Because We Are Bad: OCD and a Girl Lost in Thought


Lily Bailey - 2016
    She had killed someone with a thought, spread untold disease, and ogled the bodies of other children. Only by performing an exhausting series of secret routines could she make up for what she’d done. But no matter how intricate or repetitive, no act of penance was ever enough.Beautifully written and astonishingly intimate, Because We Are Bad recounts a childhood consumed by obsessive compulsive disorder. As a child, Bailey created a second personality inside herself—"I" became "we"—to help manifest compulsions that drove every minute of every day of her young life. Now she writes about the forces beneath her skin, and how they ordered, organized, and urged her forward. Lily charts her journey, from checking on her younger sister dozens of times a night, to "normalizing" herself at school among new friends as she grew older, and finally to her young adult years, learning—indeed, breaking through—to make a way for herself in a big, wide world that refuses to stay in check.Charming and raw, harrowing and redemptive, Because We Are Bad is an illuminating and uplifting look into the mind and soul of an extraordinary young woman, and a startling portrait of OCD that allows us to see and understand this condition as never before.

Beyond the High Blue Air


Lu Spinney - 2017
    . ." He lands hard on the ice and falls into a coma. This begins the erratic loss -- Miles first in a coma and then trapped in a fluctuating state of minimal consciousness -- that unravels over the next five years. Spinney, her husband, and three other children put their lives on hold to tend to Miles at various hospitals and finally in a care home. They hold out hope that he will be returned to them. With blunt precision, Spinney chronicles her family's intimate experience. This is a story about ambiguous loss: the disappearance of someone who is still there. Three quarters of the way through, however, Spinney's story takes a turn. The family and, to the degree that he can communicate, Miles himself come to view ending his life as the only possible release from the prison of his body and mind. Spinney, cutting her last thread of hope, wishes for her son to die. And yet, even as she allows this difficult revelation to settle, she learns that this is not her decision to make. Because Miles is diagnosed as a being in a -minimally conscious state- rather than a -persistent vegetative state, - there is no legal way to bring about his death, a bewildering paradox that Spinney navigates with compassion and wisdom. Encompassing the lyrical revelations of a memoir like Jean-Dominique Bauby's THE DIVING BELL AND THE BUTTERFLY and the crucial medical and moral insights of a book such as Atul Gawande's BEING MORTAL, Lu Spinney's BEYOND THE HIGH BLUE AIR is at once a portrait of the fearlessness of familial love and the profound dilemma posed by modern medicine.

Preemie: Lessons in Love, Life, and Motherhood


Kasey Mathews - 2012
    But what seemed a perfect life was shattered when she went into labor four months early, delivering her one-pound, eleven-ounce daughter, Andie.The first time Kasey was wheeled into the Neonatal Intensive Care Unit (NICU), nothing prepared her for what she saw: a tiny, fragile baby in a tangle of tubes and wires. All at once, Kasey was confronted with a new and terrifying reality that would test the limits of love, family, and motherhood.In this riveting, honest, and often humorous memoir, Preemie chronicles the journey of one tiny baby’s tenacious struggle to hold on to life and the mother who ultimately grew with her. From hospital waiting rooms to the offices of alternative practitioners, from ski slopes to Symphony Hall, Kasey tries to make meaning of her daughter’s birth and eventually comes to learn that gifts come in all sizes and all forms, and sometimes... right on time.