Silver medal winner in the Health/Medical category of the 2013 Readers' Favorite Book Award. Finalist, 2013 Eric Hoffer Book Awards. Finalist, 2013 Indie Excellence Book Awards. Winner of an honorable mention in the category of Life Stories from the 20th Annual Writers Digest Book Awards.The unflinching and hopeful story of one woman's journey into family caregiving, and a vivid overview of the challenges of Alzheimer's care. Winner of an Honorable Mention in the category of Life Stories from the 20th Annual Writer's Digest Book Awards.With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves this compelling story of caregiving for her demented mother with a broad exploration of the causes of Alzheimer's disease, means of treating it, and hopes for preventing it. She shares the lessons she's learned over seven years of caregiving at home, in assisted living, a rehabilitation center, a "memory care" facility for people living with dementia, and a nursing home--lessons not just about how to navigate the system, but how caregiving helped the author to overcome her challenging relationship with her mother, and how she's learned to nurture her mother's spirit through the most advanced stages of dementia.One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. As baby boomers age, and we all live longer, most of us will know someone with Alzheimer's disease or another dementia, or care for someone with dementia. Alzheimer's disease is the fifth-leading cause of death in the United States for those age 65 and older, but the only one in the top 10 without a means of prevention, a way to slow its progression, or a cure. In the United States, over 15 million family caregivers provide 17.4 billion hours of unpaid care to family members and friends with Alzheimer's disease and other dementias. Sixty percent of family caregivers report feeling extreme stress.This memoir is not a lament, however; it is guide, and, the author hopes, a means to soften the blow upon all of us. In the course of the author's experience, she discovered what could have been done earlier to help her mother, and what can be done now to help us all. Ms. Stettinius's greatest gift to readers is that of optimism--that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring.Through its intimate scenes and skillful storytelling, Inside the Dementia Epidemic is a call to action for better dementia care, more funding for dementia research, and more support for family caregivers. In the appendices, the author shares facts she wishes she had known years ago, including how to get a diagnosis of Alzheimer's disease; what medications are approved to treat the symptoms of Alzheimer's disease; risk factors for dementia, and possible preventive measures; promising explorations in dementia research; the link between insulin resistance, diabetes, and Alzheimer's disease; the benefits of "memory consultations" and early diagnosis; and national and international movements for more dementia research and better care.Inside the Dementia Epidemic: A Daughter's Memoir includes source notes, resources for caregivers, and an index.

    What do you do when your outspoken, passionate, and quick-witted mother starts fading into a forgetful, fearful woman? In this powerful graphic memoir, Sarah Leavitt reveals how Alzheimer's disease transformed her mother Midge--and her family--forever.

    Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom.As her mother, Anne, falls into forgetting, Kate remembers for her. In Anne we meet a strong-minded, accidental feminist with a weakness for unreliable men. The first woman to apply for—and win—a department-head position in her school system, Anne was an innovative educator who poured her passion into her work. House-proud too, she made certain her Hummel figurines were dusted and arranged just so. But as her memory falters, so does her housekeeping. Surrounded by stacks of dirty dishes, piles of laundry, and months of unopened mail, Anne needs Kate’s help—but she doesn’t want to relinquish her hard-won independence any more than she wants to give up smoking.Time and time again, Kate must balance Anne’s often nonsensical demands with what she believes are the best decisions for her mother’s comfort and safety. This is familiar territory for anyone who has had to help a loved one in decline, but Kate finds new and different ways to approach her mother and her forgetting. Shuddering under the weight of accumulating bills and her mother’s frustrating, circular arguments, Kate realizes she must push past difficult family history to find compassion, empathy, and good humor.When the memories, the names, and then the words begin to fade, it is the music that matters most to Kate’s mother. Holding hands after a concert, a flute case slung over Kate’s shoulder, and a shared joke between them, their relationship is healed—even in the face of a dreaded and deadly diagnosis. “Memory,” Kate Whouley writes, “is overrated.”

