Strange Son: Two Mothers, Two Sons, and the Quest to Unlock the Hidden World of Autism


Portia Iversen - 2006
    Tito Mukhopadhyay, an autistic boy from India who spends most of his time flapping his fingers in front of his eyes, has an IQ of 185. He favors the writings of Wordsworth and Ibsen. He loves philosophy, reads "People," and worries about conflict in the Middle East. He also writes beautiful poetry. That Tito can communicate at all is due to his mother, Soma, who single-handedly developed a revolutionary method of teaching him in their one-room apartment in Bangalore, a "classroom" that lacked even running water. Portia Iversen, an Emmy-winning art director whose life was turned upside down when her own son Dov was diagnosed with autism, heard of Soma's miraculous story in the course of her own desperate search for a cure. Under the auspices of Cure Autism Now, the foundation she started with her husband that is now one of the largest funds for autism research in the world, Portia brought Soma and Tito to America to help researchers understand how Soma accomplished this amazing feat and to determine what can be learned from their success. Together, Soma and Portia have made remarkable progress in teaching their sons how to break through the walls of autism. And, in the process, they have assisted scientists in making astonishing discoveries about the nature of autism itself. "Strange Son" is the extraordinary account of two families who redefined how autism-and autistic people-should be treated, all the while helping to answer some of autism's most baffling questions and prompting new research. Iversen weaves the twin stories of Soma and Tito (and how Soma's methods mystified experts) together with her own story of how she and her family came to understand Dov. The result is a book suffused with uplifting human drama.

Atypical: Life with Asperger's in 20 1/3 Chapters


Jesse A. Saperstein - 2010
    Please be forewarned that you are about to read the observations and life lessons of someone who entertains himself by farting in public and conversing in gibberish with his cats. Thus begins the charming, insightful, and memorable story of Jesse Saperstein. Diagnosed with Asperger's Syndrome, a mild form of autism, Jesse has struggled since childhood with many of the hallmark challenges of his condition-from social awkwardness and self-doubt to extreme difficulty with change and managing his emotions.He has also worked hard to understand and make the most of his AS- developing his keen curiosity and sense of humor, closely observing the world around him, and most of all, helping others with AS to better cope and even thrive. Told with endearing and unflinching honesty, Jesse brings his unique perspective to the circumstances of his life and his condition.

Overcoming Autism: Finding the Answers, Strategies, and Hope That Can Transform a Child's Life


Lynn Kern Koegel - 2004
    In this extraordinary book, Lynn Kern Koegel, a leading clinician, researcher, and cofounder of the renowned Autism Research Center at the University of California at Santa Barbara, combines her cutting-edge expertise with the everyday perspectives of Claire LaZebnik, a writer whose experience with a son with autism provides a rare window into the disorder. Together, they draw on the highly effective “pivotal response” approach developed at the center to provide concrete ways of improving the symptoms of autism and the emotional struggles that surround it, while reminding readers never to lose sight of the humor that lurks in the disability’s quirkiness or the importance of enjoying your child. From the shock of diagnosis to the step-by-step work with verbal communication, social interaction, self-stimulation, meltdowns, fears, and more, the answers are here-in a book that is as warm and nurturing as it is authoritative.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

The Collected Schizophrenias: Essays


Esmé Weijun Wang - 2019
    Schizophrenia is not a single unifying diagnosis, and Esme Weijun Wang writes not just to her fellow members of the "collected schizophrenias" but to those who wish to understand it as well. Opening with the journey toward her diagnosis of schizoaffective disorder, Wang discusses the medical community's own disagreement about labels and procedures for diagnosing those with mental illness, and then follows an arc that examines the manifestations of schizophrenia in her life. In essays that range from using fashion to present as high-functioning to the depths of a rare form of psychosis, and from the failures of the higher education system and the dangers of institutionalisation to the complexity of compounding factors such as PTSD and Lyme disease, Wang's analytical eye, honed as a former lab researcher at Stanford, allows her to balance research with personal narrative. An essay collection of undeniable power, The Collected Schizophrenias dispels misconceptions and provides insight into a condition long misunderstood.

Okay Fine Whatever: The Year I Went from Being Afraid of Everything to Only Being Afraid of Most Things


Courtenay Hameister - 2018
    She fretted about everything. Her age. Her size. Her romantic prospects. How likely it was that she would get hit by a bus on the way home. Until a couple years ago, when, in her mid-forties, she decided to fight back against her debilitating anxieties by spending a year doing little things that scared her--things that the average person might consider doing for a half second before deciding: "nope." Things like: attending a fellatio class. She did that. She also spent an afternoon in a sensory deprivation tank, got (legally) high in the middle of a workday, had a session with a professional cuddler, braved twenty-eight first dates, and (perhaps scariest of all) actually met someone who might possibly appreciate her for who she is.

