But when her second child is born with albinism, a rare genetic condition whose most striking characteristics are white blonde hair, pale skin and impaired vision, she discovers that the very definition of normal is up for grabs. A moving memoir with flashes of humor, this essay tells one mother’s story of navigating the spectrum of ability and disability, filled with both heartbreak and joy. And how ultimately she and her daughter learn to balance together on the edge of normal. Reviews and Praise THE EDGE OF NORMAL was selected for Amazon's Best Kindle Singles of the Year, and has been featured in the SundayTimes Magazine (UK), Longreads, and OZY. About the Author Hana Schank is an author and a technology consultant. She is a frequent contributor to the New York Times, the Washington Post and the Atlantic.com, and her writing has appeared across the web and in national magazines. Her memoir, A More Perfect Union: How I Survived the Happiest Day of My Life, was a Barnes and Noble Discover Great New Writers selection.

    But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard ... recognized that it was not just the disease, but misguided protocol and harmful practice that cause pain at the end of life. Inspired by his memory to seek a better course for all who suffer with the disease and those who love them, Gerrard became a relentless campaigner.

    Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived--they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness.Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals.Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

    Animal combines autobiography and evolutionary history to create a funny, fascinating insight into the forces that mould and affect modern women.Animal is entertaining and informative, personal and universal – silly about lots of things and serious about some. It's a laugh-out-loud investigation to help us understand and forgive our animal urges and insecurities.

    During much of that time she was also suffering seizures. But they came secretly in the middle of the night, and were probably stress-related, or so one doctor said. Then a seizure (and a second opinion) led to a round of specialists, Cat scans, MRIs, and-Suzy's worst fears come true--brain surgery.An inspiring memoir, I Had Brain Surgery, What's Your Excuse? is a story of identity told with wise, surprising humor. It takes readers on a journey that's both metaphysical and whimsical; one that is by turns rivetingly dramatic and unexpectedly light. Illustrated with drawings, charts, newspaper clippings, silly graphs, and real EEGs and MRIs, I Had Brain Surgery . . . turns one artist's story into a universal book about creativity, family, healing, love, commitment, and that intangible something that gives each of us our spark.

    Elizabeth Ford went through medical school unsure of where she belonged. It wasn’t until she did her psychiatry rotation that she found her calling—to care for one of the most vulnerable populations of mentally ill people, the inmates of New York's jails, including Rikers Island, who are so sick that they are sent to the Bellevue Hospital Prison Ward for care.These men were broken, unloved, without resources or support, and very ill. They could be violent, unpredictable, but they could also be funny and tender and needy. Mostly, they were human and they awakened in Ford a boundless compassion. Her patients made her a great doctor and a better person and, as she treated these men, she learned about doctoring, about nurturing, about parenting, and about love. While Ford was a psychiatrist at Bellevue she becomes a wife and a mother. In her book she shares her struggles to balance her life and her work, to care for her children and her patients, and to maintain the empathy that is essential to her practice—all in the face of a jaded institution, an exhausting workload, and the deeply emotionally taxing nature of her work. Ford brings humor, grace, and humanity to the lives of the patients in her care and in beautifully rendered prose illuminates the inner workings (and failings) of our mental health system, our justice system, and the prison system.

    "Now everyone is going to know." "I know," I said. "I’m sorry."Kelly Sundberg’s husband, Caleb, was a funny, warm, supportive man and a wonderful father to their little boy Reed. He was also vengeful and violent. But Sundberg did not know that when she fell in love, and for years told herself he would get better. It took a decade for her to ultimately accept that the partnership she desired could not work with such a broken man. In her remarkable book, she offers an intimate record of the joys and terrors that accompanied her long, difficult awakening, and presents a haunting, heartbreaking glimpse into why women remain too long in dangerous relationships.To understand herself and her violent marriage, Sundberg looks to her childhood in Salmon, a small, isolated mountain community known as the most redneck town in Idaho. Like her marriage, Salmon is a place of deep contradictions, where Mormon ranchers and hippie back-to-landers live side-by-side; a place of magical beauty riven by secret brutality; a place that takes pride in its individualism and rugged self-sufficiency, yet is beholden to church and communal standards at all costs.Mesmerizing and poetic, Goodbye, Sweet Girl is a harrowing, cautionary, and ultimately redemptive tale that brilliantly illuminates one woman’s transformation as she gradually rejects the painful reality of her violent life at the hands of the man who is supposed to cherish her, begins to accept responsibility for herself, and learns to believe that she deserves better.

