Babies with Down Syndrome: A New Parents' Guide


Susan Skallerup - 2008
    Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.

Autism Every Day: Over 150 Strategies Lived and Learned by a Professional Autism Consultant with 3 Sons on the Spectrum


Alyson Beytien - 2011
    Autism consultant Alyson Beytien outlines over 150 tried-and-true techniques for home, school, and community. Alyson’s three boys cover the whole spectrum of autism—Asperger’s syndrome, high-functioning autism, and classic autism. She understands the wide range of needs these children have and has discovered what helps and what hinders. Covering a full gamut of issues—from picky-eating and echolalia to IEPs and “The Woes of Walmart”—Alyson’s ideas and interventions will inspire and inform all those who are connected to a person with autism. Alyson believes that each day brings more opportunities to learn, problem-solve, and celebrate the joys that children with autism bring to our world—after all, today’s crisis is tomorrow’s humor. Her family’s motto will soon become your everyday mantra:  “Improvise and Overcome!”

Shut Up About...Your Perfect Kid!


Gina Gallagher - 2007
    Narrated by two "imperfect" sisters with "special" children, the book features a collection of entertaining and heartwarming stories from parents of children with a wide range of disabilities. It will have any parent laughing out loud and viewing the positive side of raising an "imperfect" child with humorous chapters like: Us vs. Them battle: "It's hard to hear about how good their kid is on the baseball field, when yours would rather catch real flies." Medication: "We've met parents who feel guilty for putting their kids on meds for not putting their kids on meds even for taking their kids' meds. ("That Ritalin really helped; you should have seen me organize those closets.") Food: "Yes, my daughter would like a Happy Meal. Just hold the meal and she'll be happy." Marriage: "You can remember the name of Beaver Cleaver's first grade teacher, but you can't remember the name of your child's disability?" Sports: "Do we have to follow the ball Mom? It's more fun following a bee!" Everyday life: "Sorry I missed the bus Mom; I was practicing funny faces in the mirror."

12 Principles for Raising a Child with ADHD


Russell A. Barkley - 2020
    Barkley has become a leading authority on attention-deficit/hyperactivity disorder (ADHD) in kids and teens. He has learned what a huge difference parents can make in supporting their children's success--as well as how overwhelming it can be. This concise guide presents 12 key parenting principles for dealing with common behavioral, emotional, and school challenges. By cultivating a mindset of acceptance and compassion--together with an understanding of the executive function deficits of ADHD--you can strengthen your loving connection with your child and help your whole family thrive. Filled with practical suggestions and quick-reference lists and tips, this is the perfect book to read cover to cover or pick up any time you need extra support.

Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond But Don't React Method


David Stein - 2016
    Another bolts across a busy parking lot, turns and smiles at his mom. An eighteen-year-old student bursts into tears when asked to change activities at school. Sound familiar? These and other common behavior issues in children with Down syndrome can quickly become engrained and may even persist into adulthood. No parent wants that to happen, and thankfully, help is available! Dr. David Stein, a psychologist and Co-Director of the Down Syndrome Program at Boston Children's Hospital, shares his approach to behavior management in this new book for parents. Supporting Positive Behavior in Children and Teens with Down Syndrome examines how the brain of a person with Down syndrome works, how those differences impact behavior, and why bad behavior should not be viewed as a willful act. Governed by this new awareness, parents are in a better position to change and manage their child's behavior using these guiding principles: [[Be proactive, not reactive [[Be consistent [[Use visual schedules & Social Stories to direct behavior [[Develop a token reward chart [[Keep gut reactions in check [[Teach siblings to ignore bad behavior [[Learn effective disciplinary techniques [[Know when professional help is needed Some of these parenting concepts are intuitive, others are not, but when they are followed consistently, children and teens with Down syndrome do their best behaviorally and the parent-child relationship remains as positive and loving as it should be.

Children With Starving Brains: A Medical Treatment Guide for Autism Spectrum Disorder


Jaquelyn McCandless - 2002
    Genetic susceptibility activated by "triggers" such as pesticides and heavy metals in vaccines can lead to immune system impairment, gut dysfunction, and pathogen invasion such as yeast and viruses in many children. This is the first book written by an experienced clinician that gives a step-by-step treatment guide for parents and doctors based on the understanding that ASD is a complex biomedical illness resulting in significant brain malnutrition. Dr. McCandless, whose grandchild with autism has inspired her "broad spectrum approach," describes important diagnostic tools needed to select appropriate treatment programs. Her book explains major therapies newly available and identifies safe and effective options for parents and physicians working together to improve the health of these special children.Author Biography: Jacquelyn McCandless received her M.D. from the University of Illinois College of Medicine and is certified as a Diplomate of the American Board of Psychiatry and Neurology. Since the early 1990s, her interest in women's issues and sexuality has led to an alternative medicine practice with a focus on anti-aging, brain nutrition, and natural hormone therapy. In 1996, after her granddaughter was diagnosed with autism, she returned even more to basic medicine and began working with biomedical aspects of developmentally delayed children. She now utilizes the knowledge she gained searching for treatments for her grandchild to help other ASD children.

Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders


Diane Malbin - 2002
    

Just Take a Bite: Easy, Effective Answers to Food Aversions and Eating Challenges!


Lori Ernsperger - 2004
    Learn the possible causes, when you need professional help, and how to deal with the behavior at home. Learn why Don't play with your food! and Clean your plate! - along with many other old saws - are just plain wrong. And who said you have to eat dessert last? Get ready to have some stereotypes shattered! Helpful chapters include: Who Are Resistant eaters? Oral-Motor Development Environmental and Behavioral Factors Contributing to Problems with Eating Sensory-Based and Motor-Based Problems Affecting the Resistant Eater Motor-Based Eating Problems vs. Sensory-Based Eating Problems Designing and Implementing a Comprehensive Treatment Plan Environmental Controls Gastrointestinal, Physical and Oral-Motor Development Stages of Sensory Development for Eating A Recipe for Success

Parenting Your Asperger Child: Individualized Solutions for Teaching Your Child Practical Skills


Alan Sohn - 2005
    Alan Sohn's and Cathy Grayson's groundbreaking Cognitive Social Integration Therapy (CSIT) offers practical solutions that help parents prepare their children for a fulfilling life of social interaction outside the confines of their syndrome, addressing such topics as:- The six characteristics of Asperger's Syndrome- How to identify a child's type of Asperger's--and the best approaches for dealing with it- Understanding how an Asperger's child sees and interprets the world- Replacing inappropriate coping techniques with productive skills- How to survive and learn from a crisis- How school programs can aid in teaching Asperger children - Making changes that last

Girls Growing Up on the Autism Spectrum: What Parents and Professionals Should Know About the Pre-Teen and Teenage Years


Shana Nichols - 2008
    This book covers all the concerns commonly faced by girls with ASDs and their parents, from periods and puberty to worries over friendships and "fitting in".1000Guide on what to expect and how to help girls on the spectrum as they grow up0600The authors unflinchingly address the most challenging issues of girls and puberty with grace and matter-of-fact discussions of pelvic exams, periods, eating disorders, healthy sexuality, and self-perception. The discussions range from choosing undergarments to the difference in boys' and girls' aggression in adolescence. Full of hints from other parents, research results, and suggestions from professionals, this book is an essential guide to adolescence for parents of girls on the spectrum (and it's also great for parents of boys!).the Spectrum, The Newsletter of The Autism Society of North Carolina, US0600This book provides a valuable insight into the concerns commonly faced by girls with Autism Spectrum Disorders (ASDs), and their parents. It offers advice and coping strategies on a host of areas, including approaching adolescence, navigating puberty, self-perception and self-confidence, understanding friendships, looking at healthy sexuality, promoting personal safety and many more...The book has a warm and engaging reading style, and the may case studies of experiences from families, daughters and educators provide brave testimonies and excellent recommendations for support; a useful reference list is also provided. This book is a must have read for those interested in helping females on the autistic spectrum.Youth in Mind0600It gives me great pleasure to introduce ASQ readers to this terrific book!...Girls Growing Up on the Autism Spectrum is an A+ read!Liane Holliday Willey, EdD, Autism Spectrum Quarterly0600This book is not only reassuring; it is inspiring, and bursting with ideas and achievable strategies. The authors write with authority and conviction, and tackle even the most difficult and delicate of topics. If ever you needed to be convinced that girls with ASD can overcome the difficulties and challenges of puberty and adolescence, have successful friendships and relationships and enjoy a healthy sexuality, then take the time to read this book - it is a must-have for families, teachers and therapists alike.Sarah Attwood, author of Making Sense of Sex: A Forthright Guide to Puberty, Sex and Relationships for People with Asperger's Syndrome0600The authors tackle an important and sensitive issue for young people with ASC. The information presented is based in research and presented clearly in a most usable format. I would not hesitate to recommend this book to young people (it might even help a few boys!) with ASC and their parents.E. Veronica Bliss, psychologist and Director of Missing Link Support Services, Ltd0600Shana Nichols, Gina Marie Moravcik, and Samara Pulver Tetenbaum provide solid, specific advice on teen issues - social life, changing bodies, friendships, diet and nutrition, self-reliance, anxiety, and more. This is an excellent beginning, with resources listed (books, articles, Web sites, blogs) in every chapter and short case studies that break up the text throughout. The authors tackle the bigger issues of socialization and friendships, plus the nitty-gritty of raising an adolescent girl - periods, ob-gyn exams, weight, privacy, and hygiene.ForeWord0600There's really only one way to say this: If you have a daughter anywhere on the autism spectrum, or even with unexplainable quirky behaviour, this book is a must. While there are hundreds of good books about autism, girls have their own unique issues when it comes to this puzzling disorder. Dr. Nichols' book is a standout. Addressing girls on their own, and in such an insightful, scholarly and reader-friendly way, what 'Girls...' has done is invaluable. You'll be shocked at how easy it is to have a girl on the spectrum misdiagnosed or not therapeutically treated correctly, but you're not left on your own. Nichols provides great counsel. 'Girls...' offers not only important information about the child, but it also provides necessary strategies for parents (and medical professionals) to help improve the child's life, and not a single subject goes untouched. The teen years are tough enough for any girl, but for one who has spectrum challenges, it can be devastating. Nichols, the clinical director of the Fay J. Lindner Center for Autism and Developmental Disorders, provides expert advice that is practical and necessary, on topics ranging from cognitive concerns and everyday behaviours to sexuality and just fitting in, which for a teenaged girl can be the most important issue of all--on the spectrum or not. Nichols draws from many wells here - vast research, conversations and interviews with parents, teachers and medical experts, and most importantly, these young girls. This is one of those hallelujah books for which parents search high and low.Long Island Press0600Rather than constructing a "how-to" book, in which pre-planned lessons have been created focusing on puberty or sexuality issues, the authors provide a broad conceptual treatment of the relevant sociological and cultural issues. That is, not only do they address the social, communication, and behavioural vulnerabilities that these girls may display, but they place these vulnerabilities in the context of a girl's social world. From this vantage point, the authors describe concrete steps and processes which may be useful for working with girls on the spectrum to help them cope with the issues they confront as they mature...This volume continually reminds the reader to think about the challenges typically developing girls and young women face throughout the pre-teen and teenage years as the context for their understanding of a girl with an ASD.Journal of Autism and Developmental Disorders0200This book covers the concerns faced by girls with ASDs and their parents, from periods and puberty to friendships and "fitting in". Looking at these issues within the context of specific areas of difficulty for girls with ASDs, the authors provide families with the knowledge and advice they need to help the whole family through the teenage years.0400Foreword. Acknowledgements. Author’s Notes. 1. What Do We Currently Know About Girls and Women with Autism Spectrum Disorders? 2. Approaching Adolescence: Anticipation, Anxiety, Adaptation and Acceptance? 3. Puberty or ‘Do My Parents Know You’re Here?’ 4. The Red Spot: Periods, Pads and Pelvic Exams. 5. Feeling Good Inside and Out: Self-perception and Self-confidence. 6. The Social Landscape of Adolescence: Friendships and Social Status. 7. Healthy Sexuality for Girls with ASDs. 8. Keeping Girls Safe: Promoting Personal Safety in the Real World. 9. Our Journey: A Mother and her Daughter with Asperger's Syndrome. Conclusion: Embracing Change. References. Index.01000301http://www.biblioimages.com/jkp/getim...

