The Ghost Garden: Inside the Lives of Schizophrenia's Feared and Forgotten


Susan Doherty - 2019
    For the past ten years, some of the people who cycle in and out of the severely ill wards of the Douglas Institute in Montreal, have found a friend in Susan, who volunteers on the ward, and then follows her friends out into the world as they struggle to get through their days. With their full cooperation, she brings us their stories, which challenge the ways we think about people with mental illness on every page. The spine of the book is the life of Caroline Evans (not her real name), a woman in her early sixties whom Susan has known since she was a bright and sunny school girl. Caroline has given Susan complete access to her medical files and her court records; through her, we experience what living with schizophrenia over time is really like. She has been through it all, including the way the justice system treats the severely mentally ill: at one point, she believed that she could save her roommate from the devil by pouring boiling water into her ear... Susan interleaves Caroline's story with vignettes about her other friends, human stories that reveal their hopes, their circumstances, their personalities, their humanity. She's found that if she can hang in through the first ten to fifteen minutes of every coffee date with someone in the grip of psychosis, then true communication results. Their "madness" is not otherworldly: instead it tells us something about how they're surviving their lives and what they've been through.

Saving Normal: An Insider's Revolt Against Out-Of-Control Psychiatric Diagnosis, DSM-5, Big Pharma, and the Medicalization of Ordinary Life


Allen Frances - 2013
    The DSM is the bible of psychiatry; the go-to place to find out who is sick and who is not. Because it will radically stretch the boundaries of what is and what is not a psychiatric illness, DSM 5 will dramatically change how lives are lived. Under DSM 5's new definitions, millions of people now considered normal will be diagnosed as mentally ill, causing unnecessary, costly, and sometimes dangerous treatments for misidentified 'patients' who don't really need them.Will the DSM 5 destroy what is considered normal?Frances argues that DSM 5 offers a radical and reckless set of proposals that will overnight turn 'normal' people into 'mental patients'. Everyday aches, pains, disappointments, stresses, and existential sufferings are being reframed as mental illnesses with such exuberance that it is getting hard for anyone to get through life without a psychiatric diagnosis. Is grief a useful, inevitable and poignant sign of a broken heart or is it Major Depressive Disorder? Are temper tantrums a normal part of childhood or a sign of mental illness? Are you nervous about an upcoming presentation or job interview or do you have Mixed Anxiety Depression? If you don't remember a face or a fact once in a while, do you have Dementia?Frances maintains we all have psychiatric symptoms from time to time, but this doesn't mean we are all flirting with mental illness. Whenever we arbitrarily add a new 'disease', we subtract from what previously was 'normal' and lose something of ourselves in the process. Not all human suffering can or should be labeled and treated away. The grief and sorrows, the stresses, the disappointments, the aches and pains, the slings and arrows, the innate and acquired inequalities, the set-backs, the stumbles, the emotional gut-shots; this is part of life and of living in a complex and not always fair society- they should not all to be explained away as psychiatric disease.

My Stroke of Insight: A Brain Scientist's Personal Journey


Jill Bolte Taylor - 2006
    Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.

The Man Who Wasn't There: Investigations into the Strange New Science of the Self


Anil Ananthaswamy - 2015
    These individuals all lost some part of what we think of as our self, but they then offer remarkable, sometimes heart-wrenching insights into what remains. One man cut off his own leg. Another became one with the universe.We are learning about the self at a level of detail that Descartes (“I think therefore I am”) could never have imagined. Recent research into Alzheimer’s illuminates how memory creates your narrative self by using the same part of your brain for your past as for your future. But wait, those afflicted with Cotard’s syndrome think they are already dead; in a way, they believe that “I think therefore I am not.” Who—or what—can say that? Neuroscience has identified specific regions of the brain that, when they misfire, can cause the self to move back and forth between the body and a doppelgänger, or to leave the body entirely. So where in the brain, or mind, or body, is the self actually located? As Ananthaswamy elegantly reports, neuroscientists themselves now see that the elusive sense of self is both everywhere and nowhere in the human brain.

Henry's Demons: Living with Schizophrenia, A Father and Son's Story


Patrick Cockburn - 2011
    Voices, he said, had urged him to do it. Nearly halfway around the world in Afghanistan, journalist Patrick Cockburn learned from his wife, Jan, that his son had suffered a breakdown and had been admitted to a hospital. Ten days later, Henry was diagnosed with schizophrenia. Narrated by both Patrick and Henry, this is the extraordinary story of the eight years since Henry’s descent into schizophrenia—years he has spent almost entirely in hospitals—and his family’s struggle to help him recover. With remarkable frankness, Patrick writes of Henry’s transformation from art student to mental patient and of the agonizing and difficult task of helping his son get well. Any hope of recovery lies in medication, yet Henry, who does not believe he is ill, secretly stops taking it and frequently runs away. Hopeful periods of stability are followed by frightening disappearances, then relapses that bleed into one another, until at last there is the promise of real improvement. In Henry’s own raw, beautiful chapters, he describes his psychosis from the inside. He vividly relates what it is like to hear trees and bushes speaking to him, voices compelling him to wander the countryside or live in the streets, the loneliness of life within hospital walls, harrowing “polka dot days” that incapacitate him, and finally, his steps towards recovery. Patrick’s and Henry’s parallel stories reveal the complex intersections of sanity, madness, and identity; the vagaries of mental illness and its treatment; and a family’s steadfast response to a bewildering condition. Haunting, intimate, and profoundly moving, their unique narrative will resonate with every parent and anyone who has been touched by mental illness.

