Twenty-one-year-old Laura Rothenberg has always tried to live a normal life--even with lungs that betray her, and a sober awareness that she may not live to see her next birthday. Like most people born with cystic fibrosis, the chronic disease that affects lungs and other organs, Rothenberg struggles to come to grips with a life that has already been compromised in many ways. Sometimes healthy and able to go to school, other times hospitalized for months on end, Rothenberg finds solace in keeping a diary. In her writing, she can be open, honest, and irreverent, like the young person she is. Yet mixed in with this voice is an incredible maturity about her mortality. The memoir opens with Rothenberg's decision to accept a lung transplant. From the waiting--and all it implies to the surgery, recovery, and her new life, Rothenberg muses on mortality in journal entries and poetry. Through it all, she reveals a will and temperament that is strong and wise despite her years. Laura Rothenberg's story, recorded and shared on NPR's Radio Diaries, was awarded the prestigious Third Coast Audio Festival Award, it also received an unprecedented listener response and generated more e-mail than any other story the producers could recall. Rothenberg's story was also featured in the New York Times and U.S. News & World Report.

    An intelligent account of one man's experiences of mental illness and institutions: a rare insight into a hidden world.

    Aquamarine Blue 5 details the struggle of these highly sensitive students and shows that there are gifts specific to autistic students that enrich the university system, scholarship, and the world as a whole.Dawn Prince-Hughes presents an array of writings by students who have been diagnosed with Asperger’s Syndrome or High-Functioning Autism, showing their unique ways of looking at and solving problems. In their own words, they portray how their divergent thinking skills could be put to great use if they were given an opportunity. Many such students never get the chance because the same sensitivity that gives them these insights makes the flicker of fluorescent lights and the sound of chalk on the board unbearable For simple—and easily remedied—reasons, we lose these students, who are as gifted as they are challenged.Aquamarine Blue 5 is a showcase of the strength and resilient character of individuals with Asperger’s Syndrome. It will be an invaluable resource for those touched by this syndrome, their friends and families, and school administrators.

    Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.The Lady's Handbook for Her Mysterious Illness is a memoir with a mission, to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.Ramey's pursuit of a diagnosis and cure for her own mysterious illness is a medical mystery that she says reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connection to the state of our microbiomes.

    But work takes a strange turn when she is promoted onto the Pfizer account and suddenly finds herself on the other side of the curtain, developing ads for an anti-depressant drug. Overwhelmed by her professional life and the self-scrutiny it inspires, her mania takes hold. She quits her job to become an artist, only to be hospitalized by her parents against her will. Over the course of her two weeks in the ward, she tries to find a path out of the hospital and this cycle of treatment. One where she can live the life she wants, finding freedom and autonomy, without sacrificing her dreams in order to stay well.

    In my younger years I avoided that subject, be it in literature or in entertainment, whenever I possibly could. That was not easy. Television was full of programs in which Germans looked stupid and heinous. My own children watched these things with glee; I fled into another room. Since I have always read a lot, I was at least aware of the avalanche of books that were published about the Holocaust. Still, I kept my blinkers on. I firmly told myself that it was not my business, since I was just a child during that time. Sooner or later such an attitude will have to come to an end. It did for me after I fled a difficult marriage and finally began to examine my life. This was a slow process, aided by a patient psychiatrist. Now, years later, I want to write about my life and about the conflicted feelings such a search will cause in a woman of German nationality.

    At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark — it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits — inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal.Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human.

    . ." He lands hard on the ice and falls into a coma. This begins the erratic loss -- Miles first in a coma and then trapped in a fluctuating state of minimal consciousness -- that unravels over the next five years. Spinney, her husband, and three other children put their lives on hold to tend to Miles at various hospitals and finally in a care home. They hold out hope that he will be returned to them. With blunt precision, Spinney chronicles her family's intimate experience. This is a story about ambiguous loss: the disappearance of someone who is still there. Three quarters of the way through, however, Spinney's story takes a turn. The family and, to the degree that he can communicate, Miles himself come to view ending his life as the only possible release from the prison of his body and mind. Spinney, cutting her last thread of hope, wishes for her son to die. And yet, even as she allows this difficult revelation to settle, she learns that this is not her decision to make. Because Miles is diagnosed as a being in a -minimally conscious state- rather than a -persistent vegetative state, - there is no legal way to bring about his death, a bewildering paradox that Spinney navigates with compassion and wisdom. Encompassing the lyrical revelations of a memoir like Jean-Dominique Bauby's THE DIVING BELL AND THE BUTTERFLY and the crucial medical and moral insights of a book such as Atul Gawande's BEING MORTAL, Lu Spinney's BEYOND THE HIGH BLUE AIR is at once a portrait of the fearlessness of familial love and the profound dilemma posed by modern medicine.