Understanding Pathological Demand Avoidance Syndrome in Children: A Guide for Parents, Teachers and Other Professionals


Phil Christie - 2011
    The main characteristic is a continued resistance to the ordinary demands of life through strategies of social manipulation, which originates from an anxiety-driven need to be in control.This straightforward guide is written collaboratively by professionals and parents to give a complete overview of PDA. Starting with an exploration into the syndrome, it goes on to answer the immediate questions triggered when a child is first diagnosed, and uses case examples throughout to illustrate the impact of the condition on different areas of the child's life. Early intervention options and workable strategies for managing PDA positively will make day-to-day life easier for the child, their family and peers. New problems faced in the teenage years and how to assist a successful transition from adolescence to adulthood are also tackled. The book concludes with a valuable resources list.Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for families, carers and anyone who knows a child with PDA.

The Late Talker: What to Do If Your Child Isn't Talking Yet


Marilyn C. Agin - 2003
    For millions of mothers and fathers, however, anticipation turns to anxiety when those initial, all-important words are a long time coming. Many worried parents are reassured that their child is just a late talker, but unfortunately, all too often that is not the case. Nineteen million children in the United States have serious speech disorders, such as apraxia of speech. For these toddlers, early and intensive speech therapy is crucial if they are to stand a chance of ever speaking normally. This book was written to help the worried parent cut through the confusion and stress to determine if their child needs help.The Late Talker is the first book of its kind, providing effective, practical answers to the questions every concerned parent asks. Written by Marilyn C. Agin, a highly respected developmental pediatrician, and Lisa F. Geng, a mother of two late talkers, it is a tremendously useful handbook that includes:- Ways to identify the warning signs of a speech disorder- Information on how to get the right kind of evaluations and therapy- Ways to obtain appropriate services through the school system and health insurance - Fun at-home activities that parents can do with their child to stimulate speech- Groundbreaking evidence of the promising and dramatic benefits of nutritional supplementation- Advice from experienced parents who've been there on what to expect and what you can do to be your child's best advocate

My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities


Yantra Bertelli - 2009
    Featuring works by so-called alternative parents who have attempted to move away from mainstream thought, this anthology carefully considers the implications of raising children with disabilities. From professional writers to novice storytellers, including original essays by Robert Rummel-Hudson, Ayun Halliday, and Kerry Cohen, this assortment of authentic, shared experiences from parents in the know is a partial antidote to the stories that misrepresent, ridicule, and objectify disabled children and their parents.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Send in the Idiots: Stories from the Other Side of Autism


Kamran Nazeer - 2006
    In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.