Pretty is What Changes: Tough Choices, the Breast Cancer Gene, and Learning How to Live in the DNA Age


Jessica Queller - 2008
    The results come back positive, putting her at a terrifyingly elevated risk of developing breast cancer before the age of fifty and ovarian cancer in her lifetime. Thirty-four, unattached, and yearning for marriage and a family of her own, Queller faces an agonizing choice: a lifetime of vigilant screenings and a commitment to fight the disease when caught, or its radical alternative—a prophylactic double mastectomy that would effectively restore life to her, even as it would challenge her most closely held beliefs about body image, identity, and sexuality. Superbly informed and armed with surprising wit and style, Queller takes us on an odyssey from the frontiers of science to the private interiors of a woman’s life. Pretty Is What Changes is an absorbing account of how she reaches her courageous decision and its physical, emotional, and philosophical consequences. It is also an incredibly moving story of what we inherit from our parents and how we fashion it into the stuff of our own lives, of mothers and daughters and sisters, and of the sisterhood that forms when women are united in battle against a common enemy. Without flinching, Jessica Queller answers a question we may one day face for ourselves: If genes can map our fates and their dark knowledge is offered to us, will we willingly trade innocence for the information that could save our lives?

The Hidden Plague: A Field Guide For Surviving and Overcoming Hidradenitis Suppurativa


