What I Wish People Knew About Dementia


Wendy Mitchell - 2022
    Instead, it was the start of a very different one.Wise, practical and life affirming, What I Wish People Knew About Dementia combines anecdotes, research and Wendy Mitchell's own brilliant wit and wisdom to tell readers exactly what she wishes they knew about dementia.

The Sound of a Wild Snail Eating


Elisabeth Tova Bailey - 2010
    While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal.  Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.

Changing Normal: How I Helped My Husband Beat Cancer


Marilu Henner - 2016
    Within days of their first meeting in 2003, they were planning a life together, and soon they were inseparable as Michael became ever more integrated into Marilu’s family. But after only months they were thrown the ultimate curveball: Michael was diagnosed with bladder cancer, and then lung cancer. Marilu refused to lose the love of her life so easily. With the knowledge she had gained on her own health journey, chronicled in several of her bestselling books, Marilu set about finding a path for Michael that would use the best of Eastern and Western medicine to beat his cancers and return Michael to optimal health. Michael eschewed most traditional treatments and with Marilu’s help—aided by knowledgeable and sympathetic doctors—he forged his own path. In this moving and informative book, Marilu tells the story of their fast-paced romance and how this contrasted with the day-to-day battle for Michael’s life. Michael tells the story from his point of view: the search for the cause of his cancer, the mental anguish he felt as he realized how responsible he was for his condition, the physical and mental hardships that he had to overcome, and the triumph of love that made it all worthwhile. Not a “how-to” book in the traditional sense, Changing Normal is a book of empowerment, a call for all those facing similar challenges to take responsibility for their lives, to search for the causes of their illness and address them directly. Written with an engaging voice, a sense of humor, and life-changing wisdom, Changing Normal is a personal and touching look at how Marilu and Michael faced down a cancer diagnosis and came out the other side happier, healthier, and more in love than ever.

Teach Us to Sit Still: A Sceptic's Search for Health and Healing


Tim Parks - 2010
    John MacDowell's) quest to overcome ill health. Bedevilled by a crippling condition which nobody could explain or relieve, he confronts hard truths about the relationship between the mind and the body, the hectic modern world and his life as a writer.

The Undying


Anne Boyer - 2019
    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

Manic: A Memoir


Terri Cheney - 2008
    But behind her seemingly flawless façade lay a dangerous secret—for the better part of her life Cheney had been battling debilitating bipolar disorder and concealing a pharmacy's worth of prescriptions meant to stabilize her moods and make her "normal."In bursts of prose that mirror the devastating highs and extreme lows of her illness, Cheney describes her roller-coaster life with shocking honesty—from glamorous parties to a night in jail; from flying fourteen kites off the edge of a cliff in a thunderstorm to crying beneath her office desk; from electroshock therapy to a suicide attempt fueled by tequila and prescription painkillers.With Manic, Cheney gives voice to the unarticulated madness she endured. The clinical terms used to describe her illness were so inadequate that she chose to focus instead on her own experience, in her words, "on what bipolar disorder felt like inside my own body." Here the events unfold episodically, from mood to mood, the way she lived and remembers life. In this way the reader is able to viscerally experience the incredible speeding highs of mania and the crushing blows of depression, just as Cheney did. Manic does not simply explain bipolar disorder—it takes us in its grasp and does not let go.In the tradition of Darkness Visible and An Unquiet Mind, Manic is Girl, Interrupted with the girl all grown up. This harrowing yet hopeful book is more than just a searing insider's account of what it's really like to live with bipolar disorder. It is a testament to the sharp beauty of a life lived in extremes.

The Two Kinds of Decay


Sarah Manguso - 2008
    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

Better: A Surgeon's Notes on Performance


Atul Gawande - 2007
    But nowhere is this drive to do better more important than in medicine, where lives are on the line with every decision. In his new book, Atul Gawande explores how doctors strive to close the gap between best intentions and best performance in the face of obstacles that sometimes seem insurmountable. Gawande's gripping stories of diligence, ingenuity, and what it means to do right by people take us to battlefield surgical tents in Iraq, to labor and delivery rooms in Boston, to a polio outbreak in India, and to malpractice courtrooms around the country. He discusses the ethical dilemmas of doctors participation in lethal injections, examines the influence of money on modern medicine, and recounts the astoundingly contentious history of hand washing. And as in all his writing, Gawande gives us an inside look at his own life as a practicing surgeon, offering a searingly honest firsthand account of work in a field where mistakes are both unavoidable and unthinkable. At once unflinching and compassionate, Better is an exhilarating journey narrated by arguably the best nonfiction doctor-writer around (Salon). Gawande's investigation into medical professionals and how they progress from merely good to great provides rare insight into the elements of success, illuminating every area of human endeavor.

