Sugar Surfing: How to manage type 1 diabetes in a modern world


Stephen W. Ponder - 2015
     An excerpt from Chapter 4 – A Force For Change “… In the grand scheme of diabetes self-management, I explain to patients and families that I (the doctor) don’t “manage” anyone’s diabetes. My role is more like that of a coach, occasional cheerleader, mentor, and at times role model I suppose. It truly is the sum of your choices; not mine or your doctor’s. Simply receiving diabetes education is often not enough. I see a three step process at work, and often times we barely get past the frst step. What we call “diabetes education” is intended to result in understanding on the part of the person(s) receiving it. But that is not the fnal element. Understanding should translate into behavior or actions for the education “loop” to be intact. There are many highly intelligent and understanding individuals in the criminal justice system who are well educated and understand all too well their actions, even the illegal ones. So what does all this have to do with using a CGM? In my opinion, it means all the difference in the world. It morphs a CGM device from a simple high or low blood alarm system (not a bad thing by itself) into the key for unlocking a vast new universe of diabetes self-realization that could once only be dreamed about. Basic diabetes self-care can be drawn as a decision loop. This loop is actually being executed daily by most persons with diabetes albeit often in a mindless fashion. Turning this chore into a more mindful action loop transforms this into an incredible tool for attaining the best blood sugar control possible for you. Like any loop, Sugar Surfing has no beginning or end. I tend to jump in at the point I call “monitoring”. This embodies many inputs both measurable and subjective. Most of us think of the act of measuring a blood sugar level with a meter or CGM device. But it’s more than that. It’s also being “in the moment”. That means being aware of recent, current and impending actions that are known to affect the ebb and fow of blood sugar levels in the body. Since blood sugar levels can be unpredictable, staying “in the moment” is a about the only approach that works for anticipating, or at least quickly reacting to unexpected shifts in BG. Once the status of the system (your body) has been sized up, either through the act of measuring a glucose level or glancing at the screen of your CGM device (or both), the next step is to analyze what is going on. This involves pulling in memories of recent actions (last insulin dose, most recent bout of exercise, what and how much was eaten (or will be soon) and more. The analysis step is where all of the little inputs come together for a final determination which is the next step: decision- making. Deciding is prioritizing one or more actions based on all the possible actions. The one that seems to be the best option is placed at the top of the list to be acted upon. Back up options are most likely numerous, but an initial action is required. The fnal part of our loop is execution: the act of following through on our decision. Immediately afterwards we are moving back into monitoring to determine the effect of our action and then modifying it as needed. You are probably saying “I already do this” and you would be right. But as has been written about by many authors, many of our decisions are mindless as opposed to mindful. This loop is a skill as much as it is a process. And as such, skills are practicable and can improve over time, or grow rusty with disuse.

Pumping Insulin: Everything You Need for Success with an Insulin Pump


John Walsh - 2000
    

Growing Up Again: Life, Love and Oh Yeah, Diabetes


Mary Tyler Moore - 2009
     Growing Up Again is a delightfully candid read for her legion of fans, the more than 20 million Americans with diabetes, and everyone struggling to cope with life’s unexpected challenges.Mary Tyler Moore, actress and activist, relates the highs and lows of living with type 1 diabetes for the past forty years. With inspired, well-crafted prose, she drills down to the most heartfelt, yet universal truths about life—including the lives of those with diabetes. She unflinchingly chronicles her struggle with diabetes, as well as her successful rehabilitation from alcohol dependence, all while deriving gratification from her roles as an actress, mother, businesswoman, campaigner, and fund-raiser. Her revealing tales of both her successes and failures in coping with diabetes offer others with the disease guidance and inspiration through example. In the book, stories include her rebounding from a low-blood-sugar episode during a Mary Tyler Moore Show script reading after the director poured orange juice down her throat, to misadventures caused by diabetes-related vision impairment at a dimly lit party for John Travolta.She also taps into the vast diabetes research network to talk to diabetic children and adults and with leading experts who are discovering new ways to control diabetes and its complications, and pursuing new ways to cure this disease.

