Book picks similar to
Shouting Won't Help: Why I--and 50 Million Other Americans--Can't Hear You by Katherine Bouton
non-fiction
nonfiction
memoir
disability
Dear World: A Syrian Girl's Story of War and Plea for Peace
Bana Alabed - 2017
Rowling “I’m very afraid I will die tonight.” —Bana Alabed, Twitter, October 2, 2016 “Stop killing us.” —Bana Alabed, Twitter, October 6, 2016 “I just want to live without fear.” —Bana Alabed, Twitter, October 12, 2016When seven-year-old Bana Alabed took to Twitter to describe the horrors she and her family were experiencing in war-torn Syria, her heartrending messages touched the world and gave a voice to millions of innocent children. Bana’s happy childhood was abruptly upended by civil war when she was only three years old. Over the next four years, she knew nothing but bombing, destruction, and fear. Her harrowing ordeal culminated in a brutal siege where she, her parents, and two younger brothers were trapped in Aleppo, with little access to food, water, medicine, or other necessities. Facing death as bombs relentlessly fell around them—one of which completely destroyed their home—Bana and her family embarked on a perilous escape to Turkey. In Bana’s own words, and featuring short, affecting chapters by her mother, Fatemah, Dear World is not just a gripping account of a family endangered by war; it offers a uniquely intimate, child’s perspective on one of the biggest humanitarian crises in history. Bana has lost her best friend, her school, her home, and her homeland. But she has not lost her hope—for herself and for other children around the world who are victims and refugees of war and deserve better lives. Dear World is a powerful reminder of the resilience of the human spirit, the unconquerable courage of a child, and the abiding power of hope. It is a story that will leave you changed.
703: How I Lost More Than a Quarter Ton and Gained a Life
Nancy Makin - 2010
Nancy Makin weighed an astounding 703 pounds in May 2000. She was forty-five years old and had diabetes and heart disease. Thanks in equal parts to shame and logistics, she'd been homebound for a dozen years. But all that changed after a gift from her sister: a computer. A technophobe, Nancy ignored it for months, until finally boredom and curiosity pushed her into cyberspace. And there, in a chat room, she found the friendliness, the support, and even the love she'd been missing for so long. Nobody flinched when Nancy spoke up; people treated her with the same respect accorded to everybody else. Thanks to these emotional connections, Nancy's life was transformed. She followed no diet plan; no pills, potions or ab-crunching exercises played a part. There was no silver bullet, no magical, elusive ingredient-and yet today Nancy has lost more than 530 pounds. Nancy's tale is one of redemption, a story of reevaluating her worth and insisting she had value simply because she was human. It will show a growing America that life is sweet and always worth living.
The Horse Boy: A Father's Quest to Heal His Son
Rupert Isaacson - 2009
But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected? THE HORSE BOY is the dramatic and heartwarming story of that impossible adventure. In Mongolia, the family found undreamed of landscapes and people, unbearable setbacks, and advances beyond their wildest dreams. This is a deeply moving, truly one-of-a-kind story--of a family willing to go to the ends of the earth to help their son, and of a boy learning to connect with the world for the first time.
Death's Acre: Inside the Legendary Forensic Lab the Body Farm Where the Dead Do Tell Tales
William M. Bass - 2003
Bill Bass, one of the world's leading forensic anthropologists, gained international attention when he built a forensic lab like no other: The Body Farm. Now, this master scientist unlocks the gates of his lab to reveal his most intriguing cases-and to revisit the Lindbergh kidnapping and murder, fifty years after the fact.