    But with the unexpected death of her husband, her life became an empty, lightless space. Suddenly she was the single mother of two young boys, a widow at forty, clinging to three crumpled pages of instructions her husband had written for things like grocery shopping--things he had done while she did pioneering work as a planetary scientist at MIT. She became painfully conscious of her Asperger's, which before losing her husband had felt more like background noise. She felt, for the first time, alone in the universe.In this probing, invigoratingly honest memoir, Seager tells the story of how, as she stumblingly navigated the world of grief, she also kept looking for other worlds. She continues to develop groundbreaking projects, such as the Starshade, a sunflower-shaped instrument that, when launched into space, unfurls itself so as to block planet-obscuring starlight, and she takes solace in the alien beauty of exoplanets. At the same time, she discovers what feels every bit as wondrous: other people, reaching out across the space of her grief. Among them are the Widows of Concord, a group of women offering consolation and advice; and her beloved sons, Max and Alex. Most unexpected of all, there is another kind of one-in-a-billion match with an amateur astronomer.Equally attuned to the wonders of deep space and human connection, The Smallest Lights in the Universe is its own light in the dark.

    Now they must empty and sell the beloved family home, which hasn't been de-cluttered in more than half a century. Twenty-three rooms bulge with history, antiques, and oxygen tanks. Plum remembers her loving but difficult parents who could not have been more different: the British father, a handsome, disciplined patriarch who nonetheless could not control his opinionated,extroverted Southern-belle wife who loved tennis and gin gimlets. The task consumes her, becoming more rewarding than she ever imagined. Items from childhood trigger memories of her eccentric family growing up in a small town on the shores of Lake Ontario in the 1950's and 60's. But unearthing new facts about her parents helps her reconcile those relationships with a more accepting perspective about who they were and what they valued.They Left Us Everything is a funny, touching memoir about the importance of preserving family history to make sense of the past and nurturing family bonds to safeguard the future.

    It would be years before she would understand how the event, that happened before she was born, shaped her life. A plane crashes into a family’s home. A two-year-old girl is critically burned and a mother is forced to make an impossible choice. The death of a child leaves a hole in the family that threatens to tear it apart. In a great act of hope, the parents give birth to a "replacement child," born to heal wounds and provide a "salve for the burns." The child unwittingly plays her role throughout childhood, riding the deep and hidden currents of the family tragedy. In this powerful story of love and lies, hope and forgiveness, Judy Mandel discovers the truth that changes her life forever and forces her to confront the complex layers of her relationships with her father, mother, and sister. When she has her own child, her epiphany comes full circle.

    Her sweet baby, Grace, was a dream come true. Then Vanessa made a highly uncommon gesture: when Grace’s biological parents became homeless, Vanessa invited them to stay.Without a blueprint for navigating the practical basics of an open adoption or any discussion of expectations or boundaries, the unusual living arrangement became a bottomless well of conflicting emotions and increasingly difficult decisions complicated by missed opportunities, regret, social chaos, and broken hearts.Written with wit, candor, and compassion, Rock Needs River is, ultimately, Vanessa’s love letter to her daughter, one that illuminates the universal need for connection and the heroine’s journey to find her tribe.

    They melt into the ocean of partial, painful, inconsistent, and funny stories that a family makes over time. Hay's eloquent memoir distills these stories into basic truths about parents and children and their efforts of understanding. With her uncommon sharpness and wit, Elizabeth Hay offers her insights into the peculiarities of her family's dynamics--her parents' marriage, sibling rivalries, miscommunications that spur decades of resentment all matched by true and genuine love and devotion. Her parents are each startling characters in their own right--her mother is a true skinflint who would rather serve up wormy soup (twice) than throw away an ancient packet of "perfectly good" mix; her father is a proud and well-mannered man with a temper that can be explosive. All Things Consoled is a startlingly beautiful memoir that addresses the exquisite agony of family, the unstoppable force of dementia, and the inevitability of aging.

    Her hilarious and deeply relatable look at the challenges of womanhood in a changing world became a cultural touchstone for women everywhere. Now Guisewite returns with her signature wit and warmth in this debut essay collection about another time of big transition, when everything starts changing and disappearing without permission: aging parents, aging children, aging self stuck in the middle.With her uniquely wry and funny admissions and insights, Guisewite unearths the humor and horror of everything from the mundane (trying to introduce her parents to TiVo and facing four decades' worth of unorganized photos) to the profound (finding a purpose post-retirement, helping parents downsize their lives, and declaring freedrom from all those things that hold us back). No longer confined to the limits of four comic panels, Guisewite holds out her hand in prose form and becomes a reassuring companion for those on the threshold of "what happens next." Heartfelt and humane and always cathartic, Fifty Things That Aren't My Fault is ideal reading for mothers, daughters, and anyone who is caught somewhere in between.

