Demystifying Disability: What to Know, What to Say, and How to Be an Ally


Emily Ladau - 2021
    But many of us–disabled and non-disabled alike–don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on important disability issues you need to know about, including: • How to appreciate disability history and identity • How to recognize and avoid ableism (discrimination toward disabled people) • How to be mindful of good disability etiquette • How to appropriately think, talk, and ask about disability • How to ensure accessibility becomes your standard practice, from everyday communication to planning special events • How to identify and speak up about disability stereotypes in mediaAuthored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience.

The Protest Psychosis: How Schizophrenia Became a Black Disease


Jonathan M. Metzl - 2010
    But a very different civil rights history evolved at the Ionia State Hospital for the Criminally Insane in Ionia, Michigan. In The Protest Psychosis, psychiatrist and cultural critic Jonathan Metzl tells the shocking story of how schizophrenia became the diagnostic term overwhelmingly applied to African American protesters at Ionia—for political reasons as well as clinical ones. Expertly sifting through a vast array of cultural documents, Metzl shows how associations between schizophrenia and blackness emerged during the tumultuous decades of the 1960s and 1970s—and he provides a cautionary tale of how anxieties about race continue to impact doctor-patient interactions in our seemingly postracial America.From the Trade Paperback edition.

Animacies: Biopolitics, Racial Mattering, and Queer Affect


Mel Y. Chen - 2012
    Chen draws on recent debates about sexuality, race, and affect to examine how matter that is considered insensate, immobile, or deathly, animates cultural lives. Toward that end, Chen investigates the blurry division between the living and the dead, or that which is beyond the human or animal. Within the field of linguistics, animacy has been described variously as a quality of agency, awareness, mobility, sentience, or liveness. Chen turns to cognitive linguistics to stress how language habitually differentiates the animate and the inanimate. Expanding this construct, Chen argues that animacy undergirds much that is pressing and indeed volatile in contemporary culture, from animal rights debates to biosecurity concerns.Chen's book is the first to bring the concept of animacy together with queer of color scholarship, critical animal studies, and disability theory. Through analyses of dehumanizing insults, the meanings of queerness, animal protagonists in recent Asian/American art and film, the lead toy panic in 2007, and the social lives of environmental illness, Animacies illuminates a hierarchical politics infused by race, sexuality, and ability. In this groundbreaking book, Chen rethinks the criteria governing agency and receptivity, health and toxicity, productivity and stillness—and demonstrates how attention to the affective charge of matter challenges commonsense orderings of the world.Mel Y. Chen is Assistant Professor of Gender and Women's Studies at the University of California, Berkeley."Animacies is a book about 'reworldings,' as Mel Y. Chen traces the myriad ways that objects and affects move through and reshape zones of possibility for political transformation and queer resistance to neoliberal biopolitics. At the same time, Animacies itself generates such transformations: grounded in a generous, expansive understanding of queer of color and disability/crip critique, Chen's study reworlds or reorients disability studies, gender and sexuality studies, critical race theory, animal studies, affect studies, and linguistics. In all of these critical spaces, Animacies might be described as the breathtaking and revivifying book we have been waiting for."—Robert McRuer, author of Crip Theory: Cultural Signs of Queerness and Disability"This ambitious transdisciplinary analysis of the relations between humans, nonhuman animals, and matter charts a compelling and innovative rethinking of the biopolitics of 'animacy.' Mel Y. Chen animates animacy, a concept of sentience hierarchy derived in linguistics, to offer a far-ranging critique that implicates disability studies, queer of color critique, and postcolonial theory. The generative result is a timely and crucial intervention that foregrounds the oft-occluded import of race and sex in the rapidly growing fields of posthumanist theory, new materialisms, and animal studies."—Jasbir K. Puar, author of Terrorist Assemblages: Homonationalism in Queer Times

Being Heumann: An Unrepentant Memoir of a Disability Rights Activist


Judith Heumann - 2020
    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

Trapped in America's Safety Net: One Family's Struggle


Andrea Louise Campbell - 2014
    She survived—and, miraculously, the baby was born healthy. But that’s where the good news ends. Marcella was left paralyzed from the chest down. This accident was much more than just a physical and emotional tragedy. Like so many Americans—50 million, or one-sixth of the country’s population—neither Marcella nor her husband, Dave, who works for a small business, had health insurance. On the day of the accident, she was on her way to class for the nursing program through which she hoped to secure one of the few remaining jobs in the area with the promise of employer-provided insurance. Instead, the accident plunged the young family into the tangled web of means-tested social assistance. As a social policy scholar, Campbell thought she knew a lot about means-tested assistance programs. What she quickly learned was that missing from most government manuals and scholarly analyses was an understanding of how these programs actually affect the lives of the people who depend on them. Using Marcella and Dave’s situation as a case in point, she reveals their many shortcomings in Trapped in America’s Safety Net. Because American safety net programs are designed for the poor, Marcella and Dave first had to spend down their assets and drop their income to near-poverty level before qualifying for help. What’s more, to remain eligible, they will have to stay under these strictures for the rest of their lives, meaning they are barred from doing many of the things middle-class families are encouraged to do: Save for retirement. Develop an emergency fund. Take advantage of tax-free college savings. And, while Marcella and Dave’s story is tragic, the financial precariousness they endured even before the accident is all too common in America, where the prevalence of low-income work and unequal access to education have generated vast—and growing—economic inequality. The implementation of Obamacare has cut the number of uninsured and underinsured and reduced some of the disparities in coverage, but it continues to leave too many people open to tremendous risk.Behind the statistics and beyond the ideological battles are human beings whose lives are stunted by policies that purport to help them. In showing how and why this happens, Trapped in America’s Safety Net offers a way to change it.

