The Spark: A Mother's Story of Nurturing Genius
Kristine Barnett - 2013
At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.
Asperger Syndrome and Difficult Moments: Practical Solutions for Tantrums
Brenda Smith Myles - 1999
The book discusses clearly and concisely how to deal with tantrums, meltdowns and difficult behaviour from children and young people with Asperger Syndrome, looking in particular at the role of antecedent behaviours, which signal the beginning of a meltdown, as identified through functional assessment. Topics covered include:* the characteristics of Asperger Syndrome and their impact on behaviour* stages of the meltdown cycle* the role of antecedent behaviours* functional assessment* strategies promoting social skills development, including self-awareness, self-calming and self-management* solutions for parents, including organization and support, and daily routines.The book's main focus is on the various stages of the meltdown cycle and functional analysis as a means of determining why behaviours occur. This is followed by a set of practical strategies that promote social skills development, including self-awareness, self-calming and self-management. The book concludes with a chapter written specifically for parents, which offers concrete and easy-to-follow steps for developing a home plan that addresses agreement on the causes of problem behaviours, family organization and support, the LASTING word and designing a daily routine. Accompanying the clear and user-friendly writing style are a number of helpful reporting forms and other instruments that may be used by schools and parents as they work to reduce or eliminate such behaviour in children and young people with Asperger Syndrome.
In a Different Key: The Story of Autism
John Donvan - 2016
Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<
The Child With Special Needs: Encouraging Intellectual and Emotional Growth
Stanley I. Greenspan - 1998
In this essential work they lay out a complete, step-by-step approach for parents, educators, and others who work with developmental problems. Covering all kinds of disabilities--including autism, PPD, language and speech problems, Down syndrome, cerebral palsy, and ADD--the authors offer a new understanding of the nature of these challenges and also specific ways of helping children extend their intellectual and emotional potential.The authors first show how to move beyond labels to observe the unique profile--strengths and problems--of the individual child. Next, they demonstrate the techniques necessary to help the child not only reach key milestones but also develop new emotional and intellectual capacities. Greenspan's well-known ?floortime? approach enables parents, as well as clinicians, to use seemingly playful interactions that help children actually move up the development ladder and often master creative and abstract thinking formerly thought beyond their reach. Including vivid case histories, the book also offers deep and compassionate understanding of the stresses and rewards involved in raising a child with special needs.whose amazing work with autistic and other special needs children is nationally known, and his colleague, child psychologist Serena Wieder, have integrated a lifetime of research and clinical practice into a single, comprehensive guide for parents. Covering all kinds of disabilities--including cerebral palsy, autism, retardation, ADD, PDD, and language problems--the book offers specific ways of helping all children reach their full intellectual and emotional potential.First the authors show how to move beyond the label and observe the strengths and problems of the particular child and the key milestones that must be reached. Next, they move step by step through the techniques necessary to help the child reach these milestones and show how to tailor these to each child. Finally, with a deep and compassionate understanding they outline the marital, educational, and social stresses and rewards in raising a special needs child.
Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues
Lindsey Biel - 2009
Sensory integration dysfunction, also known as sensory processing disorder, affects all kinds of children-from those with developmental delays, attention problems, or autism spectrum disorders, to those without any other issues. Coauthored by a pediatric occupational therapist and a parent of a child with sensory issues, this updated and expanded edition of Raising a Sensory Smart Child is comprehensive and more helpful than ever. Learn: *How the senses actually work and integrate with each other *How and where to get the very best professional help *"Sensory diet" activities that meet your child's needs--including new tips and ideas for kids, teens, adults, and families *Practical solutions for daily challenges-from brushing teeth to getting dressed to picky eating to family gatherings *Using "sensory smarts" to help children with developmental delays, learning, and attention problems *The special challenges of helping children with autism and sensory issues * Ways to advocate for your child at school and make schools "sensory smart" *How to empower your child and teen in the world *Complementary therapies, resources, and helpful web sites In all, the most comprehensive guide to sensory processing challenges is now more detailed and useful than ever. Loved and celebrated by parents, teachers, therapists, doctors and others, the new edition of Raising a Sensory Smart Child is a must-have volume for anyone who cares about a child with sensory issues. ***WINNER of the NAPPA GOLD AWARD and iPARENTING MEDIA AWARD***
The Elephant in the Playroom: Ordinary Parents Write Intimately and Honestly about the Extraordinary Highs and Heartbreaking Lows of Raising Kids with Special Needs
Denise Brodey - 2007
As she struggled to make sense of her new, often chaotic, often lonely world, what she found comforted her "most" was talking with other harried, hopeful, and insightful parents of kids with special needs, learning how they coped with the feelings they encountered throughout the day.In "The Elephant in the Playroom," moms and dads write intimately and honestly about the joyful highs and disordered lows of raising children who are ?not quite normal.? Laying bare the emotional, medical, and social challenges they face, their stories address issues ranging from if and when to medicate a child, to how to get a child who is overly sensitive to the texture of food to eat lunch. Eloquent and honest, the voices in this collection will provide solace and support for the millions of parents whose kids struggle with #ADHD, #sensory disorders, childhood #depression, Asperger's syndrome, and autism?as well as the many kids who fall between diagnoses.Offering readers comfort, community, and much-needed perspective, "The Elephant in the Playroom" has become essential reading for parents of special needs kids.
Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-Teen and Teenage Years
Shana Nichols - 2008
This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and "fitting in".1000Guide on what to expect and how to help girls on the spectrum as they grow up0600The authors unflinchingly address the most challenging issues of girls and puberty with grace and matter-of-fact discussions of pelvic exams, periods, eating disorders, healthy sexuality, and self-perception. The discussions range from choosing undergarments to the difference in boys' and girls' aggression in adolescence. Full of hints from other parents, research results, and suggestions from professionals, this book is an essential guide to adolescence for parents of girls on the spectrum (and it's also great for parents of boys!).the Spectrum, The Newsletter of The Autism Society of North Carolina, US0600This book provides a valuable insight into the concerns commonly faced by girls with Autism Spectrum Disorders (ASDs), and their parents. It offers advice and coping strategies on a host of areas, including approaching adolescence, navigating puberty, self-perception and self-confidence, understanding friendships, looking at healthy sexuality, promoting personal safety and many more...The book has a warm and engaging reading style, and the may case studies of experiences from families, daughters and educators provide brave testimonies and excellent recommendations for support; a useful reference list is also provided. This book is a must have read for those interested in helping females on the autistic spectrum.Youth in Mind0600It gives me great pleasure to introduce ASQ readers to this terrific book!...Girls Growing Up on the Autism Spectrum is an A+ read!Liane Holliday Willey, EdD, Autism Spectrum Quarterly0600This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book - it is a must-have for families, teachers and therapists alike.Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome0600The authors tackle an important and sensitive issue for young people with ASC. The information presented is based in research and presented clearly in a most usable format. I would not hesitate to recommend this book to young people (it might even help a few boys!) with ASC and their parents.E. Veronica Bliss, psychologist and Director of Missing Link Support Services, Ltd0600Shana Nichols, Gina Marie Moravcik, and Samara Pulver Tetenbaum provide solid, specific advice on teen issues - social life, changing bodies, friendships, diet and nutrition, self-reliance, anxiety, and more. This is an excellent beginning, with resources listed (books, articles, Web sites, blogs) in every chapter and short case studies that break up the text throughout. The authors tackle the bigger issues of socialization and friendships, plus the nitty-gritty of raising an adolescent girl - periods, ob-gyn exams, weight, privacy, and hygiene.ForeWord0600There's really only one way to say this: If you have a daughter anywhere on the autism spectrum, or even with unexplainable quirky behaviour, this book is a must. While there are hundreds of good books about autism, girls have their own unique issues when it comes to this puzzling disorder. Dr. Nichols' book is a standout. Addressing girls on their own, and in such an insightful, scholarly and reader-friendly way, what 'Girls...' has done is invaluable. You'll be shocked at how easy it is to have a girl on the spectrum misdiagnosed or not therapeutically treated correctly, but you're not left on your own. Nichols provides great counsel. 'Girls...' offers not only important information about the child, but it also provides necessary strategies for parents (and medical professionals) to help improve the child's life, and not a single subject goes untouched. The teen years are tough enough for any girl, but for one who has spectrum challenges, it can be devastating. Nichols, the clinical director of the Fay J. Lindner Center for Autism and Developmental Disorders, provides expert advice that is practical and necessary, on topics ranging from cognitive concerns and everyday behaviours to sexuality and just fitting in, which for a teenaged girl can be the most important issue of all--on the spectrum or not. Nichols draws from many wells here - vast research, conversations and interviews with parents, teachers and medical experts, and most importantly, these young girls. This is one of those hallelujah books for which parents search high and low.Long Island Press0600Rather than constructing a "how-to" book, in which pre-planned lessons have been created focusing on puberty or sexuality issues, the authors provide a broad conceptual treatment of the relevant sociological and cultural issues. That is, not only do they address the social, communication, and behavioural vulnerabilities that these girls may display, but they place these vulnerabilities in the context of a girl's social world. From this vantage point, the authors describe concrete steps and processes which may be useful for working with girls on the spectrum to help them cope with the issues they confront as they mature...This volume continually reminds the reader to think about the challenges typically developing girls and young women face throughout the pre-teen and teenage years as the context for their understanding of a girl with an ASD.Journal of Autism and Developmental Disorders0200This book covers the concerns faced by girls with ASDs and their parents, from periods and puberty to friendships and "fitting in". Looking at these issues within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help the whole family through the teenage years.0400Foreword. Acknowledgements. Author’s Notes. 1. What Do We Currently Know About Girls and Women with Autism Spectrum Disorders? 2. Approaching Adolescence: Anticipation, Anxiety, Adaptation and Acceptance? 3. Puberty or ‘Do My Parents Know You’re Here?’ 4. The Red Spot: Periods, Pads and Pelvic Exams. 5. Feeling Good Inside and Out: Self-perception and Self-confidence. 6. The Social Landscape of Adolescence: Friendships and Social Status. 7. Healthy Sexuality for Girls with ASDs. 8. Keeping Girls Safe: Promoting Personal Safety in the Real World. 9. Our Journey: A Mother and her Daughter with Asperger's Syndrome. Conclusion: Embracing Change. References. Index.01000301http://www.biblioimages.com/jkp/getim...
Shut Up About...Your Perfect Kid!
Gina Gallagher - 2007
Narrated by two "imperfect" sisters with "special" children, the book features a collection of entertaining and heartwarming stories from parents of children with a wide range of disabilities. It will have any parent laughing out loud and viewing the positive side of raising an "imperfect" child with humorous chapters like:
Us vs. Them battle: "It's hard to hear about how good their kid is on the baseball field, when yours would rather catch real flies."
Medication: "We've met parents who feel guilty for putting their kids on meds for not putting their kids on meds even for taking their kids' meds. ("That Ritalin really helped; you should have seen me organize those closets.")
Food: "Yes, my daughter would like a Happy Meal. Just hold the meal and she'll be happy."
Marriage: "You can remember the name of Beaver Cleaver's first grade teacher, but you can't remember the name of your child's disability?"
Sports: "Do we have to follow the ball Mom? It's more fun following a bee!"
Everyday life: "Sorry I missed the bus Mom; I was practicing funny faces in the mirror."
Ethics for Behavior Analysts
Jon S. Bailey - 2005
Specifically, this book is useful to behavior analysts who are working in the clinical, educational, and rehabilitative fields with clients who are developmentally disabled, are on the autistic spectrum, or have a variety of moderate to severe behavior problems that require treatment by experts using the latest evidence-based methods. The content is organized around the Behavior Analyst Certification Board Guidelines, and contains detailed ethical scenarios designed to get readers thinking about potential issues and dilemmas that may arise within their work. Responses to Case Scenarios are found at the end of each appropriate chapter, along with valuable tips found throughout the text.
Neurodiversity: Discovering the Extraordinary Gifts of Autism, ADHD, Dyslexia, and Other Brain Differences
Thomas Armstrong - 2010
ADHD. Dyslexia. Autism. The number of categories of illnesses listed by the American Psychiatric Association has tripled in the past fifty years. With so many people affected by our growing “culture of disabilities,” it no longer makes sense to hold on to the deficit-ridden idea of neuropsychological illness.With the sensibility of Oliver Sacks and Kay Redfield Jamison, psychologist Thomas Armstrong offers a revolutionary perspective that reframes many neuropsychological disorders as part of the natural diversity of the human brain rather than as definitive illnesses. Neurodiversity emphasizes their positive dimensions, showing how people with ADHD, bipolar disorder, and other conditions have inherent evolutionary advantages that, matched with the appropriate environment or ecological niche, can help them achieve dignity and wholeness in their lives.
More Than Words: Helping Parents Promote Communication and Social Skills in Children with Autism Spectrum Disorder
Fern Sussman - 1999
Strategies are drawn from current research to help children develop more advanced communication skills, focusing on helping the child reach the following four goals: 1) improved two-way interaction, 2) more mature and conventional ways of communication, 3) better skills in communicating for social purposes and finally, 4) improved understanding of language. Wonderfully illustrated and with chapters divided into four color-coded stages of communication, this book was developed for The Hanen Program For Parents of Children with Autism Spectrum Disorder. Highlights Of More Than Words: - How your child communicates and the next steps to take - How your child learns best - What motivates your child to communicate - How to turn everyday activities into opportunities for learning to communicate - How to use pictures and print to help your child's understanding - How to talk so your child can understand you - How to develop your child's play skills - Why your child behaves in certain ways and what you can do about these behaviours - How to help your child make friends
Simply Classical: A Beautiful Education for any Child
Cheryl Swope - 2013
Cheryl is an advocate of classical Christian education for special-needs students. The love of history, music, literature, and Latin instilled in her own children has created in Cheryl the desire to share the message that classical education offers benefits to any child.- Increase your child's academic success- Restore your child's love of learning- Regain confidence to teach any child- Renew your vision of hope for your special-needs child- Receive help navigating the daunting process of receiving a diagnosis- Learn how to modify existing resources for your child's needs- Find simple stategies any parent or teacher can implement immediately- Appreciate a spiritual context for bringing truth, goodness, and beauty to any child
Send in the Idiots: Stories from the Other Side of Autism
Kamran Nazeer - 2006
In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.
Be Different: Adventures of a Free-Range Aspergian
John Elder Robison - 2011
This book will help you bring out those gifts.” In his bestselling memoir, Look Me in the Eye, John Elder Robison described growing up with Asperger’s syndrome at a time when the diagnosis didn’t exist. He was intelligent but socially isolated; his talents won him jobs with toy makers and rock bands but did little to endear him to authority figures and classmates, who were put off by his inclination to blurt out non sequiturs and avoid eye contact.By the time he was diagnosed at age forty, John had already developed a myriad of coping strategies that helped him achieve a seemingly normal, even highly successful, life. In Be Different, Robison shares a new batch of endearing stories about his childhood, adolescence, and young adult years, giving the reader a rare window into the Aspergian mind.In each story, he offers practical advice—for Aspergians and indeed for anyone who feels “different”—on how to improve the weak communication and social skills that keep so many people from taking full advantage of their often remarkable gifts. With his trademark honesty and unapologetic eccentricity, Robison addresses questions like:• How to read others and follow their behaviors when in uncertain social situations• Why manners matter• How to harness your powers of concentration to master difficult skills• How to deal with bullies• When to make an effort to fit in, and when to embrace eccentricity• How to identify special gifts and use them to your advantageEvery person, Aspergian or not, has something unique to offer the world, and every person has the capacity to create strong, loving bonds with their friends and family. Be Different will help readers and those they love find their path to success.
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence
Luke Jackson - 2002
Over the years Luke has learned to laugh at such names but there are other aspects of life which are more difficult. Adolescence and the teenage years are a minefield of emotions, transitions and decisions and when a child has Asperger Syndrome, the result is often explosive. Luke has three sisters and one brother in various stages of their adolescent and teenage years but he is acutely aware of just how different he is and how little information is available for adolescents like himself. Drawing from his own experiences and gaining information from his teenage brother and sisters, he wrote this enlightening, honest and witty book in an attempt to address difficult topics such as bullying, friendships, when and how to tell others about AS, school problems, dating and relationships, and morality. Luke writes briefly about his younger autistic and AD/HD brothers, providing amusing insights into the antics of his younger years and advice for parents, carers and teachers of younger AS children. However, his main reason for writing was because "so many books are written about us, but none are written directly to adolescents with Asperger Syndrome. I thought I would write one in the hope that we could all learn together."