Life Is Short, Laundry Is Eternal: Confessions of a Stay-at-Home Dad


Scott Benner - 2013
    Learn what motivates a man to pursue this noble occupation. Discover the countless joys and periodic sorrows that come with raising a family.Witness the life and family of Scott Benner, author, activist, humorist, and 12-year stay-at-home dad. When Scott’s daughter, Arden, was diagnosed with type 1 diabetes at the age of two, his world took a sharp turn, but his positive outlook on life did not waver.Scott’s colloquial wisdom will warm your heart while it challenges your ideas about parenting and gender roles in today’s household. Written from a truly unique point of view in a style both poignant and playful, Life Is Short, Laundry Is Eternal is an honest portrait of the modern family.

Far from the Tree: Parents, Children, and the Search for Identity


Andrew Solomon - 2012
    He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.

Diabetes Burnout: What to Do When You Can't Take It Anymore


William H. Polonsky - 1999
    It's easy to get discouraged, frustrated, and burned out. Here's an author that understands the emotional rollercoaster and gives you the tools you need to keep from being overwhelmed, addressing such issues as dealing with friends and family, and how you can better handle the stress for better health. Written with compassion and a sprinkle of humor.

Being Mortal: Medicine and What Matters in the End


Atul Gawande - 2014
    But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering.Gawande, a practicing surgeon, addresses his profession's ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person's last weeks or months may be rich and dignified.

Elle & Coach: Diabetes, the Fight for My Daughter's Life, and the Dog Who Changed Everything


Stefany Shaheen - 2015
    Stefany Shaheen takes readers on an emotional journey as she tries everything to manage her daughter Elle's deadly and unpredictable disease, all while juggling a family of four children. Overcoming the skepticism that a dog can provide answers that medical science is still seeking, the family finds a resounding sense of peace and reassurance through Coach's near miraculous abilities as a medic-alert dog, specially trained to detect dangerous changes in blood sugar levels. Elle & Coach is a story of determination and finding hope in the most unlikely of places.

The Patient in Room Nine Says He's God


Louis M. Profeta - 2008
    The late-night passing of a beloved aunt summons a childhood bully who shows up minutes later, after twenty-five years, to be forgiven and to heal a broken doctor. This ER doctor finds God's opposite in: a battered child's bruises covered over by make-up, a dying patient whose son finally shows up at the end to reclaim the man's high-top sneakers, the rich or celebrity patients loaded with prescription drugs from doctor friends who end up addicted. But, his real outrage is directed at our cavalier treatment of the elderly, If you put a G-tube in your 80-year-old mother with Alzheimer's because she's no longer eating, you will probably have a fast track to hell.

Life's Work: A Moral Argument for Choice


Willie Parker - 2017
    Willie Parker grew up in the Deep South, lived in a Christian household, and converted to an even more fundamentalist form of Christianity as a young man. But upon reading an interpretation of the Good Samaritan in a sermon by Dr. Martin Luther King, Jr., he realized that in order to be a true Christian, he must show compassion for all women regardless of their needs. In 2009, he stopped practicing obstetrics to focus entirely on providing safe abortions for the women who need help the most—often women in poverty and women of color—and in the hot bed of the pro-choice debate: the South. He soon thereafter traded in his private practice and his penthouse apartment in Hawaii for the life of an itinerant abortion provider, focusing most recently on women in the Deep South. In Life’s Work, Dr. Willie Parker tells a deeply personal and thought-provoking narrative that illuminates the complex societal, political, religious, and personal realities of abortion in the United States from the unique perspective of someone who performs them and defends the right to do so every day. He also looks at how a new wave of anti-abortion activism, aimed at making incremental changes in laws and regulations state by state, are slowly chipping away at the rights of women to control their own lives. In revealing his daily battle against mandatory waiting periods and bogus rules governing the width of hallways, Dr. Parker uncovers the growing number of strings attached to the right to choose and makes a powerful Christian case for championing reproductive rights.

