Book picks similar to
Beyond My Control: One Man's Struggle with Epilepsy, Seizure Surgery & Beyond by Stuart Ross McCallum
non-fiction
memoir
epilepsy
medicine
The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband
David Finch - 2012
Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.
If You Feel Too Much: Thoughts on Things Found and Lost and Hoped For
Jamie Tworkowski - 2015
The piece was so hauntingly beautiful that it quickly went viral, giving birth to a non-profit organization of the same name. Now, To Write Love on Her Arms (TWLOHA) is an internationally recognized leader in suicide prevention and a source of hope, encouragement, and support for people worldwide.If You Feel Too Much is a celebration of hope, wonder, and what it means to be human. From personal stories of struggling on days most people celebrate to words of strength and encouragement in moments of loss, the essays in this book invite readers to believe that it’s okay to admit to pain and okay to ask for help. If You Feel Too Much is an important book from one of this generation’s most important voices.
The Spark: A Mother's Story of Nurturing Genius
Kristine Barnett - 2013
At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.
My Pet Virus: The True Story of a Rebel Without a Cure
Shawn Decker - 2006
"I was born in the month of July, and my horoscope sign is a disease (Cancer). The symbol for Cancer? A crab (the sexually transmitted critter). Not only that, my parents named me Shawn Timothy Decker, which makes my initials S.T.D. Shawn Decker isn't quite the all-American boy. Sure, he gets caught shoplifting copies of Penthouse, is crazy about pro wrestling, especially "The Nature Boy" Ric Flair, and never has a problem getting dates. But he's also a hemophiliac who discovers, at age eleven, that he has contracted HIV from tainted blood products. Instead of becoming self-pitying and dying (as first predicted), Shawn develops a twisted sense of humor, meets Depeche Mode through the Make-A-Wish Foundation, and writes on blogs and in Poz magazine about what it's like being hetero and HIV-positive in rural Virginia. He also turns to gay men for advice on dating women and, almost twenty years after getting HIV, marries Gwenn Barringer, who is HIV-negative and a former competitor for the title of Miss Virginia. Together Shawn and Gwenn travel the country, speaking to high school and college kids about how to live and love with HIV (and how to avoid getting it).
The Collected Schizophrenias: Essays
Esmé Weijun Wang - 2019
Schizophrenia is not a single unifying diagnosis, and Esme Weijun Wang writes not just to her fellow members of the "collected schizophrenias" but to those who wish to understand it as well. Opening with the journey toward her diagnosis of schizoaffective disorder, Wang discusses the medical community's own disagreement about labels and procedures for diagnosing those with mental illness, and then follows an arc that examines the manifestations of schizophrenia in her life. In essays that range from using fashion to present as high-functioning to the depths of a rare form of psychosis, and from the failures of the higher education system and the dangers of institutionalisation to the complexity of compounding factors such as PTSD and Lyme disease, Wang's analytical eye, honed as a former lab researcher at Stanford, allows her to balance research with personal narrative. An essay collection of undeniable power, The Collected Schizophrenias dispels misconceptions and provides insight into a condition long misunderstood.
Home is Burning
Dan Marshall - 2015
First diagnosed when he was only ten years old, she was the model of resilience throughout his childhood, fighting her disease with tenacity and a mouth foul enough to make a sailor blush. But just as she faces a relapse, her husband —a successful businessman and devoted father—is diagnosed with ALS. He is told that in a few months' time, he be unable to walk, eat, or breathe on his own. Dan, a recent college graduate living the good life in Los Angeles, has no choice but to return home to help. Reinstalled in his parents' basement (in one of the only non-Mormon homes in a Salt Lake City subdivision) Dan is reunited with his siblings. His older sister Tiffany is resentful, having stayed closer to home to bear the brunt of their mother's illness. Younger brother Greg comes to lend a hand, giving up a journalism career and evenings cruising Chicago gay bars. Younger sister Michelle is a sullen teenager experimenting with drinking and flirting with her 35-year-old soccer coach. And baby sister Chelsea—the oddest duck in a family of misfits—can only think about dance. Together they form Team Terminal, going to battle against their parents' illnesses and cracking plenty of jokes along the way. As Dan steps into his role as caregiver, wheelchair wrangler, and sibling referee, he watches pieces of his previous life slip away, and comes to realize that you don't get to choose when it's time to grow up.
