Disability Visibility: First-Person Stories from the Twenty-first Century


Alice WongChristie Thompson - 2020
    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

Just Like Ziggy


Julie Oleszek - 2016
    Back in school, indifferent classmates and teachers leave her with no support; her confidence starts to sharply plummet. Does anyone care that she had been gone?Overwhelmed by feelings of failure, Anna begins to contemplate the worst.Progress is quickly slipping away as her life descends back into chaos. Can Anna rise above her tragic past and sway her family’s destiny before it’s too late? Get your copy now and witness the journey unfold in a sequel to the award winning novel, "The Fifth Floor". “It is a story about acceptance and love, and is a compelling read.” - Mamtha Madhaven – Reader’s Favorite

Broken Beauty: Piecing Together Lives Shattered by Early-Onset Alzheimer's


Sarah B. Smith - 2019
    Smith was a young mother in her thirties when her own mother’s illness struck, so the family’s shock and pain at the disease’s manifestations is nearly unbearable. Not only is Beauty still young and fit; she is also Sarah’s best friend. This powerful and personal story about a daughter facing the unthinkable and the love she found to carry her through will touch the hearts of everyone who reads it. Sarah Bearden Smith is a housewife, mother of three, and a woman of deep faith, who has lived in Texas all her life. Sarah was born and raised in the Houston area, and remained there until her departure for the University of Texas at Austin, where she was a speech communications major, varsity cheerleader, and a member of Tri Delta sorority. After her marriage to Thad Smith in 2002, the couple moved to Dallas, Texas. During their years in Dallas, Sarah and her husband have served on various boards and committees, including the Greer Garson Gala, Presbyterian Hospital Healthcare Foundation, East-West Ministries, AWARE Dallas, and Providence Christian School of Texas. They actively serve with their children in assisted living and memory care facilities and support organizations such as Council for Life, Alzheimer’s Association, Women’s Alzheimer’s Movement, and Community Bible Study. Sarah and her family are members of Watermark Community Church.

Spot 12: Five Months in the Neonatal ICU


Jenny Jaeckel - 2009
    A routine prenatal exam reveals a dangerous problem, and first-time parents find themselves thrust into a world of close calls, sleepless nights, and psychological crisis. Surrounded by disagreements, deaths, extended family tensions, and questions of faith, the mother struggles to maintain a positive frame of mind. Against the antiseptic, mechanical reality of the NICU, the dedicated health professionals are drawn as sympathetic and wry animal characters. Doctor Eyes and Nurse Gentlehands are two of the care providers that do all they can to take care of Baby Asa. But even the best hospital staff make mistakes, and Jaeckel and her husband’s vigilance must be acute. At times they battle feelings of helplessness, but their determination, insight, bravery, and connection ultimately helps keep their little one alive.

About Us: Essays from the Disability Series of the New York Times


Peter Catapano - 2019
    Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond.Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public.Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm.In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children.With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities.Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living

Reformed: How a Life Sentence Became My Saving Grace


Jojo Godinez - 2018
    County surrounded by gangs. The night he joined one, he swore to represent his gang until death. Fights, shootings, and arrests followed, but his love of violence waned through the years as more and more of his friends died around him. Amid the bloodshed, he met a homegirl, Dalia. At just 18 years old, they married in Vegas, but their honeymoon was interrupted when a crime Jojo committed brought him into court and eventually into a 45-years-to-life sentence. On the day he was found guilty, Dalia gave birth to their son.Suicidal, Jojo lost himself in the evils of the jail, trying to forget his former life and even his family. It was during a stint in solitary confinement that he came to terms with his need for change. He asked God for forgiveness and resolved to never fight again. Jojo's nonviolent rebellion against the prison culture of hatred and racism was consistently met with death threats but he was willing to risk everything for his newfound faith. In prison after prison, Jojo spread peace, while his wife, Dalia, and their son faithfully waited for the day he finally came home. The powerful true story of Jojo Godinez shows the incredible transformation of a man once written off as nothing more than a criminal.