The Sugarless Plum: A Ballerina's Triumph Over Diabetes


Zippora Karz - 2009
    Zippora Karz was a member of the famed New York City Ballet by the age of eighteen. By twenty she was starring as the Sugar Plum Fairy in The Nutcracker, dancing roles created by Jerome Robbins, and traveling the world.It was the stuff dreams are made of until, at age twenty-one, Karz became exhausted, dizzy and excessively thirsty. Heavy pancake makeup covered the sores under her arms that would not heal, but she neglected to go to the doctor. When she finally did, she was diagnosed with diabetes, and learned that if she continued to ignore her symptoms, she risked heart disease, stroke, kidney failure, blindness and amputation of her toes, feet and legs. She struggled to get the correct diagnosis and treatment, first thinking she had Type-2 diabetes, when in fact she had Type 1, juvenile diabetes. Once placed on an insulin regimen to regulate her blood sugar, she would inject herself with unsafe doses before going on stage in misguided attempts to obtain peak performance. The potentially fatal result of Karz's self-experimentation became all too real when she nearly lost consciousness. Her weight dropped and she became dangerously ill.Balancing ballet and her blood sugar would be a long and difficult struggle for Karz, but eventually she learned to value her body and work with it, rather than rage at its limitations. In The Sugarless Plum, Karz shares her journey from denial, shame and miseducation about her illness to how she led an active, balanced and satisfying life as an insulin-dependent diabetic and soloist with one of the world's most famous ballet companies. Through her fascinating story, those struggling with diabetes and other serious illnesses can find encouragement and inspiration as well as practical advice on achieving physical and emotional wellness.After sixteen years with the New York City Ballet, Karz retired and took her passion and skills into a whole new arena as a diabetes educator and advocate, where today she inspires people to not just manage their illness, but to thrive and fulfill their passions. The Sugarless Plum takes readers deep into the heart and soul of a young dancer, and is a remarkable testament to determination and perseverance.

Sick Girl


Amy Silverstein - 2007
    Amy chronicles her harrowing medical journey from the first misdiagnosis to her astonishing recovery after her heart transplant, which is made all the more dramatic by the romantic bedside courtship with her future husband, and her uncompromising desire to become a mother. She presents a patient's perspective of life after a heart transplant with honesty.

The Lady's Handbook for Her Mysterious Illness


Sarah Ramey - 2020
    Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.The Lady's Handbook for Her Mysterious Illness is a memoir with a mission, to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.Ramey's pursuit of a diagnosis and cure for her own mysterious illness is a medical mystery that she says reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connection to the state of our microbiomes.

High Price: A Neuroscientist's Journey of Self-Discovery That Challenges Everything You Know About Drugs and Society


Carl L. Hart - 2013
    At the same time, he was immersed in street life. Today he is a cutting-edge neuroscientist—Columbia University's first tenured African American professor in the sciences—whose landmark, controversial research is redefining our understanding of addiction.In this provocative and eye-opening memoir, he recalls his journey of self-discovery and weaves his past and present. Hart goes beyond the hype of the antidrug movement as he examines the relationship among drugs, pleasure, choice, and motivation, both in the brain and in society. His findings shed new light on common ideas about race, poverty, and drugs, and explain why current policies are failing.Though Hart escaped neighborhoods that were dominated by entrenched poverty and the knot of problems associated with it, he has not turned his back on his roots. Determined to make a difference, he tirelessly applies his scientific research to help save real lives. But balancing his former street life with his achievements today has not been easy—a struggle he reflects on publicly for the first time.A powerful story of hope and change, of a scientist who has dedicated his life to helping others, High Price will alter the way we think about poverty, race, and addiction—and how we can effect change.

Dr. Bernstein's Diabetes Solution: The Complete Guide to Achieving Normal Blood Sugars


Richard K. Bernstein - 1997
    BERNSTEIN'S DIABETES SOLUTION is a unique resource that covers both adult- and childhood-onset diabetes, explains step-by-step how to normalize blood sugar levels and prevent or reverse complications, and offers detailed guidelines for establishing a treatment plan. Readers will find fifty gourmet recipes, in addition to a comprehensive discussion of diet, obesity, and new drugs to curb carbohydrate craving and overeating.Now in its fourth edition, the book presents up-to-the-minute information on insulin resistance, blood-testing devices, measuring blood sugar, new types of insulin, gastroparesis and other issues, as well as updated diet guidelines. DR. BERNSTEIN'S DIABETES SOLUTION is the one book every diabetic must own.