The Art of Waiting: On Fertility, Medicine, and Motherhood
Belle Boggs - 2016
She searches the apparently fertile world around her--the emergence of thirteen-year cicadas, the birth of eaglets near her rural home, and an unusual gorilla pregnancy at a local zoo--for signs that she is not alone. Boggs also explores other aspects of fertility and infertility: the way longing for a child plays out in the classic Coen brothers film Raising Arizona; the depiction of childlessness in literature, from Macbeth to Who's Afraid of Virginia Woolf?; the financial and legal complications that accompany alternative means of family making; the private and public expressions of iconic writers grappling with motherhood and fertility. She reports, with great empathy, complex stories of couples who adopted domestically and from overseas, LGBT couples considering assisted reproduction and surrogacy, and women and men reflecting on childless or child-free lives.In The Art of Waiting, Boggs deftly distills her time of waiting into an expansive contemplation of fertility, choice, and the many possible roads to making a life and making a family.
Four Meals for Fourpence
Grace Foakes - 2011
With a child’s uncluttered eye, she describes the small details—shopping in the market, men waiting for work at the dock gates, the rituals of washday, and the sights, sounds, and smells of the old East End of London. She also describes the fear—of illness, of unemployment, of the workhouse—that hung over her family and thousands like them, and her determination that her own children would never know the kind of poverty she had experienced.
Confessions of an American Doctor: A true story of greed, ego and loss of ethics
Max Kepler - 2017
At the time of my arrest, I was a thirty-seven year old Harvard graduate with medical and post-doctoral degrees. I attended one of the finest residency and fellowship training programs in the world at the University of California, San Francisco. I played two sports in college, earned awards at every level of education and training, had wonderful friends and a beautiful three-year-old daughter. Having grown up the son of a restaurant manager and a housewife, I had transcended the humble beginnings of a small Midwestern town to become the quintessential American Dream.Or so I thought. But with my arrest on felony importation charges, everything I had worked so hard for was swept away and the entire trajectory of my life was indelibly altered. I would embark on a three year battle not only for my medical license, but also for my freedom. This journey would lead to intense personal introspection, and in that process, I would discover with ugliness, there was also beauty, and with punishment, mercy.There are many reasons I have written this manuscript, with one of the most important being that I hoped my story would resonate with others who have gone through difficult circumstances as a consequence of a dark side of their personality. With this book, I hope to inspire others to accept and embrace the good and bad, while continually striving for improved self-understanding and acceptance.I have changed names primarily for legal purposes, but the facts are unchanged. Although the events described in the book occurred more than ten years ago, I think about them nearly every day. The shame and humiliation are ever-present. Any simple Google search of my name reveals the truth, and that truth has affected me over and over, despite the years, as it probably should. As the judge told me that day in a federal courtroom, "You have betrayed the public's trust." This is my confessional.
The Necessary Aptitude: A Memoir
Pam Ayres - 2011
Yet they lived by the green in the village of Stanford in the Vale, where everything you needed was within walking distance and the sound of motorcars was rarely heard. Then reaching her teens, Pam realised how few opportunities she had. At fifteen she started working for the civil service. Pam knew she had to reach out for more, and sought it first in the WRAF. But it was some time before she discovered the unique talent that would make her one of Britain's best-loved comics. Containing Pam's much-loved combination of humour and poignancy, The Necessary Aptitude is a beautifully written memoir of growing up in the country in post-war Berkshire.