Tara Grant - 2013
    Only a small fraction of those affected have been properly diagnosed, leaving many others to suffer in silence or pursue ill-advised conventional treatment methods that fail to address the cause of this painful condition. Tara Grant, a twenty-year sufferer of HS, has become an underground legend to her Internet community of HS victims by presenting a methodical, self-tested action plan to heal naturally. The centerpiece of her holistic approach rests on the understanding that HS is an autoimmune disorder caused by leaky gut syndrome. With a few simple dietary changes that eliminate certain “trigger” foods, you can heal your gut, restore your skin, reclaim your health, and rid yourself of HS symptoms forever. That’s it—no antibiotics, no experimental surgeries, and no more pain, suffering, or confusion.Q&A with Tara1. What was it about the subject you chose to write about in your book that made you feel so passionate about spreading the word and getting your book published? My motivation for writing this book was the overwhelming response I received from people on the Internet when I originally posted about it in March of 2012. It turns out it’s a pretty common condition, but many people (and doctors) don’t know what it is. It’s pretty standard to visit various doctors, and be told that you have “acne,” or to be subjected to butchering surgeries. There is no treatment for HS, according to the doctors. People with it suffer immensely—in fact, HS is acknowledged to be one of most painful conditions in the world. I’ve even received letters from doctors and nurses who suffer from HS, thanking me for telling them what it is that they have—and for offering them hope. The primary motivating factor for writing this book, however, was an email I received from a 12-year old girl, who said she was going to kill herself because of the pain she was in. I immediately wrote her back, but I never heard back from her. I am desperate to know that she’s okay. I don’t want anyone else to go through what I did as a teenager—I myself thought about suicide on more than one occasion. I’ve had many letters from people who say they want to kill themselves since.2. HS is hard to diagnose, and many doctors aren’t even aware of its existence. How did you get a diagnosis? I’ve had HS since I was thirteen years old, but wasn’t diagnosed until I was in my mid-30s. Up until then, I saw over forty doctors from four different countries - none of whom could tell me what was wrong with me. I eventually found the name “Hidradenitis suppurativa” in a book about PCOS (also known as polycystic ovarian syndrome, which I also had) and could finally put a name to the horrible condition I had suffered from for so long. I took that information to a dermatologist. That’s when I finally got a diagnosis—over twenty years later. At that time, I had already changed to a Primal diet and my HS was drastically better, so I declined the antibiotics and Accutane the doctor prescribed. I also refused to believe what she said: “You have to live with this for the rest of your life.” I knew, as a longtime sufferer of HS, that the doctors I had seen had no clue what they were talking about. My journey was extremely frustrating, and I went through it completely alone. Over the years, I was told I had “adult acne,” and also told that they didn’t know what was wrong with me. I was also told that I was overreacting, not keeping clean enough, and told to lose weight. Not a single doctor showed any compassion, or was willing to look into the matter further. I eventually stopped going to the doctors, and didn’t return until I had already made changes and knew I was on the right track. I knew that if I wanted answers, I had to do the research and experimentation myself. I wasn't interested in how I reacted to different drug, I was interested in healing myself naturally.  I knew that I was on the right track with diet, so I started investigating Robb Wolf’s Autoimmune Paleo Protocol, and made specific tweaks for skin conditions. Results I had seen from others (Dr. Terry Wahls, for example) who had healed themselves from crippling autoimmune conditions were the only motivation I needed. When I started treating HS like an autoimmune condition, it went into remission. There are literally thousands of cases of this happening with different autoimmune conditions all over the world. I was also able to induce flare-ups with specific experimentation. This completely checks with autoimmunity. There isn’t a cure—you will always have the predisposition for autoimmunity—but you CAN go into remission. 3. Do you have any relatives or close friends that became diagnosed after you?  There is no one else in my family with this condition. There is a mistaken belief that HS is hereditary. It is not. However, some families have more than one member affected by it. The reason for this is that HS is autoimmune. In order to get an autoimmune condition, you need to have the gene for autoimmunity. The fact that the autoimmune gene manifests as HS in more than one family member is complete coincidence. If you’re suffering from HS, you more than likely have other autoimmune conditions - and so does your family. Family trees littered with Crohn’s, rheumatoid arthritis, multiple sclerosis, restless legs syndrome, diabetes, Lupus, endometriosis, eczema, psoriasis, HS, and more—all of which are autoimmune—are very common. If you have HS, you have the autoimmune gene, which you did inherit. If your gut becomes leaky, then you will eventually develop an autoimmune condition.4. Do you have advice for anyone seeking medical help for this condition? Read my book first. The Western medical community is still under the mistaken belief that HS is caused by bacteria, hence the prescriptions for antibiotics. They will not be able to help you, and will suggest butchering surgeries and heavy hitting drugs, which often make matters worse. You can’t “cut HS out,” like you do with a cancerous tumor. When you remove an organ or tissue that is being ravaged by an autoimmune response, you open up all your other organs and tissues to attack. That’s why there’s over an 80% chance of reoccurrence of HS after surgery, and people will often start flaring-up in areas that had been clear before. Sometimes, they even develop brand new autoimmune conditions. Luckily, you actually hold the key to healing in your hands. You can heal yourself. If you can avoid infection, then you don’t need doctors—or drugs— to help you go into remission.5. What is the one thing you would stress most to anyone unable to get a copy of your book at this time? Many people with HS are on disability and don’t have a lot of disposable income, or they have been taken advantage of in the past. If this is you, go to your local library and ask them to carry the book. Then, you can borrow it for free. How much does a 1-oz jar of EmuAid cost? Turmeric capsules? Surgery? Doctor visits and prescriptions? We’ve all fallen for so much. I bet if you sat down and tallied up how much you’ve spent on Band-Aids alone for your HS over the years, $26 would be a drop in the bucket. The great thing about this book is that if you are not satisfied, you can request your money back. If you get this 300-page manual and find that there is nothing in it that is of any help, you can ask for a refund from the publisher. Try asking for a refund for EmuAid when it doesn’t work. That being said, I would challenge anyone with HS to read this book and find nothing in it that’s helpful.6. Your book is a very important first step in making the public aware of this illness. Besides the book, how do you plan to raise awareness of HS?My goal is to get on the Dr. Oz show. I figure that will give us the biggest bang for the buck. Many people have HS, but are unaware of what it’s called. They’re too embarrassed to go to the doctor about it. I would encourage all of you to write to the Dr. Oz show and ask them to feature me, and ask your local library to carry the book. The only way we’re going to raise awareness is to GO BIG.

This is Not for You


Venus Soileau - 2014
    This is Not for You is a memoir which vividly describes the memories of growing up in a dysfunctional environment and how these circumstances developed a spirit within the narrator. This is a story of resiliency and drive to overcome the extreme adversities that addiction and poverty can create in the life of a young child.

