Book picks similar to
Finding Ben: A Mother's Journey Through the Maze of Asperger's by Barbara LaSalle
autism
non-fiction
memoir
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Until I Say Goodbye: A Book about Living
Susan Spencer-Wendel - 2012
She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."
Beautiful Boy: A Father's Journey Through His Son's Addiction
David Sheff - 2007
Before Nic became addicted to crystal meth, he was a charming boy, joyous and funny, a varsity athlete and honor student adored by his two younger siblings. After meth, he was a trembling wraith who lied, stole, and lived on the streets. David Sheff traces the first warning signs: the denial, the three a.m. phone calls—is it Nic? the police? the hospital? His preoccupation with Nic became an addiction in itself. But as a journalist, he instinctively researched every treatment that might save his son. And he refused to give up on Nic.
The Winter of Our Disconnect
Susan Maushart - 2010
But it will also challenge you to take stock of your own family connections, to create a media ecology that encourages kids - and parents - to thrive.When journalist and commentator Susan Maushart first decided to pull the plug on all electronic media at home, she realised her children would have sooner volunteered to go without food, water or hair products. At ages 14, 15 and 18, her daughters and son didn’t use media. They inhabited media. Just exactly as fish inhabit a pond. Gracefully. Unblinkingly. And utterly without consciousness or curiosity as to how they got there. Susan’s experiment with her family was a major success and she found that having less to communicate with, her family is communicating more.At the simplest level, The Winter of Our Disconnect is the story of how one family survived six months of wandering through the desert, digitally speaking, and the lessons learned about themselves and technology along the way. At the same time, their story is a channel to a wider view - into the impact of new media on the lives of families, into the very heart of the meaning of home.
Against Medical Advice
James Patterson - 2008
From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.
Finding Me: A Decade of Darkness, a Life Reclaimed - A Memoir of the Cleveland Kidnappings
Michelle Knight - 2014
Michelle was a young single mother when she was kidnapped by a local school bus driver named Ariel Castro. For more than a decade afterward, she endured unimaginable torture at the hand of her abductor. In 2003 Amanda Berry joined her in captivity, followed by Gina DeJesus in 2004. Their escape on May 6, 2013, made headlines around the world.Barely out of her own tumultuous childhood, Michelle was estranged from her family and fighting for custody of her young son when she disappeared. Local police believed she had run away, so they removed her from the missing persons lists fifteen months after she vanished. Castro tormented her with these facts, reminding her that no one was looking for her, that the outside world had forgotten her. But Michelle would not be broken.In Finding Me, Michelle will reveal the heartbreaking details of her story, including the thoughts and prayers that helped her find courage to endure her unimaginable circumstances and now build a life worth living. By sharing both her past and her efforts to create a future, Michelle becomes a voice for the voiceless and a powerful symbol of hope for the thousands of children and young adults who go missing every year.
A Regular Guy: Growing Up with Autism
Laura Shumaker - 2008
It answers the many questions that people have about autism through the story of Matthew's life spanning from babyhood to young adulthood. A Regular Guy illustrates the many ways in which family, friends and strangers are touched by Matthew's desperate desire to be a regular guy, and how his brutal honesty and social awkwardness bring out the best and worst in people in touching and humorous ways. In turn, A Regular Guy leads readers to love and accept Matthew, quirks and all, and inspires them to understand and tolerate the differences in others.
A Brother's Journey
Richard B. Pelzer - 2000
I am more afraid of her than ever...I get in more trouble for anything I do or say. Now I find that I'm always in trouble and I don't know why. Now that David is gone, I'm afraid that she will try to kill me, like she tried to kill him. I'm afraid that she will treat me like an animal like she did him. I'm afraid that now I'm her IT. The Pelzer family's secret life of fear and abuse was first revealed in Dave Pelzer's inspiring New York Times bestseller, A Child Called "It," followed by The Lost Child and A Man Called Dave. Here, for the first time, Richard Pelzer tells the courageous and moving story of his abusive childhood. From tormenting his brother David to becoming himself the focus of his mother's wrath to his ultimate liberation-here is a horrifying glimpse at what existed behind closed doors in the Pelzer home. Equally important, Richard Pelzer's touching account is a testament to the strength of the human heart and its capacity to triumph over almost unimaginable trauma.
