A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.

    From practical to playful, 156 awesome things every new father needs to know--one step at a time. In a series of nearly wordless, highly informative, often hilariously illustrated, step-by-step activities, dads-to-be learn how to do dozens of useful (and fascinating and important and sometimes surprisingly fun) tasks, including: - Preparing to impregnate - Recognizing the signs of pregnancy - Childproofing a home - Delivering a baby in the subway - Handling diaper disasters - Making bath time fun - Inventing a fairy tale - Mixing formula the right way - Making baby laugh . . . and much, much more. Presented in the bold visual style of the award-winning Show Me How series, drawing on the best of information technology and graphic-novel communication, this is a innovative reference book that can and will be enjoyed as a work of art and as a quirky, thoughtful gift. Packed with useful hands-on tutorials, Show Dad How is a real-life resource that can turn dad into an expert in any situation, from the bedroom to the kitchen to the playground.

    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

    Geoffrey Kurland was a busy man. His work as a Pediatric Pulmonologist, caring for children with lung diseases such as cystic fibrosis and asthma, led to long hours on the wards at the University of California, Davis Medical Center. At the same time, he was in the midst of training for the Western States Endurance Run, a grueling 100-mile long footrace across the wilderness of the Sierra Nevada Mountains. His long training runs, the responsibilities of patient care and teaching, and relationships attempting to replace his departed girlfriend occupied most of his life. Dr. Kurland’s ordered world is suddenly turned upside-down when he is diagnosed with Hairy Cell Leukemia, a rare blood cancer with a low survival rate. His work, his running, and his friendships are altered by his struggle to survive. He finds he must undergo many of the procedures he performed on his patients, must endure surgery and chemotherapy, and must relinquish control of his life to his physicians, surgeons, and his disease. He learns first-hand what cannot be taught in medical school about the consuming power of a chronic illness and its treatment.Confronting his own mortality, Dr. Kurland is now the patient while remaining a physician and runner. With the support of his physicians at the Mayo Clinic, the University of California, and the University of Pittsburgh, he resolves to continue to live his life despite his potentially fatal disease. He discovers his personal inner strengths as well as weaknesses as he struggles to confront his illness and regain some of the control he lost to it. Along his nearly two and a half year journey, we follow Dr. Kurland as he endures surgical procedures, chemotherapy, and life-threatening complications of his illness. He emerges into remission with new inner strength and understanding of what it means to be a doctor. He also finds that he is still a runner, with the same goal, to run the 100 miles across the Sierra Mountains.REVIEWS: “Taut, dramatic, and intensely real…Very well written.” --Oliver Sacks, the best selling author of SEEING VOICES and HALLUCINATIONS"[MY OWN MEDICINE] should be required reading for every medical professional. Kurland never asks for sympathy or pity. [...] What comes through powerfully is his humanity, which his own bout with illnesses has clearly enhanced, and from which both his patients and his readers will benefit." --THE NEW YORK TIMES"While training as a pediatric pulmonologist, Kurland told a patient, 'I know how you feel'; years later, when he was diagnosed with a rare form of leukemia, he discovered just how untrue this was. [...] The way in which serious illness alters one's sense of self and of life is compellingly expressed in this energetic, nervy narrative, as Kurland's illness and eventual recovery collide with a host of profound shifts—a big career move, the death of a colleague, an unravelling relationship with his girlfriend, and a deepening one with his parents." --THE NEW YORKER"MY OWN MEDICINE is rich in detail, enhanced by the author's skillful handling of the narrative...The book depicts a man who, faced with the painful reality of his own mortality, acknowledges his condition and gears himself to face the challenge." --PITTSBURGH POST-GAZETTE
“The story of Kurland’s battle with a disease that almost took his life is compelling and poignant. Unlike other chroniclers of illness, however, Kurland is a physician caring for critically ill children. Perhaps it is inevitable that his observations on life, death, and suffering should be so informed by his work. The result is a narrative that is both unique and deeply insightful.

    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

    Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

    Meredith Norton chronicles every step of her experience, starting with her bizarre symptoms while living in Paris to moving back home to California and living with her compulsive parents and their five television sets. Irreverent and incredibly funny, Norton rails against self-pity and victimhood and rants about the innumerable copies of Lance Armstrong’s cancer survival book pressed on her by well-meaning family and friends. Alongside the harrowing portrait of her treatments, Norton offers equally amusing memories from her offbeat life. We see her childhood time during a somewhat racist ski trip, a family reunion at a Florida alligator farm, and her life in a tree house with a neighbor, who, despite being vegan, hates mice enough to taxidermy them into miniature versions of racecar drivers, Jesus, a UPS delivery man, and Sally Jesse Raphael. Like David Sedaris and Augusten Burroughs, Norton’s razor-sharp wit is at once riotous and excruciating. Lopsided is the remarkable debut of a masterful humorist.

    And Kasia would know. Her illness keeps her home for days at a time, with little to do but watch the world from her bedroom window. So when she witnesses what looks like a kidnapping, she's not sure she can believe her own eyes...So she sets out to find the only other witness. The girl in the window across the street. The girl who was also watching when things went down.But what Kasia discovers shocks her more than the kidnapping itself.There is no girl.

    Nutrition and Functional Medicine expert and bestselling author, Dr. Mindy Pelz, has helped thousands of women just like you reset their health during their turbulent menopause years. Join her as she reconnects you to your more vibrant and youthful self. In this book you will learn: -What hormone changes are causing your symptoms and proven strategies for fixing them. -How you can quickly put an end to your symptoms without the use of medications. -The best way to stop your menopause memory loss. -Unstick your metabolism and finally, lose the extra weight for good. -How to slow the aging process and keep yourself forever young. You don't have to suffer through these years! For the first time in print, Dr. Mindy outlines her transformational Menopausal Reset program which has helped thousands of women get their lives back. Hope is here! Get your copy today!

    She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."

    Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived--they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness.Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals.Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

    In addition to offering a clear-eyed explanation of the root causes of this insidious and entrenched bias and laying out its effects, she suggests concrete steps we can take to cure it.

    The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive. This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author. It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.

    Take heart. You are not alone, although sometimes it can feel that way.Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care.Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

    This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones.From the book: ""I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.""You Don't LOOK Sick! addresses practical aspects of chronic illness, such as: hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for changeIn You Don't LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited. From the authors: "I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones."--Joy H. Selak"My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications."--Dr. Steven Overman The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at JoyWrites@austin.rr.com.