It’s a pleasure to meet you, Mr. President. It’s a pleasure to meet you, Mr. President. It’s a pleasure to meet you, Mr. President.” When the couple in front of us steps forward for their picture, my teenager with sky-blue eyes and a soft heart looks up at me and says, “I hope I don’t let you down, Dad.” What kind of father raises a son to worry about embarrassing his dad? I want to tell Tyler not to worry, that he’d never let me down. That there’s nothing wrong with being different. That I actually am proud of what makes him special. But we are next in line to meet the president of the United States in a room filled with fellow strivers, and all I can think about is the real possibility that Tyler might embarrass himself. Or, God forbid, me.LOVE THAT BOY is a uniquely personal story about the causes and costs of outsized parental expectations. What we want for our children—popularity, normalcy, achievement, genius—and what they truly need—grit, empathy, character—are explored by National Journal’s Ron Fournier, who weaves his extraordinary journey to acceptance around the latest research on childhood development and stories of other loving-but-struggling parents.

Autism in Heels: The Untold Story of a Female Life on the Spectrum


Jennifer O'Toole - 2018
    And more often than we realize, that face is wearing lipstick. Autism in Heels , an intimate memoir, reveals the woman inside one of autism's most prominent figures, Jennifer O'Toole. At the age of thirty-five, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, Jennifer exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but--more importantly--as a thoroughly modern woman.Beyond being a memoir, Autism in Heels is a love letter to all women. It's a conversation starter. A game changer. And a firsthand account of what it is to walk in Jennifer's shoes (especially those iconic red stilettos).Whether it's bad perms or body image, sexuality or self-esteem, Jennifer's is as much a human journey as one on the spectrum. Because autism "looks a bit different in pink," most girls and women who fit the profile are not identified, facing years of avoidable anxiety, eating disorders, volatile relationships, self-harm, and stunted independence. Jennifer has been there, too. Autism in Heels takes that message to the mainstream.From her own struggles and self-discovery, she has built an empire of empowerment, inspiring women the world over to realize they aren't mistakes. They are misunderstood miracles.

My Lovely Wife in the Psych Ward


Mark Lukach - 2017
    They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that her loved ones were not safe.Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. Pushed to the edge of the abyss, everything the couple had once taken for granted was upended.A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife in the Psych Ward is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach’s is an intensely personal odyssey through the harrowing years of his wife’s mental illness, anchored by an abiding devotion to family that will affirm readers’ faith in the power of love.

I Am Intelligent: From Heartbreak to Healing--A Mother and Daughter's Journey Through Autism


Peyton Goddard - 2012
    Robbed of speech and bodily control, and despite her loving parents' best efforts to help her, Peyton Goddard suffered neglect and ongoing abuse by many who dismissed her as autistic and severely mentally retarded. Peyton's violent outbursts and bizarre, self-destructive behavior left her parents terrified at the prospect of having to institutionalize their daughter. No one could have imagined that she possessed a brilliant mind in her uncooperative body until her first opportunity to communicate electronically at age 22 when she typed "I AM INTLGENT," a breakthrough reminiscent of "The Miracle Worker." After two decades, mother and daughter are finally able to communicate, and Peyton goes on to graduate valedictorian from college. Her story challenges assumptions that any child, regardless of competence, can be less of a human being. Today Peyton is following through on her vow to be an advocate on behalf of other devalued people. Her inspirational life helps readers transcend stereotypes and join her in the radical notion that, as she says, "All people are vastly valuable. Treasure all because great is each."