Book picks similar to
Illness by Havi Carel


philosophy
non-fiction
biography
nonfiction

War Against the Weak: Eugenics and America's Campaign to Create a Master Race


Edwin Black - 2003
    Based on selective breeding of human beings, eugenics began in laboratories on Long Island but ended in the concentration camps of Nazi Germany. Cruel and racist laws were enacted in 27 U.S. states, while the supporters of eugenics included progressive thinkers like Woodrow Wilson, Margaret Sanger and Oliver Wendell Holmes. Ultimately, over 60,000 "unfit" Americans were coercively sterilized, a third of them after Nuremberg had declared such practices crimes against humanity. This is a timely and shocking chronicle of bad science at its worst—with many important lessons for the genetic age in which an interest in eugenics has been dangerously revived.

Weekends at Bellevue: Nine Years on the Night Shift at the Psych E.R.


Julie Holland - 2009
    Recounts stories from her vast case files that are alternately terrifying, tragically comic, and profoundly moving, all while she deals with her best friend and fellow doctor's fight with cancer.

The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

Joy of Pain: Schadenfreude and the Dark Side of Human Nature


Richard H. Smith - 2013
    But who doesn't enjoy it when an arrogant but untalented contestant is humiliated on American Idol, or when the embarrassing vice of a self-righteous politician is exposed, or even when an envied friend suffers asmall setback? The truth is that joy in someone else's pain-known by the German word schadenfreude--permeates our society.In The Joy of Pain, psychologist Richard Smith, one of the world's foremost authorities on envy and shame, sheds much light on a feeling we dare not admit. Smith argues that schadenfreude is a natural human emotion, one worth taking a closer look at, as it reveals much about who we are as humanbeings. We have a passion for justice. Sometimes, schadenfreude can feel like getting one's revenge, when the suffering person has previously harmed us. But most of us are also motivated to feel good about ourselves, Smith notes, and look for ways to maintain a positive sense of self. One commonway to do this is to compare ourselves to others and find areas where we are better. Similarly, the downfall of others--especially when they have seemed superior to us--can lead to a boost in our self-esteem, a lessening of feelings of inferiority. This is often at the root of schadenfreude. As theauthor points out, most instances of schadenfreude are harmless, on par with the pleasures of light gossip. Yet we must also be mindful that envy can motivate, without full awareness, the engineering of the misfortune we delight in. And envy-induced aggression can take us into dark territoryindeed, as Smith shows as he examines the role of envy and schadenfreude in the Nazi persecution of the Jews.Filled with engaging examples of schadenfreude, from popular reality shows to the Duke-Kentucky basketball rivalry, The Joy of Pain provides an intriguing glimpse into a hidden corner of the human psyche.

No One Cares About Crazy People: The Chaos and Heartbreak of Mental Health in America


Ron Powers - 2017
    Braided with that history is the moving story of Powers's beloved son Kevin--spirited, endearing, and gifted--who triumphed even while suffering from schizophrenia until finally he did not, and the story of his courageous surviving son Dean, who is also schizophrenic.A blend of history, biography, memoir, and current affairs ending with a consideration of where we might go from here, this is a thought-provoking look at a dreaded illness that has long been misunderstood.

All in My Head: An Epic Quest to Cure an Unrelenting, Totally Unreasonable, and Only Slightly Enlightening Headache


Paula Kamen - 2005
    While she was putting in her contacts, the left lens disturbed a constellation of nerves behind her eye. The pain was more piercing than that of any other headache she had ever experienced. More than a decade later, she still has a headache-the exact same headache. From surgery to a battery of Botox injections to a dousing of Lithuanian holy water, from a mountain of pharmaceutical products to aromatherapy and even a vibrating hat, All in My Head chronicles the sometimes frightening, usually absurd, and always ineffective remedies Kamen-like so many others-tried in order to relieve the pain. Beleaguered and frustrated by doctors who, frustrated themselves, periodically declared her pain psychosomatic, she came to understand the plight of the millions who suffer chronic pain in its many forms. Full of self-deprecating humor and razorsharp reporting, All in My Head is the remarkable story of patience, acceptance, and perseverance in the face of terrifying pain.