Relentless: How a Massive Stroke Changed My Life for the Better


Ted W. Baxter - 2018
    Baxter was at the top of his game. He was a successful, globe-trotting businessman with a resume that would impress the best of the best. In peak physical condition, Ted worked out nearly every day of the week. And then, on April 15, 2005, all that came to an end. He had a massive ischemic stroke. Doctors feared he wouldn’t make it. But that’s not what happened . . . In Relentless, Ted W. Baxter describes his remarkable recovery from a massive stroke. He’s walking again. He’s talking again. He moves through life almost as easily as he did before the stroke, only now, his life is better. He’s learned that having a successful career is maybe not the most important thing. He’s learned to appreciate life more and that he wants to help people, and that’s what he does. He gives back. ​Readers of Relentless will be inspired by Ted’s incredible journey of determination and recovery. This is a wonderful resource for stroke survivors, caregivers, and their loved ones, but it is also an inspiring and motivating read for anyone who is facing struggles in their own life

Loving Tiara: Memoir


Tiffani Goff - 2019
    At forty-five years old, my life’s mission was complete. If I died tomorrow, I would be proud of the life I lived.” - Loving Tiara Loving Tiara is a compelling memoir that will encompass your every thought, break your heart, fill you with hope, and leave you with a sense of awe. When Tiffani married the love of her life, Lou, after graduating from college, she assumed she would continue to live the affluent life she had always known, having grown up in Newport Beach, California. She never imagined she would soon be stalked by creditors, driving a car on the repossession list and forced to worry about providing basic necessities for her family, such as buying diapers and groceries. This increasingly desperate situation forced her to decide to return home to her parents with her baby and husband. After getting their life back on track, and with Tiffani in her final year of law school, they decided to have another baby. At eight months old, however, they discovered that their new daughter Tiara had Tuberous Sclerosis, a rare genetic disorder resulting in intractable epilepsy, developmental delay, chronic hospital admissions, and uncontrollable violent behaviors. So how did Tiffani cope with her new reality? She chose to fight. She challenged the doctors, battled the insurance companies, and refused to give up caring for Tiara even when her own life was at risk. The author’s story of unconditional love, unimaginable challenges, and, ultimately, triumph, is a compelling one, which will take hold of your heart and not let go. This memoir will, hopefully, inspire you to tackle fear, encourage you never to give up, and remind you always to trust your gut instincts.

Born by the River: The true story of a young girl growing up along the Mississippi River during the summer of 1963


Jenness Clark - 2016
     Born by the River is Clark’s account of her nine-month trip around the river to visit extended family, all connected by marriage but markedly different in culture, class, and traditions—circumstances certain to provoke discord. A coming-of-age story set in a time and place deeply divided, Clark’s memoir explores her family’s past, referencing the area’s history from 1820 to 1964. The region acts as a conflicted backdrop, threatening the hopes, the dreams, and the American way of life for the author’s family. Alternating in viewpoint between the reflections of the adult Clark as she looks back on life and her stirring impressions during the time of her river journey, Born by the River is an inspirational memoir lifted from family destruction and the prejudices of a socially divided region.

Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine


Michele Lent Hirsch - 2018
    She did.Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.Author Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system--a system where young women, especially women of color and trans women, are invisible.And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

Hundred Percent Chance


Robert K. Brown - 2020
    Perfect for fans of When Breath Becomes Air.In 1990, Robert K. Brown was an ordinary college student studying abroad in England when a series of unexpected and extraordinary events would change the trajectory of his life forever. Choosing to ignore ominous early symptoms, he was still troubled enough to write in his journal "just for the record ... I am frightened because things are happening to me that I can’t explain away."What follows is a race against time to return home to Seattle for months of chemotherapy, countless complications, and a search for as much normalcy as possible when you're forced to face your mortality at twenty."While memoirs of surviving disease are plenty, Hundred Percent Chance stands apart through its genuine humor and unflinching portrayal of both the physical and psychological struggles that accompany a diagnosis of disease. Brown avoids inspirational platitudes, instead demonstrating the need for perspective and perseverance in the face of illness."Every person Brown introduces, whether their role is significant or small, will leave a memorable impression on readers. This memoir's focus on the tiny moments that ultimately shape and define a life, are particularly poignant and engrossing" (The BookLife Prize).10% of all proceeds will benefit The Leukemia & Lymphoma Society.