Healing Resistance: A Radically Different Response to Harm


Kazu Haga - 2020
    And yet its basic truth, its restorative power, has been forgotten. In Healing Resistance, leading Kingian Nonviolence trainer Kazu Haga blazingly reclaims the energy and assertiveness of nonviolent practice (utilized by the Women's March and Black Lives Matter), and proves that nonviolent civil resistance remains the most effective strategy for social change in hostile times. With over 20 years of experience practicing and teaching Kingian Nonviolence, Haga offers us the practical approach to societal conflict first begun by Dr. Martin Luther King Jr. during the Civil Rights Movement, which has been developed into a fully workable, step-by-step training and deeply transformative philosophy. Kingian Nonviolence takes on the timely issues of endless protest and activist burnout, and presents tried-and-tested strategies for staying resilient, creating equity, and restoring peace.

The Illness Narratives: Suffering, Healing, And The Human Condition


Arthur Kleinman - 1988
    But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring.Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.

Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature


Rosemarie Garland-Thomson - 1996
    Rosemarie Garland Thomson examines disabled figures in sentimental novels such as Harriet Beecher Stowe's Uncle Tom's Cabin and Rebecca Harding Davis's Life in the Iron Mills, African-American novels by Toni Morrison and Audre Lorde, and the popular cultural ritual of the freak show.

Crippled: Austerity and the Demonization of Disabled People


Frances Ryan - 2019
    In the age of austerity, it's disabled people who are hardest hit, affecting over 3.7 million people. This is in addition to a situation in which half of those in poverty are either disabled or living with a disabled person.In Crippled, leading commentator Frances Ryan tells the story of those most affected by this devastating regime, people who have been too often been silenced. This includes the tetraplegic living in a first floor flat forced to crawl down flights of stairs because the council doesn't provide accessible housing; the young girl forced to sleep in her wheelchair and admitted to hospital with malnutrition because cuts mean she no longer had a carer to help her get to bed or cook; or the Londoner with schizophrenia found 'fit for work', and with nothing to live on was found dead at home three months later.Through these personal stories the book shows the scale of the crisis, while also showing how the disabled community is fighting back. It is a passionate demand for the recognition of disability rights and a call for an end to austerity policies that disproportionately affect those most in need.

Academic Ableism: Disability and Higher Education


Jay Timothy Dolmage - 2017
    For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Hip Logic


Terrance Hayes - 2002
    His new work, Hip Logic, is full of poetic tributes to the likes of Paul Robeson, Big Bird, Balthus, and Mr. T, as well as poems based on the anagram principle of words within a word. Throughout, Hayes's verse dances in a kind of homemade music box, with notes that range from tender to erudite, associative to narrative, humorous to political. Hip Logic does much to capture the nuances of contemporary male African American identity and confirms Hayes's reputation as one of the most compelling new voices in American poetry.

Growing Up Disabled in Australia


Carly FindlayEmma Di Bernardo - 2020
    A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.

The New Clean


Jon Sands - 2011
    Best of all, he's packed us in his suitcase. He represents an ever-changing population of those raised elsewhere who find themselves beckoned by the history, mystique, and magic-makers of New York City. These poems inhabit their own contradictions, and exquisitely navigate the many complicated sides of what it means to be alive. About The Author: Jon Sands has been a professional teaching and performing artist since 2007. He's a recipient of the 2009 NYC-LouderARTS fellowship grant, and has represented New York City multiple times at the National Poetry Slam. He is the Director of Poetry and Arts Education Programming at the Positive Health Project, as well as a Youth Mentor with Urban Word-NYC. His work has appeared in decomP magazine, The Millions, Suss, The Literary Bohemian, Danse Macabre, The November 3rd Club, and others. He lives in New York City, where he makes better tuna salad than anyone you know.

Black Girls Don't Cry: Unveiling Our Pain and Unleashing Hope


Angelica Leigh - 2012
    It provides scriptural solutions to life altering problems such as low self-esteem, abuse, and depression. Black Girls Don’t Cry frees us from the bondage of regrets, encourages us to drop the baggage from our past, and moves us forward towards a renewed strength in Christ.