In the Little World: A True Story of Dwarfs, Love, and Trouble


John H. Richardson - 2001
    Kopits takes me into an examining room and leans against the stainless steel bench and asks me what I'm writing about this time. When I tell him what I saw in Australia, he immediately starts to nod. "This is a great subject," he says. Then he stops, as if caught by the subject himself.I wait.After a moment, he continues. "What you are looking into is the abyss. This takes you to the very heart of a human being, to the deepest aspect of the soul.He gives me one of his solemn looks. "Because the thing is, you have to confront yourself."(from In the Little World) In 1997, almost by accident, John H. Richardson found himself sharing a hotel with more than a thousand dwarfs. Over the course of a single week, he witnessed love and anger, fear and bravery, arrogance and humility, even a bizarre romantic deception -- the entire spectrum of human emotion in one concentrated dose. But at the end of the week, he discovered that leaving the "Little World" wasn't as simple as checking out of a hotel. In fact, his journey would last a full two years.At a time when bigger often seems synonymous with better, and physical beauty serves as currency, the world of dwarfs usually passes beneath our notice. Now, in this groundbreaking work, awardwinning author John H. Richardson brings the Little World into focus.He introduces us to characters like a saintly but obsessed doctor and a mother who sacrifices her family to save her dwarf daughter. He follows two dwarf lovers from first meeting through the struggle to overcome their fear and shame and find the confidence to love each other. He becomes personally involved in a tangled and often confrontational friendship with a female dwarf. Through these stories and musings ranging from classic theories of beauty to the history of the disability movement to postmodern theories of difference, Richardson presents a world that is a skewed reflection of our own -- and offers us a glimpse into the essential human condition.

Brilliant Imperfection: Grappling with Cure


Eli Clare - 2017
    It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds.The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure.Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

Insomnia


Marina Benjamin - 2018
    More than a third of all adults report experiencing it, with the figure climbing steeply among those over sixty-five. Marina Benjamin takes on her personal experience of the condition--her struggles with it, her insomniac highs, and her dawning awareness that states of sleeplessness grant us valuable insights into the workings of our unconscious minds. Although insomnia is rarely entirely welcome, Benjamin treats it less as an affliction than as an encounter that she engages with and plumbs. She adds new dimensions to both our understanding of sleep (and going without it) and of night, of how we perceive darkness.Along the way, Insomnia trips through illuminating material from literature, art, philosophy, psychology, pop culture, and more. Benjamin pays particular attention to the relationship between women and sleep--Penelope up all night, unraveling her day's weaving for Odysseus; the Pre-Raphaelite artists' depictions of deeply sleeping women; and the worries that keep contemporary females awake.Insomnia is an intense, lyrical, witty, and humane exploration of a state we too often consider only superficially. "This is the song of insomnia, and I shall sing it," Marina Benjamin declares.

The Cosmic Serpent: DNA and the Origins of Knowledge


Jeremy Narby - 1998
    This adventure in science and imagination, which the Medical Tribune said might herald "a Copernican revolution for the life sciences," leads the reader through unexplored jungles and uncharted aspects of mind to the heart of knowledge.In a first-person narrative of scientific discovery that opens new perspectives on biology, anthropology, and the limits of rationalism, The Cosmic Serpent reveals how startlingly different the world around us appears when we open our minds to it.

Pathologies of Power: Health, Human Rights and the New War on the Poor


Paul Farmer - 2003
    Paul Farmer, a physician and anthropologist with twenty years of experience working in Haiti, Peru, and Russia, argues that promoting the social and economic rights of the world’s poor is the most important human rights struggle of our times. With passionate eyewitness accounts from the prisons of Russia and the beleaguered villages of Haiti and Chiapas, this book links the lived experiences of individual victims to a broader analysis of structural violence. Farmer challenges conventional thinking within human rights circles and exposes the relationships between political and economic injustice, on one hand, and the suffering and illness of the powerless, on the other.Farmer shows that the same social forces that give rise to epidemic diseases such as HIV and tuberculosis also sculpt risk for human rights violations. He illustrates the ways that racism and gender inequality in the United States are embodied as disease and death. Yet this book is far from a hopeless inventory of abuse. Farmer’s disturbing examples are linked to a guarded optimism that new medical and social technologies will develop in tandem with a more informed sense of social justice. Otherwise, he concludes, we will be guilty of managing social inequality rather than addressing structural violence. Farmer’s urgent plea to think about human rights in the context of global public health and to consider critical issues of quality and access for the world’s poor should be of fundamental concern to a world characterized by the bizarre proximity of surfeit and suffering.

