The Boy Who Loved Windows: Opening The Heart And Mind Of A Child Threatened With Autism


Patricia Stacey - 2003
    It is also a first-hand account of the new model of research and treatment pioneered by Stanley Greenspan, M.D. that makes this recovery possible for others. Walker, whom pediatricians worried would never walk, talk, or perhaps even hear or see, was lucky enough to be born to a family who would not accept defeat. Pat Stacey reveals the darkest fears, struggles, exhaustion, tiny victories, and eventual joys her family faced as they gradually brought Walker into full contact with the world.

As Nature Made Him: The Boy Who Was Raised as a Girl


John Colapinto - 2000
    The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.

Memory's Last Breath: Field Notes on My Dementia


Gerda Saunders - 2017
    Saunders' book is uncharted territory in the writing on dementia, a diagnosis one in nine Americans will receive. Based on the "field notes" she keeps in her journal, Memory's Last Breath is Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders nonetheless embarks on a personal investigation of the brain and its mysteries, examining science and literature, and immersing herself in vivid memories of her childhood in South Africa. Written in a distinctive voice without a trace of self-pity, Memory's Last Breath is a remarkable, aphorism-free contribution to the literature of dementia--and an eye-opening personal memoir that will grip all adventurous readers.

Women from Another Planet? Our Lives in the Universe of Autism


Jean Kearns Miller - 2003
    It’s the dreaded A word. People’s attention turns to late night TV public service ads declaring that autistic children are “imprisoned” by autism and need curing at all cost. Recent autobiographies have helped dispel this dire description by suggesting that autism is not a prison and that the door is unlocked and you’re free to come in. Women from Another Planet? moves beyond these autistic life stories in important ways. It’s a collection of stories and conversations, all of them by women on the autism spectrum who speak candidly, insightfully, and often engagingly about both their gender in terms of their autism and their autism in terms of their gender. It is written not just for parents and professionals, like the other works, but also to those women still searching for ways to understand the unnamed difference they live with, as well as the wider audience of discerning readers. If you enter the unlocked door of these Women from Another Planet? you may end up with a question mark or two about your planet. Is normalcy really all it’s cracked up to be?

The Boy Who Loved Too Much: A True Story of Pathological Friendliness


Jennifer Latson - 2017
    It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely—and vastly more successfully. Journalist Jennifer Latson follows Eli over three critical years of his life as his mother, Gayle, must decide whether to shield Eli entirely from the world and its dangers or give him the freedom to find his own way and become his own person. By intertwining Eli and Gayle’s story with the science and history of Williams syndrome, the book explores the genetic basis of behavior and the quirks of human nature. More than a case study of a rare disorder, however, The Boy Who Loved Too Much is a universal tale about the joys and struggles of raising a child, of growing up, and of being different.

Model Patient: My Life As an Incurable Wise-Ass


Karen Duffy - 2000
    Then her whirlwind life of celebrity parties came to an abrupt, grinding halt when she was stricken with a serious illness in one of its rarest forms: sarcoidosis of the central nervous system.Duffy soon realized that the only way for her to survive was not to take the disease too seriously. Instead of hiding from life, she chose to run toward it. She learned to embrace the chaos of a life-threatening disease with a wit and humor that helped her to find the love of her life at a time when things seemed darkest.Model Patient is a gripping, inspiring, and hilarious memoir that recounts the singular triumphs and tragedies of coping with a chronic, life-threatening disease.

Like Sound Through Water: A Mother's Journey Through Auditory Processing Disorder


Karen J. Foli - 2002
    If the problem is physical, she takes the child to a doctor. But if the problem is a misunderstanding of her child's mind, where does she turn for help? This is Ben's story. He was a happy, healthy boy -- a mother's dream come true. Yet by the age of three, Ben's development was significantly delayed: He couldn't make sense of the simplest phrases, and he still hadn't started talking. When Karen Foli finally took her son, Ben, to a speech and hearing clinic, she was told that he was "probably retarded and perhaps autistic." But Karen knew that Ben was highly perceptive, even frustrated by his inability to communicate. Trusting her "mother's intuition," Karen set out on a journey to learn the truth about her son's condition....and what she found was APD. A person with auditory processing disorder receives jumbled and distorted sounds. But the ability to hear is usually normal. Even though it affects millions of Americans, APD can be difficult to diagnose and challenging to treat. Through years of research, and personal interviews, Karen Foli learned everything she needed to know about APD in order to help her son achieve the greatest gift of all: communication. Like Sound Through Water is her story -- winning, inspiring, and true.

