Book picks similar to
The Power of Two: A Twin Triumph Over Cystic Fibrosis by Isabel Stenzel Byrnes
memoir
chronic-illness
cf-books
memoirs
Beyond the High Blue Air
Lu Spinney - 2017
. ." He lands hard on the ice and falls into a coma. This begins the erratic loss -- Miles first in a coma and then trapped in a fluctuating state of minimal consciousness -- that unravels over the next five years. Spinney, her husband, and three other children put their lives on hold to tend to Miles at various hospitals and finally in a care home. They hold out hope that he will be returned to them. With blunt precision, Spinney chronicles her family's intimate experience. This is a story about ambiguous loss: the disappearance of someone who is still there. Three quarters of the way through, however, Spinney's story takes a turn. The family and, to the degree that he can communicate, Miles himself come to view ending his life as the only possible release from the prison of his body and mind. Spinney, cutting her last thread of hope, wishes for her son to die. And yet, even as she allows this difficult revelation to settle, she learns that this is not her decision to make. Because Miles is diagnosed as a being in a -minimally conscious state- rather than a -persistent vegetative state, - there is no legal way to bring about his death, a bewildering paradox that Spinney navigates with compassion and wisdom. Encompassing the lyrical revelations of a memoir like Jean-Dominique Bauby's THE DIVING BELL AND THE BUTTERFLY and the crucial medical and moral insights of a book such as Atul Gawande's BEING MORTAL, Lu Spinney's BEYOND THE HIGH BLUE AIR is at once a portrait of the fearlessness of familial love and the profound dilemma posed by modern medicine.
Stories from the Tenth-Floor Clinic: A Nurse Practitioner Remembers
Marianna Crane - 2018
In Stories from the Tenth-Floor Clinic, Marianna Crane chases out scam artists and abusive adult children, plans a funeral, signs her own name to social security checks, and butts heads with her staff―two spirited older women who are more well-intentioned than professional―even as she deals with a difficult situation at home, where the tempestuous relationship with her own mother is deteriorating further than ever before. Eventually, however, Crane maneuvers her mother out of her household and into an apartment of her own―but only after a power struggle and no small amount of guilt―and she finally begins to learn from her older staff and her patients how to juggle traditional health care with unconventional actions to meet the complex needs of a frail and underserved elderly population.
Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body
Martin Pistorius - 2011
But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.
It Takes a Worried Man
Brendan Halpin - 2002
On October 7, he sat down to begin writing about what happens to a man who fears that his best friend might leave him forever. While his wife’s condition is always in his thoughts, Halpin’s memoir focuses more on the day-to-day, moment-to-moment concerns of a young English teacher forced into the role of temporary single parent to his young daughter, forced to test his relationship with his wife, and forced to face his own fears. It Takes a Worried Man brilliantly skewers everyone from medical professionals to family members and details how work, pop music, and movies about flesh-eating zombies helped to save Halpin’s sanity. His rants about popular culture, God, and children’s birthday parties add levity and a fast pace to the narrative.
Captives among the Indians: Firsthand Narratives of Indian Wars, Customs, Tortures, and Habits of Life in Colonial Times
Horace Kephart - 2015
This work was reproduced from the original artifact, and remains as true to the original work as possible. Therefore, you will see the original copyright references, library stamps (as most of these works have been housed in our most important libraries around the world), and other notations in the work. This work is in the public domain in the United States of America, and possibly other nations. Within the United States, you may freely copy and distribute this work, as no entity (individual or corporate) has a copyright on the body of the work.As a reproduction of a historical artifact, this work may contain missing or blurred pages, poor pictures, errant marks, etc. Scholars believe, and we concur, that this work is important enough to be preserved, reproduced, and made generally available to the public. We appreciate your support of the preservation process, and thank you for being an important part of keeping this knowledge alive and relevant.
