But within a year she’d developed an intestinal illness so rare she wound up in a medical journal. Janet navigated misdiagnosis, multiple surgeries, and life with a permanent colostomy. Like many female patients her concerns were glossed over by doctors. She was young and insecure, major liabilities in her life as a patient. How would she advocate for low-income people when she couldn’t even advocate for herself? Janet’s model for assertiveness was her friend Beth. She was the kind of friend who’d accompany you to the doctor when you got dysentery in Ecuador, nonchalantly translating the graphic details of your symptoms into Spanish. Throughout Janet’s illness Beth took care of her; then she developed brain cancer and their roles reversed. Eventually Janet recovered, but Beth’s condition worsened. At the age of 38, Beth died. To cope, Janet competed in endurance events, becoming a triathlete with a colostomy pouch. With themes that echo Susannah Cahalan’s 'Brain on Fire' and Gail Caldwell’s 'Let’s Take the Long Way Home', GUTS is a story of resilience for the millions of Americans who manage to thrive while living with a chronic condition, as well as the many who’ve lost a loved one at a young age.

    Her husband having died of heart disease, Martha Weinman Lear articulates her feelings toward the medical treatment, her personal strengths and weaknesses, and how she survived her own fears.

    His brilliant mind, which saw him building power stations and literally bringing light into the lives of others, has succumbed to darkness.As Robyn settles back in the rhythms of life in the rain-soaked vast Welsh valleys, she keeps a diary charting her journey as the dad she knew disappears before her eyes. Lyrical, poignant and with flashes of brilliant humour, My Mad Dad explores how in helping others we can heal ourselves. 'At some point the cared for become the carers...this isn't a shame and it isn't a tragedy and it isn't a chore. It is an honour. To be able to return the gift of love that someone bestows upon you is a gift in itself. This is a story of caring...'

    He was struck with denial, fear, depression, and anger, and now he's battling back. Graced with strong values, courage, and hard-won wisdom, he shares his insights in this powerful book on the divergent roads a life can take, and recounts how he rose to meet the challenges he's faced. Surprising, searing, and deeply personal, Climbing Higher is as honest and inspiring as its author.

    But what seemed a perfect life was shattered when she went into labor four months early, delivering her one-pound, eleven-ounce daughter, Andie.The first time Kasey was wheeled into the Neonatal Intensive Care Unit (NICU), nothing prepared her for what she saw: a tiny, fragile baby in a tangle of tubes and wires. All at once, Kasey was confronted with a new and terrifying reality that would test the limits of love, family, and motherhood.In this riveting, honest, and often humorous memoir, Preemie chronicles the journey of one tiny baby’s tenacious struggle to hold on to life and the mother who ultimately grew with her. From hospital waiting rooms to the offices of alternative practitioners, from ski slopes to Symphony Hall, Kasey tries to make meaning of her daughter’s birth and eventually comes to learn that gifts come in all sizes and all forms, and sometimes... right on time.

    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

    After her son, Zachary, dies in her arms at birth, visual artist and author Alexis Marie Chute disappears into her “Year of Distraction.” She cannot paint or write or tap into the heart of who she used to be, mourning not only for Zachary, but also for the future they might have had together. It is only when Chute learns she is pregnant again that she sets out to find healing and rediscover her identity—just in time, she hopes, to welcome her next child. In the forty weeks of her pregnancy, Chute grapples with her strained marriage, shaken faith, and medical diagnosis, with profound results. Glowing with riveting and gorgeous prose, Expecting Sunshine chronicles the anticipation and anxiety of expecting a baby while still grieving for the child that came before—enveloping readers with insightful observations on grief and healing, life and death, and the incredible power of a mother’s love.Second Edition includes: Bonus chapter written from the author’s husband’s perspective. Plus, resource section, group discussion questions, and Q&A with author Alexis Marie Chute

    But then her son came to her with a real one…Josiah was nineteen with the world at his feet when things changed. Without warning, the new university student’s mental health deteriorated to the point that he planned his own death. His mother, bestselling author Amanda Prowse, found herself grappling for ways to help him, with no clear sense of where that could be found. This is the book they wish had been there for them during those dark times.Josiah’s situation is not unusual: the statistics on student mental health are terrifying. And he was not the only one suffering; his family was also hijacked by his illness, watching him struggle and fearing the day he might succeed in taking his life.In this book, Josiah and Amanda hope to give a voice to those who suffer, and to show them that help can be found. It is Josiah’s raw, at times bleak, sometimes humorous, but always honest account of what it is like to live with depression. It is Amanda’s heart-rending account of her pain at watching him suffer, speaking from the heart about a mother’s love for her child.For anyone with depression and anyone who loves someone with depression, Amanda and Josiah have a clear message—you are not alone, and there is hope.

    When overnight success came to the Pointer Sisters in 1973, they all thought it was the answer to their long-held prayers. While it may have served as an introduction to the good life, it also was an introduction to the high life of limos, champagne, white glove treatment, and mountains of cocaine that were the norm in the high-flying '70s and '80s. Ruth Pointer’s devastating addictions took her to the brink of death in 1984. Ruth Pointer has bounced back to live a drug- and alcohol-free life for the past 30 years and she shares how in her first biography. Readers will learn about the Pointer Sisters’ humble beginnings, musical apprenticeship, stratospheric success, miraculous comeback, and the melodic sound that captured the hearts of millions of music fans. They will also come to understand the five most important elements in Ruth’s story: faith, family, fortitude, fame, and forgiveness.

