Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

    Your brain can't function. You are asked to make decisions about treatment almost immediately, when you are not in your right mind. And yet you pull yourself together and start asking questions. Beside you is your doctor, whose job it is to solve the awful puzzle of bone marrow gone wrong. The two of you are in it together. In When Blood Breaks Down, Mikkael Sekeres, a leading cancer specialist, takes readers on the journey that patient and doctor travel together.Sekeres, who writes regularly for the Well section of the New York Times, tells the compelling stories of three people who receive diagnoses of adult leukemia within hours of each other: Joan, a 48-year-old surgical nurse, a caregiver who becomes a patient; David, a 68-year-old former factory worker who bows to his family's wishes and pursues the most aggressive treatment; and Sarah, a 36-year-old pregnant woman who must decide whether to undergo chemotherapy and put her fetus at risk. We join the intimacy of the conversations Sekeres has with his patients, and watch as he teaches trainees. Along the way, Sekeres also explores leukemia in its different forms and the development of drugs to treat it--describing, among many other fascinating details, the invention of the bone marrow transplant (first performed experimentally on beagles) and a treatment that targets the genetics of leukemia.The lessons to be learned from leukemia, Sekeres shows, are not merely medical; they teach us about courage and grace and defying the odds.

    This is bad for patients, bad for doctors, and bad for business.In The Long Fix, physician and health care CEO Vivian S. Lee, MD, cuts to the heart of the health care crisis. The problem with the way medicine is practiced, she explains, is not so much who’s paying, it’s what we are paying for. Insurers, employers, the government, and individuals pay for every procedure, prescription, and lab test, whether or not it makes us better—and that is both backward and dangerous.Dr. Lee proposes turning the way we receive care completely inside out. When doctors, hospitals, and pharmaceutical companies are paid to keep people healthy, care improves and costs decrease. Lee shares inspiring examples of how this has been done, from physicians’ practices that prioritize preventative care, to hospitals that adapt lessons from manufacturing plants to make them safer, to health care organizations that share online how much care costs and how well each physician is caring for patients.Using clear and compelling language, Dr. Lee paints a picture that is both realistic and optimistic. It may not be a quick fix, but her concrete action plan for reform—for employers and other payers, patients, clinicians, and policy makers—can reinvent health care, and create a less costly, more efficient, and healthier system for all.

    Join the author as he takes you through his four years at Duke University Medical School. Relive the exhilarating, the strange, the uplifting, and the frightening experiences that taught him everything he learned in medical school...besides all the book stuff, of course.

    Why? Because without the power to make decisions about our own bodies, there is no democracy." —Gloria Steinem “Dr. Diana Greene Foster brings what is too often missing from the public debate around abortion: science, data, and the real-life experiences of people from diverse backgrounds…This should be required reading for every judge, member of Congress, and candidate for office—as well as anyone who hopes to better understand this complex and important issue.” —Cecile Richards, cofounder of Supermajority, former president of Planned Parenthood, and author of Make Trouble A groundbreaking and illuminating look at the state of abortion access in America and the first long-term study of the consequences—emotional, physical, financial, professional, personal, and psychological—of receiving versus being denied an abortion on women’s lives.What happens when a woman seeking an abortion is turned away? Diana Greene Foster, PhD, decided to find out. With a team of scientists—psychologists, epidemiologists, demographers, nursing scholars, and public health researchers—she set out to discover the effect of receiving versus being denied an abortion on women’s lives. Over the course of a ten-year investigation that began in 2007, she and her team followed a thousand women from more than twenty states, some of whom received their abortions, some of whom were turned away. Now, for the first time, the results of this landmark study—the largest of its kind to examine women’s experiences with abortion and unwanted pregnancy in the United States—have been gathered together in one place. Here Foster presents the emotional, physical, and socioeconomic outcomes for women who received their abortion and those who were denied. She analyzes the impact on their mental and physical health, their careers, their romantic lives, their professional aspirations, and even their existing and future children—and finds that women who received an abortion were almost always better off than women who were denied one. Interwoven with these findings are ten riveting first-person narratives by women who share their candid stories. As the debate about abortion rights intensifies, The Turnaway Study offers an in-depth examination of the real-world consequences for women of being denied abortions and provides evidence to refute the claim that abortion harms women. With brilliant synthesis and startling statistics—that thousands of American women are unable to access abortions; that 99% of women who receive an abortion do not regret it five years later—The Turnaway Study is a necessary and revelatory look at the impact of abortion access on people’s lives.

    Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!” It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story. With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant. A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.