Tell Me Everything You Don't Remember: The Stroke That Changed My Life
Christine Hyung-Oak Lee - 2017
By that afternoon, she saw the world—quite literally—upside down. By New Year’s Day, she was unable to form a coherent sentence. And after hours in the ER, days in the hospital, and multiple questions and tests, her doctors informed her that she had had a stroke. For months afterward, Lee outsourced her memories to a journal, taking diligent notes to compensate for the thoughts she could no longer hold on to. It is from these notes that she has constructed this frank and compelling memoir.In a precise and captivating narrative, Lee navigates fearlessly between chronologies, weaving her childhood humiliations and joys together with the story of the early days of her marriage; and then later, in painstaking, painful, and unflinching detail, the account of her stroke and every upset—temporary or permanent—that it caused. Lee illuminates the connection between memory and identity in an honest, meditative, and truly funny manner, utterly devoid of self-pity. And as she recovers, she begins to realize that this unexpected and devastating event has provided a catalyst for coming to terms with her true self—and, in a way, has allowed her to become the person she’s always wanted to be.
Thunder Dog: The True Story of a Blind Man, His Guide Dog, and the Triumph of Trust at Ground Zero
Michael Hingson - 2011
Trust. Triumph.I trust Roselle with my life, every day. She trusts me to direct her. And today is no different, except the stakes are higher. Michael HingsonFirst came the boom the loud, deep, unapologetic bellow that seemed to erupt from the very core of the earth. Eerily, the majestic high-rise slowly leaned to the south. On the seventy-eighth floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. What should have been a normal workday for thousands of people. All that was known to the people inside was what they could see out the windows: smoke and fire and millions of pieces of burning paper and other debris falling through the air.Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle. However, Roselle sat calmly beside him. In that moment, Michael chose to trust Roselle's judgment and not to panic. They are a team.Thunder Dog allows you entry into the isolated, fume-filled chamber of stairwell B to experience survival through the eyes of a blind man and his beloved guide dog. Live each moment from the second a Boeing 767 hits the north tower, to the harrowing stairwell escape, to dodging death a second time as both towers fold into the earth.It's the 9/11 story that will forever change your spirit and your perspective. Thunder Dog illuminates Hingson's lifelong determination to achieve parity in a sighted world, and how the rare trust between a man and his guide dog can inspire an unshakable faith in each one of us.
To Heaven and Back: The True Story of a Doctor's Extraordinary Walk with God
Mary C. Neal - 2011
Mary Neal's walk with God has been both ordinary and extraordinary, brimming with the gift and privilege of being touched by God in visible and very tangible ways. She is a practicing orthopaedic surgeon, a wife, and a mother who has experienced joy as well as great sorrow and death. She experienced life after death and, despite her scientific training, she believes the answer to each one of these questions is a definitive yes. She drowned on a South American river and went to Heaven. She conversed with angels. She returned to Earth, in part, to tell her story to others and help them find their way back to God. In this book , Dr. Neal shares the captivating details of her life in which she has experienced not just one miracle, but many. Her story is both compelling and thought provoking. Her experiences provide confirmation that miracles still occur, shows how God keeps His promises and why there is sufficient reason to live by faith. Dr. Neal's message is fundamentally one of hope.
No Sense of Direction
Eric Raff - 2001
With a sharp eye for detail and a keen sense of humor, Eric Raff recounts what its like to hit the road with no plan and no destination.If you've ever thought of giving it all up to take off and travel, No Sense of Direction might just give you the incentive to do it.
Confessions of an Air Ambulance Doctor
Tony Bleetman - 2013
The first of its kind to carry doctors and surgeons who can take the hospital to the patient. Drug addicts, lorry crashes, open-heart surgery, stab wounds, headless chickens, mating llamas, and strip routines - it's all in a day's work for emergency doctor Tony Bleetman and his team.Whether they are landing in the middle of the M1 or at a maximum security jail, Tony and his crew Helimed 999 are the first on the scene in the most critical of emergencies.This gripping read will make you laugh, cry and marvel at the wonders of life (and death) in equal measure.