The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After
Julie Yip-Williams - 2019
What began as the chronicle of an imminent and early death became something much more--a powerful exhortation to the living.That Julie Yip-Williams survived infancy was a miracle. Born blind in Vietnam, she narrowly escaped euthanasia at the hands of her grandmother, only to flee with her family the political upheaval of her country in the late 1970s. Loaded into a rickety boat with three hundred other refugees, Julie made it to Hong Kong and, ultimately, America, where a surgeon at UCLA gave her partial sight. She would go on to become a Harvard-educated lawyer, with a husband, a family, and a life she had once assumed would be impossible. Then, at age thirty-seven, with two little girls at home, Julie was diagnosed with terminal metastatic colon cancer, and a different journey began.The Unwinding of the Miracle is the story of a vigorous life refracted through the prism of imminent death. When she was first diagnosed, Julie Yip-Williams sought clarity and guidance through the experience and, finding none, began to write her way through it--a chronicle that grew beyond her imagining. Motherhood, marriage, the immigrant experience, ambition, love, wanderlust, tennis, fortune-tellers, grief, reincarnation, jealousy, comfort, pain, the marvel of the body in full rebellion--this book is as sprawling and majestic as the life it records. It is inspiring and instructive, delightful and shattering. It is a book of indelible moments, seared deep--an incomparable guide to living vividly by facing hard truths consciously.With humor, bracing honesty, and the cleansing power of well-deployed anger, Julie Yip-Williams set the stage for her lasting legacy and one final miracle: the story of her life.
Smoke Gets in Your Eyes & Other Lessons from the Crematory
Caitlin Doughty - 2014
Thrown into a profession of gallows humor and vivid characters (both living and very dead), Caitlin learned to navigate the secretive culture of those who care for the deceased.Smoke Gets in Your Eyes tells an unusual coming-of-age story full of bizarre encounters and unforgettable scenes. Caring for dead bodies of every color, shape, and affliction, Caitlin soon becomes an intrepid explorer in the world of the dead. She describes how she swept ashes from the machines (and sometimes onto her clothes) and reveals the strange history of cremation and undertaking, marveling at bizarre and wonderful funeral practices from different cultures.Her eye-opening, candid, and often hilarious story is like going on a journey with your bravest friend to the cemetery at midnight. She demystifies death, leading us behind the black curtain of her unique profession. And she answers questions you didn’t know you had: Can you catch a disease from a corpse? How many dead bodies can you fit in a Dodge van? What exactly does a flaming skull look like?Honest and heartfelt, self-deprecating and ironic, Caitlin's engaging style makes this otherwise taboo topic both approachable and engrossing. Now a licensed mortician with an alternative funeral practice, Caitlin argues that our fear of dying warps our culture and society, and she calls for better ways of dealing with death (and our dead).
Joel
Joel Sonnenberg - 2004
This is Joel's own extraordinary account that many have been waiting for. It is the story of how a two-year-old boy has grown up to be a young man after a horrific tragedy changed his life forever. It reveals the faith, courage, and determination needed to make life one of wholeness and purpose. Despite overwhelming odds, Joel survived an explosive collision with an 18-wheeler. Escaping the flames before they claimed his life, Joel's body was transformed. He was burned on over 85 percent of his body and lost his eyelids, fingers, toes, and hair. Despite all that was taken from him, this book chronicles the astounding life and thoughts of a young man whose faith restores him into someone who has much to give. Joel considers his disability to be a special gift from God. When reading his story, you will be inspired by his love for God and his can-do attitude.
Admissions: Life as a Brain Surgeon
Henry Marsh - 2017
There have been exhilarating highs and devastating lows, but his love for the practice of neurosurgery has never wavered. Following the publication of his celebrated New York Times bestseller Do No Harm, Marsh retired from his full-time job in England to work pro bono in Ukraine and Nepal. In Admissions, he describes the difficulties of working in these troubled, impoverished countries and the further insights it has given him into the practice of medicine. Marsh also faces up to the burden of responsibility that can come with trying to reduce human suffering. Unearthing memories of his early days as a medical student and the experiences that shaped him as a young surgeon, he explores the difficulties of a profession that deals in probabilities rather than certainties and where the overwhelming urge to prolong life can come at a tragic cost for patients and those who love them. Reflecting on what forty years of handling the human brain has taught him, Marsh finds a different purpose in life as he approaches the end of his professional career and a fresh understanding of what matters to us all in the end.
What My Bones Know: A Memoir of Healing from Complex Trauma
Stephanie Foo - 2022
. . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.