The Lunch-Box Chronicles: Notes from the Parenting Underground


Marion Winik - 1998
    . . ."   With the candor and often hilarious outlook that have made her a beloved commentator on NPR, Marion Winik takes the reader on an unforgettable journey through modern parenthood, with all of its attendant anxieties and joys.        A single mother with two small boys, Winik knows exactly what she's talking about, from battles over breakfast and bedtime to the virtues of pre-packaged food and weightier issues like sex education and sibling rivalry. Part memoir and part survival guide, The Lunch-Box Chronicles is an engaging philosophy of parenting from a staunch realist, who knows that kids and their parents both will inevitably fall far short of perfection, and that a "good enough mom" really is, in fact, good enough.

The World I Fell Out Of


Melanie Reid - 2019
    She was 52.Paralysed from the top of her chest down, she was to spend almost a full year in hospital, determinedly working towards gaining as much movement in her limbs as possible, and learning to navigate her way through a world that had previously been invisible to her.As a journalist Melanie had always turned to words and now, on a spinal ward peopled by an extraordinary array of individuals who were similarly at sea, she decided that writing would be her life-line. The World I Fell Out Of is an account of that year, and of those that followed. It is the untold ‘back story’ behind Melanie’s award-winning ‘Spinal Column’ in The Times Magazine and a testament to ‘the art of getting on with it’.Unflinchingly honest and beautifully observed, this is a memoir about the joy – and the risks – of riding horses, the complicated nature of heroism, the bonds of family and the comfort of strangers. Above all, The World I Fell Out Of is a reminder that at any moment the life we know can be turned upside down – and a plea to start appreciating what we have while we have it.

Climbing Higher


Montel Williams - 2004
    He was struck with denial, fear, depression, and anger, and now he's battling back. Graced with strong values, courage, and hard-won wisdom, he shares his insights in this powerful book on the divergent roads a life can take, and recounts how he rose to meet the challenges he's faced. Surprising, searing, and deeply personal, Climbing Higher is as honest and inspiring as its author.

What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics


Lara Parker - 2020
    But I was getting there. I wanted the world to know that all of this pain I had been feeling…that it was related to my vagina. Thus, Vagina Problems was born. It was a cutesy name. It was my way of taking this pain and saying, “Whatever. I’m here. I have it. It sucks. Let’s talk about it.”In April 2014, Deputy Editorial Director at BuzzFeed Lara Parker opened up to the world in an article on the website: she suffers from endometriosis. And beyond that? She let the whole world know that she wasn’t having any sex, as sex was excruciatingly painful. Less than a year before, she received not only the diagnosis of endometriosis, but also a diagnosis of pelvic floor dysfunction, vulvodynia, vaginismus, and vulvar vestibulitis. Combined, these debilitating conditions have wreaked havoc on her life, causing excruciating pain throughout her body since she was fourteen years old. These are her Vagina Problems. It was five years before Lara learned what was happening to her body. Five years of doctors insisting she just had “bad period cramps,” or implying her pain was psychological. Shamed and stigmatized, Lara fought back against a medical community biased against women and discovered that the ignorance of many doctors about women’s anatomy was damaging more than just her own life. One in ten women have endometriosis and it takes an average of seven years before they receive an accurate diagnosis—or any relief from this incurable illness’ chronic pain. With candid revelations about her vaginal physical therapy, dating as a straight woman without penetrative sex, coping with painful seizures while at the office, diet and wardrobe malfunctions when your vagina hurts all the time, and the depression and anxiety of feeling unloved, Lara tackles it all in Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics with courage, wit, love, and a determination to live her best life."

The Lady's Handbook for Her Mysterious Illness


Sarah Ramey - 2020
    Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.The Lady's Handbook for Her Mysterious Illness is a memoir with a mission, to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.Ramey's pursuit of a diagnosis and cure for her own mysterious illness is a medical mystery that she says reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connection to the state of our microbiomes.

Sick Girl


Amy Silverstein - 2007
    Amy chronicles her harrowing medical journey from the first misdiagnosis to her astonishing recovery after her heart transplant, which is made all the more dramatic by the romantic bedside courtship with her future husband, and her uncompromising desire to become a mother. She presents a patient's perspective of life after a heart transplant with honesty.