The Deep Places: A Memoir of Illness and Discovery
Ross Douthat - 2021
It left him sleepless, crippled, wracked with pain--a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which according to CDC definitions does not actually exist: the chronic form of Lyme disease, a hotly contested condition that devastates the lives of tens of thousands of people but has no official recognition--and no medically approved cure.From a rural dream house that now felt like a prison, Douthat's search for help takes him off the map of official medicine, into territory where cranks and conspiracies abound and patients are forced to take control of their own treatment and experiment on themselves. Slowly, against his instincts and assumptions, he realizes that many of the cranks and weirdos are right, that many supposed hypochondriacs are victims of an indifferent medical establishment, and that all kinds of unexpected experiences and revelations lurk beneath the surface of normal existence, in the places underneath.The Deep Places is a story about what happens when you are terribly sick and realize that even the doctors who are willing to treat you can only do so much. Along the way, Douthat describes his struggle back toward health with wit and candor, portraying sickness as the most terrible of gifts. It teaches you to appreciate the grace of ordinary life by taking that life away from you. It reveals the deep strangeness of the world, the possibility that the reasonable people might be wrong, and the necessity of figuring out things for yourself. And it proves, day by dreadful day, that you are stronger than you ever imagined, and that even in the depths there is always hope.
Tales from the Tail End: Adventures of a Vet in Practice
Emma Milne - 2012
Mother Father Deaf: Living Between Sound and Silence
Paul Preston - 1994
These children grow up between two cultures, the Hearing and the Deaf, forever balancing the worlds of sound and silence. Paul Preston, one of these children, takes us to the place where Deaf and Hearing cultures meet, where families like his own embody the conflicts and resolutions of two often opposing world views. Based on 150 interviews with adult hearing children of deaf parents throughout the United States, Mother Father Deaf examines the process of assimilation and cultural affiliation among a population whose lives incorporate the paradox of being culturally "Deaf" yet functionally hearing. It is rich in anecdote and analysis, remarkable for its insights into a family life normally closed to outsiders.
Don't Trade the Baby for a Horse: And Other Ways to Make Your Life a Little More Laura Ingalls Wilder
Wendy McClure - 2012
In Don’t Trade the Baby for a Horse, she shares what she learned from her crash course in “Lauraology,” along with her fiercely rekindled—even deepened—love for the series. McClure found that her encounters with the world of Little House proved instructive; after all, Laura’s world wasn’t all horehound candy and pig-bladder balloons. Somewhere between wandering in the Big Woods and wading through Plum Creek, McClure absorbed many notable lessons in “the Laura experience.” In Don’t Trade the Baby for a Horse, she recommends scores of tips, tricks, and observations gleaned in her pioneer pilgrimage, from the surprising intelligence of muskrats to the wonders of home-churned butter and the fierceness of bustles. Clever, warm and hilarious, Don’t Trade the Baby for a Horse is the definitive guide to living your life on the Wilder side—and essential reading for any fan of the Little House books.
The Lives Our Mothers Leave Us: Prominent Women Discuss the Complex, Humorous, and Ultimately Loving Relationships They Have with Their Mothers
Patti Davis - 2009
No matter what a woman achieves in her life, no matter how old she gets or whether or not she herself becomes a mother, she is always and forever a daughter. The Women Whose Stories Are Included . . .Patti Davis Anne RiceCarolyn See Marg HelgenbergerMelissa Gilbert Carnie WilsonRosanna Arquette Mariel HemingwayAnna Quindlen Angelica HustonMary Kay Place Ruby DeeFaye Wattleton Julianne MarguliesLily Tomlin Diahann CarrollCandice Bergen Marianne WilliamsonLorna Luft Whoopie GoldbergAlice Hoffman Cokie RobertsKathy SmithLinda Bloodworth Thomason