Future Widow: Losing My Husband, Saving My Family, and Finding My Voice


Jenny Lisk - 2021
    A fate she never saw coming. She’d dig deep for the strength she so desperately needed…Seattle, 2015. Jenny Lisk was happy with a perfectly normal, busy life. But after the usual bustling week, Friday night turned from downtime into mild alarm when her forty-three-year-old spouse shared that he’d been feeling dizzy. And after ten days of his condition steadily worsening, she still wasn’t prepared for the stunning news: He was terminally ill.Reeling from his diagnosis of an inoperable brain tumor, Jenny suddenly became not only a wife, mother, and career woman, but also a cancer-patient caregiver and parent of grieving children. And her many fears and uncertainties swirled around one relentless question:Did she have what it takes to help her young family survive?Through a vulnerable, honest account of preparing for the death of a loved one, Jenny shares tips and information about childhood grief, how to be there for mourning friends, and ways online communities provide essential support. And for those who feel lost and alone, or are grappling with any kind of loss, her deeply personal journey provides a universal beacon of hope.Future Widow: Losing My Husband, Saving My Family, and Finding My Voice is a brave and raw narrative that doesn’t pull any punches on the realities of caregiving and bereavement. If you like captivating stories, authentic inspiration, and understanding the grieving process, then you’ll find encouragement in Jenny Lisk’s touching memoir.Buy Future Widow to rebuild a life today!

Detour from Normal


Ken Dickson - 2013
    What happens next is downright frightening.Surgery saves Ken’s life but improper care sends him spiraling into madness. Unable to fend for himself, his wife Beth takes charge. She does her best to save him but the unyielding stigma of mental illness hampers his recovery at every turn until he is beyond hope.Desperate to get Ken the help that he needs, Beth makes a heartbreaking decision: she brands the man she loves a “danger to himself and others” and commits him to psychiatric treatment. A police SUV then delivers him to a high-security facility where the real nightmare begins. Plagued by the pitfalls of contemporary psych wards, Ken struggles through living hell. Nevertheless, as the days stretch to weeks, he finds solace by befriending the lost and forgotten and helping patients with worse problems than his.Featured in Amazon Prime Reading and spotlighted as Great on Kindle, Detour from Normal will touch your heart in ways that you never imagined and make you question your faith in our medical and mental health systems.What readers are saying:“A massive amount of emotion rolled into a page-turner.”“An enlightening and dare I say frightening glimpse into the world of mental health care.”“This is a story you will want to share with the people you know and love.”“Scary, life-changing and inspiring!”“Powerful and gripping.”“A psychological thriller, medical mystery, and compelling drama—made all the more vivid because it actually happened.”

90 Days to Live: Beating Cancer When Modern Medicine Offers No Hope


Rodney Stamps - 2019
    This heart-wrenching and heartwarming book chronicles Rodney's triumphant journey to full remission after following a little known but highly effective cancer treatment.What if you were told you had 90 days to live?For Rodney and Paige Stamps, Rodney's "out-of-the-blue" cancer diagnosis quickly turned a normally hypothetical question horribly real.When Paige met Rodney, a nationally touring heavy-metal drummer, they both fell hard. Rodney swapped his drumsticks for marriage, family, a job, and then, his own business.The '90-Days' diagnosis hit just as their business was starting to soar."You're going to die" was the solemn verdict from numerous MDs, who promised only to briefly extend Rodney's life. With both a growing family and business, and so much living still to do, Rodney's response to the no-hope prognosis? "I don't think so."90 Days to Live recounts the Stamps' incredible and inspirational journey to find an alternative "answer to cancer." In the end...They'd beaten the cancer and built a million dollar business.While his weight dropped from 190 to 138 lbs., Rodney and Paige explored countless cancer "cures" of widely varying value. They even exposed a scam treatment being peddled by a mob boss--crossing paths with the FDA and FBI!Alternately heart-wrenching and heart-warming--and delivered in an engaging dual-author format--90 Days to Live will speak to anyone struggling with an "incurable" disease, building a business under trying circumstances, or anyone who just loves a good old-fashioned, "beating-the-odds" story.

The Existence Of Amy


Lana Grace Riva - 2019
    That is, if you were to go by a definition of 'no obvious indicators of peculiarity', and you didn't know her very well. She has good friends, a good job, a nice enough home. This normality, however, is precariously plastered on top of a different life. A life that is Amy's real life. The only one her brain will let her lead.What is it really like to live with mental illness?An insight into the reality of life with obsessive compulsive disorder (OCD), anxiety and depression.