Madness: A Bipolar Life


Marya Hornbacher - 2008
    At age twenty-four, Hornbacher was diagnosed with Type I rapid-cycle bipolar, the most severe form of bipolar disorder.In Madness, in her trademark wry and utterly self-revealing voice, Hornbacher tells her new story. Through scenes of astonishing visceral and emotional power, she takes us inside her own desperate attempts to counteract violently careening mood swings by self-starvation, substance abuse, numbing sex, and self-mutilation. How Hornbacher fights her way up from a madness that all but destroys her, and what it is like to live in a difficult and sometimes beautiful life and marriage -- where bipolar always beckons -- is at the center of this brave and heart-stopping memoir.Madness delivers the revelation that Hornbacher is not alone: millions of people in America today are struggling with a variety of disorders that may disguise their bipolar disease. And Hornbacher's fiercely self-aware portrait of her own bipolar as early as age four will powerfully change, too, the current debate on whether bipolar in children actually exists.Ten years after Kay Redfield Jamison's An Unquiet Mind, this storm of a memoir will revolutionize our understanding of bipolar disorder.

Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had


Brad Cohen - 2005
    This story of unwavering determination proves anyone can make their dreams come true. Ends with 20+ motivational tips on living with a disability.

Crashing Through: A True Story of Risk, Adventure, and the Man Who Dared to See


Robert Kurson - 2006
    The bestselling author of Shadow Divers returns with a riveting story of exploration, mystery, and the discovery of an unknown world--this time about one man's incredible odyssey from blindness into sight.

The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery


Barbara K. Lipska - 2018
    As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery

What My Bones Know: A Memoir of Healing from Complex Trauma


Stephanie Foo - 2022
    . . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.

An Uncomplicated Life: A Father's Memoir of His Exceptional Daughter


Paul Daugherty - 2015
    The day they brought her home from the hospital, her parents, Paul and Kerry, were flooded with worry and uncertainty, but also overwhelming love, which they channeled to “the job of building the better Jillian.” While their daughter had special needs, they refused to allow her to grow up needy—“Expect, Don’t Accept” became their mantra. Little did they know how ready Jillian was to meet their challenge.Paul tells stories from Jillian’s mischievous childhood and moves to her early adulthood, tracing her journey to find happiness and purpose in her adult life, sharing endearing anecdotes as well as stories about her inspiring triumphs. Having graduated from high school and college, Jillian now works to support herself, and has met the love of her life and her husband-to-be, Ryan.In An Uncomplicated Life, the parent learns as much about life from the child as the child does from the parent. Through her unmitigated love for others, her sparkling charisma, and her boundless capacity for joy, Jillian has inspired those around her to live better and more fully. The day Jillian was born, Paul says, was the last bad day. As he lovingly writes, “Jillian is a soul map of our best intentions”—a model of grace, boundless joy, and love for all of us.

The Best Kind of Different: Our Family's Journey with Asperger's Syndrome


Shonda Schilling - 2010
    Candid and compelling, The Best Kind of Different traces their family’s struggle with Asperger’s, following Curt and Shonda as they come to understand their son’s differences and in the process relearn everything they thought they knew about parenting.

Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body


Martin Pistorius - 2011
    But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

Unbearable Lightness: A Story of Loss and Gain


Portia de Rossi - 2010
    It snuck up on me disguised as a healthy diet, a professional attitude. Being as thin as possible was a way to make the job of being an actress easier . . .” Portia de Rossi weighed only 82 pounds when she collapsed on the set of the Hollywood film in which she was playing her first leading role. This should have been the culmination of all her years of hard work—first as a child model in Australia, then as a cast member of one of the hottest shows on American television. On the outside she was thin and blond, glamorous and successful. On the inside, she was literally dying. In this searing, unflinchingly honest book, Portia de Rossi captures the complex emotional truth of what it is like when food, weight, and body image take priority over every other human impulse or action. She recounts the elaborate rituals around eating that came to dominate hours of every day, from keeping her daily calorie intake below 300 to eating precisely measured amounts of food out of specific bowls and only with certain utensils. When this wasn’t enough, she resorted to purging and compulsive physical exercise, driving her body and spirit to the breaking point. Even as she rose to fame as a cast member of the hit television shows Ally McBeal and Arrested Development, Portia alternately starved herself and binged, all the while terrified that the truth of her sexuality would be exposed in the tabloids. She reveals the heartache and fear that accompany a life lived in the closet, a sense of isolation that was only magnified by her unrelenting desire to be ever thinner. With the storytelling skills of a great novelist and the eye for detail of a poet, Portia makes transparent as never before the behaviors and emotions of someone living with an eating disorder. From her lowest point, Portia began the painful climb back to a life of health and honesty, falling in love with and eventually marrying Ellen DeGeneres, and emerging as an outspoken and articulate advocate for gay rights and women’s health issues. In this remarkable and beautifully written work, Portia shines a bright light on a dark subject. A crucial book for all those who might sometimes feel at war with themselves or their bodies, Unbearable Lightness is a story that inspires hope and nourishes the spirit.