The World's Strongest Librarian: A Memoir of Tourette's, Faith, Strength, and the Power of Family
Josh Hanagarne - 2013
Although he wouldn't officially be diagnosed with Tourette Syndrome until his freshman year of high school, Josh was six years old and onstage in a school Thanksgiving play when he first began exhibiting symptoms. By the time he was twenty, the young Mormon had reached his towering adult height of 6'7" when — while serving on a mission for the Church of Latter Day Saints — his Tourette's tics escalated to nightmarish levels.Determined to conquer his affliction, Josh underwent everything from quack remedies to lethargy-inducing drug regimes to Botox injections that paralyzed his vocal cords and left him voiceless for three years. Undeterred, Josh persevered to marry and earn a degree in Library Science. At last, an eccentric, autistic strongman — and former Air Force Tech Sergeant and guard at an Iraqi prison — taught Josh how to "throttle" his tics into submission through strength-training.Today, Josh is a librarian in the main branch of Salt Lake City's public library and founder of a popular blog about books and weight lifting—and the proud father of four-year-old Max, who has already started to show his own symptoms of Tourette's.The World's Strongest Librarian illuminates the mysteries of this little-understood disorder, as well as the very different worlds of strongman training and modern libraries. With humor and candor, this unlikely hero traces his journey to overcome his disability — and navigate his wavering Mormon faith — to find love and create a life worth living.
Girls Like Us
Rachel Lloyd - 2011
Vulnerable yet tough, she eventually ended up a victim of commercial sexual exploitation. It took time and incredible resilience, but finally, with the help of a local church community, she broke free of her pimp and her past. Three years later, Lloyd arrived in the United States to work with adult women in the sex industry and soon founded her own nonprofit GEMS, Girls Educational and Mentoring Servicesto meet the needs of other girls with her history. She also earned her GED and won full scholarships to college and a graduate program. Today Lloyd is executive director of GEMS in New York City and has turned it into one of the nation's most groundbreaking nonprofit organizations. In Girls Like Us, Lloyd reveals the dark, secretive world of her past in stunning cinematic detail. And, with great humanity, she lovingly shares the stories of the girls whose lives she has helped; small victories that have healed her wounds and made her whole. Revelatory, authentic, and brave, Girls Like Us is an unforgettable memoir.
An Innocent, a Broad
Ann Leary - 2004
Ann, in her second trimester of pregnancy, looked forward to a carefree mini-vacation in England before the onset of motherhood. Denis saw his upcoming appearance on a BBC comedy program as the opportunity he needed to rocket his career forward. Although they had packed for only two nights, it would be five long months before they would be able to return to the United States.Ann's premature labor began the morning after the couple arrived in London and she suddenly found herself an unwitting yet grateful hostage of Britain's National Health Service -- a stranger in a strange land, abruptly plunged into a world of breast pumps and midwives, blood oxygen levels, mad cow disease, and poll-tax riots. Desperately worried about the health of their tiny, prematurely born son, Jack, Ann struggled to adapt to motherhood and make sense of a very different culture while, simultaneously, Denis found himself an overnight sensation on London's comedy scene.At once an intimate family memoir, a lively travelogue, a touching love story, an inside look at the entertainment industry, and a side-splitting comedy of errors, Ann Leary's An Innocent, a Broad is an utterly engaging and unforgettable look at the bizarre twists and hairpin turns one can encounter on the road of life -- whether that road winds through a familiar neighborhood or a frustratingly foreign land.
My Lobotomy: A Memoir
Howard Dully - 2007
Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.
In a Different Key: The Story of Autism
John Donvan - 2016
Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<
Schuyler's Monster: A Father's Journey with His Wordless Daughter
Robert Rummel-Hudson - 2008
Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
Next Stop: A Memoir of Family
Glen Finland - 2012
The summer David Finland was twenty-one, he and his mother rode the Washington, D.C., metro trains. Every day. The goal was that if David could learn the train lines, maybe David could get a job. And then maybe he could move out on his own. And then maybe his parents' marriage could get the jump-start it craved. Maybe. "Next Stop "is a candid portrait of a differently-abled young man poised at the entry to adulthood. It recounts the complex relationship between a child with autism and his family, as he steps out into the real world alone for the first time, and how his autism affects everyone who loves him.
King Peggy: An American Secretary, Her Royal Destiny, and the Inspiring Story of How She Changed an African Village
Peggielene Bartels - 2012
King Peggy has the sweetness and quirkiness of The No. 1 Ladies' Detective Agency series and the hopeful sense of possibility of Half the Sky. King Peggy chronicles the astonishing journey of an American secretary who suddenly finds herself king to a town of 7,000 souls on Ghana's central coast, half a world away. Upon arriving for her crowning ceremony in beautiful Otuam, she discovers the dire reality: there's no running water, no doctor, and no high school, and many of the village elders are stealing the town's funds. To make matters worse, her uncle (the late king) sits in a morgue awaiting a proper funeral in the royal palace, which is in ruins. The longer she waits to bury him, the more she risks incurring the wrath of her ancestors. Peggy's first two years as king of Otuam unfold in a way that is stranger than fiction. In the end, a deeply traditional African town has been uplifted by the ambitions of its headstrong, decidedly modern female king. And in changing Otuam, Peggy is herself transformed, from an ordinary secretary to the heart and hope of her community.