    A musical, kaleidoscopic meditation, Poet Warrior reveals how Harjo came to write poetry of compassion and healing, poetry with the power to unearth the truth and demand justice.Weaving together the voices that shaped her, Harjo listens to stories of ancestors and family, the poetry and music that she first encountered as a child, the teachings of a changing earth, and the poets who paved her way. She explores her grief at the loss of her mother and sheds light on the rituals that nourish her as an artist, mother, wife, and community member. Moving fluidly among prose, song, and poetry, Poet Warrior is a luminous journey of becoming that sings with all the jazz, blues, tenderness, and bravery that we know as distinctly Joy Harjo.

    Although she is sixteen, she weighs as much as an eight-year-old. We have tried everything the medical system has to offer – psychologists, psychiatrists, family therapists, dieticians, drugs … but nothing has worked. And now here we are, she and I, flying to the other side of the world in a last ditch effort to save her. Anorexia is a difficult thing to get people to understand. Usually they will look at me incredulously. Sometimes they will come right out and say what I know they are thinking: Why can’t you just get her to eat?Anne Tonner is a high achieving human rights lawyer and used to facing battles and winning. But when her 13-year-old daughter Chloe stops eating and is diagnosed with anorexia, she is confronted with the mother of all enemies, one that is completely unfathomable and seemingly incurable. Anne and her family throw everything they have at facing the ‘demon' they name 'Cold Vein'. But some three years later Chloe is still desperately ill and the family is in tatters. In a last ditch effort they travel across the world to attend a ground breaking- clinic in Stockholm, knowing that this might be the only chance Chloe has to survive.Beautifully and engagingly written, Anne’s depiction of the devastating effects of anorexia is honest, tough and compelling. Ultimately uplifting, this story will shed light on one of the most insidious and dangerous mental conditions afflicting modern society today.

    Gina Frangello tells the morally complex story of her adulterous relationship with a lover and her shortcomings as a mother, and in doing so, highlights the forces that shaped, silenced, and shamed her: everyday misogyny, puritanical expectations regarding female sexuality and maternal sacrifice, and male oppression." —Adrienne Brodeur, author of Wild Game Gina Frangello spent her early adulthood trying to outrun a youth marked by poverty and violence. Now a long-married wife and devoted mother, the better life she carefully built is emotionally upended by the death of her closest friend. Soon, Frangello is caught up in a recklessly passionate affair, leading a double life while continuing to project the image of the perfect family. When her secrets are finally uncovered, both her home and her identity will implode, testing the limits of desire, responsibility, love, and forgiveness. Blow Your House Down is a powerful testimony about the ways our culture seeks to cage women in traditional narratives of self-sacrifice and erasure. Frangello uses her personal story to examine the place of women in contemporary society: the violence they experience, the rage they suppress, the ways their bodies often reveal what they cannot say aloud, and finally, what it means to transgress "being good" in order to save your own life.

    It’s an inside look into the day-to-day challenges facing not only the patient, but also the caregivers. For many years, her father exhibited signs of dementia, eventually becoming too significant to ignore. Everything culminated during an incident one night, after which her father was taken away, never to return to his home again. The disease changed him every day until he was a stranger. Then, it stole his life. Through the initial days at home to hospital stays, living in a memory care unit, rehab stints and eventually hospice care, this book reveals many of the struggles encountered while facing Alzheimer’s in a world not quite ready for it. It is based on actual events depicted exactly as they happened while travelling the heartbreaking and harrowing road through this horrific illness. Its purpose is to give guidance and insight to others caring for loved ones with this terrible affliction, whether it is in providing helpful information, feelings of support or simply words of encouragement. Most importantly, the hope is that it will make the road for others an easier one to travel. May the many tears in this journey be the fortitude that helps others deal with the adversity from this overwhelming disease.

    Equal parts comical and cringe-inducing, Some Things I Did for Money is an honest reflection on the way we define work and what it means to be rich.Most of Stephanie Georgopulos's odd jobs now fall under the umbrella of writing and editing. Her work has been featured in The Guardian, Glamour, McSweeney's Internet Tendency, and more. She edits the Human Parts collection on Medium.com and delivers weekly vignettes about growing up on the internet to people's inboxes, like magic! Find her on Twitter at @omgstephlol.Cover design by Hannah Perrine Mode.Spot illustrations by Alex Cannon.

    . . . I want to have words for what my bones know."By age thirty, Stephanie Foo was successful on paper: She had her dream job as an award-winning radio producer at This American Life and a loving boyfriend. But behind her office door, she was having panic attacks and sobbing at her desk every morning. After years of questioning what was wrong with herself, she was diagnosed with complex PTSD--a condition that occurs when trauma happens continuously, over the course of years.Both of Foo's parents abandoned her when she was a teenager, after years of physical and verbal abuse and neglect. She thought she'd moved on, but her new diagnosis illuminated the way her past continued to threaten her health, relationships, and career. She found limited resources to help her, so Foo set out to heal herself, and to map her experiences onto the scarce literature about C-PTSD.In this deeply personal and thoroughly researched account, Foo interviews scientists and psychologists and tries a variety of innovative therapies. She returns to her hometown of San Jose, California, to investigate the effects of immigrant trauma on the community, and she uncovers family secrets in the country of her birth, Malaysia, to learn how trauma can be inherited through generations. Ultimately, she discovers that you don't move on from trauma--but you can learn to move with it.Powerful, enlightening, and hopeful, What My Bones Know is a brave narrative that reckons with the hold of the past over the present, the mind over the body--and examines one woman's ability to reclaim agency from her trauma.