Struck by Genius: How a Brain Injury Made Me a Mathematical Marvel
Jason Padgett - 2014
Water pours from the faucet in crystalline patterns, numbers call to mind distinct geometric shapes, and intricate fractal patterns emerge from the movement of tree branches, revealing the intrinsic mathematical designs hidden in the objects around us.Yet Padgett wasn’t born this way. Twelve years ago, he had never made it past pre-algebra. But a violent mugging forever altered the way his brain works, giving him unique gifts. His ability to understand math and physics skyrocketed, and he developed the astonishing ability to draw the complex geometric shapes he saw everywhere. His stunning, mathematically precise artwork illustrates his intuitive understanding of complex mathematics.The first documented case of acquired savant syndrome with mathematical synesthesia, Padgett is a medical marvel. Struck by Genius recounts how he overcame huge setbacks and embraced his new mind. Along the way he fell in love, found joy in numbers, and spent plenty of time having his head examined. Like Born on a Blue Day and My Stroke of Insight, his singular story reveals the wondrous potential of the human brain.www.struckbygenius.com
The Invisible Kingdom: Reimagining Chronic Illness
Meghan O'Rourke - 2022
Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
When Death Becomes Life: Notes from a Transplant Surgeon
Joshua D. Mezrich - 2019
Joshua Mezrich creates life from loss, transplanting organs from one body to another. In this intimate, profoundly moving work, he illuminates the extraordinary field of transplantation that enables this kind of miracle to happen every day.When Death Becomes Life is a thrilling look at how science advances on a grand scale to improve human lives. Mezrich examines more than one hundred years of remarkable medical breakthroughs, connecting this fascinating history with the inspiring and heartbreaking stories of his transplant patients. Combining gentle sensitivity with scientific clarity, Mezrich reflects on his calling as a doctor and introduces the modern pioneers who made transplantation a reality—maverick surgeons whose feats of imagination, bold vision, and daring risk taking generated techniques and practices that save millions of lives around the world.Mezrich takes us inside the operating room and unlocks the wondrous process of transplant surgery, a delicate, intense ballet requiring precise timing, breathtaking skill, and at times, creative improvisation. In illuminating this work, Mezrich touches the essence of existence and what it means to be alive. Most physicians fight death, but in transplantation, doctors take from death. Mezrich shares his gratitude and awe for the privilege of being part of this transformative exchange as the dead give their last breath of life to the living. After all, the donors are his patients, too.When Death Becomes Life also engages in fascinating ethical and philosophical debates: How much risk should a healthy person be allowed to take to save someone she loves? Should a patient suffering from alcoholism receive a healthy liver? What defines death, and what role did organ transplantation play in that definition? The human story behind the most exceptional medicine of our time, Mezrich’s riveting book is a beautiful, poignant reminder that a life lost can also offer the hope of a new beginning.
The Shapeless Unease: A Year of Not Sleeping
Samantha Harvey - 2020
She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).
Like a Mother: A Feminist Journey Through the Science and Culture of Pregnancy
Angela Garbes - 2018
. . . A badass, feminist, and personal deep-dive into the science and culture of pregnancy and early motherhood that debunks myths and dated assumptions, offering guidance and camaraderie to women navigating one of the biggest and most profound changes in their lives.Like most first-time mothers, Angela Garbes was filled with questions when she became pregnant. What exactly is a placenta? How does a body go into labor? Why is breast best? What are the signs and effects of post-partum depression?But as she discovered, it’s not easy to find satisfying answers. Your OB will cautiously quote statistics; online sources will scare you with conflicting and often inaccurate information; and even the most trusted books will offer information with a heavy dose of judgment. To educate herself, the food and culture writer embarked on an intensive journey of exploration, diving into the scientific mysteries and cultural myths that surround motherhood to find answers to her questions that had only previously been given through a lens of what women ought to do—instead of allowing them the freedom to choose the right path themselves.In Like a Mother, Angela offers a rigorously researched and compelling look at the physiology, biology, chemistry, and psychology of pregnancy and motherhood, informed by research, reportage, and her own experience. With a journalist’s curiosity and discipline, a mother’s urgency, and a food writer’s insatiability, she explores the science behind the pressing questions women have about a number of subjects, including postpartum hormones, breast milk, and miscarriage.Infused with candor and humor, born out of awe, appreciation, and understanding of the human body and its workings, Like a Mother is a full-frontal look at what’s really happening underneath your skin (and to it), and why women need to know.