    In this intimate portrait, acclaimed journalist Richard M. Cohen probes lives of sickness as these individuals struggle to cope.In 2003 Cohen published Blindsided, a bestselling memoir of illness. The outpouring of support revealed to him that not only does the public want to hear from people who overcome the challenges of illness, but that in the isolated world of illness, there are people who want their voices to be heard. Strong at the Broken Places was born of the desire of many to share their stories in the hope that the sick and those who love them will see that they are not alone.Cohen spent three years chronicling the lives of five diverse "citizens of sickness": Denise, who suffers from ALS; Buzz, whose Christian faith helps him deal with his non-Hodgkin's lymphoma; Sarah, a determined young woman with Crohn's disease; Ben, a college student with muscular dystrophy; Larry, whose bipolar disorder is hidden within. The five are different in age and gender, race and economic status, but they are determined to live life on their own terms. Intimately involved with these patients' lives, Cohen formed intense relationships with each, talked to their families and friends, and shared joy, even in heart-breaking setbacks.Though each individual's illness wreaks havoc in a different way, Cohen shows how their experiences are strikingly similar and offer lessons for us all—on self-determination, on courage in the face of adversity and public ignorance, on keeping hope alive, and on finding strength and peace under the most difficult of circumstances.We are strong at the broken places, stronger than we think. In sharing these inspirational and revealing stories, Richard M. Cohen and his fellow warriors against illness offer a chorus of hope.

    Explaining the truth behind the screening statistics and investigating the evidence behind the hype, Margaret McCartney, an award-winning writer and doctor, argues that this patient paradox - too much testing of well people and not enough care for the sick - worsens health inequalities and drains professionalism.

    Leslie Jamison deftly excavates the stories we tell about addiction--both her own and others'--and examines what we want these stories to do, and what happens when they fail us.All the while, she offers a fascinating look at the larger history of the recovery movement, and at the literary and artistic geniuses whose lives and works were shaped by alcoholism and substance dependence, including John Berryman, Jean Rhys, Raymond Carver, Billie Holiday, David Foster Wallace, and Denis Johnson, as well as brilliant figures lost to obscurity but newly illuminated here.For the power of her striking language and the sharpness of her piercing observations, Jamison has been compared to such iconic writers as Joan Didion and Susan Sontag. Yet her utterly singular voice also offers something new. With enormous empathy and wisdom, Jamison has given us nothing less than the story of addiction and recovery in America writ large, a definitive and revelatory account that will resonate for years to come.

    Her husband having died of heart disease, Martha Weinman Lear articulates her feelings toward the medical treatment, her personal strengths and weaknesses, and how she survived her own fears.

    Bell ruling made government sterilization of "undesirable" citizens the law of the land. New York Times bestselling author Adam Cohen tells the story in Imbeciles of one of the darkest moments in the American legal tradition: the Supreme Court's decision to champion eugenic sterilization for the greater good of the country. In 1927, when the nation was caught up in eugenic fervor, the justices allowed Virginia to sterilize Carrie Buck, a perfectly normal young woman, for being an "imbecile." It is a story with many villains, from the superintendent of the Dickensian Virginia Colony for Epileptics and Feebleminded who chose Carrie for sterilization to the former Missouri agriculture professor and Nazi sympathizer who was the nation's leading advocate for eugenic sterilization. But the most troubling actors of all were the eight Supreme Court justices who were in the majority--including William Howard Taft, the former president; Louis Brandeis, the legendary progressive; and Oliver Wendell Holmes, Jr., America's most esteemed justice, who wrote the decision urging the nation to embark on a program of mass eugenic sterilization

    It includes a concise, A-Z organization of the drugs, and includes information on 21 newly-approved drugs. More than 1,300 generic drugs and 4,500 trade names are included, as are over 800 new nursing guidelines.

    And what do they get for it? Statistically, not much. Americans today live shorter, less healthy lives than citizens of other rich countries, and these trends show no signs of letting up.The problem, Sandro Galea argues, is that Americans focus on the wrong things when they think about health. Our national understanding of what constitutes "being well" is centered on medicine -- the lifestyles we adopt to stay healthy, and the insurance plans and prescriptions we fall back on when we're not. While all these things are important, they've not proven to be the difference between healthy and unhealthy on the large scale.Well is a radical examination of the subtle and not-so-subtle factors that determine who gets to be healthy in America. Galea shows how the country's failing health is a product of American history and character -- and how refocusing on our national health can usher enlightenment across American life and politics.

    Born into an eccentric Ohio clan of modern hunter-gatherers, he grew up hearing voices in his head. Over a dizzying two decades, he was many things—teenage faith healer, world traveler, smuggler, liberation theologian, ladder-maker, squatter, halibut hanger, grifter, environmental warrior, and circus manager—all the while wrestling with schizophrenia and self-medication. From Baby Doc’s Haiti to the Czech Velvet Revolution, and from sex, drugs, and a stabbing to public humiliation by the leader of the free world, Monroe-Kane burns through his twenties and several bridges of youthful idealism before finally saying: enough. In a memoir that blends engaging charm with unflinching frankness, Monroe-Kane gives his testimony of mental illness, drug abuse, faith, and love. By the end of Lithium Jesus there may be a voice in your head, too, saying “Do more, be more, live more. And fear less.”

    In addressing a wide range of women’s choices—from using birth control to taking the morning-after pill, from adopting a child to putting a child up for adoption, from having an abortion to bringing a pregnancy to full term—Choice explores the complexities inherent in every reproductive decision.Including twenty-four honest, heartrending essays from established writers such as Francine Prose, Jacquelyn Mitchard, Pam Houston, Ann Hood, and Sarah Messer and emerging talents such as Kimi Faxon Hemingway, Stephanie Anderson, and Ashley Talley, Choice will allow you to truly understand the meaning of the word “choice”—regardless of what side of the debate you stand on.