Resilience: Two Sisters and a Story of Mental Illness


Jessie Close - 2015
    When the Close sisters were very young, their parents joined a cult called the MRA, or Moral Rearmament. The family was suddenly uprooted to a cult school in Switzerland and, ultimately, to the Belgian Congo where their father became a surgeon in the war-ravaged republic, and ultimately the personal physician to President Mobutu. Shortly after the girls returned to the US for boarding school, Jessie first started to exhibit symptoms of severe bipolar disorder (she would later learn that this ran in the family, a well-kept secret). Jessie embarked on a series of destructive marriages as the condition worsened. Glenn was always by her side throughout. Jessie's mental illness was passed on to her son, Calen. It wasn't until Calen entered McLean's psychiatric hospital that Jessie herself was diagnosed. Fifteen years and twelve years of sobriety later, Jessie is a stable and productive member of society. Glenn continues to be the major support in Jessie's life.In Resilience, the sisters share their story of triumphing over Jessie's illness. The book is written in Jessie's voice with running commentary and an epilogue written by Glenn.

Children with Emerald Eyes: Histories of Extraordinary Boys and Girls


Mira Rothenberg - 1960
    Winner of a Woman of the Year award from the New York City Chamber of Commerce and the National Organization for Mentally Ill Children, she eloquently recounts a lifetime of taking on seemingly hopeless cases and bringing these children, through painstaking therapy and love, back into the world. Unflinchingly honest, whether dealing with the raw pain of her patients' lives or with Rothenberg's own complex feelings for them, Children with Emerald Eyes explores the landscape of mental illness while never losing sight of the humanity within each patient.

All I Can Handle: I'm No Mother Teresa: A Life Raising Three Daughters with Autism


Kim Stagliano - 2010
    Spock? Check. Penelope Ann Leach (remember her?)? Check. What to Expect When You’re Expecting? Check. I had a seven hundred dollar Bellini crib for God’s sake! I was perfect. And so was Mia when she was born . . ." ...and so begins Kim Stagliano’s electrifying and hilarious memoir of her family’s journey raising three daughters with autism. In these stories, Stagliano has joined the ranks of David Sedaris and Augusten Burroughs with her amazing ability to lay everything on the table—from family, friends, and enemies to basement floods to birthdays to (possible) heroin addictions—eviscerating and celebrating the absurd. From her love of Howard Stern to her increasing activism in the autism community and exhaustive search for treatments that will help her daughters, she covers it all. Always outspoken, often touching, and sometimes heartbreaking, Kim Stagliano is a powerful new voice in comedic writing—her “Kimoir” (as she calls it) will be a must-read within the autism community and the literary world at large.

The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

All the Things We Never Knew: Chasing the Chaos of Mental Illness


Sheila Hamilton - 2015
    Even as a reporter, Sheila Hamilton missed the signs as her husband David's mental illness unfolded before her. By the time she had pieced together the puzzle, it was too late. Her once brilliant and passionate partner was dead within six weeks of a diagnosis of bipolar disorder, leaving his wife and nine-year-old daughter without so much as a note to explain his actions, a plan to help them recover from their profound grief, or a solution for the hundreds of thousands of dollars in debt that they would inherit from him.All the Things We Never Knew takes readers on a breathtaking journey, from David and Sheila's early romance through the last three months of their life together and into the year after his death. It details their unsettling spiral from ordinary life into the world of mental illness, examines the fragile line between reality and madness, and reveals the true power of love and forgiveness.

Sick: A Memoir


Porochista Khakpour - 2018
    For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.

Asperger's and Girls: World-Renowned Experts Join Those with Asperger's Syndrome to Resolve Issues That Girls and Women Face Every Day!


Tony AttwoodMary Wroble - 2006
    In it you'll read candid stories written by the indomitable women who have lived them. You'll also hear from experts who discuss whether Aspie girls are slipping under the radar, undiagnosed; why many AS women feel like a minority within a minority (outnumbered by men 4:1); practical solutions school systems can implement for girls; social tips for teenage girls, navigating puberty, the transition to work or university, and the importance of careers. Helpful chapters include: The Pattern of Abilities and Development of Girls with Asperger's Syndrome Asperger's Syndrome in Women: A Different Set of Challenges? Educating the Female Student with Asperger's Girl to Girl: Advice on Friendship, Bullying, and Fitting In Preparing for Puberty and Beyond The Launch: Negotiating the Transition from High School to the Great Beyond Aspie Do's and Don'ts: Dating, Relationships, and Marriage Maternal Instincts in Asperger' Syndrome For Me, a Good Career Gave Life Meaning

Laughing at My Nightmare


Shane Burcaw - 2014
    From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease.