Book picks similar to
I Wish I Were Engulfed in Flames: My Insane Life Raising Two Boys with Autism by Jeni Decker
non-fiction
memoir
memoirs
autism
Rosemary: The Hidden Kennedy Daughter
Kate Clifford Larson - 2015
The daughter they secreted away made all the difference.Joe and Rose Kennedy’s strikingly beautiful daughter Rosemary attended exclusive schools, was presented as a debutante to the Queen of England, and traveled the world with her high-spirited sisters. And yet, Rosemary was intellectually disabled — a secret fiercely guarded by her powerful and glamorous family. Major new sources — Rose Kennedy’s diaries and correspondence, school and doctors' letters, and exclusive family interviews — bring Rosemary alive as a girl adored but left far behind by her competitive siblings. Kate Larson reveals both the sensitive care Rose and Joe gave to Rosemary and then — as the family’s standing reached an apex — the often desperate and duplicitous arrangements the Kennedys made to keep her away from home as she became increasingly intractable in her early twenties. Finally, Larson illuminates Joe’s decision to have Rosemary lobotomized at age twenty-three, and the family's complicity in keeping the secret. Rosemary delivers a profoundly moving coda: JFK visited Rosemary for the first time while campaigning in the Midwest; she had been living isolated in a Wisconsin institution for nearly twenty years. Only then did the siblings understand what had happened to Rosemary and bring her home for loving family visits. It was a reckoning that inspired them to direct attention to the plight of the disabled, transforming the lives of millions.
The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
Ian Brown - 2009
At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.
As Nature Made Him: The Boy Who Was Raised as a Girl
John Colapinto - 2000
The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.
I Am Intelligent: From Heartbreak to Healing--A Mother and Daughter's Journey Through Autism
Peyton Goddard - 2012
Robbed of speech and bodily control, and despite her loving parents' best efforts to help her, Peyton Goddard suffered neglect and ongoing abuse by many who dismissed her as autistic and severely mentally retarded. Peyton's violent outbursts and bizarre, self-destructive behavior left her parents terrified at the prospect of having to institutionalize their daughter. No one could have imagined that she possessed a brilliant mind in her uncooperative body until her first opportunity to communicate electronically at age 22 when she typed "I AM INTLGENT," a breakthrough reminiscent of "The Miracle Worker." After two decades, mother and daughter are finally able to communicate, and Peyton goes on to graduate valedictorian from college. Her story challenges assumptions that any child, regardless of competence, can be less of a human being. Today Peyton is following through on her vow to be an advocate on behalf of other devalued people. Her inspirational life helps readers transcend stereotypes and join her in the radical notion that, as she says, "All people are vastly valuable. Treasure all because great is each."
Send in the Idiots: Stories from the Other Side of Autism
Kamran Nazeer - 2006
In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.
The Bassoon King: My Life in Art, Faith, and Idiocy
Rainn Wilson - 2015
For nine seasons Rainn Wilson played Dwight Schrute, everyone's favorite work nemesis and beet farmer. Viewers of The Office fell in love with the character and grew to love the actor who played him even more. Rainn founded a website and media company, SoulPancake, that eventually became a bestselling book of the same name. He also started a hilarious Twitter feed (sample tweet: “I'm not on Facebook” is the new “I don't even own a TV”) that now has more than four million followers. Now, he's ready to tell his own story and explain how he came up with his incredibly unique sense of humor and perspective on life. He explains how he grew up “bone-numbingly nerdy before there was even a modicum of cool attached to the word.” The Bassoon King chronicles his journey from nerd to drama geek (“the highest rung on the vast, pimply ladder of high school losers”), his years of mild debauchery and struggles as a young actor in New York, his many adventures and insights about The Office, and finally, Wilson's achievement of success and satisfaction, both in his career and spiritually, reconnecting with the artistic and creative values of the Bahá’í faith he grew up in.
What Color is Monday? How Autism Changed One Family for the Better
Carrie Cariello - 2013
“What?” I said distractedly, turning from the oven to slice some potatoes at the counter. It was late afternoon, and I was preparing dinner while also managing the demands of homework and tired toddlers. “Do you see days as colors?”Raising five children would be challenge enough for most parents, but when one of them has been diagnosed with Autism Spectrum Disorder, the adventures become even more fascinating. In this moving--and often funny--memoir, author Carrie Cariello invites us to take a peek into exactly what it takes to get through each day with four boys and one girl, and shows us the beauty and wonder of a child who views the world through a different lens.
The Commitment: Love, Sex, Marriage, and My Family
Dan Savage - 2005
Dan Savage's mother wants him to get married. His boyfriend, Terry, says "no thanks" because he doesn't want to act like a straight person. Their six-year-old son DJ says his two dads aren't "allowed" to get married, but that he'd like to come to the reception and eat cake. Throw into the mix Dan's straight siblings, whose varied choices form a microcosm of how Americans are approaching marriage these days, and you get a rollicking family memoir that will have everyone-gay or straight, right or left, single or married-howling with laughter and rethinking their notions of marriage and all it entails. BACKCOVER: "Hilarious, heartfelt." -Seattle Post-Intelligencer "As funny as David Sedaris's essay collections, but bawdier and more thought-provoking." -Publisher's Weekly (starred review) "Most of all, a book about creating and appreciating family." -Seattle Times "I think America would be a better place if everyone on every side of the gay marriage debate would read this book." -Ira Glass, host of the public radio show This American Life "The strongest argument here, which [Savage] brilliantly plays down, is that family means everything to these people: married, not married, blended, gay, straight, whatever." -The Washington Post
Laughing at My Nightmare
Shane Burcaw - 2014
From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease.
Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic
Martha N. Beck - 1999
This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune
I'm Just a Person
Tig Notaro - 2016
Hit with this devastating barrage, Tig took her grief onstage. Days after receiving her cancer diagnosis, she broke new comedic ground, opening an unvarnished set with the words, “Good evening. Hello. I have cancer. How are you? Hi, how are you? Is everybody having a good time? I have cancer.” Word of the set went viral instantly. This set was ultimately released as Tig’s sophomore album, Live, which sold 100,000 units in just six weeks and was nominated for a Grammy. Now, the wildly popular star takes stock of that no good, very bad year—a difficult yet astonishing period in which tragedy turned into absurdity and despair into joy. An inspired combination of the deadpan silliness of her comedy and the open-hearted vulnerability that has emerged in the wake of that dire time, Untitled is a moving and often hilarious look at this very brave, very funny woman’s journey through the darkness and her thrilling return.
Dry
Augusten Burroughs - 2003
You've seen him on the street, in bars, on the subway, at restaurants: a twenty-something guy, nice suit, works in advertising. Regular. Ordinary. But when the ordinary person had two drinks, Augusten was circling the drain by having twelve; when the ordinary person went home at midnight, Augusten never went home at all. Loud, distracting ties, automated wake-up calls, and cologne on the tongue could only hide so much for so long. At the request (well, it wasn't really a request) of his employers, Augusten landed in rehab, where his dreams of group therapy with Robert Downey, Jr., are immediately dashed by the grim reality of fluorescent lighting and paper hospital slippers. But when Augusten is forced to examine himself, something actually starts to click, and that's when he finds himself in the worst trouble of all. Because when his thirty days are up, he has to return to his same drunken Manhattan life and live it sober. What follows is a memoir that's as moving as it is funny, as heartbreaking as it is real.
Ali in Wonderland: And Other Tall Tales
Ali Wentworth - 2012
Chelsea Handler, 1.5 oz. Nora Ephron, finish with a twist of Tina Fey, and you get Ali in Wonderland, the uproarious, revealing, and heartfelt memoir from acclaimed actress and comedian Ali Wentworth. Whether spilling secrets about her quintessentially WASPy upbringing (and her delicious rebellion against it), reminiscing about her Seinfeld “Schmoopie” days and her appearances on The Oprah Winfrey Show, The View, and The Tonight Show with Jay Leno, or baring the details of starting a family alongside husband George Stephanopoulos, one thing is for sure—Ali has the unsurpassable humor and warmth of a born storyteller with a story to tell: the quirky, flavorful, surprising, and sometimes scandalous Ali in Wonderland.“Ali Wentworth is funny and warm and crazy all at once. Like Barbara Eden. But on something. Like crystal meth.” —Alec Baldwin
A Friend Like Henry: The Touching True Story of an Autistic Boy and His Dog
Nuala Gardner - 2007
Dale was still a baby when his parents realised that something wasn't right. Worried, his mother Nuala took him to see several doctors, before finally hearing the word 'autism' for the first time in a specialist's office. Scared but determined that Dale should live a fulfilling life, Nuala describes her despairat her son's condition, her struggle to prevent Dale being excluded from a 'normal' education and her sense of hopeless isolation. Dale's autism was severe and violent and family life was a daily battleground. But the Gardner's lives were transformed when they welcomed a gorgeous Golden Retriever into the family. The special bond between Dale and his dog Henry helped them to produce the breakthrough in Dale they had long sought. From taking a bath to saying 'I love you', Henry helped introduce Dale to all the normal activities most parents take for granted, and set him on the road to being the charming and well-adjusted young man he is today. This is a heartrending and fascinating account of how one devoted and talented dog helped a little boy conquer his autism.
Beautiful Boy: A Father's Journey Through His Son's Addiction
David Sheff - 2007
Before Nic became addicted to crystal meth, he was a charming boy, joyous and funny, a varsity athlete and honor student adored by his two younger siblings. After meth, he was a trembling wraith who lied, stole, and lived on the streets. David Sheff traces the first warning signs: the denial, the three a.m. phone calls—is it Nic? the police? the hospital? His preoccupation with Nic became an addiction in itself. But as a journalist, he instinctively researched every treatment that might save his son. And he refused to give up on Nic.