    Nothing is impossible when one digs deep,and looks at students through a new lens.

    July 26, 1990 - present: Joe Balzer fights for redemption and to regain all that he has lost. Flying Drunk is his story.Since he was a young boy, Joe Balzer dreamed of flying. He pursued his goal with a vigorous passion and earned his pilot licenses, piling up hours of flight time with a wide variety of planes and jets with one overarching goal: to one day fly for a major airline. But Joe had a problem. He was an alcoholic and refused to admit to himself that he had a problem.His alcoholism caught up with him in March 1990, when Joe was arrested with two other pilots for flying a commercial airliner while under the influence of alcohol. His world began crumbling around him and his new marriage faced the ultimate test. He lost his promising career and his dignity. Every major media outlet, including The New York Times, Newsweek, and Time Magazine covered the shocking story for the stunned American flying public. The trial that followed drained Joe's life's savings and federal prison nearly broke him. Flying Drunk is Joe's bittersweet and thoroughly chilling memoir of his twisted journey to a Federal courtroom, his time in the notorious Federal penitentiary system in Atlanta, and his struggle to recapture all that he held dear.Today, Joe is a recovering alcoholic, celebrating more than nineteen years of sobriety. The long road back from perdition led him to American Airlines, where good people and a great organization recognized a talented pilot who had cleaned up his act and was ready to fly again, safely.Flying Drunk is an incredible journey of the human spirit, from childhood to hell, and back again. Everyone should read and heed its message of hope and redemption. No one who does will ever forget it.

    He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.

    But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of today’s most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).

    Quickly falling in love with the rush of being a paratrooper with the 101st Airborne, he believed his service would honorably help the South Vietnamese protect their country from the ruthless communist North and their Southern allies. But once in the volatile jungles of Vietnam, the merciless hunting and killing of the enemy, constant threat of landmines and booby traps, ambushes that could easily backfire, and deaths of his comrades made Stillman question how any man—if he survived—could ever return to his life as he’d known it. Written with John’s daughter, Lori Stillman, Jumping from Helicopters is a vivid and moving memoir that unearths fifty years of repressed memories with stunning accuracy and raw details. Interwoven with the author’s own journal entries and including thirty-five photographs, it is a story that will open your eyes to what these brave young men witnessed and endured, and why they returned facing a lifetime of often unspoken unrest, persistent nightmares, and forced normalcy, haunting even the strongest of soldiers.

    Her inspiring narrative offers compelling insights into daily life with Elijah's Asperger's syndrome and her own 'shadow syndrome', which affects many family members of autistics. It is also a celebration of the idiosyncratic beauty of the Asperger mind and the sense of mutual support and self-respect in the ASD community.This revised edition includes a contribution from Elijah and a new chapter that brings the story up-to-date: the author successfully sets up a specialist educational unit for Asperger pupils, Elijah experiences his first two years of school, and the author's dawning recognition of her own Asperger's Syndrome leads to major life changes.Elijah's Cup offers moving and insightful observations as well as factual information for parents and anyone working with people with ASDs.

    In the process, she founded The Miracle Project, a groundbreaking organization that uses the performing arts to connect with children with autism. Both controversial and unorthodox, Hall's innovative approach has been praised by leaders in the field of autism, including Temple Grandin, Barry Prizant, and Dr. Stanley Greenspan. She was also the subject of the Emmy Award-winning documentary Autism: The Musical. Hall now speaks around the country sharing her wisdom. Now I See the Moon is a story of hope, faith, and miracles; it is a story only a mother could tell.