Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

    Kopits takes me into an examining room and leans against the stainless steel bench and asks me what I'm writing about this time. When I tell him what I saw in Australia, he immediately starts to nod. "This is a great subject," he says. Then he stops, as if caught by the subject himself.I wait.After a moment, he continues. "What you are looking into is the abyss. This takes you to the very heart of a human being, to the deepest aspect of the soul.He gives me one of his solemn looks. "Because the thing is, you have to confront yourself."(from In the Little World) In 1997, almost by accident, John H. Richardson found himself sharing a hotel with more than a thousand dwarfs. Over the course of a single week, he witnessed love and anger, fear and bravery, arrogance and humility, even a bizarre romantic deception -- the entire spectrum of human emotion in one concentrated dose. But at the end of the week, he discovered that leaving the "Little World" wasn't as simple as checking out of a hotel. In fact, his journey would last a full two years.At a time when bigger often seems synonymous with better, and physical beauty serves as currency, the world of dwarfs usually passes beneath our notice. Now, in this groundbreaking work, awardwinning author John H. Richardson brings the Little World into focus.He introduces us to characters like a saintly but obsessed doctor and a mother who sacrifices her family to save her dwarf daughter. He follows two dwarf lovers from first meeting through the struggle to overcome their fear and shame and find the confidence to love each other. He becomes personally involved in a tangled and often confrontational friendship with a female dwarf. Through these stories and musings ranging from classic theories of beauty to the history of the disability movement to postmodern theories of difference, Richardson presents a world that is a skewed reflection of our own -- and offers us a glimpse into the essential human condition.

    

    Real stories about the patients, nurses, consulting physicians, and daily life of a busy Emergency Department. Get a glimpse inside the inner workings of an Emergency Department and the staff that works there, caring for patients and their families. From a toddler who can cuss a blue streak, a dead mouse brought into the Emergency Department, to critical resuscitations, these are stories that you will never forget.

    “Graham’s story is a tribute to the human spirit and the invisible bonds which connect us to each other” (Ken Burns).

    In less than three days, she was paralyzed and could no longer breathe on her own. She was diagnosed with Guillain-Barre syndrome, a rare autoimmune disorder that occurs when the body's immune system mistakenly attacks part of the nervous system. She was admitted to the hospital, where she spent two and a half months in the intensive care unit on a ventilator. She couldn't move, she couldn't speak, and worst of all, she couldn't hold her newborn daughter. She felt like her life was over as she couldn't be the mother that she had always wanted to be. As the weeks went on, the paralysis began to wear off. And once she was able to breathe on her own again, she started on her road to recovery. With intense physiotherapy, she learned how to use her muscles again and eventually how to walk again. She was determined, and worked hard, and after a long four months in the hospital, she was able to reach her goal of getting back to her husband and daughter. Holly Gerlach shares her inspirational story, where she faced the most terrifying and challenging experiences of her life. The book follows her entire journey, starting with the beginning symptoms, through the many months she spent in the hospital. The story continues on well past her release from the hospital, where she fought to regain her independence and eventually got her life back.

    She knew instantly that her decision to work in general practice was the ‘biggest and worst mistake of her life’. Fortunately, however, this did not deter her from continuing in general practice, and this fascinating memoir (spanning half a century) is testament to her resilience and professionalism, as well as her pragmatic and charismatic personality. She shares real stories about real people in this intriguing book. Some stories are truly heart-breaking and will have you reaching for the tissues (such as the times when she has lost patients, and encountered and supported abused children and rape victims). But it isn’t all serious. There are lots of light-hearted and heart-warming moments too, such as the stories about Jessie-dog – her bodyguard when she made home visits, and the time when she helped a large (and desperately in need) family to get rehoused, and her time as a country GP. She also recalls with honesty and candidness, the prejudice and unimaginable pressure she had to contend with, as a young female GP in the 1960s. As well as a plethora of fascinating stories, experiences and case studies, this book also gives us, as 21st Century readers, a glimpse into the rapid changes in general practice and the NHS in general. Whether you’re in general practice, or you’re a medical professional, or you have a penchant for all kinds of autobiographies/memoirs, you will find this a thought-provoking and captivating book that’s impossible to put down. Take a peek at the ‘Look Inside’ feature now and be prepared to be instantly intrigued.