Stalking Irish Madness: Searching for the Roots of My Family's Schizophrenia


Patrick Tracey - 2008
    But for Patrick Tracey, the lure of his ancestral home is a much more powerful need: part pilgrimage, part investigation to confront the genealogical mystery of schizophrenia–a disease that had claimed a great-great-great-grandmother, a grandmother, an uncle, and, most recently, two sisters. As long as Tracey could remember, schizophrenia ran on his mother's side, seldom spoken of outright but impossible to ignore. Devastated by the emotional toll the disease had already taken on his family, terrified of passing it on to any children he might have, and inspired by the recent discovery of the first genetic link to schizophrenia, Tracey followed his genealogical trail from Boston to Ireland's county Roscommon, home of his oldest-known schizophrenic ancestor. In a renovated camper, Tracey crossed the Emerald Isle to investigate the country that, until the 1960s, had the world's highest rate of institutionalization for mental illness, following clues and separating fact from fiction in the legendary relationship the Irish have had with madness. Tracey's path leads from fairy mounds and ancient caverns still shrouded in superstition to old pubs whose colorful inhabitants are a treasure trove of local lore. He visits the massive and grim asylum where his famine starved ancestors may have lived. And he interviews the Irish research team that first cracked the schizophrenic code to learn how much–and how little–we know about this often misunderstood disease. Filled with history, science, and lore, Stalking Irish Madness is an unforgettable chronicle of one man's attempt to make sense of his family's past and to find hope for the future of schizophrenic patients.

Against Medical Advice


James Patterson - 2008
    From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.

Rat Girl


Kristin Hersh - 2010
    In 1985, Kristin Hersh was just starting to find her place in the world. After leaving home at the age of fifteen, the precocious child of unconventional hippies had enrolled in college while her band, Throwing Muses, was getting off the ground amid rumors of a major label deal. Then everything changed: she was diagnosed with bipolar disorder and found herself in an emotional tailspin; she started medication, but then discovered she was pregnant. An intensely personal and moving account of that pivotal year, Rat Girl is sure to be greeted eagerly by Hersh's many fans.

Twitch And Shout: A Touretter’s Tale


Lowell Handler - 1998
    Although he is a successful and acclaimed photojournalist, Handler has often seen himself as an outsider—a social outcast.  With courage and candor, he recalls the difficulties he suffered growing up, the confusion he experienced when doctors misdiagnosed his bizarre behavior as a psychological aberration, and finally how, restless and despairing, he embarked on a quest for answers.   In Twitch and Shout, Handler sets out, camera in hand, on a journey through less than savory parts of America.  From a transvestite bar in Tampa to a flophouse in New Orleans to a community health center in New York, he meets a variety of people who, like himself, don’t conform to the standards of conventional society. With a keen eye for detail and an acute sense of humor, this memoir perfectly captures the unique and unforgettable life of a Touretter.

Anatomy of an Illness: As Perceived by the Patient


Norman Cousins - 1979
    It started the revolution in patients working with their doctors and using humor to boost their bodies' capacity for healing. When Norman Cousins was diagnosed with a crippling and irreversible disease, he forged an unusual collaboration with his physician, and together they were able to beat the odds. The doctor's genius was in helping his patient to use his own powers: laughter, courage, and tenacity. The patient's talent was in mobilizing his body's own natural resources, proving what an effective healing tool the mind can be. This remarkable story of the triumph of the human spirit is truly inspirational reading.

The Time in Between: A Memoir of Hunger and Hope


Nancy Tucker - 2014
    She thought, and thought, and then, though she didn’t know why, she wrote: ‘I want to be thin.’Over the next twelve years, she developed anorexia nervosa, was hospitalised, and finally swung the other way towards bulimia nervosa. She left school, rejoined school; went in and out of therapy; ebbed in and out of life. From the bleak reality of a body breaking down to the electric mental highs of starvation, hers has been a life held in thrall by food.Told with remarkable insight, dark humour and acute intelligence, The Time in Between is a profound, important window into the workings of an unquiet mind – a Wasted for the 21st century.

I Never Promised You a Rose Garden


Hannah Green - 1964
    It is not a case history or study. I like to think it is a hymn to reality." —Joanne Greenberg

Inferno: A Memoir of Motherhood and Madness


Catherine Cho - 2020
    Before the trip’s end, she develops psychosis. In desperation, her husband admits her to a nearby psychiatric hospital, where she begins the hard work of rebuilding her identity.In this memoir Catherine reconstructs her sense of self, starting with her childhood as the daughter of Korean immigrants, moving through a traumatic past relationship, and on to the early years of her courtship with and marriage to her husband, James. She interweaves these parts of her past with an immediate recounting of the days she spent in the ward.

Dead Men Do Tell Tales: The Strange and Fascinating Cases of a Forensic Anthropologist


William R. Maples - 1994
    William Maples can deduce the age, gender, and ethnicity of a murder victim, the manner in which the person was dispatched, and, ultimately, the identity of the killer.  In Dead Men Do Tell Tales, Dr. Maples revisits his strangest, most interesting, and most horrific investigations, from the baffling cases of conquistador Francisco Pizarro and Vietnam MIAs to the mysterious deaths of President Zachary Taylor and the family of Czar Nicholas II.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.