Hungover: The Morning After and One Man's Quest for the Cure


Shaughnessy Bishop-Stall - 2018
    [are] worthy of a cure. After years of dogged research around the globe, he finds one -- just in time for the holidays." --Washington Post"[An] irreverent, well-oiled memoir...Bishop-Stall packs his book with humorous and enlightening asides about alcohol." --The Wall Street Journal One intrepid reporter's quest to learn everything there is to know about hangovers, trying all of the cures he can find and explaining how (and if) they work, all so rest of us don't have to.We've all been there. One minute you're fast asleep, and in the next you're tumbling from dreams of deserts and demons, into semi-consciousness, mouth full of sand, head throbbing. You're hungover. Courageous journalist Shaughnessy Bishop-Stall has gone to the front lines of humanity's age-old fight against hangovers to settle once and for all the best way to get rid of the aftereffects of a night of indulgence (short of not drinking in the first place).Hangovers have plagued human beings for about as long as civilization has existed (and arguably longer), so there has been plenty of time for cures to be concocted. But even in 2018, little is actually known about hangovers, and less still about how to cure them. Cutting through the rumor and the myth, Hungover explores everything from polar bear swims, to saline IV drips, to the age-old hair of the dog, to let us all know which ones actually work. And along the way, Bishop-Stall regales readers with stories from humanity's long and fraught relationship with booze, and shares the advice of everyone from Kingsley Amis to a man in a pub.

Stigma: Notes on the Management of Spoiled Identity


Erving Goffman - 1963
    Disqualified from full social acceptance, they are stigmatized individuals. Physically deformed people, ex-mental patients, drug addicts, prostitutes, or those ostracized for other reasons must constantly strive to adjust to their precarious social identities. Their image of themselves must daily confront and be affronted by the image which others reflect back to them.Drawing extensively on autobiographies and case studies, sociologist Erving Goffman analyzes the stigmatized person’s feelings about himself and his relationship to “normals” He explores the variety of strategies stigmatized individuals employ to deal with the rejection of others, and the complex sorts of information about themselves they project. In Stigma the interplay of alternatives the stigmatized individual must face every day is brilliantly examined by one of America’s leading social analysts.

My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind


Scott Stossel - 2014
    Today, it is the most common form of officially classified mental illness. Scott Stossel gracefully guides us across the terrain of an affliction that is pervasive yet too often misunderstood. Drawing on his own long-standing battle with anxiety, Stossel presents an astonishing history, at once intimate and authoritative, of the efforts to understand the condition from medical, cultural, philosophical, and experiential perspectives. He ranges from the earliest medical reports of Galen and Hippocrates, through later observations by Robert Burton and Søren Kierkegaard, to the investigations by great nineteenth-century scientists, such as Charles Darwin, William James, and Sigmund Freud, as they began to explore its sources and causes, to the latest research by neuroscientists and geneticists. Stossel reports on famous individuals who struggled with anxiety, as well as on the afflicted generations of his own family. His portrait of anxiety reveals not only the emotion’s myriad manifestations and the anguish anxiety produces but also the countless psychotherapies, medications, and other (often outlandish) treatments that have been developed to counteract it. Stossel vividly depicts anxiety’s human toll—its crippling impact, its devastating power to paralyze—while at the same time exploring how those who suffer from it find ways to manage and control it. My Age of Anxiety is learned and empathetic, humorous and inspirational, offering the reader great insight into the biological, cultural, and environmental factors that contribute to the affliction.

Taking Turns: Stories from HIV/AIDS Care Unit 371


M.K. Czerwiec - 2017
    Taking Turns pulls back the curtain on life in the ward.A shining example of excellence in the treatment and care of patients, Unit 371 was a community for thousands of patients and families affected by HIV and AIDS and the people who cared for them. This graphic novel combines Czerwiec’s memories with the oral histories of patients, family members, and staff. It depicts life and death in the ward, the ways the unit affected and informed those who passed through it, and how many look back on their time there today. Czerwiec joined Unit 371 at a pivotal time in the history of AIDS: deaths from the syndrome in the Midwest peaked in 1995 and then dropped drastically in the following years, with the release of antiretroviral protease inhibitors. This positive turn of events led to a decline in patient populations and, ultimately, to the closure of Unit 371. Czerwiec’s restrained, inviting drawing style and carefully considered narrative examine individual, institutional, and community responses to the AIDS epidemic—as well as the role that art can play in the grieving process.Deeply personal yet made up of many voices, this history of daily life in a unique AIDS care unit is an open, honest look at suffering, grief, and hope among a community of medical professionals and patients at the heart of the epidemic.