    Through the eyes of her naive and inexperienced younger self, Byron shares remarkable stories inspired by the people she had the privilege to treat. Gripping, poignant, and full of daring black humor, this book reveals the frightening and challenging induction all mental health staff face and highlights their incredible commitment to their patients. It shares the tales of ordinary people with an amazing resilience to life's challenges.

    But what if the person receiving the diagnosis--young, physically fit, poised for a bright future--is himself a doctor?At thirty-one David biro has just completed his residency and joined his father's successful dermatology practice. Struck with a rare blood disease that eventually necessitates a bone marrow transplant, Biro relates with honesty and courage the story of his most transforming journey. He is forthright about the advantages that his status as a physician may have afforded him; and yet no such advantage can protect him from the anxiety and doubt brought on by his debilitating therapies. The pressures that Biro's wild "one hundred days" brings to bear on his heretofore well-established identity as a caregiver are enormous--as is the power of this riveting story of survival.

    She woke up in a hospital soon after with serious deficiencies to her reading, speaking, and writing abilities, and an unfamiliar diagnosis: aphasia. This would be shocking news for anyone, but Lauren was a voracious reader, an actress, director, and dramaturg, and at the time of the event, pursuing her PhD. At any other period of her life, this diagnosis would have been a devastating blow. But she woke up...different. The way she perceived her environment and herself had profoundly changed, her entire identity seemed crafted around a language she could no longer access. She returned to her childhood home to recover, grappling with a muted inner monologue and fractured sense of self.Soon after, Lauren began a journal, to chronicle her year following the rupture. A Stitch of Time is the remarkable result, an Oliver Sacks–like case study of a brain slowly piecing itself back together, featuring clinical research about aphasia and linguistics, interwoven with Lauren’s personal narrative and actual journal entries that marked her progress. Alternating between fascination and frustration, she relearns and re-experiences many of the things we take for granted—reading a book, understanding idioms, even sharing a “first kiss”—and begins to reconcile “The Girl I Used to Be” with “The Girl I Am Now.” Deeply personal and powerful, A Stitch of Time is an unforgettable journey of self-discovery, resilience, and hope.

    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

    He tells of the large science-steeped family who fostered his early fascination with chemistry. There follow his years at boarding school where, though unhappy, he developed the intellectual curiosity that would shape his later life. And we hear of his return to London, an emotionally bereft ten-year-old who found solace in his passion for learning. Uncle Tungsten radiates all the delight and wonder of a boy’s adventures, and is an unforgettable portrait of an extraordinary young mind.

    She takes us by her side down hospital corridors to visit the wards and meet her unforgettable patients.In the neonatal unit, premature babies fight for their lives, hovering at the very edge of survival, like tiny Emmanuel, wrapped up in a sandwich bag. On the cancer wards, the nurses administer chemotherapy and, long after the medicine stops working, something more important--which Watson learns to recognize when her own father is dying of cancer. In the pediatric intensive care unit, the nurses wash the hair of a little girl to remove the smell of smoke from the house fire. The emergency room is overcrowded as ever, with waves of alcohol and drug addicted patients as well as patients like Betty, a widow suffering chest pain, frail and alone. And the stories of the geriatric ward--Gladys and older patients like her--show the plight of the most vulnerable members of our society.

    For two years her mind was dark, but in the third year, her mind broke free, and she was able to think clearly and to hear and feel everything—but no one knew. When she was fifteen years old, against all odds and medical predictions, she was finally able to communicate through eye blinks, and she gradually regained her ability to speak and eat and move her upper body, but she faced the devastating reality of paralysis from the waist down because of damage to her spine. However, Victoria didn’t lose her strength or steadfast determination, and two years later, she won a gold medal for swimming at the London 2012 Paralympics. In Locked In, Victoria shares her never-before-published story—the pain, the struggle, the fight to live and thrive, and most importantly, the faith that carried her through. Her journey was not easy, but by believing in God’s healing power and forgiveness, she is living proof that, despite seemingly insurmountable odds and challenges, the will to survive and resolve to live can be a force stronger than our worst deterrents. Not many people get a second chance at life like Victoria has, and she made a promise to God that she would make every moment count.