Dr. Patrick Walsh's Guide to Surviving Prostate Cancer


Patrick C. Walsh - 2001
    But the good news is that more men are being cured of this disease than ever before. Now in a revised fourth edition, this lifesaving guide by Dr. Patrick Walsh and award-winning science writer Janet Farrar Worthington offers a message of hope to every man facing this illness. Prostate cancer is a different disease in every man--which means that the right treatment varies for each person. Public awareness for this disease has transformed treatment and opened up new avenues of research; rapid advances in knowledge are being translated in new recommendations for management. In this book, Dr. Walsh will address questions such as: What causes prostate cancer? Your risk factors, including heredity, diet, and environment. Can I prevent prostate cancer? How some simple changes in your diet and lifestyle can help prevent or delay the disease. Does prostate cancer need to be treated at all? This hot-button issue is vital for men to understand. How do I know if I have prostate cancer? An explanation of the recently refined and expanded recommendations. How can my prostate cancer be treated? The pros and cons of new technologies and new information on focal therapy.

Sex Death Enlightenment: A True Story


Mark Matousek - 1996
    A brave, beautiful and brilliantly observed work.--Publishers Weekly, starred review.

Twisted Head: An Italian American Memoir


Carl Capotorto - 2008
    The literal translation from Italian to English of Capotorto is "twisted head." This is no accident. Carl grew up in the Bronx in the 1960s and ’70s with the Mangialardis ("eat fat") and Mrs. Sabella ("so beautiful"), incessant fryers and a dolled-up glamour queen. Carl's father, Philip Vito Capotorto, was the obsessive, tyrannical head of the family--"I'm not your friend, I'm the father" was a common refrain in their household. The father ran Cappi's Pizza and Sangwheech Shoppe, whose motto was "We Don't Spel Good, Just Cook Nice." It was a time of great upheaval in the Bronx, and Carl's father was right in the middle of it, if not the cause of it, much to the chagrin of his long-suffering mother.Twisted Head is the comedic story of a hardscrabble, working-class family's life that represents the real legacy of Italian-Americans--labor, not crime. It is also the poignant memoir of the author's struggle to become himself in a world that demanded he act like someone else. Tragic and funny in equal measure, Carl's story is propelled by a cast of only-in-New-York characters: customers at the family pizza shop, public school teachers, nuns and priests at church, shop owners and merchants--all wildly entertaining and sometimes frightening. Somewhere in all the rage and madness that surrounded Carl in his youth, he found the bottom line: he loved his family, but he had to let them go. Twisted Head is an exorcism of sorts. With plenty of laughs.

Compulsive Acts: A Psychiatrist's Tales of Ritual and Obsession


Elias Aboujaoude - 2008
    Writing with compassion, humor, and a deft literary touch, Elias Aboujaoude, an expert on obsessive compulsive disorder and behavioral addictions, tells stories inspired by memorable patients he has treated, taking us from initial contact through the stages of the doctor-patient relationship. Into these interconnected vignettes Aboujaoude weaves his own personal experiences while presenting up-to-date, accessible medical information. Rich in both meaning and symbolism, Compulsive Acts is a journey of personal growth and hope that illuminates a fascinating yet troubling dimension of human experience as it explores a group of potentially disabling conditions that are too often suffered in silence and isolation.

Keep Smiling


Charlotte Church - 2007
    She talks of her life, career, family and loves and impending motherhood with surprising intimacy and, being true to her outspoken reputation, complete honesty.

Lucky Jim


James Hart - 2017
    Charming, funny, and a great listener with a guru's insight, his success in life and business was based on his ability to connect with others, from people recovering in 12-step groups in Upstate New York to those living in the rarified air of Martha's Vineyard. But after 20+ years sober, one slip-up triggered an active addiction that threatened his relationships with his then-wife, singer-songwriter Carly Simon, his recovery friends, his severely disabled son, and even with himself as he began to confront his sexuality.