Where Do I Begin?: Stories (I Sort of Remember) from a Life Lived Out Loud
Elvis Duran - 2019
But his success didn’t happen overnight. Elvis spent years navigating the wild world of radio as a DJ for hire, working (and partying) in markets around the country before taking over the morning shift at the legendary Z100 in 1996. Over the last twenty years, he has become one of New York City’s signature voices (Variety calls him “a permanent fixture of the area’s daily commutes”) thanks to his show’s exciting mix of music, new artist discovery, interviews, gossip, and live listener interaction. Along the way, Elvis has become known not just for his incisive interviews (and occasional feuds) with pop music’s biggest stars, but for the show’s commitment to kindness and positivity and Elvis’s own candor and openness with his audience. Bold, funny, and totally candid, Where Do I Begin? is sure to be loved by anyone who listens to Elvis live every morning—or anyone who wants to know what really goes on behind the scenes of the pop music machine from the “man who has been as big a part of the industry’s success as anyone” (Ryan Seacrest).
The Red Devil : A Memoir About Beating The Odds
Katherine Russell Rich - 1999
Hailed by critics nationwide and winner of two 1999 Books for a Better Life Awards, this book shares the author's bold tale of illness, joy, mortality, and the improbable triumph of love in the midst of despair.
The Immortal Life of Henrietta Lacks
Rebecca Skloot - 2010
She was a poor Southern tobacco farmer who worked the same land as her enslaved ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine. The first “immortal” human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. If you could pile all HeLa cells ever grown onto a scale, they’d weigh more than 50 million metric tons—as much as a hundred Empire State Buildings. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave.Now Rebecca Skloot takes us on an extraordinary journey, from the “colored” ward of Johns Hopkins Hospital in the 1950s to stark white laboratories with freezers full of HeLa cells; from Henrietta’s small, dying hometown of Clover, Virginia — a land of wooden quarters for enslaved people, faith healings, and voodoo — to East Baltimore today, where her children and grandchildren live and struggle with the legacy of her cells.Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family — past and present — is inextricably connected to the history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah, who was devastated to learn about her mother’s cells. She was consumed with questions: Had scientists cloned her mother? Did it hurt her when researchers infected her cells with viruses and shot them into space? What happened to her sister, Elsie, who died in a mental institution at the age of fifteen? And if her mother was so important to medicine, why couldn’t her children afford health insurance?Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
Feeding My Mother: Comfort and Laughter in the Kitchen as My Mom Lives with Memory Loss
Jann Arden - 2017
Funny how time works. Since her dad died in 2015, Jann cooks for her mom five or six times a week. Her mom finds comfort in her daughter's kitchen, not just in the delicious food but also just sitting with her as she cooks. And Jann finds some peace in caring for her mom, even as her mom slowly becomes a stranger. If you told me two years ago that I'd be here, Jann writes, I wouldn't have believed it. And yet we still fall into so much laughter, feel so much insane gladness and joy. It's such a contrast from one minute to the next and it teaches me constantly: it makes me stronger and more humble and more empathetic and caring and kind. The many people who are dealing with a loved one who is losing it will find inspiration and strength in Jann's wholehearted, loving response and her totally Jann take on the upside-down world of a daughter mothering her mother. Feeding My Mother is one heck of an affirmation that life just keeps on keeping on, and a wonderful example of how you have to roll with it.
The Deep Places: A Memoir of Illness and Discovery
Ross Douthat - 2021
It left him sleepless, crippled, wracked with pain--a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which according to CDC definitions does not actually exist: the chronic form of Lyme disease, a hotly contested condition that devastates the lives of tens of thousands of people but has no official recognition--and no medically approved cure.From a rural dream house that now felt like a prison, Douthat's search for help takes him off the map of official medicine, into territory where cranks and conspiracies abound and patients are forced to take control of their own treatment and experiment on themselves. Slowly, against his instincts and assumptions, he realizes that many of the cranks and weirdos are right, that many supposed hypochondriacs are victims of an indifferent medical establishment, and that all kinds of unexpected experiences and revelations lurk beneath the surface of normal existence, in the places underneath.The Deep Places is a story about what happens when you are terribly sick and realize that even the doctors who are willing to treat you can only do so much. Along the way, Douthat describes his struggle back toward health with wit and candor, portraying sickness as the most terrible of gifts. It teaches you to appreciate the grace of ordinary life by taking that life away from you. It reveals the deep strangeness of the world, the possibility that the reasonable people might be wrong, and the necessity of figuring out things for yourself. And it proves, day by dreadful day, that you are stronger than you ever imagined, and that even in the depths there is always hope.