    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

    At the age of 29, Diana Hill fell under a London train. In 7 seconds the tall, glamorous businesswoman went from busy woman of the world with everything to live for to double-leg amputee, her life in ruins. Then it got worse. A few days after her accident, as she lay in hospital, traumatised and heavily sedated, she learnt via a newspaper article that the railway’s Transport Police were to interview “The Fall Girl”, as the Press had labelled her, with a view to prosecution. She had boarded a moving train, they said, and trespassed onto their railway line. Her fight for justice took 5 years and was, she declares with no hesitation, a more harrowing experience than having both of her legs ‘stolen’ from her. As any young, single woman would be, Diana was shocked to the core by the sudden, catastrophic change in her body image. What man would ever love her now? The issues surrounding sexuality and disability are explored here with stark honesty as she recalls her complicated love life, the High Court dramas, and the rawness of her pain amidst a turmoil of emotion, all told with tremendous humour, charm and heart. For Diana loves to tell stories. Especially true ones. A brutally honest, heartwarming memoir that shocks and delights in equal measure – when you're not crying for her you're laughing with her: "A computer is a thing that can be disabled, not a person." Diana Morgan-Hill

    Throughout her tumultuous childhood, Anna found for a life of normalcy and despite the death of her older sister, France—who succumbed to the same disease—Anna pursued her dream to live a long, productive life with courage, determination and hope.

    What she and her family got was an introduction to what many think is the country’s next great health crisis.

    You’re unlikely to forget the experiences or regret the sharing.

    Just as every person has a unique personality, every person has a unique body, and every body tells its own story.   In Body Talk, thirty-seven writers, models, actors, musicians, and artists share essays, lists, comics, and illustrations—about everything from size and shape to scoliosis, from eating disorders to cancer, from sexuality and gender identity to the use of makeup as armor. Together, they contribute a broad variety of perspectives on what it’s like to live in their particular bodies—and how their bodies have helped to inform who they are and how they move through the world.   Come on in, turn the pages, and join the celebration of our diverse, miraculous, beautiful bodies!

    People need cheering up. I have the answer. ‘Pills, Thrills and Methadone Spills: Adventures of a Community Pharmacist’ is a collection of the best blogs, tweets and anecdotes about the wonderful world of pharmacy.“If the shutter is three quarters down, then we are shut and not just vertically challenged”...“Gave me huge insight into the ‘real’ world of community pharmacy – I didn’t realise just how much pharmacists deal with on a day to day basis, so for me this was very informative, but in a reallyclever, and massively funny way!” Lucy Pitt, Marketing Manager, The Pharmacy Show“As well as being brilliantly funny, this book is a refreshingly honest view of the world of pharmacy. From student pharmacists to the fully-qualified, every chapter provides a story that the reader can relate to and enjoy.” Georgia Salter, Pharmacy Student“A well observed reflection of life in pharmacy with very funny reflections” Catherine Duggan, Royal Pharmaceutical Society"It is always fun to be reminded that pharmacists' perils and fun at the workplace are similar irrespective of which country we practise in!" Selina Hui-Hoong Wee , Pharmacist, Malaysia“A great entertaining and amusing read" Mike Holden, Chief Executive, National Pharmacy AsociationThanks to Laura Martins for her initial book cover design!

    Welcome to laughing until it hurts while covered in bodily fluids. Welcome to simple math at very high stakes. Welcome to an incredibly inappropriate sense of humor. Welcome to serving people on the most stressful days of their lives. Welcome to putting your hands in places you never imagined they'd be. Welcome to your front row seat to the ballad of life and death. That's not the welcome that this nurse was looking for, but that's the one he got. Irreverent and audacious, this brutally honest memoir covers what it’s like to come of age in an American Hospital. Welcome to a rollicking peak behind the curtain to what medical providers, and the health care system, are truly like.