    The project began with a grievance, the grievance of a daughter whose parent had absconded from her life. I was in pursuit of a scofflaw, an artful dodger who had skipped out on so many things—obligation, affection, culpability, contrition. I was preparing an indictment, amassing discovery for a trial. But somewhere along the line, the prosecutor became a witness.”So begins Susan Faludi’s extraordinary inquiry into the meaning of identity in the modern world and in her own haunted family saga. When the feminist writer learned that her 76-year-old father—long estranged and living in Hungary—had undergone sex reassignment surgery, that investigation would turn personal and urgent. How was this new parent who identified as “a complete woman now” connected to the silent, explosive, and ultimately violent father she had known, the photographer who’d built his career on the alteration of images?Faludi chases that mystery into the recesses of her suburban childhood and her father’s many previous incarnations: American dad, Alpine mountaineer, swashbuckling adventurer in the Amazon outback, Jewish fugitive in Holocaust Budapest. When the author travels to Hungary to reunite with her father, she drops into a labyrinth of dark histories and dangerous politics in a country hell-bent on repressing its past and constructing a fanciful—and virulent—nationhood. The search for identity that has transfixed our century was proving as treacherous for nations as for individuals.Faludi’s struggle to come to grips with her father’s metamorphosis self takes her across borders—historical, political, religious, sexual--to bring her face to face with the question of the age: Is identity something you “choose,” or is it the very thing you can’t escape?

    With a family of her own and a full time career in Nova Scotia–a thousand miles away from her parents–Federico hoped they would be able to take care of themselves for the most part, and call on their children when they really needed them–but of course that’s not quite what happens.As she watches with horror from the sidelines, Federico’s parents turn into terrible teens. Fighting off onslaughts of dementia and Alzheimer’s disease, Addie and Walter, forbidden by doctors to drink, conspire to order cases of scotch by phone; Addie’s attendant accuses the evening staff of midnight voodoo; Walter’s inhibitions decline as dementia increases and mail-order sex aides arrive at the front door. The list of absurdities goes on and on as Federico tries to take some control over her parents’ lives–and her own.This is a story for the huge generation–nearly 76 million people–now dealing with the care of their parents. You’ll laugh and cry as you read this powerful and important debut.

    But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family.  Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.

    Funny how time works. Since her dad died in 2015, Jann cooks for her mom five or six times a week. Her mom finds comfort in her daughter's kitchen, not just in the delicious food but also just sitting with her as she cooks. And Jann finds some peace in caring for her mom, even as her mom slowly becomes a stranger. If you told me two years ago that I'd be here, Jann writes, I wouldn't have believed it. And yet we still fall into so much laughter, feel so much insane gladness and joy. It's such a contrast from one minute to the next and it teaches me constantly: it makes me stronger and more humble and more empathetic and caring and kind. The many people who are dealing with a loved one who is losing it will find inspiration and strength in Jann's wholehearted, loving response and her totally Jann take on the upside-down world of a daughter mothering her mother. Feeding My Mother is one heck of an affirmation that life just keeps on keeping on, and a wonderful example of how you have to roll with it.

    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

    Then, slowly, a mist settled deep inside the mind she once knew so well, blurring the world around her. She didn't know it then, but dementia was starting to take hold. In 2014, at age fifty-eight, she was diagnosed with young-onset Alzheimer's.Mitchell shares the heartrending story of her cognitive decline and how she has fought to stave it off. What lay ahead of her after the diagnosis was scary and unknowable, but Mitchell was determined and resourceful, and she vowed to outwit the disease for as long as she could.As Mitchell learned to embrace her new life, she began to see her condition as a gift, a chance to experience the world with fresh eyes and to find her own way to make a difference. Even now, her sunny outlook persists: She devotes her time to educating doctors, caregivers, and other people living with dementia, helping to reduce the stigma surrounding this insidious disease.Still living independently, Mitchell now uses Post-it notes and technology to remind her of her routines and has created a "memory room" where she displays photos--with labels--of her daughters, friends, and special places. It is a room where she feels calm and happy, especially on days when the mist descends.