Cook County ICU: 30 Years of Unforgettable Patients and Odd Cases


Cory Franklin - 2015
    Cory Franklin. Filled with stories of strange medical cases and unforgettable patients culled from a thirty-year career in medicine, Cook County ICU offers readers a peek into the inner workings of a hospital. Author Dr. Cory Franklin, who headed the hospital’s intensive care unit from the 1970s through the 1990s, shares his most unique and bizarre experiences, including the deadly Chicago heat wave of 1995, treating some of the first AIDS patients in the country before the disease was diagnosed, the nurse with rare Munchausen syndrome, the first surviving ricin victim, and the famous professor whose Parkinson’s disease hid the effects of the wrong medication. Surprising, darkly humorous, heartwarming, and sometimes tragic, these stories provide a big-picture look at how the practice of medicine has changed over the years, making it an enjoyable read for patients, doctors, and anyone with an interest in medicine.

In the Body of the World


Eve Ensler - 2013
    Yet she spent much of her life disassociated from her own body—a disconnection brought on by her father’s sexual abuse and her mother’s remoteness. “Because I did not, could not inhabit my body or the Earth,” she writes, “I could not feel or know their pain.”But Ensler is shocked out of her distance. While working in the Congo, she is shattered to encounter the horrific rape and violence inflicted on the women there. Soon after, she is diagnosed with uterine cancer, and through months of harrowing treatment, she is forced to become first and foremost a body—pricked, punctured, cut, scanned. It is then that all distance is erased. As she connects her own illness to the devastation of the earth, her life force to the resilience of humanity, she is finally, fully—and gratefully—joined to the body of the world.Unflinching, generous, and inspiring, Ensler calls on us all to embody our connection to and responsibility for the world.http://us.macmillan.com/inthebodyofth...

Mortality


Christopher Hitchens - 2012
    As he would later write in the first of a series of award-winning columns for "Vanity Fair," he suddenly found himself being deported "from the country of the well across the stark frontier that marks off the land of malady." Over the next eighteen months, until his death in Houston on December 15, 2011, he wrote constantly and brilliantly on politics and culture, astonishing readers with his capacity for superior work even in extremis.Throughout the course of his ordeal battling esophageal cancer, Hitchens adamantly and bravely refused the solace of religion, preferring to confront death with both eyes open. In this account of his affliction, he describes the torments of illness, discusses its taboos, and explores how disease transforms experience and changes our relationship to the world around us. By turns personal and philosophical, Hitchens embraces the full panoply of human emotions as cancer invades his body and compels him to grapple with the enigma of mortality.

Help Me Live: 20 Things People with Cancer Want You to Know


Lori Hope - 2005
    But sometimes we don't know what to say or do and don't feel comfortable asking. With sensitive insights and thoughtful anecdotes, Help Me Live provides a personal yet thoroughly researched account of words and actions that are most helpful.

It Happened to Audrey: A Terrifying Journey From Loving Mom to Accused Baby Killer


Jill Wellington - 2012
    An infant died in her care at the same time the unknown science of Shaken Baby Syndrome hit the media. Swept up in a media frenzy, Edmunds was accused of killing the child through SBS. She was stripped from her children and husband and sent to prison where she would fight for freedom 13 years before she was finally exonerated after updated science showed her innocence. Audrey was and is an all-American mother from the Heartland who shares her story of hope and redemption in the face of unrelenting odds. Built as the ideal reader's club book, It Happened to Audrey includes questions that challenge all readers to think of the possibilities in today's ever-changing world. Edmunds is ultimately released from prison in the middle of a blizzard and reunited with her now grown children.

The Impossible Long Run: My Journey to Becoming Ultra


Janet Patkowa - 2019
    One day… I wanted to explore the US in an RV. One day… I wanted to backpack in a foreign country. None of these things were happening because it seemed impossible to fit big adventures into a nine-to-five life. Until one day it hit me. One day was not just going to happen. I had to start taking the steps to make it happen and figure out how to fit it in. I got on the internet and searched for something to inspire me. I found the Becoming Ultra project. And thus began my journey to running a 50 mile race.